The Waldenstrom’s Weekly

June 10, 2022

Volume 2, Issue 21

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact


IWMF Ed Forum Primer Series – Part II

Genomics/Science of WM:
Rebroadcast with NEW LIVE Q&A!

Wednesday, June 15th, 2022
1:30PM – 2:30PM U.S. Eastern Daylight Time


Dr. Sikander Ailawadhi
Professor, Division of Hematology-Oncology

Mayo Clinic, Jacksonville, Florida


Eileen Sullivan
IWMF Support Group Leader for Eastern Massachusetts

About the Program:

The second in our Ed Forum Primer Series, this rebroadcast provides a basic understanding of the science of WM and sets out a framework of basic genetic concepts behind the mutations that are important in WM. Learn the ways in which these mutations impact the signaling systems that control the behavior of WM cells, and to recognize how these mutations are changing the landscape of therapies for WM.
After the broadcast, Dr. Ailawadhi will answer questions from the chat box LIVE!

New Booklet on WM by Dr. Shirley D’Sa
Fast Facts for Patients


Fast Facts for Patients: Waldenstrom Macroglobulinemia

By Dr. Shirley D’Sa, Consultant Haematologist and Honorary Associate Professor, University College London Hospitals NHS Foundation Trust, London, UK, S. Karger Publishers Ltd, 2022. ISBN: 978-3-318-07018-7.
This helpful booklet provides facts about WM such as, what is WM, how will WM affect me, who is in my care team, what tests do I need to have, common feelings when diagnosed, helping yourself, active monitoring, types of treatment, supportive treatment, relapse, and research.
 Please note that some of the information is based on the UK’s health care model (National Health Service).


Leukemia & Lymphoma Society Webinar
Caregiving Over Coffee:
An Interactive Q&A with Dr. Applebaum

Thursday, June 16th
1:00PM – 2:00PM U.S. ET

Allison J. Applebaum, PhD
Associate Attending Psychologist
Director, Caregivers Clinic
Department of Psychiatry and Behavioral Services
Memorial Sloan Kettering Counseling Center
New York, NY

Caregiving can be stressful and leave you with many questions about how to best care for your loved one and yourself.
The LLS invites you to grab a cup of coffee, tea, or your favorite beverage, and join them and Allison J. Applebaum, PhD for a short presentation and interactive Q&A session. Participants can submit questions prior to or during the program.

Leukemia & Lymphoma Society
Co-Pay Assistance Available for U.S. Patients!

Great News! The Leukemia & Lymphoma Society WM Co-Pay Assistance Program is
currently OPEN for U.S. Patients.

Funds will not last long, so apply ASAP!

Instant Decision

No more waiting! Patients get a decision in real time and have immediate access to funds.

Quick Search Tool – Available Now

Access current status of applications, award coverage period, award balances, claim submissions, and payment details without logging into the portal. Questions? Click here.

Increased household income threshold

Household incomes that are at or below 600% of the U.S. federal poverty guidelines as adjusted by the Cost of Living Index (COLI) may be eligible for assistance.

Cardio Flow for WM: Next Session on June 17th!
Recording Available from June 3rd


Cardio Flow – 45 minutes of Mindful Movement

Next session is June 17th from 2:00 – 2:45PM U.S. ET

Physical activity is the number one intervention for cancer-related fatigue. This medium-paced class will feature cardio, strength, and balance training to safely get the heart rate up for those managing WM. Come as you are and have a little fun while you’re at it!


Ann MacMullan, E-RYT 500, is the WM Community Yoga Instructor. She enjoys uplifting the WM community through breath-connected movement, mindfulness, and by creating a supportive group environment on Zoom. Her father was diagnosed with WM in 2019.


To join the mailing list for this program, contact Michelle Postek at or contact the IWMF office.

Free Offering for WM Patients on June 12th:
Yoga Nidra with Ann MacMullan


Ann MacMullan is inviting those affected by WM to her 30 minute guided relaxation practice. Yoga Nidra meets live on Zoom this Sunday, June 12th, at 4:00pm U.S. ET.

Yoga Nidra can reduce stress levels, help you sleep better, and elevate your well-being. Give yourself permission to relax and rest, while setting intentions for personal growth and exploring the deeper self.
To learn more or sign up, RSVP to Ann directly:

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Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

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