International Waldenstrom’s Macroglobulinemia Foundation
Sharing your story with us is a fantastic way for you to help others who are traveling down the same path that you are — whether you are a patient, caregiver, or family member— we would love to hear from you.
Patients and others who visit our website often tell us that one of their favorite features of our communications are the stories of the lives of people who are affected by WM. We would very much enjoy learning about you, your story, and how your experiences can motivate, help and inspire others we serve.
We invite you to read, enjoy, and learn from the following first-person stories by patients and caregivers, worldwide, affected by WM.
If you are interested in sharing your story with us so that we may share it with others on our website, please submit your contact details.
Finding Strength Beyond Treatment: My Ongoing Journey with Waldenstrom Macroglobulinemia Stopping Rituximab and Facing COVID My last Story of Hope was published in September 2020. At that time, I was receiving rituximab maintenance therapy...
Our WM Journey by Betty Ann and Gregg Morton This story was shared in the September 2025 issue of IWMF's Wellness Newsletter: https://conta.cc/45Rjxtj To sign up for monthly Wellness Newsletters, click here. Betty Ann: Since I was diagnosed back in...
Living a Better Life with WM When I was diagnosed with Waldenstrom macroglobulinemia (WM), I was shocked. I remember sitting in the oncologist’s office and being told that it was either multiple myeloma (MM) or WM. This wasn’t my first...
Story of Hope Update: Ed's Third Act This is an update on Ed Kemp, a member of the IWMF community, whose original Story of Hope was published in 2015, and whom we last heard from in 2020. A special thanks to Ed's daughter, Bonnie, for sharing Ed's...
Pete's Extra Innings - Collaborative Care and Breakthrough Therapies Win the Game The IWMF Home Office recently checked in with Pete Skinner, a solar engineer, to see how he was doing since we had not heard from him in a while on our IWMF CONNECT...
Peter Haarmann: Sequel to Treatment, Healing and Faith Eight years have elapsed since my diagnosis and treatment for Waldenstrom’s macroglobulinemia (WM). Today, I show no signs or symptoms of WM, so my status is considered “watch and wait.”...
From Chile- My Journey with WM: Living One Day at a Time with Faith and Hope Diagnosis: February 2014 Treatments I have had: 1) Year 2017-2018: BDR (8 cycles of Bortezomib (Velcade) + Rituximab + Dexamethasone. 2) Year 2022: B&R (6 courses of...
Peter DeNardis Story of Hope Update: There's Hope After All “Broken crayons still color.” – Toni Collier, author It’s been over 21 years now that I have been walking the cancer trail. I was diagnosed with a rare form of lymphoma (Waldenstrom’s...
Lisa Weldy: Resilient and Grateful It’s been five years since I wrote my story for IWMF. A lot has happened since then, but most importantly, my WM has remained stable, and I remain in a deep response, meaning that I have responded well to...
Tom White: Coming Full Circle Rituximab: How My Work Got Personal It all began in 1971 when, armed with a BS in Chemistry and an MBA, I began my career at Cutter Laboratories (soon to be acquired by the Bayer pharmaceutical company). At...
From Australia- David Rabie: My Story of Hope Hope is an optimistic expectation of a positive outcome for future events. Hope is more than a mere wish as hope implies a belief and confidence that positive outcomes will be attained. “Hope is a...
Introduction: A Life Full of Family and a Sudden Health Challenge I am Barbara Richter, an 86-year-old former registered nurse, and a proud mother of five children, ten grandchildren, six great-grandchildren, with an ever-growing extended family....
From Canada—Paul Kitchen's Familial WM Story Paul's mother, Mary Kitchen My story of hope began in the late 1970s when my mother, Mary Kitchen, was diagnosed with WM. Without any treatment available, her disease steadily progressed - terrible nose...
From Iceland - Gunnar Ármannsson: And the Adventure Continues The Big Repair Year 2019. I anticipated receiving chemotherapy later in the year, but that didn’t stop me from setting an ambitious running schedule–highlighted by a marathon in...
Ryan Scofield's Update: Young WMers Shared Challenges Life continues for me, with WM being low on my list of daily concerns. I have continued Ibrutinib with great success. No side effects and a disease that cowers in shame. Low IgM and normal...
At the time of my husband Mark’s diagnosis almost 14 years ago, I can easily transport back to the minute we were given the diagnosis. It felt like lead weights had been tied to my ankles and I was dropped in the middle of a dark ocean. It was all...
Chris Moakley: The Story Continues On First of all, let me say it’s a thrill to still be here and able to write and share this update. I last wrote an update five years ago, finishing with “I hope to write again soon.” My Waldenstrom’s lives up to...
Part 1: My journey The word cancer is scary enough, and adding incurable in front of it only intensified the fear. In August 2020, at the age of 34 I was diagnosed with WM. The diagnosis came out of the blue as I was a young, fit and healthy mother...
Julianne & John Flora-Tostado: Our 49th Anniversary Making the best while facing the unknown together. Seven years ago, after John completed his initial and only treatment for WM (five rounds with Cytoxin, Rituxan and Prednisone in 2016), he...
From Canada: Lucie Martineau's Six-Year Sequel When I last wrote my Story of Hope, I had so many items on my bucket list that I vowed to keep healthy in order to live a long life and accomplish as many of them as I could. In 2021, my IgM...