The Waldenstrom’s Weekly

May 21, 2021

Volume 1, Issue 11

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact


The IWMF is excited to share that we have a new platform host for our Virtual Events, which includes Global Educational Webinars and Ed Forum Month in October. Check out our new IWMF Events site HERE, and register for our next program!


FREE Mayo Clinic WM Patient Symposium
May 23, 2021 at 8:00AM U.S. CT

From the Mayo Clinic:
We are excited to host a Virtual Symposium for patients with Waldenström Macroglobulinemia on May 23, 2021, organized in the honor of Dr. Robert A. Kyle, a pioneer in the field and a friend of Dr. Jan Waldenström. In this Symposium, Dr. Kyle along with other experts from Mayo Clinic will discuss certain important topics related to Waldenstrom macroglobulinemia followed by a Question and Answer Session. The registration for the Symposium is complimentary for the patients with Waldenström macroglobulinemia and their relatives. 
We look forward to your presence at this meeting.
Shaji Kumar, MD
Prashant Kapoor, MD 
Wilson Gonsalves, MD
Vincent Rajkumar, MD
*Please note that this session is limited to 500 attendees.
Register now!                                               

Lymphoma Research Foundation
Ask the Doctor Session: Watch and Wait
June 9th, 2021 from 7:00PM – 9:00PM U.S. ET

Ask the Doctor About Lymphoma is a national series of two-hour, topic-specific, community-based programs that combine a presentation by a medical doctor with an extensive question and answer session.
This program will cover topics for newly diagnosed patients on watch and wait or considering other frontline options. Meeting details can be found HERE.
For more information about The Lymphoma Research Foundation,
Click HERE.


Sick & Tired of Feeling Sick & Tired?
IWMF Fatigue Support Session

Thank you to the 365 registrants and 160 live attendees who joined us this past Tuesday for our first IWMF Fatigue Support Session!
Would you like to catch the replay? Watch Dr. Rina Fox present on fatigue followed by a lively Q&A where she and a Patient Panel of WM patients & caregivers responded to your pre-submitted questions. Our Patient Panel also shared their experiences living with chronic fatigue.
About the Presenter
Rina S. Fox, PhD, MPH is a clinical psychologist and a Research Assistant Professor at the Northwestern University Feinberg School of Medicine, where she studies ways to help improve quality of life and decrease symptoms for adults facing cancer and other chronic illnesses. She is particularly interested in identifying ways that cancer survivors can sleep better and feel less fatigued by changing the way they think and act.

U.S. Patient Financial Assistance Opportunity
Patient Access Network (PAN) Foundation

The PAN Foundation is helping patients afford their out-of-pocket costs with annual grants of $6,500.

We know it can be difficult to afford the out-of-pocket costs of treatment for WM. If you’re looking for more financial assistance resources to help with your out-of pocket treatment costs, we encourage you to learn more about our friends at the PAN Foundation.

The Patient Access Network (PAN) Foundation is a national organization that helps underinsured patients with life-threatening, chronic, and rare diseases get the medications and treatments they need by assisting with their out-of-pocket costs. You can find more information about their WM funds below.


About PAN’s Waldenstrom macroglobulinemia (WM) fund

PAN’s WM patient assistance fund provides $6,500 per year in
financial assistance to pay for the deductibles, co-pays, and coinsurance costs associated with WM treatment. To qualify for funding, patients living with WM must meet the following eligibility
  • Be getting treatment for Waldenstrom macroglobulinemia.
  • Have an income that falls at or below 500% of the Federal Poverty Level.
  • Have Medicare health insurance that covers the qualifying medication or product.

Review the full eligibility criteria HERE and check if you qualify.


How to apply

It’s easy to apply and you’ll learn if you’re approved for a grant immediately. Visit PAN’s online patient portal to get started and check out their portal how-to guides for step-by-step instructions on common tasks like creating an account and applying for assistance. You can also reach PAN by phone at 1-866-316-7263, Monday through Friday, 9 a.m. to 7 p.m. Eastern Time.

Leukemia & Lymphoma Society
Reopening of U.S. Patient Aid Program

The Leukemia & Lymphoma Society (LLS) is pleased to announce the reopening of their Patient Aid Program. Through this program, LLS provides a one-time $100 stipend to eligible blood cancer patients to help offset expenses. There are no income criteria to qualify for this program. ​
To be eligible for the program:
  • Patients must be U.S. citizens or permanent residents and reside in the U.S. or U.S. territories.
  • Patients must have a confirmed diagnosis of blood cancer, be in active treatment, scheduled to begin treatment or in follow up care, all attested to by the patient or care team member.
  • Patients may be insured or uninsured.
  • Patients are only eligible for one Patient Aid award. If patients have received a Patient Aid award in the past, they are not eligible to reapply.
How to Apply
  • Online: Online Portal (24/7, Available in English only)
  • By Phone: (877) 557-2672 (Monday to Friday, 8:30 a.m. to 5:00 p.m. ET; language interpreters available)
To access other patient financial assistance programs, visit
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Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

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