International Waldenstrom’s Macroglobulinemia Foundation

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International Waldenstrom’s Macroglobulinemia Foundation

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The Waldenstrom’s Weekly

June 25, 2021

Volume 1, Issue 14

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact [email protected]

Education

The IWMF is excited to share that we have a new platform host for our Virtual Events, which includes Global Educational Webinars and Ed Forum Month in October. Check out our new IWMF Events site HERE, and register for our next program!

 

OVER 500 REGISTERED!

IWMF Global Educational Webinar
July 9, 2021 at 1:30PM U.S. EDT

 
 

ASCO Highlights
with Dr. Sheeba K. Thomas

About the presentation:
ASCO Highlights with Dr. Sheeba K. Thomas will examine the latest information about WM related research featured at the 2021 American Society of Clinical Oncology Annual Meeting.
About the presenter:
Dr. Thomas is a Professor in the Department of Lymphoma and Myeloma at The University of Texas MD Anderson Cancer Center in Houston, Texas. Dr. Thomas is the principal investigator of a number of clinical trials evaluating novel therapies for patients with WM and multiple myeloma. Her clinical focus is on plasma cell disorders, including WM, multiple myeloma, and primary amyloidosis. She is a member of the Scientific Advisory Committee for the International Waldenstrom’s Macroglobulinemia Foundation.
THANK YOU TO OUR SPONSOR:
WhiMSICAL Research

OWMUK Webinar: Clinical Trials
July 5, 2021
10:00AM – 11:00AM BST (UK)

 

Dr Jaimal Kothari, Consultant Haematologist, will be answering all your questions about clinical trials.
Dr Kothari will be joined by WMUK Patient Support Manager, Bob Perry, to talk about WM clinical trials. The session is due to last approximately an hour, and there may be time for additional audience questions.
To submit any questions in advance, please email WMUK at [email protected] Please note: WMUK cannot answer personal medical questions on this webinar. If you have particular concerns about your specific treatment, please seek advice from your consultant.
WhiMSICAL Research

Triage Cancer Webinar
Emotional Overload: The Impact of a Cancer Diagnosis & Strategies for Self-Care July 20, 2021 from 1:00PM – 2:30PM EDT

 

Join Triage Cancer for a FREE webinar on July 20th as they discuss the emotional impact of a cancer diagnosis and strategies for self-care. Learn about the various ways that stress can impact the body, concrete tools for managing intrusive thoughts, and techniques to finding balance during stressful moments.
This webinar will be presented by Julie Larson, LCSW.
For questions about this webinar, please contact Triage Cancer:
Phone: 424.258.4628 or Email: [email protected]

RESEARCH

WhiMSICAL Research
WhiMSICAL

WhiMSICAL Registry Update:
Help Us Reach Our Goal!

Well done! 40 new patients have registered in WhiMSICAL in one week! We’re a quarter of the way there to our recruitment target for mid-July. Please join WhiMSICAL or update your data if already participating.
 
If you would like to take part, click here to register. Once
logged in, consent to participate online (“My consent details”) and enter your information. This can be completed in multiple sittings and updated over time.Your data cannot be utilized for research until your consent has been given.
 
For more information,visit: https://wmozzies.com.au/index.php/whimsical/, or email [email protected].

SUPPORT

Young WM Support Session
July 19th, from 7:30PM-8:30PM U.S. EDT

Introducing our new International Young WM Support Session for patients and caregivers under the age of 50!

Monday, July 19th, 2021
7:30PM – 8:30PM U.S. EDT

If you have any questions, please email [email protected]

The IWMF Announces Two Additions to the WM Physicians Directory in the U.S.

The IWMF is proud to announce the addition of two new physicians to our prestigious physician’s directory.

MARY KWOK

Mary Kwok, MD
The University of Washington

Seattle Cancer Care Alliance
Seattle, Washington, USA

Dr. Shayna Sarosiek
Dana-Farber Cancer Institute

Boston, Mass. USA

For your convenience in seeking a consultation for a second opinion, we provide a directory of well-known cancer centers we work with and physicians/researchers who are very knowledgeable about WM. All the physicians included in our Physicians Directory have agreed to be included in the directory for consultation to patients, as well as other physicians.

Cellectar clinical trials ad

This is a paid clinical trial advertisement

Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

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