IWMF Educational Forum Videos & Presentations

The 2021 IWMF Virtual Educational Forum

 

The 2021 Ed Forum was a completely virtual event. This year the entire month of October featured educational workshops culminating in our Virtual Educational Forum on October 28th and 29th. These workshops were for all members of the WM community – from newly diagnosed patients, to 25+ year WM veterans, and everyone in-between. Access the videos and presentations from these workshops below.

OCTOBER 6, 2021 – UNDERSTANDING WM WORKSHOP

WM & Basic Terminology

WM & Basic Terminology - Jeffrey Matous, MD

Getting to know the WM basics will benefit newly diagnosed patients and veteran WMers will enjoy a refresher course on Waldenstrom macroglobulinemia with an explanation of diagnosis, symptoms, and some simple treatment guidelines.


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WM & Basic Terminology

Understanding Your Blood & Bone Marrow Tests - Rafat Abonour, MD

“Understanding Your Blood and Bone Marrow Test Results” will describe the blood and bone marrow tests used to help diagnose Waldenstrom macroglobulinemia, as well as explain and interpret the typical tests used by healthcare providers to monitor the disease status of their WM patients.


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WM & Basic Terminology

Genomics/Science of WM - Sikander Ailawadhi, MD

Making sense of the science of WM sets out a framework for patients to understand the basic genetic concepts behind the mutations that are important in Waldenstom macroglobulinemia, to appreciate the ways in which these mutations impact the signaling systems that control the behavior of WM cells, and to recognize how these mutations are changing the landscape of therapies for WM.


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OCTOBER 13, 2021 – WM & SELF CARE WORKSHOP

WM & Basic Terminology

Dealing with the Stress of Medical Uncertainty - Julie Larson, LCSW

Living in the shadow of an incurable but treatable diagnosis like Waldenstrom macroglobulinemia can sometimes feel daunting. Finding the balance between monitoring your health responsibly and living life freely and fully can be a tricky dance. How do you find the courage and clarity to celebrate today when you have no guarantees of a healthy tomorrows?


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WM & Basic Terminology

WM & the Eye - Maureen Hanley, OD

An insight into normal aging versus WM-related eye issues, such as retinal changes with WM and the risks for dry eye, cataracts, and glaucoma.


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WM & Basic Terminology

Infection Prevention Strategies for WM Patients - William Branagan, MD

Many Waldenstrom macroglobulinemia patients struggle with a weakened immune system and may be at a greater risk to acquire anything from colds to stomach bugs. This presentation will explore different strategies and tips to strengthen and protect the immune system.


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OCTOBER 28, 2021 – IWMF EDUCATIONAL FORUM – DAY 1

WM & Basic Terminology

Current Treatment Options - Stephen Ansell, MD, PhD

A concise and informative review of current treatments for Waldenstrom macroglobulinemia along with the pros and cons of each.


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WM & Basic Terminology

Novel Treatments on the Horizon and the Importance of Clinical Trials for Drug Development - Jorge Castillo, MD

The latest information available about potential new treatments for Waldenstrom macroglobulinemia, as well as the necessity for patient participation in clinical trials to help move the pipeline along for more novel therapies.


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WM & Basic Terminology

WM & Peripheral Neuropathy - Shirley D’Sa, MD

Learn about different coping strategies and treatment options for those living with the pain and challenges of peripheral neuropathy. This session will address the differences between WM-caused PN versus treatment-caused PN.


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WM & Basic Terminology

WM & Dermatology - Kate Mimken, NP

An overview of the variety of dermatologic conditions that sometimes affect Waldenstom macroglobulinemia patients. Learn how to differentiate those problems that are a result of the disease itself and those which are often associated with treatments.


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WM & Basic Terminology

WM & Fatigue - Larisa Patacchiola, LICSW

An overview of cancer related fatigue presented in a way that is meaningful to Waldenstom macroglobulinemia patients. A discussion about how cancer-related fatigue and its impact on quality of life, contributing factors that can add to fatigue, and the ways in which fatigue can be managed.


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OCTOBER 29, 2021 – IWMF EDUCATIONAL FORUM – DAY 2

WM & Basic Terminology

Familial WM - Mary Lou McMaster, MD

Many people with WM have other relatives with WM, MGUS, or related blood cancers. The question of whether WM is “inherited” is a complicated one. Dr. Mary Lou McMaster (from the National Institutes of Health) will share her many years of research on the nature of familial factors in WM. She will clarify what is meant by “familial” as opposed to “genetic predisposition.” She will also discuss the role that environmental factors can play.


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WM & Basic Terminology

A Review of NCCN Guidelines for WM - Steven Treon, MD, PhD

Dr. Treon will review the NCCN guidelines. NCCN is a not-for-profit alliance of 31 leading cancer centers devoted to patient care, research, and education. The NCCN is dedicated to improving and facilitating quality, effective, efficient, and accessible cancer care so patients can live better lives.


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WM & Basic Terminology

Ask the Doctors: Live Panel with Q&A Dr. Tom Hoffmann, Moderating

Panelists: Drs. Treon, Ansell, Branagan, McMaster, Castillo, Buske

A panel of WM experts will answer, and sometimes debate, questions about Waldenstrom macroglobulinemia from the IWMF 2021 Ed Forum audience.


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WM & Basic Terminology

Advancements Through IWMF-LLS Funded Research - Gwen Nichols, MD

Dr. Gwen Nichols, Chief Medical Officer for the Leukemia and Lymphoma Society, reviews the importance of WM research and progress through IWMF-LLS funded projects.


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