Reach out to others for support. The IWMF Support Groups are the perfect place to talk with other people affected by WM, including patients, family members and caregivers. The groups provide mutual support and offer the opportunity to discuss concerns with others who share experiences with each other. This sharing strengthens the family bond and enhances everyone’s ability to cope with WM. Not only are Support Groups a good source of information about WM from others who are living with the disease…but you’ll make new friends!
The IWMF, with its International Affiliates, has over 60 Support Groups worldwide, including groups throughout the US, in Argentina, Australia, Canada, many countries in Europe, India, Mexico and Taiwan. The list of US and International Support Groups and contact information can be found by using the drop down menus below. You can find a list of currently scheduled Support Group meetings here.
In some areas, Regional Contacts are available where a Support Group is not feasible due to the sparse population in the region or the lack of coverage by a Support Group Leader. Regional Contacts are WM patients or caregivers who are very interested in connecting with other WMers either by telephone or email to provide support and information to assist the person in managing and living well with WM.
You can join an existing Support Group by contacting the Support Group in your area. If there is no Support Group in your local area, and you would like to start one, please contact our IWMF Support Groups Coordinator, Lisa Wise(link sends e-mail).
United States Support Groups and Regional Contacts