The Waldenstrom’s Weekly

September 3, 2021

Volume 1, Issue 23

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact


A Gift in Support of IWMF Research is an Investment in Your Future

This week, the U.S. Food and Drug Administration (FDA) has approved the use of Zanubrutinib for the treatment of Waldenstrom macroglobulinemia.

From IWMF Board Chair, Peter DeNardis:“The approval of Brukinsa in Waldenström’s macroglobulinemia, which is the second therapy approved specifically for the treatment of this rare type of lymphoma, is positive news for patients. Expanded treatment options offer new hope for those living with this disease and can potentially improve patient experience, especially oral therapies that can be given as a single agent.”

Read the full article by clicking here.

As you know, WM is a rare disease. While less than 10% of rare diseases have an FDA approved drug therapy, thanks in part to research funded by our community through the IWMF, there are now two FDA approved drug therapies for Waldenström macroglobulinemia!

The International Waldenstrom’s Macroglobulinemia Foundation is committed to advancing the search for a cure. We have identified new priority areas that need further research, but we need your help. You can support the work of the IWMF by making your contribution here:

IWMF Board Chair Interviewed in Healthline Article

IWMF Board Chair, Peter DeNardis, was recently interviewed in an article for Healthline, written by Jamie Reno. You can check out the informative article at the button below, titled “‘Trying to Stay Optimistic’: COVID-19 Vaccine Isn’t Producing Antibodies in Some People with Blood Cancer.”


Join us for an entire month of FREE
educational programs in October,
culminating in our Virtual Educational Forum!

How do I sign up?

  • Go to the new IWMF Virtual Events website HERE.
  • Click Register at the top right of the webpage and fill out your information to join the IWMF Virtual Events platform!

What happens once I register for the site?

  • You will receive a confirmation email once you register with important information on how to submit questions for our Ed Forum Month presenters.
  • Very soon, we will be communicating with you on how to “save your seat” for each one of our October programs that you would like to attend.

We can’t wait to see you there! For more information about what to expect at this year’s IWMF Virtual Educational Forum, click HERE to view the agenda!

Submit your questions for the IWMF Ed Forum Speakers


An exciting feature of October Ed Forum Month is that ALL presentations will be LIVE with Q&A for EACH presentation! All questions will be pre-submitted, so we want YOUR input! Please feel free to submit questions you may have for any of our speakers. Please note that due to limited time for Q&A, not all questions will be answered.
Click the blue links below ASAP to submit YOUR questions and make your voice heard during Ed Forum Month!

Dr. Edward A Stadtmauer

Last weekend, Dr. Edward A. Stadtmauer, Section Chief, Hematologic Malignancies, Penn Medicine, University of Pennsylvania, joined the IWMF PA/NJ support group meeting with special guests from DC/MD/VA. He spoke about the Covid-19 Third Vaccine and WM, the Delta Variant, best practices for staying safe and more. Enjoy his words of wisdom and a lively Q & A by clicking the button below!
**Always be sure to contact your own health care provider to discuss what approach is best for you and to make key decisions in partnership. 
Cellectar clinical trials ad

This is a paid clinical trial advertisement

Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

Sign-up for the Waldenstrom’s Weekly and get it emailed directly to your inbox!