Newton Guerin
IWMF President & CEO
nguerin@iwmf.com

Annette Preston
Director, Donor Engagement

Denise Douce
Director, Communications & Publications

Michelle Postek, MSW
Director, Information & Support

6144 Clark Center Ave.
Sarasota, FL 34238
Phone: 941-927-4963
Fax: 941-927-4467
office@iwmf.com

IWMF Website: https://iwmf.com

IWMF Walk for Waldenstroms: https://iwmf.com/iwmf-walk-for-waldenstroms/

Donate to IWMF: https://interland3.donorperfect.net/weblink/weblink.aspx?name=E189844&id=6

IWMF Research Strategy: https://iwmf.com/research-strategy/

Current Research Recipients: https://iwmf.com/current-research-recipients/

IWMF: Who are we?   

The answer to that question can be found in the organization’s vision, mission, and global imperatives. The following boilerplate text communicates what IWMF is about; this approved language should be used exactly as written below. 

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF), the only international organization dedicated solely to Waldenstrom’s macroglobulinemia, is a patient-founded and patient-driven nonprofit with a simple but compelling vision and mission. 

• VISION: A world without Waldenstrom’s macroglobulinemia (WM). 

• MISSION: Support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) to improve patient outcomes while advancing the search for a cure. 

What are our objectives? 

To achieve the IWMF vision and mission, we are focused on accomplishing key objectives, referred to as our GLOBAL IMPERATIVES: 

• Research: Expand leadership role to significantly increase the number, scope, and coordination of global WM research projects. 

• Patient Support:  

• Awareness: Ensure everyone affected by WM knows about the resources we offer. 

• Education and Support: Be the authoritative source for patient and caregiver education and support.  

• Healthcare Professional Awareness: Reach more patients sooner by ensuring every healthcare professional working in blood cancer is aware of the IWMF and its resources.

• Partnership: Actively pursue and develop relationships with like-minded organizations to accomplish our mission. 

• Fundraising: Significantly increase and diversify our sources of funding.

What are our values?  

As a patient-centric organization, we are driven by these shared values: 

• Behavior 

• Community: We believe in engaging the WM community by sharing information, providing support, and working together to eradicate the disease. 

• Teamwork: We work as a team that includes all WM stakeholders. 

• Integrity: We care about the WM community and commit to the highest financial and ethical standards, with transparency in all that we do. 

• Execution 

• Focus: We are fiercely dedicated to providing support and education for those affected by WM and supporting research to improve and extend lives and find a cure for the disease. 

• Collaboration: We leverage the collective passion and genius of other blood cancer organizations and the medical and research communities. 

• Accountability: We are transparent and accountable at every level to the WM community and the general public. 

 As an organization, we approach accomplishing our vision, mission, and global imperatives through the lens of these guiding values. 

What is our brand promise? 

WM is a rare disease, accounting for only 1%-2% of all blood cancers. Most community oncologists see few, if any, WM cases in their career. This rarity can result in people with WM never meeting another person with the disease, leaving them feeling isolated and alone. The IWMF addresses this head on with the organization’s brand promise, a short, but powerful statement: “WM is a rare disease, but with the IWMF you are never alone.” 

How do we describe what we do? 

We fulfill our mission and brand promise in a multitude of ways. The following page describes the organization and the services we provide. It is standardized text to be used in all newly designed publications. When you need a broad description about IWMF, please use the following as written (see below) or pick up select text as need be for your purpose.   

Note that the acronyms are defined multiple times in this example in the event that only one of the paragraphs is used. In general, use the full names with acronyms defined the first time they are used in a document:  International Waldenstrom’s Macroglobulinemia Foundation (IWMF) and Waldenstrom’s macroglobulinemia (WM). Once the acronym has been defined, you may continue to use the acronym for the remainder of that document. 

International Waldenstrom’s Macroglobulinemia Foundation

Website: iwmf.com
Email: info@iwmf.com 

Phone: 941-927-4963 • International: 001-941-927-4963 

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF), the only international organization dedicated solely to Waldenstrom’s macroglobulinemia (WM), is a patient-founded and patient-driven nonprofit with a simple but compelling vision and mission. 

IWMF is committed to creating a world without WM by finding a cure. Since 1999, IWMF has invested more than 30 million USD in WM research projects throughout the world. Thanks to this research, WM patients are living longer and have better treatment options that can lead to longer-lasting remissions with fewer side effects. 

Visit the IWMF website to: 

• Download a free Newly Diagnosed Info Pak. 

• Learn about WM and download free publications available in multiple languages. 

• Find curated resources to help support your mental, physical, and financial health. 

• Join a local IWMF support group or IWMF international affiliate. 

• Refer to the IWMF Directory of Physicians available for consultations or second opinions. 

• Subscribe to the IWMF Torch, our free quarterly magazine. 

• Participate in the annual IWMF Educational Forum or our online webinars. 

• Join IWMF Connect, an online community offering a wide variety of moderated WM-related email discussions, or the WM Support Group on Facebook. 

• Find contact information for our partner organizations. 

IWMF relies on donor contributions to fulfill its mission, and we welcome your support. You can contribute to the organization by visiting our website or by mailing a check to: 

International Waldenstrom’s Macroglobulinemia Foundation 

6144 Clark Center Avenue
Sarasota, FL 34238 

IWMF is a 501(c)(3) tax-exempt nonprofit organization, Fed ID #54-1784426  

6   WM is a rare disease, but with IWMF you are never alone.  

At times we’re asked to provide a brief description of IWMF (100-150 words), which may necessitate slight modifications to our standardized text. If you need a shorter description of the organization, you can use the following (see the visual style guide for instructions on how to use IWMF logos and QR codes:   

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF), the only international organization dedicated solely to Waldenstrom’s macroglobulinemia (WM), is a patient-founded and patient-driven nonprofit with a simple but compelling mission: Support and educate everyone affected by WM to improve patient outcomes while advancing the search for a cure.   

We support the worldwide WM community by providing education, information, and support services through our headquarter office in the US, as well as 22 international affiliates. And we advance the search for a cure by investing in cutting-edge research projects throughout the world. Since 1999, the IWMF has invested more than 30 million USD in WM research leading to better treatment options with fewer side effects and longer-lasting remissions, resulting in WM patients living longer with higher-quality lives. 

Contact us to find out more: 

Website: iwmf.com  

Email: info@iwmf.com  

Phone: 941-927-4963 • International: 001-941-927-4963 

* Please check with IWMF staff to confirm the dollar amount invested and the number of international affiliates. 

We’re in the information business; why have a medical disclaimer?  

As a nonprofit health organization, one of our most important products is accurate, unbiased health information. The need for information is usually the number one reason people affected by WM initially seek out the IWMF.  

However, it’s important to remind people that the information we provide is educational in nature, not prescriptive. As such, we include a medical disclaimer on all our publications. The following boilerplate copy should be used exactly as written.  

Medical Disclaimer: The information presented here is intended for educational purposes only. It is not meant to be a substitute for professional medical advice. Patients should use the information provided in full consultation with, and under the care of a physician with experience in the treatment of Waldenstrom’s macroglobulinemia (WM). We discourage the use by a patient of any information contained herein without disclosure to his or her medical specialist. 

There are plenty of ways to connect with the International Waldenstrom’s Macroglobulinemia Foundation on social media:

Facebook	X(Twitter)	Instagram	LinkedIn	YouTube

What is the Walk for Waldenstrom’s?

Get ready to lace up your walking shoes and join the 2024 Walk for Waldenstrom’s! This annual event has grown from humble fundraising walks to a global virtual campaign that brings together the Waldenstrom’s community during Blood Cancer Awareness Month. Whether you form a team or participate on your own, this is your chance to make a real difference.

If you would like to get involved and show your support for the Waldenstrom’s community, you can participate in a variety of ways. For the first time, we have pledged to collectively walk enough steps to circle the globe, symbolically encouraging international research partners to report their own leaps of progress. All funds raised go to our new five-year, Accelerate the Cure Campaign.

So, rally your friends, family, and colleagues, and let’s take steps toward a cure together. The 2024 Walk for Waldenstrom’s is waiting for you!