May 27, 2022
Volume 2, Issue 19
The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact info@IWMF.com
2024 Waldenstrom's Weekly Archive
- Issue 101, January 5, 2024
- Issue 102, January 12, 2024
- Issue 103, January 19, 2024
- Issue 104, January 26, 2024
- Issue 105, February 2, 2024
- Issue 106, February 9, 2024
- Issue 107, February 16, 2024
- Issue 108, February 23, 2024
- Issue 109, March 1, 2024
- Issue 110, March 8, 2024
- Issue 111, March 15, 2024
- Issue 112, March 22, 2024
- Issue 113, March 29, 2024
- Issue 114, April 5, 2024
- Issue 115, April 12, 2024
2023 Waldenstrom's Weekly Archive
- Issue 51, January 6, 2023
- Issue 52, January 13, 2023
- Issue 53, January 27, 2023
- Issue 54, February 3, 2023
- Issue 55, February 10, 2023
- Issue 56, February 17, 2023
- Issue 57, February 24, 2023
- Issue 58, March 3, 2023
- Issue 59, March 10, 2023
- Issue 60, March 17, 2023
- Issue 61, March 31, 2023
- Issue 62, April 7, 2023
- Issue 63, April 14, 2023
- Issue 64, April 28, 2023
- Issue 65, May 5, 2023
- Issue 66, May 12, 2023
- Issue 67, May 19, 2023
- Issue 68, May 26, 2023
- Issue 69, June 2, 2023
- Issue 70, June 9, 2023
- Issue 71, June 16, 2023
- Issue 72, June 23, 2023
- Issue 73, June 30, 2023
- Issue 74, July 7, 2023
- Issue 76, July 15, 2023
- Issue 77, July 21, 2023
- Issue 78, July 28, 2023
- Issue 79, August 4, 2023
- Issue 80, August 11, 2023
- Issue 81, August 18, 2023
- Issue 82, August 25, 2023
- Issue 83, September 1, 2023
- Issue 84, September 8, 2023
- Issue 85, September 15, 2023
- Issue 86, September 22, 2023
- Issue 87, September 29, 2023
- Issue 88, October 6, 2023
- Issue 89, October 13, 2023
- Issue 90, October 20, 2023
- Issue 91, October 27, 2023
- Issue 92, November 3, 2023
- Issue 93, November 10, 2023
- Issue 94, November 17, 2023
- Issue 95, November 24, 2023
- Issue 96, December 1, 2023
- Issue 97, December 8, 2023
- Issue 98, December 15, 2023
- Issue 99, December 22, 2023
- Issue 100, December 29, 2023
2022 Waldenstrom's Weekly Archive
- Issue 1, January 7, 2022
- Issue 2, January 21, 2022
- Issue 3, January 28, 2022
- Issue 4, February 4, 2022
- Issue 5, February 11, 2022
- Issue 6, February 18, 2022
- Issue 7, February 25, 2022
- Issue 8, March 4, 2022
- Issue 9, March 11, 2022
- Issue 10, March 18, 2022
- Issue 11, March 25, 2022
- Issue 12, April 1, 2022
- Issue 13, April 8, 2022
- Issue 14, April 15, 2022
- Issue 15, April 29, 2022
- Issue 16, May 6, 2022
- Issue 17, May 13, 2022
- Issue 18, May 20, 2022
- Issue 19, May 27, 2022
- Issue 20, June 3, 2022
- Issue 21, June 10, 2022
- Issue 22, June 17, 2022
- Issue 23, June 24, 2022
- Issue 24, July 1, 2022
- Issue 25, July 8, 2022
- Issue 26, July 15, 2022
- Issue 27, July 22, 2022
- Issue 28, July 29, 2022
- Issue 29, August 5, 2022
- Issue 30, August 12, 2022
- Issue 31, August 19, 2022
- Issue 32, August 26, 2022
- Issue 33, September 2, 2022
- Issue 34, September 9, 2022
- Issue 35, September 16, 2022
- Issue 36, September 23, 2022
- Issue 37, September 30, 2022
- Issue 38, October 7, 2022
- Issue 39, October 14, 2022
- Issue 40, October 21, 2022
- Issue 41, October 28, 2022
- Issue 42, November 4, 2022
- Issue 43, November 11, 2022
- Issue 44, November 18, 2022
- Issue 45, November 23, 2022
- Issue 46, December 2, 2022
- Issue 47, December 9, 2022
- Issue 48, December 16, 2022
- Issue 49, December 23, 2022
- Issue 50, December 30, 2022
- Issue 51, January 6, 2023
2021 Waldenstrom's Weekly Archive
- Issue 1, February 18, 2021
- Issue 2, March 12, 2021
- Issue 3, March 26, 2021
- Issue 4, April 2, 2021
- Issue 6, April 16, 2021
- Issue 7, April 23, 2021
- Issue 8, April 23, 2021
- Issue 9, May 7, 2021
- Issue 10, May 14, 2021
- Issue 11, May 21, 2021
- Issue 12, May 21, 2021
- Issue 13, June 11, 2021
- Issue 14, June 25, 2021
- Issue 15, July 2, 2021
- Issue 16, July 9, 2021
- Issue 17, July 16, 2021
- Issue 18, July 23, 2021
- Issue 20, August 13, 2021
- Issue 21, August 20, 2021
- Issue 22, August 27, 2021
- Issue 23, September 3, 2021
- Issue 24, September 10, 2021
- Issue 25, September 17, 2021
- Issue 26, October 1, 2021
- Issue 27, October 8, 2021
- Issue 28, October 15, 2021
- Issue 29, October 22, 2021
- Issue 30, November 5, 2021
- Issue 31, November 12, 2021
- Issue 32, November 19, 2021
- Issue 33, November 26, 2021
- Issue 34, December 3, 2021
- Issue 35, December 12, 2021
- Issue 36, December 17, 2021Issue 36
- Issue 36, December 17, 2021
- Issue 37, December 24, 2021
EDUCATION
Registration Open!
IWMF Ed Forum Primer Series – Part II
Genomics/Science of WM: Rebroadcast with NEW LIVE Q&A!
Wednesday, June 15th, 2022
1:30PM – 2:30PM U.S. Eastern Daylight Time
Speaker
Dr. Sikander Ailawadhi
Professor, Division of Hematology-Oncology
Mayo Clinic, Jacksonville, Florida
Moderator
Eileen Sullivan
IWMF Support Group Leader for Eastern Massachusetts
IWMF LIFELINE Volunteer
About the Program:
The second in our Ed Forum Primer Series, this rebroadcast provides a basic understanding of the science of WM and sets out a framework of basic genetic concepts behind the mutations that are important in WM. Learn the ways in which these mutations impact the signaling systems that control the behavior of WM cells, and to recognize how these mutations are changing the landscape of therapies for WM.
After the broadcast, Dr. Ailawadhi will answer questions from the chat box LIVE!
RESEARCH
WhiMSICAL Delivers the Goods!
Key Findings Summarized by Dr. Ibrahim Tohidi
Thank you to all who participated in the WhiMSICAL COVID 400 campaign back in March. Dr. Ibrahim Tohidi has analyzed the results of your participation, and has summarized the following:
- 386 WM patients responded to the WhiMSICAL COVID questions, helping to build knowledge of risks for WM patients
- 9% of 205 patients tested for COVID returned a positive result.
- Of the 64 patients with antibody testing results, almost 4 out of 5 WM patients mounted a positive antibody response after 2-4 vaccines, with no clear difference between WM treatments.
- The vast majority of vaccinated WM patients did not report COVID infection, although infections post-vaccination did occur. Almost none were hospitalized.
We are grateful for your support and for helping researchers to understand the impact of Covid on the WM community! A full report is planned for publication, and we will be sure to share it with you once it becomes available.
If you wish to join the IWMF WhiMSICAL Registry, register at CART-wheel here and welcome aboard! For more information, click here, or for assistance, contact whimsical@iwmf.com.
SUPPORT
NEXT WEEK!
New Pilot Program on June 3rd and June 17th!
Cardio Flow for WM from 2:00-2:30PM U.S EDT
Cardio Flow – 30 minutes of Mindful Movement
Physical activity is the number one intervention for cancer-related fatigue. This medium-paced class will feature cardio, strength, and balance training to safely get the heart rate up for those managing WM. Come as you are and have a little fun while you’re at it!
- Get your flow on with simple repetitive movements that strengthen the core and legs, work the upper body, and pump the lymph fluid for immune system support.
- We will be both seated and standing for the class, using the chair for balance as needed. Take “breath breaks” throughout as needed and stick around for our optional community chat afterwards.
- Please have a chair, yoga mat if possible, and a Thera-band for resistance exercises. Wear comfortable clothes and supportive shoes if needed. Talk with your doctor about any exercise restrictions you might have at this time.
- If you can’t make the live class, a recording will be provided afterwards.
Ann MacMullan, E-RYT 500, is the WM Community Yoga Instructor. She enjoys uplifting the WM community through breath-connected movement, mindfulness, and by creating a supportive group environment on Zoom. Her father was diagnosed with WM in 2019.
To join the mailing list for this program, contact Michelle Postek at mpostek@iwmf.com or contact the IWMF office at 941-927-4963.
SHOW US YOUR SWAG!
Have you purchased any IWMF gear? Send a picture of you with your swag to mpostek@iwmf.com and get featured in the WM Weekly!
This is a paid clinical trial advertisement
Thanks to You!
The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.