The Waldenstrom’s Weekly

November 26, 2021

Volume 1, Issue 33

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact



Story of Hope Update
From Canada- Ron Ternoway:
The Clinical Trials Continue!

2021 WMUK Patient-Doctor Summit

“So, you ask, is it worth it? The time, the expense, the risk, the radiation?”

Shop while Supporting the IWMF

Going shopping this Black Friday or Cyber Monday? Consider supporting the IWMF at the same time with purchases made through Amazon.Smile
A percentage of all purchases go towards supporting the vital work of the IWMF (every time you shop!). Learn more by clicking the link below.

Giving Tuesday is November 30th

#GivingTuesday is a global day of support for meaningful organizations and causes in your life.
We hope you will consider making a gift in support of the IWMF on November 30th.

Let the community know why you support the IWMF this #GivingTuesday through your social media account and be sure to tag us!


Healthy Communication Practice for Caregivers of a Parent with a Blood Cancer in the US:
Recruiting Individuals for an Online Study

Dr. Carma Bylund and Dr. Carla Fisher at the University of Florida are conducting a study of a newly developed online program for cancer caregivers. They invite you to take part in and provide feedback on this self-guided, interactive, video-based program called the Healthy Communication PracticeTM Program. It was designed to support the important work you are doing as you care for your parent with a blood cancer.
You will be compensated for your time and participation. The first 100 participants to complete the pre-program electronic survey, the interactive video program (in two parts, approximately 90 minutes total), and the post-program electronic survey will be sent a $75 Amazon e-gift card. You will receive an additional $25 Amazon e-gift card once you complete a final short survey three months later.
You are eligible to participate if you meet all of the following requirements:
  • You provide care for a living parent, step-parent, or parent-in-law with a blood cancer
  • Your parent has had the diagnosis of a blood cancer for at least 3 months
  • Your parent is either:
  • a) still in treatment, or
  • b) completed treatment within the past year
  • You are an English speaker, 18 years of age or older, and reside in the U.S.
To participate, or if you have questions, please email the study team at
Thank you for your help!
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Thanks to You!

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