International Waldenstrom’s Macroglobulinemia Foundation

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  • 6144 Clark Center Ave.Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • office@iwmf.com

The Waldenstrom’s Weekly

December 17, 2021

Volume 1, Issue 36

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact info@IWMF.com

2024 Waldenstrom's Weekly Archive

 

2023 Waldenstrom's Weekly Archive

 

2022 Waldenstrom's Weekly Archive

2021 Waldenstrom's Weekly Archive

RESEARCH

WM Practice Medical Guidelines and Research Articles on the IWMF Website

2021 WMUK Patient-Doctor Summit
Are you searching for a specific research paper about WM, NCCN or IWWM Guidelines for WM? If so, please be sure to check out our website HERE as this research page is updated regularly.
 
Thank you to IWMF Board Trustee, Linda Nelson, for keeping an eye out for important articles to share with our community!
 
Please note: This page is currently under reconstruction so check back often for archived articles and research papers.

Dr. Stephen Ansell of Mayo Clinic Recognized with the 2021 Ernest Beutler Lecture and Prize

ansell mayo new 2021
IWMF Board Advisor and WM expert, Dr. Stephen Ansell, was recognized by the American Society of Hematology (ASH) for his work on understanding the tumor microenvironment in lymphoma and for developing treatment strategies that block inhibitory signals or deplete suppressive cells to eradicate cancer. Click here to read the full article about this prestigious award.
 
During IWMF Ed Forum Month, Dr. Ansell presented on the topic of Current Treatment Options, and his video has received over 350 views on the IWMF YouTube Channel! You can watch the recording of his presentation HERE.

EDUCATION

Video Available!
WM Advances in Treatment with CureTalks Panel

The CureTalks panel speaks to Dr. Larry Anderson of UT Southwestern Medical Center and Dr. Rachid C. Baz of Moffitt Cancer Center on the current standard of care for WM, as well as novel agents currently being evaluated.
 
The video features a patient panel, which includes the IWMF Chair of the Board, Peter DeNardis, and Meg Mangin, IWMF Board Trustee & Facebook Group Moderator.
 
Thanks to Pete and Meg for being WM advocates!

Save the Date & Register Today!
LLS Virtual Florida Blood Cancer Conference
February 12, 2022 from 9:30AM – 1:30PM U.S. ET

The South Florida and North Florida Regions of The Leukemia & Lymphoma Society (LLS) are proud to present this free VIRTUAL education event to blood cancer patients, survivors, family members, caregivers, and healthcare professionals. Experts in the areas of blood cancer research, treatment, and survivorship will present information on each topic. The goal of this program is to educate conference participants about treatment options, emerging therapies, management of survivorship issues and LLS resources.

WM Breakout Speaker:

The program also features sessions on nutrition and cancer related fatigue, don’t miss out!
DETAILS AND REGISTRATION

SUPPORT

Registration Open!
Peripheral Neuropathy Support Session
January 26th, 2022 from 1:00PM – 3:00PM U.S. ET

The IWMF Peripheral Neuropathy Planning Committee is excited to announce their next meeting in 2022! We will have a special guest speaker, Nancy Campbell, M.S, Clinical Exercise Physiologist!
Nancy Campbell is a Clinical Exercise Physiologist in the Zakim Center for Integrative Therapies and Healthy Living at Dana-Farber Cancer Institute. Nancy provides personalized exercise consultations for patients through the Zakim Center. She also teaches several strength training based exercise classes for patients and survivors via Zoom. Nancy has been at Dana-Farber since 2005, is a certified ACE Personal Trainer and has the American College of Sports Medicine Cancer Exercise Trainer certification.  
 
if you are suffering from Peripheral Neuropathy, be sure to join us! This program will include a lively Q&A session following Nancy’s presentation.
 
Registration is required to attend this session. you will receive a confirmation email with Zoom meeting link details once you register. For any questions about this program, contact Michelle Postek at mpostek@iwmf.com or at 941-927-4963.
REGISTER HERE!

New Resource From Triage Cancer:
Practical Guide to Cancer Rights for Seniors

Triage Cancer’s new Practical Guide to Cancer Rights for Seniors contains information specific to older adults on making decisions around work and retiring, Medicare, managing medical bills, and much more.
CHECK OUT THE GUIDE HERE!

Shop while Supporting the IWMF

Going shopping this holiday season? Consider supporting the IWMF at the same time with purchases made through Amazon.Smile
 
A percentage of all purchases go towards supporting the vital work of the IWMF (every time you shop!). Learn more by clicking here.
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Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.
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