International Waldenstrom’s Macroglobulinemia Foundation

Language

Stories of Hope

Share Your Story

Sharing your story with us is a fantastic way for you to help others who are traveling down the same path that you are — whether you are a patient, caregiver, or family member— we would love to hear from you.

Patients and others who visit our website often tell us that one of their favorite features of our communications are the stories of the lives of people who are affected by WM. We would very much enjoy learning about you, your story, and how your experiences can motivate, help and inspire others we serve.

We invite you to read, enjoy, and learn from the following first-person stories by patients and caregivers, worldwide, affected by WM.

If you are interested in sharing your story with us so that we may share it with others on our website, please submit your contact details.

Bob Lynch: Still Rowing On with WM!

Bob Lynch: Still Rowing On with WM!

Bob Lynch: Still Rowing On with WM! The rowing goes on, and the singing is still strong here on the ROW BOB ROW TEAM in Sebastian, Florida. In August of this year, I will be celebrating my 75th birthday with a row to a local pub.  Upon diagnosis of...

read more
Margit Novack: Who gets to Live Like This?

Margit Novack: Who gets to Live Like This?

Margit Novack: Who gets to Live Like This? I saw my internist’s number appear on my cell phone. “There is an unusual result in your routine bloodwork. I think you should see a hematologist.” “Why? What do the results suggest?” I asked. “You might...

read more
From Canada – Ron Ternoway: The Trials Continue!

From Canada – Ron Ternoway: The Trials Continue!

From Canada - Ron Ternoway: The Trials Continue!   It's been more than 14 years since my Waldenstrom diagnosis, and I've spent half of that time on clinical trials. Over the last year, I have been enrolled in a U.S.-based clinical trial of...

read more
Julie Richardson: Where Hope is Found

Julie Richardson: Where Hope is Found

Where Hope Is Found by Julie Richardson, diagnosed with WM at age 44 www.someonestolemycoffee.com   March 13, 2020. A Friday the 13th I will never forget. On the one hand, it would turn out to be my then twelve year-old daughter’s last day of...

read more
Marcia Klepac: Risk Taking in the World of WM

Marcia Klepac: Risk Taking in the World of WM

Marcia Klepac: Risk Taking in the World of WM What a disappointment!  In early January 2001, I nervously opened the envelope with my lab results and found that my six years of MGUS (or possibly smoldering Waldenstrom’s) had most likely progressed...

read more
Davell Hays: Not an Ending but a Great New Beginning

Davell Hays: Not an Ending but a Great New Beginning

Davell Hays: Not an Ending but a Great New Beginning In the 6 years since the story of my journey was published, a lot has happened.  I have been on Ibrutinib since then, with a nearly normal IGM.  I am fairly healthy for a 73 year old. The winery...

read more
From Canada – Stu Boland: What More Could I Hope For?

From Canada – Stu Boland: What More Could I Hope For?

From Canada - Stu Boland: What More Could I Hope For? Editor’s Note:  In earlier posts on this website, Stu Boland shared his experiences as a new WM patient, beginning in 2002 and updating in 2015, featuring his various treatments and describing...

read more
Story of Hope: Anita Lawson

Story of Hope: Anita Lawson

The summer of 2003 was promising. My husband and I had moved back to our home near the beach in southern Delaware, and I was back at a job I loved – selling radio advertising to local businesses in our small town. Best of all, my health was good. I...

read more
My Guideposts – Bernard R Tyrrell RPh

My Guideposts – Bernard R Tyrrell RPh

Why is it that some little things, hardly noticed at the time, become life-changing events? My wife and I were enjoying some vacation time at my wife’s “happy place” – a small condo on one of the barrier islands near Charleston, SC. It was Labor...

read more
Sharon Piotrowski: My Journey with WM

Sharon Piotrowski: My Journey with WM

Please listen to a special message from Sharon to her fellow WMers on her YouTube channel, https://youtu.be/qw2GkpUJtRY(link is external) For most of my life, I have practiced a healthy lifestyle. While in my 40’s, I began to exercise. Eventually,...

read more
Edward Kemp: Second Act

Edward Kemp: Second Act

[This is an update on Ed Kemp, a member of the IWMF community, whose original Story of Hope was published in 2015] Since 2015, my lifestyle and health have continued to both change and improve. In order to describe what has happened during the last...

read more
From Canada – Murray Shaw: Exercise-Elixir of Life

From Canada – Murray Shaw: Exercise-Elixir of Life

My entire life has involved heavy engagement in various forms of long-distance running, cross-country skiing, and canoeing, but myelodysplastic syndrome (MDS) has reduced my HGB levels to the point where my usual vigorous training regimens are no...

read more
Timothy Salz: A Song of Hope

Timothy Salz: A Song of Hope

Please listen to Tim's song here . My Waldenstrom’s (WM) story officially began in January of 2018, two days after my 70th birthday. Happy Birthday Tim! Unofficially, I believe it began many years – or possibly, even many decades – before that. I...

read more
A Story of Hope: Michael Knowlton

A Story of Hope: Michael Knowlton

From Canada- A Story of Hope: Michael Knowlton From Michael Knowlton: Kindness is a beautiful thing, both as the recipient, and as the giver. Living with cancer (WM) in my life has reminded me of the importance of being a force for good and working...

read more