Stories of Hope

Bob Lynch: Still Rowing On with WM!
April 22, 2022

In August of this year, I will be celebrating my 75th birthday with a row to a local pub. Upon diagnosis of Waldenstrom Macroglobulinemia (WM), I hoped to make it to 50. The lesson: Never think small!

Julie Davidson: My Journey With WM and Bing-Neel Syndrome
April 13, 2022

Bing-Neel is an extremely rare complication of WM. For those who missed the inspirational article about Julie Davidson’s journey with Bing-Neel in the April 2022 Torch.

Arno Muller: Ninety Years Old and a 36 Year Survivor of WM
April 7, 2022

I continue to persevere.

Margit Novack: Who gets to Live Like This?
February 10, 2022

How did I get this lucky?

From Canada - Ron Ternoway: The Trials Continue!
November 24, 2021

So, you ask, is it worth it? The time, the expense, the risk, the radiation?

Julie Richardson: Where Hope is Found
September 15, 2021

Nothing in this life is guaranteed, except how fast it all goes. I don’t want to waste a single second.

Marcia Klepac: Risk Taking in the World of WM
August 19, 2021

My WM journey continues with a cutting-edge combo treatment and a solid dose of realistic hope along the way.

Davell Hays: Not an Ending but a Great New Beginning
August 13, 2021

I rarely think I have cancer.

Dr. Barbara Sunderland Manousso: Confessions of a Caregiver/Spouse/Ombuds
July 6, 2021

We’ve been to the end of the earth, but not the end of life.

From Canada - Stu Boland: What More Could I Hope For?
January 20, 2021

While I don’t think that my experience is anywhere close to being the norm, it is proof that there is hope.

Story of Hope: Anita Lawson
December 29, 2020

Undaunted and Staying Fit

My Guideposts – Bernard R Tyrrell RPh
December 2, 2020

Why is it that some little things, hardly noticed at the time, become life-changing events?

Sharon Piotrowski: My Journey with WM
September 2, 2020

For most of my life, I have practiced a healthy lifestyle. While in my 40’s, I began to exercise. Eventually, I built up the knowledge and capability to become a certified personal trainer.

Edward Kemp: Second Act
July 28, 2020

"Since 2015, my lifestyle and health have continued to both change and improve."

Kathy Horton: My Story Continues... And I Am Still Coping
July 13, 2020

It started with a minor fall in my backyard in the spring of 2006.

Lu Kleppinger: Therapy Round Two - Ibrutinib, the Freedom of a Pill!
July 3, 2020

"Once you choose HOPE, anything is possible!"

From Canada - Murray Shaw: Exercise-Elixir of Life
June 12, 2020

For me, regular moderate exercise is the elixir that keeps my WM and MDS in the background and greatly improves my quality of life.

Timothy Salz: A Song of Hope
June 3, 2020

My Waldenstrom’s (WM) story officially began in January of 2018, two days after my 70th birthday. Happy Birthday Tim! Unofficially, I believe it began many years – or possibly, even many decades – before that.

A Story of Hope: Michael Knowlton
May 14, 2020

Kindness Matters

Lisa J. Wise: "Love Letter to My Husband in Day 18 of Quarantine"
April 22, 2020

COVID-19 in the House: A Story of Hope

Peter Haarmann: Treatment, Healing and Faith
March 13, 2020

Moving from preparing my will to growing hazelnut trees.

Jennifer Hoegerman: My WM Story
February 4, 2020

Jennifer Hoegerman’s life is, by every measure, an active one filled with parental and professional commitments, volunteerism of a challenging sort, an enthusiasm for the outdoor life ...

Dr. Michael J. Smith: Resilience and Faith - A Family's Perspective
January 14, 2020

I will never forget the phone call that changed our lives. It was in the Fall of 1998...

From Chile - Jeanette Quiroz: A Waldenstrom's Pregnancy
November 1, 2019

Jeannette Quiroz underwent pregnancy testing while being tested for WM at the age of 35. To her surprise, both were confirmed.

From Australia - Life's Good for Michael van Ewijk Thanks to Ibrutinib
September 18, 2019

Michael was the first Australian to have Ibrutinib treatment and it’s been lifesaving. “My life is normal now,” said Michael, 69, of Milton in regional New South Wales.

Lisa Weldy: I'm Myself Again...After WM Took Over My Life
April 8, 2019

All WMers share a similar diagnosis, yet each has a unique journey and fight for survival. Through my journey, I am now a stronger me than I would have been otherwise.

From Iceland - Gunnar Ármannsson: "Diagnosed at age 38, running became m...
February 27, 2019

Always active and in his prime of life, it never occurred to Gunnar, until he almost passed out 14 years ago at the age of 38, that he needed to see a physician.

Ryan Scofield's Story: We're All in this Together
February 4, 2019

Ryan was a marathon runner when diagnosed in 2010 at the age of 35. He joined the IWMF Chicago Support Group and found the help he needed from others who understood.

From UK - Roger Brown: Why It Pays Never to Give Up
February 3, 2019

I was diagnosed at 53 (16 years ago) getting breathless learning to tap dance. My wife Alison noticed night sweats, tiredness and more dimwittedness than usual and thought it might be MS. I then came down with shingles and pleurisy.

Stephen French: My Twenty-Year Journey with WM
January 22, 2019

I have had a long journey with Waldenstrom’s macroglobulinemia. I have had good news and bad news during this period, but the good news has been with me for over sixteen years.

Chris Moakley: I'd Rather Have Won the Powerball
December 2, 2018

Several years ago, I was diagnosed with Waldenstrom’s macroglobulinemia (a mouthful), a rare blood cancer in the lymphoma family, closely related to leukemia.

From Australia - David Young: "Almost in Full Remission" Thanks to Zanub...
October 8, 2018

David Young read about a new clinical trial, checked its availability and spoke to a principal investigator – all while having coffee one morning last year.

Megan Davey: Our Family is Alive and Kickin’
September 27, 2018

It has been 8 years and 5 months since my husband Mark was diagnosed with a disease that the oncologist we had only met a few days earlier had to spell out.

Tom White: From Rituxan Project Team to WM Patient
September 23, 2018

During the many years that I worked on Rituxan I can honestly say that the thought never crossed my mind that I would actually become a blood cancer patient on a Rituxan regimen.

Deborah Barksdale: A Tremendous Support System has been Critical to my R...
September 23, 2018

To put my story into context, you need to know that I had been a personal trainer and a fitness instructor for many years. So, I know my body better than most.

Michael Bourgo: Staying Active, Engaged, and Resilient with WM
August 1, 2018

Diagnosed with WM in 2015 at the age of 70, in 2016 he published two books of poetry, he is writing his third book and has two more in mind.

Bob Rupert: Living with Waldenstrom's
July 23, 2018

Bob Rupert, discusses how WM has affected his life and his family, and how he approaches living with the disease.

Peter DeNardis - There is Life with Waldenstrom's
May 16, 2018

“Get your affairs in order; we have to treat immediately; average survival rate is 6 years” – those were jarring words for someone in his early 40s to hear.

From Canada - Carol Joy Patterson: Spirit of Hope Essay
May 12, 2018

My life so far has been an exciting journey, punctuated by a cascade of medical events. Never a dull moment. You don’t know how you’ll respond to bad news until you are faced with it. I’ve had plenty, but there has always been hope.

From Italy - Daniela Calamai: WM, A Family History
October 20, 2017

I decided to publicize my experience as a person suffering from Waldenström's macroglobulinemia (WM) because, regardless of the importance of sharing clinical and therapeutic aspects with other patients, my own has turned out to be one of the...

Julianne Flora-Tostado: Together We Will Figure Out What To Do
August 8, 2017

Julianne Flora-Tostado became a caregiver after 41 years of marriage and on the same week her husband retired in seemingly good health.

Martin Vanderlaan: My Stem Cell Transplant for WM Amyloidosis
July 25, 2017

I had indolent WM for twenty years, but amyloid deposits in my lung hospitalized me eighteen months ago. I discuss my experiences with Rituxan, ibrutinib, and an autologous stem cell transplant (ASCT).

From Italy - Luigi Villa's Story: Hope to Fear and Back to Hope
April 28, 2017

I waited for months before I made the decision to write this simple page about my story. I don’t know what the exact reason for my hesitation was, but I believe I was not ready or not completely convinced that I wanted to do it.

Wanda Huskins: Facing the Uncertainty of WM in Uncertain Times
February 28, 2017

"I think I feel something," murmured the nurse practitioner during a GI appointment. I was initially there to schedule a colonoscopy. Lying on the exam table I strained my head upward wondering if I could possibly see what she was feeling.

From Canada: Lucie Martineau's Journey to Stem Cell Transplant
February 17, 2017

My story begins in 2011, when I was 55 years old. I had been a professional ballerina, blessed with good health and good eating habits.