The Waldenstrom’s Weekly

July 9, 2021

Volume 1, Issue 16

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact


WhiMSICAL Research

IWMF WhiMSICAL Registry Abstract for ASH
Include YOUR WM Patient Voice by July 12th!


Over 500 WM summarized patient details from the IWMF WhiMSICAL Registry are to be in the abstract being submitted to the 2021 American Society of Hematology (ASH) Conference.
New member details and existing member updates must be entered into the IWMF WhiMSICAL Registry before the July 12th cut-off to be included in the ASH Abstract.
User support material is available at WhiMSICAL Help with Frequently Asked Questions and how to screenshots. These cover how to join, provide consent, and complete the questionnaire, with tips such as entering data in multiple sittings and what is best done first.
Key questions to answer before cut-off are COVID-19 (question 19), and QOL (question 20). At least one update by existing members is needed to confirm current participation.
To JOIN or UPDATE by July 12th, go to CART-Wheel
For how to guidance, go to WhiMSICAL Help
For information on the WhiMSICAL Registry, go to WhiMSICAL
For support, send an email to


WhiMSICAL Research

Triage Cancer Webinar
Emotional Overload: The Impact of a Cancer Diagnosis & Strategies for Self-Care July 20, 2021 from 1:00PM – 2:30PM EDT


Join Triage Cancer for a FREE webinar on July 20th as they discuss the emotional impact of a cancer diagnosis and strategies for self-care. Learn about the various ways that stress can impact the body, concrete tools for managing intrusive thoughts, and techniques to finding balance during stressful moments.
This webinar will be presented by Julie Larson, LCSW.
For questions about this webinar, please contact Triage Cancer:
Phone: 424.258.4628 or Email:

Lymphoma Research Foundation
Virtual National Ask the Doctor About Lymphoma and Clinical Trials
July 13, 2021 from 1:00PM – 3:00PM U.S. ET

Ask the Doctor About Lymphoma is a national series of two-hour, topic-specific, community-based programs that combine a presentation by a medical doctor with an extensive question and answer session.
Program Overview:
  • Patient Experience with LRF Ambassador
  • Lymphoma Overview
  • Navigating Clinical Trials
  • Clinical Trial Updates
  • Question and Answer
WhiMSICAL Research


Story of Hope
Dr. Barbara Sunderland Manousso:
Confessions of a Caregiver/Spouse/Ombuds

“We’ve been to the end of the earth, but not the end of life.”

Cellectar clinical trials ad

This is a paid clinical trial advertisement

Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

Sign-up for the Waldenstrom’s Weekly and get it emailed directly to your inbox!