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The Waldenstrom’s Weekly

May 14, 2021

Volume 1, Issue 10

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact


IWMF Grant Spurs New Diagnostic
Test for WM

Thanks to the incredible generosity of the Elting Family and Lynn M. Fischer Research Funds of the IWMF, Dana-Farber pathologist Ruben Carrasco, MD, PhD, is developing a MYD88 diagnostic test that could facilitate and expedite the diagnosis of WM. Click here to read more.

For more information on how you can directly support vital WM research, click here.


THIS SUNDAY, May 16th!
Bing-Neel Syndrome International
Support Group
3:00PM – 5:00PM U.S. ET

The Bing-Neel International Support Group Meeting will be a chance for patients with the rare syndrome to “meet” one another virtually from across the globe. The meeting will be targeted for WM patients who have Bing-Neel Syndrome or for Bing-Neel care partners.
This specialty topic meeting will include a short panel presentation by several Bing-Neel patients followed by small breakout discussion groups.
You will need to register in advance for this meeting. After registering, you will receive a confirmation email with meeting link information.

Sick & Tired of Feeling Sick & Tired?
IWMF Fatigue Support Session

Thank you to the 365 registrants and 160 live attendees who joined us this past Tuesday for our first IWMF Fatigue Support Session!
Would you like to catch the replay? Watch Dr. Rina Fox present on fatigue followed by a lively Q&A where she and a Patient Panel of WM patients & caregivers responded to your pre-submitted questions. Our Patient Panel also shared their experiences living with chronic fatigue.
About the Presenter
Rina S. Fox, PhD, MPH is a clinical psychologist and a Research Assistant Professor at the Northwestern University Feinberg School of Medicine, where she studies ways to help improve quality of life and decrease symptoms for adults facing cancer and other chronic illnesses. She is particularly interested in identifying ways that cancer survivors can sleep better and feel less fatigued by changing the way they think and act.

NEW PROGRAM: Young WM Support Session
Coming Summer 2021!

You are ALL “young at heart” BUT… if you are under age 50, join us! 

Introducing our new International Young WM Support Session for patients and caregivers. We would love your input during this planning stage. 
Interested? Complete this form and we will be in touch about meeting date options. Questions? Email us at:
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Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

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