International Waldenstrom’s Macroglobulinemia Foundation

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The Waldenstrom’s Weekly

April 16, 2021

Volume 1, Issue 6

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact [email protected]

2023 Waldenstrom's Weekly Archive

 

2022 Waldenstrom's Weekly Archive

2021 Waldenstrom's Weekly Archive

SUPPORT

Save the Date!
IWMF Fatigue Support Group
May 25, 2021 from 1:00PM – 3:00PM U.S. ET

are you sick and tired of being sick and tired?

Join other individuals living with WM who are challenged with fatigue to connect meaningfully, network face to face on Zoom, share strategies and exchange helpful tips.

Dr. Rina Fox will offer a 15-minute presentation on fatigue followed by a lively Q&A where she will respond to your pre-submitted questions.

Marcia Klepac, IWMF Past Board Trustee and experienced Support Group Leader, will then facilitate an engaging discussion and fatigue support group session.

The goal of this first gathering is to focus on hearing each others’ voices and sharing experiences. Following Dr. Fox’s brief presentation, the remainder of the meeting will be conversational.

About the Presenters:

Rina S. Fox, PhD, MPH is a clinical psychologist and a Research Assistant Professor at the Northwestern University Feinberg School of Medicine, where she studies ways to help improve quality of life and decrease symptoms for adults facing cancer and other chronic illnesses. She is particularly interested in identifying ways that cancer survivors can sleep better and feel less fatigued by changing the way they think and act.

Marcia Klepac, RN, D.Ed. is a retired nurse/health educator and twenty-year WM survivor. During her career, Marcia worked as a nursing instructor and diabetes educator in a patient empowerment model of care. Following an early retirement due to treatment demands of WM, Marcia strived to maintain a good quality of life through wellness efforts and taking a proactive role in her disease management. Marcia is very grateful to the IWMF for their invaluable resources and the volunteer opportunities that she finds so rewarding.

This will be a Zoom meeting. You need to pre-register for the event. Upon registering, you will receive a confirmation email with meeting link information.

EDUCATION

CancerCare Connect® Education Workshop
Progress in the Treatment of WM
Wednesday, April 21st from 12:30-1:30PM U.S. ET

This will be the 8th collaboration between IWMF and CancerCare in a Connect® Education Workshop on WM. CancerCare, is the leading national organization in the U.S. providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer.  

REGISTER HERE!

Mayo Clinic WM Patient Symposium
May 23, 2021 at 8:00AM U.S. CT

From the Mayo Clinic:
 
We are excited to host a Virtual Symposium for patients with Waldenström Macroglobulinemia on May 23, 2021, organized in the honor of Dr. Robert A. Kyle, a pioneer in the field and a friend of Dr. Jan Waldenström. In this Symposium, Dr. Kyle along with other experts from Mayo Clinic will discuss certain important topics related to Waldenstrom macroglobulinemia followed by a Question and Answer Session. The registration for the Symposium is complimentary for the patients with Waldenström macroglobulinemia and their relatives.
 
We look forward to your presence at this meeting.
 
Sincerely,
 
Shaji Kumar, MD
Prashant Kapoor, MD
Wilson Gonsalves, MD
Vincent Rajkumar, MD
 
REGISTISTRATION INFORMATION

Save the Date!
WMUK Webinar: WM & Mental Health
May 10, 2021 at 11:00AM BST (UK)

Dr. Iain Jordan, Consultant in Psychological Medicine will be talking about how to look after your mental health when living with WM.
 
Dr Jordan will be joined by WMUK Support and Information Manager, Bob, to talk about mental health. The session is due to last approximately an hour, and there may be time for additional audience questions.
 
To submit any questions in advance, please email [email protected]

Over 400 Registered!
IWMF Global Educational Webinar
May 4, 2021 at 1:30PM U.S. ET

Living with Peripheral Neuropathy:
No Easy Feat

Join this exciting online event with a lively Ask the Doctor Session!

About the Program
This 90-minute webinar will explore different coping strategies and treatment options for those living with the pain and challenges of peripheral neuropathy. The doctors will also address the differences between WM-caused PN versus treatment-caused PN. An engaging Q&A will follow the presentation so please submit your questions in advance when registering. All questions addressed at the event will be pre-submitted.
 
Are you interested in a PN Support Group? Please let us know when you register!
REGISTER HERE!
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Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.
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Contact

  • 6144 Clark Center Ave.
    Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • [email protected]