Contact

  • 6144 Clark Center Ave.Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • office@iwmf.com

The Waldenstrom’s Weekly

May 20, 2022

Volume 2, Issue 18

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact info@IWMF.com

EDUCATION

Registration Open!
IWMF Ed Forum Primer Series – Part II

Wednesday, June 15th, 2022
1:30PM – 2:30PM U.S. Eastern Daylight Time

Speaker

Dr. Sikander Ailawadhi
Professor, Division of Hematology-Oncology

Mayo Clinic, Jacksonville, Florida

Moderator

Eileen Sullivan
IWMF Support Group Leader for Eastern Massachusetts
IWMF LIFELINE Volunteer

About the Program:

The second in our Ed Forum Primer Series, this rebroadcast provides a basic understanding of the science of WM and sets out a framework of basic genetic concepts behind the mutations that are important in WM. Learn the ways in which these mutations impact the signaling systems that control the behavior of WM cells, and to recognize how these mutations are changing the landscape of therapies for WM.
 
After the broadcast, Dr. Ailawadhi will answer questions from the chat box LIVE!

Hot off the Press! Recording Available!

WM & Basic Terminology:
Rebroadcast with NEW LIVE Q&A!

Speaker

Dr. Jeffrey Matous
Colorado Blood Cancer Institute

Moderator

Lisa J. Wise, M.Ed.
IWMF Vice-Chair of Information & Support

About the Program:

Need to brush up on your WM Basics? Get the most out of your upcoming Virtual Educational Forum experience with part one in this three part Ed Forum Primer series.
 
*Please note that you will need to register at the link below to watch the recording on demand.

Next week!

CancerCare Connect® Education Workshop
May 25, 2022 from 1:30PM-2:30PM U.S. ET

We encourage you to participate in the IWMF and CancerCare’s upcoming workshop, Waldenstrom’s Macroglobulinemia (WM): Treatment Progress on Wednesday, May 25 from 1:30-2:30 pm Eastern Time.
 
Topics include: overview of WM, symptoms & signs, front line treatment for WM and much more.

SUPPORT

New Pilot Program on June 3rd and June 17th!
Cardio Flow for WM from 2:00-2:30PM U.S EDT

Could-a-Clinical-Trial-Be-Your-Best-Cancer-Treatment-Option-1

Cardio Flow – 30 minutes of Mindful Movement

Physical activity is the number one intervention for cancer-related fatigue. This medium-paced class will feature cardio, strength, and balance training to safely get the heart rate up for those managing WM. Come as you are and have a little fun while you’re at it!
 
  • Get your flow on with simple repetitive movements that strengthen the core and legs, work the upper body, and pump the lymph fluid for immune system support.
  • We will be both seated and standing for the class, using the chair for balance as needed. Take “breath breaks” throughout as needed and stick around for our optional community chat afterwards.
  • Please have a chair, yoga mat if possible, and a Thera-band for resistance exercises. Wear comfortable clothes and supportive shoes if needed. Talk with your doctor about any exercise restrictions you might have at this time.
  • If you can’t make the live class, a recording will be provided afterwards.
Ann MacMullan, E-RYT 500, is the WM Community Yoga Instructor. She enjoys uplifting the WM community through breath-connected movement, mindfulness, and by creating a supportive group environment on Zoom. Her father was diagnosed with WM in 2019.
To join the mailing list for this program, contact Michelle Postek at mpostek@iwmf.com or contact the IWMF office at 941-927-4963.

SHOW US YOUR SWAG!

Have you purchased any IWMF gear? Send a picture of you with your swag to mpostek@iwmf.com and get featured in the WM Weekly!

IWMF SHOP BANNER
cellectar new ad

This is a paid clinical trial advertisement

Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

Sign-up for the Waldenstrom’s Weekly and get it emailed directly to your inbox!