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The Waldenstrom’s Weekly

November 19, 2021

Volume 1, Issue 32

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact


2021 IWMF Educational Forum
Recordings Available for your Convenience!


Presentations Now Available for On-Demand Viewing!

Novel Treatments on the Horizon & the Importance of
Clinical Trials for Drug Development
Dr. Jorge Castillo, Dana-Farber Cancer Institute, Boston, MA
Video Here and Slides Here
WM & Peripheral Neuropathy
Dr. Shirley D’Sa, University College London Hospitals
NHS Foundation Trust, London, UK

Video Here and Slides Here


A Review of NCCN Guidelines for WM- slides now available!
Dr. Steven Treon, Dana-Farber Cancer Institute, Boston, MA
Slides Here
To see the videos and slides for ALL of the 2021 Ed Forum presentations, click HERE!

Medscape Covers the IWMF 2021 Ed Forum

2021 WMUK Patient-Doctor Summit
A note of thanks to Medscape for covering not one -but three-stories from the IWMF 2021 Virtual Educational Forum! You can click each title below to check out the stories:


The International Waldenstrom’s Macroglobulinemia Foundation has always been dedicated to supporting everyone affected by WM while advancing the search for a cure. With your support, the IWMF has funded over $20 million in WM research. This research has led to better treatment options, including two FDA approved drug therapies for WM.
We are excited to announce that the IWMF is taking unprecedented steps to support the field of Waldenstrom’s macroglobulinemia research by offering three different grant opportunities for WM researchers.
Click here to learn more about the IWMF’s exciting new research grant opportunities.


On November 14th, nineteen members of the IWMF Board of Trustees and Home Office Staff met on Zoom on behalf of the WM community. During the day, the group shared plans for how best to accomplish the mission of the IWMF in 2022. Stay tuned for many exciting things to come!

Thank you to our volunteer IWMF Board of Trustees. We are grateful for ALL you do to help the WM community around the world!


Bing-Neel International Support Group Meetings
November 21, 2021 at 12PM and 7PM U.S. ET

The IWMF will be hosting two Bing-Neel Support Group meetings on November 21. Two meeting times are available in order to have smaller groups and to accommodate many different time zones. The earlier meeting will be at 12 noon (U.S. Eastern Time, GMT-5) and the later meeting will be at 7:00pm.
The meeting format will be what’s called “Caring and Sharing” and will provide Bing-Neel patients and caregivers a chance to meet others who have a similar diagnosis from around the world.
We will also share a brief pre-recorded update from Dr. Jorge Castillo of Dana-Farber Cancer Institute. Patients who missed his earlier presentation (along with Dr. Steve Treon) may view it HERE.
The meetings will be hosted by our IWMF Bing-Neel Lifeline volunteers Julie Davidson (U.S.), Peter Freese (Australia), Stuart Quick (UK) and Eileen Sullivan (U.S., IWMF volunteer).
Registration is required for these meetings. After registering, you will receive a confirmation email containing information about joining the meeting. If you have any questions, please contact
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Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

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