The Waldenstrom’s Weekly

March 4, 2022

Volume 2, Issue 8

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact


NCCN Patient Guidelines for WM Now Available

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Each year, the US National Comprehensive Cancer Network (NCCN) publishes updated treatment guidelines for various forms of cancer, including Waldenstrom’s macroglobulinemia (WM). They provide two versions – one for patients, and one for clinical practitioners.
The 2022 version for patients is now updated and available here.


Patient Empowerment Network Webinar
March 22nd at 1:00PM U.S. ET

Waldenström Macroglobulinemia Treatment Decisions: What’s Right for You?

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When faced with a WM diagnosis, what determines the best treatment for YOU? In this 30-minute webinar, Dr. Jorge Castillo will review key factors that affect treatment decisions, emerging treatment research, and tips for partnering with your healthcare team.

Dr. Jorge Castillo is Clinical Director at the Bing Center for Waldenström Macroglobulinemia Dana-Farber Cancer Institute and Assistant Professor of Medicine at Harvard Medical School. Learn more about Dr. Castillo, here.

IWMF Global Educational Webinar

An Overview of Amyloidosis and WM with Dr. Morie Gertz

Tuesday, March 29th, 2022

12:30PM – 1:30PM U.S. Eastern Time



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About the presentation:

This program will inform participants about the cause, signs/symptoms, diagnosis, and treatment of amyloidosis.

About the speakers:
You can learn more about our speakers by clicking here.


Bing-Neel International Support Sessions
2:30PM and 7:00PM U.S. ET on March 20th

2021 WMUK Patient-Doctor Summit

From our IWMF Bing-Neel Support Group Leaders:

The IWMF will be hosting two Bing-Neel Support Group meetings on March 20th.

We have scheduled two meetings instead of one in order to have smaller groups and to accommodate many different time zones. The earlier meeting will be at 2:30 pm and the later meeting at 7 pm (Eastern Time, GMT-4) The meeting format will be what’s called “Caring and Sharing” and will provide Bing-Neel patients and caregivers a chance to meet others who have a similar diagnosis from around the world.

We will also share a brief pre-recorded update from Dr. Shirley D’Sa who treats WM and BNS patients in the UK. 

The meetings will be hosted by our IWMF Bing-Neel Lifeline volunteers Julie Davidson (U.S.), Peter Freese (Australia), Stuart Quick (UK) and Eileen Sullivan (U.S., IWMF volunteer).

Registration is required for these meetings. After registering, you will receive a confirmation email containing information about joining the meeting. If you have any questions, please contact

Caregivers International Support Session
Wednesday, April 6th from 1:00PM-3:00PM U.S. ET


Dr. Hannah-Rose Mitchell
Memorial Sloan Kettering Cancer Center

 Join Caregivers around the world for a live Zoom meeting presentation and Q&A with Dr. Hannah-Rose Mitchell.

Dr. Mitchell is a clinical health psychologist and Chief Postdoctoral Research Fellow at Memorial Sloan Kettering Cancer Center in the Department of Psychiatry and Behavioral Sciences, where she provides services to families in the Caregivers Clinic. Her research aims to reduce the burden of cancer on the family and to improve patient and family caregiver well-being.

Registration is required for this session. After registering, you will receive a confirmation email containing information about joining the meeting. If you have any questions, please contact

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The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
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