The Waldenstrom’s Weekly

April 29, 2022

Volume 2, Issue 15

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact [email protected]

2022 GIVING CHALLENGE-thanks

To the entire WM community, THANK YOU for your support during the 2022 Giving Challenge! In just 24 hours, the IWMF received hundreds of donations from all around the world. We could not have done it without you, stay tuned for the final results!

Be sure to head over to the IWMF Facebook page to watch our Home Office Staff competing in the “WM Marshmallow Challenge”, which took place during the Giving Challenge earlier this week.

EDUCATION

Registration Open!
IWMF Ed Forum Primer Series

Wednesday, May 18th, 2022
1:30PM – 2:30PM U.S. Eastern Daylight Time

Speaker

Dr. Jeffrey Matous
Colorado Blood Cancer Institute

Moderator

Lisa J. Wise, M.Ed.
IWMF Vice-Chair of Information & Support

About the Program:

Need to brush up on your WM Basics? Get the most out of your upcoming Virtual Educational Forum experience with part one in this three part Ed Forum Primer series.
Getting to know the WM basics will benefit newly diagnosed patients and veteran WMers alike with a refresher course on WM and an explanation of diagnosis, symptoms, and some simple treatment guidelines.
Following the presentation, have YOUR questions answered LIVE during the Q&A portion of the program.

Patient Empowerment Network (PEN) Webinar
May 3rd at 1:00PM U.S. EDT

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Is a clinical trial right for you? In this 30 minute webinar, cancer expert and researcher, Dr. Seth Pollack, is joined by PEN board member and empowered patient, Sujata Dutta, as they discuss the ins and outs of clinical trials. Together, they’ll share what you need to know about clinical trials, define key terminology, and debunk common misconceptions about participation.

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SUPPORT

The IWMF Announces an Addition to the WM Physicians Directory in the U.S.

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Dr. Craig Boddy
Hawaii Pacific Health
Honolulu, Hawaii

For your convenience in seeking a consultation for a second opinion, we provide a directory of well-known cancer centers we work with and physicians/researchers who are very knowledgeable about WM. All the physicians included in our Physicians Directory have agreed to be included in the directory for consultation to patients, as well as other physicians.

Story of Hope Update: Bob Lynch

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“In August of this year, I will be celebrating my 75th birthday with a row to a local pub. Upon diagnosis of WM, I hoped to make it to 50. The lesson: Never think small!”

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SHOW US YOUR SWAG!

Have you purchased any IWMF gear? Send a picture of you with your swag to [email protected] and get featured in the WM Weekly!

IWMF SHOP BANNER
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This is a paid clinical trial advertisement

Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

Sign-up for the Waldenstrom’s Weekly and get it emailed directly to your inbox!

Contact

  • 6144 Clark Center Ave.
    Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • [email protected]