International Waldenstrom’s Macroglobulinemia Foundation

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  • 6144 Clark Center Ave.Sarasota, FL 34238
  • Phone: 941-927-4963
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  • office@iwmf.com

The Waldenstrom’s Weekly

July 23, 2021

Volume 1, Issue 18

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact info@IWMF.com

2024 Waldenstrom's Weekly Archive

 

2023 Waldenstrom's Weekly Archive

 

2022 Waldenstrom's Weekly Archive

2021 Waldenstrom's Weekly Archive

Research

Young Investigators Making a Difference in
WM Research to be Recognized at this Year’s Virtual Educational Forum

To achieve its strategic visions, the IWMF recognizes it is vital to provide funding to support the career development of next-generation researchers for WM. The IWMF is therefore proud to announce the establishment of the Robert A. Kyle Career Development Awards for WM. The Awards recognize the 50+ years of impactful contributions by Dr. Robert Kyle to the field of plasma cell disorders and WM.
 
In 2021, the first year of these awards, the IWMF conferred research grants to two young investigators in the amount of $75,000 each year for a two-year project. A young investigator is defined as a junior faculty member (instructor or assistant professor) and/or postdoctoral fellow who has a focus in clinical research in the field of B cell or plasma cell malignancies. Their program must have a teaching curriculum and mentoring with well-established investigators with track records in the B cell malignancy or plasma cell malignancy field.
 
Two young investigators were selected this year, and will be recognized during the IWMF’s Virtual Educational Forum:
Maria Luisa Guerrera, MD,
Dana-Farber Cancer Institute,
Boston, MA
Isolation and spatial characterization of 6q deletions and CXCR4 mutations using novel biomarkers in WM
Romanos Sklavenitis-Pistofidis, MD,
Dana-Farber Cancer Institute,
Boston, MA
Genomic and immune biomarkers of progression from IgM MGUS to WM
Dr. Tom Hoffmann, IWMF Vice-Chair of Research and Chair of the Research Committee, said “The IWMF has a long history of finding the best WM researchers in the world to do WM basic science research projects. Many of the drugs we have now are due to our past projects. In order to find newer drugs and possibly find a cure, we need to inject Dr. Kyle’s work effort and excitement into the younger group of researchers. The Kyle award is an excellent way to do that. The two we have chosen are the cream of the top.”
 
Be sure to join us during this year’s Virtual Educational Forum and meet the recipients of the first ever Robert A. Kyle Career Development Awards.
 
For more information on these award recipients and their research projects, please CLICK HERE.

Education

Replay Available!

Check out the IWMF Global Educational Webinar Replay!
ASCO Highlights with Dr. Sheeba K. Thomas examines the latest information about WM related research at the 2021 American Society of Clinical Oncology Annual Meeting.
 
Don’t forget! The IWMF has a new platform host for our Virtual Events, which includes Global Educational Webinars and Ed Forum Month in October. Check out our new IWMF Events site HERE!
 
THANK YOU TO OUR SPONSOR:
WATCH THE REPLAY

Registration Open!
LLS Virtual National Blood Cancer Conference
Saturday, September 18th at 11:30AM U.S. ET

LLS Logo

The Leukemia & Lymphoma Society (LLS) is proud to present this free VIRTUAL education event to blood cancer patients, survivors, family members, caregivers and healthcare professionals. Experts in the areas of blood cancer research, treatment, and survivorship will present information on each topic.

WM SESSION PRESENTERS:

Shayna Sarosiek, MD
Dana-Farber Cancer Institute
Boston, MA
Steven P. Treon, MD, PhD
Dana-Farber Cancer Institute
Boston, MA

For a full list of panelists and session topics, click the button below.

MEETING DETAILS AND REGISTRATION

Recording Available-
Triage Cancer Webinar
Emotional Overload: The Impact of a Cancer Diagnosis and Strategies
for Self-Care

A cancer diagnosis is stressful. From gathering information about treatment options to navigating relationships with loved ones, it is normal to feel overwhelmed and emotional. Presented by Julie Larson, LCSW, this session provides concrete tools for sharpening self-awareness to better understand needs and gain strategies for coping with intense emotions like worry and fear.
WATCH THE RECORDING

Support

U.S. WM Patients: LLS Co-Pay Program Reopened!

The Leukemia & Lymphoma Society (LLS) has reopened their co-pay silo for WM. Funding is limited, so apply as soon as possible. The LLS Co-Pay Assistance Program is U.S. only.
 
Program Eligibility Criteria
To be eligible for Co-Pay Assistance, you must
  • Be a United States citizen or permanent resident of the U.S. or U.S. territory.
  • Have a household income that is at or below 500 percent of the U.S. federal poverty guidelines as adjusted by the Cost of Living Index (COLI). You will be asked for your zip code to determine your COLI.
  • Have medical insurance and/or prescription insurance
  • Have a blood cancer diagnosis confirmed by a doctor
  • Patient must be in active treatment, scheduled to begin treatment, or is being monitored by their doctor.
 
To apply, click the button below OR call 877-557-2672 to speak with an Intake Specialist who can walk you through the application process.
APPLY HERE!
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Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.
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