The Waldenstrom’s Weekly

February 4, 2022

Volume 2, Issue 4

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact [email protected]

Today is World Cancer Day!

world cancer day
World Cancer Day takes place every year on 4th February and is the uniting global initiative under which the world comes together to raise the profile of cancer in a positive and inspiring way. Spearheaded by the Union for International Cancer Control (UICC), the day aims to save millions of lives each year by raising awareness and improving education about the disease while calling for action from governments and individuals across the world.
 
World Cancer Day 2022 is led by the theme “Close the care gap”, recognising the power of knowledge and challenging assumptions.
 For more information, please visit: www.worldcancerday.org
 
For more information about specific country events, please visit:

EDUCATION

NEXT WEEK!
IWMF Global Educational Webinar
February 8, 2022 at 11:30AM U.S. ET

DR. Ailawadhi

ASH Highlights
with Dr. Sikander Ailawadhi

About the Presentation:
Join Dr. Sikander Ailawadhi of Mayo Clinic (Jacksonville, FL) on Tuesday, February 8th at 11:30am U.S. ET as he highlights WM research and pertinent information from the 2021 American Society of Hematology (ASH) annual meeting.
About the Presenter:
Dr. Ailawadhi is a Professor with the Division of Hematology-Oncology at Mayo Clinic in Jacksonville and joined the Division in 2014 when he moved from the University of Southern California, Los Angeles where he was an academic faculty with Hematology.
His career focus has been on treatment of plasma cell disorders, namely multiple myeloma and Waldenström’s macroglobulinemia, and also chronic lymphocytic leukemia. His research has focused on understanding the epidemiology and pathophysiology of these disorders, evaluating the benefit of various therapeutic strategies in different populations based on racial-ethnic and socioeconomic diversity, as well as developing novel therapeutics by means of conducting several regional and national clinical trials.

CancerCare Connect Eduction Workshop
COVID-19, Omicron & Delta Variants, COVID-19 Vaccines & Booster Vaccines: Revised Guidelines for People Living with Cancer & Their Loved Ones

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Workshop Date and Time
Monday, February 7, 2022, 1:30 – 2:30 pm, U.S. Eastern Time
 
Registrants can listen in live over the phone or online as a webcast.
Participation in this Connect Education Workshop is free, but you must pre-register. Register online at the button below or call the CancerCare HopeLine at 1-800-813-4673. After you have registered, you will receive additional information with connection instructions and other details. If you have a scheduling conflict and cannot participate in the teleconference, you will be able to access a recording of the program on the CancerCare website.
 
Topics Covered
  • How to Protect Yourself & Your Loved Ones from COVID-19 & Omicron & Delta Variants
  • COVID-19 Vaccines & Booster Vaccines
  • Other Vaccines – Flu, Pneumococcal & Shingles Vaccines
  • COVID-19 & People Living with Cancer
  • Where to Find Reliable Information Regarding this Pandemic & Its Variants
  • How to Protect Yourself, Loved Ones & Children from COVID-19 & Its Variants
  • The Increasing Role of Telemedicine/Telehealth Appointments
  • How to Prepare for Your Telemedicine/Telehealth Appointments, including
  • Prepared List of Questions, Follow-Up Appointments & Discussion of OpenNotes
  • Working Closely with Your Health Care Team about Your Wishes & Health Care Directives
  • Tips to Manage the Practical, Emotional & Financial Stresses Related to COVID-19, Delta & Omicron Variants & Cancer
  • Self-Care & Stress Management Tips
  • Questions for Our Panel of Experts

The LLS-IWMF Living Well with WM
Free Virtual Program
February 23, 2022 at 6:30PM U.S. ET

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A Virtual Educational Conference for Patients, Caregivers and Healthcare Professionals

Wednesday, February 23, 2022
6:30PM – 8:30PM U.S. Eastern Time

This program is designed to provide attendees with essential information that will help you participate more actively and confidently in decisions about your WM treatment and survivorship.

Waldenström Macroglobulinemia (WM) patients, caregivers, family and friends will gain a better understanding of:

  • WM treatment, including standard care and clinical trials
  • Strategies to make informed decisions about treatment
  • Tips for communicating with your health care team
  • Strategies to manage disease and treatment side effects
  • The impact of COVID-19 and vaccinations 
  • Strategies for managing ongoing cancer survivorship issues, including financial and employment challenges, as well as psychosocial issues
  • Resources available in your local community, at cancer centers, and those provided by LLS

 

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SUPPORT

Recording Available!
Peripheral Neuropathy Support Session

2021 WMUK Patient-Doctor Summit

Over 100 attendees from seven countries participated live in last week’s Peripheral Neuropathy Support Session. We had a fabulous presentation and engaging Q&A with Nancy Campbell, Clinical Exercise Physiologist in the Zakim Center for Integrative Therapies and Healthy Living at Dana-Farber Cancer Institute.

Be sure to check out the recording at the orange button below and click here for Nancy’s slide deck!

Fun Fact: We just launched a new website page TODAY specifically for PN videos. Check it out HERE!

A special note of thanks to the IWMF PN Planning Committee!

New Support Group Alert!
Ibrutinib-Venetoclax Clinical Trial Support Session
February 13, 2022 at 12:00 Noon U.S. ET

Support Group

Are you in a clinical trial for Ibrutinib & Venetoclax, or currently taking this treatment combination? If you would like to join other patients to share your experience, a sharing session is scheduled for Sunday, February 13th at Noon U.S. Eastern Time.

Please contact the IWMF Home Office at [email protected] for meeting link information.

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This is a paid clinical trial advertisement

Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

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Contact

  • 6144 Clark Center Ave.
    Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • [email protected]