International Waldenstrom’s Macroglobulinemia Foundation

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The Waldenstrom’s Weekly

January 21, 2022

Volume 2, Issue 2

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact [email protected]

World Cancer Day
February 4, 2022

World Cancer Day
World Cancer Day takes place every year on 4th February and is the uniting global initiative under which the world comes together to raise the profile of cancer in a positive and inspiring way. Spearheaded by the Union for International Cancer Control (UICC), the day aims to save millions of lives each year by raising awareness and improving education about the disease while calling for action from governments and individuals across the world.
 
World Cancer Day 2022 is led by the theme “Close the care gap, recognising the power of knowledge and challenging assumptions.
 
Last year’s campaign saw over 840 activities taking place in 116 countries, including 152 iconic monuments in 91 cities lit up in the colour orange for World Cancer Day, over 20,000 press articles published in 156 countries, and nearly 700,000 social media posts being shared, including at the highest levels from US President Joe Biden, French President Emanuel Macron and British Prime Minister Boris Johnson.
 
For more information, please visit: www.worldcancerday.org
 
For more information about specific country events, please visit:

EDUCATION

Registration Open!
IWMF Global Educational Webinar
February 8, 2022 at 11:30AM U.S. ET

DR. Ailawadhi

ASH Highlights
with Dr. Sikander Ailawadhi

About the Presentation:
Join Dr. Sikander Ailawadhi of Mayo Clinic (Jacksonville, FL) on Tuesday, February 8th at 11:30am U.S. ET as he highlights WM research and pertinent information from the 2021 American Society of Hematology (ASH) annual meeting.
About the Presenter:
Dr. Ailawadhi is a Professor with the Division of Hematology-Oncology at Mayo Clinic in Jacksonville and joined the Division in 2014 when he moved from the University of Southern California, Los Angeles where he was an academic faculty with Hematology.
His career focus has been on treatment of plasma cell disorders, namely multiple myeloma and Waldenström’s macroglobulinemia, and also chronic lymphocytic leukemia. His research has focused on understanding the epidemiology and pathophysiology of these disorders, evaluating the benefit of various therapeutic strategies in different populations based on racial-ethnic and socioeconomic diversity, as well as developing novel therapeutics by means of conducting several regional and national clinical trials.

CancerCare Connect Eduction Workshop
COVID-19, Omicron & Delta Variants, COVID-19 Vaccines & Booster Vaccines: Revised Guidelines for People Living with Cancer & Their Loved Ones

cancercare logo
Workshop Date and Time
Monday, February 7, 2022, 1:30 – 2:30 pm, U.S. Eastern Time
 
Registrants can listen in live over the phone or online as a webcast.
Participation in this Connect Education Workshop is free, but you must pre-register. Register online at the button below or call the CancerCare HopeLine at 1-800-813-4673. After you have registered, you will receive additional information with connection instructions and other details. If you have a scheduling conflict and cannot participate in the teleconference, you will be able to access a recording of the program on the CancerCare website.
 
Topics Covered
  • How to Protect Yourself & Your Loved Ones from COVID-19 & Omicron & Delta Variants
  • COVID-19 Vaccines & Booster Vaccines
  • Other Vaccines – Flu, Pneumococcal & Shingles Vaccines
  • COVID-19 & People Living with Cancer
  • Where to Find Reliable Information Regarding this Pandemic & Its Variants
  • How to Protect Yourself, Loved Ones & Children from COVID-19 & Its Variants
  • The Increasing Role of Telemedicine/Telehealth Appointments
  • How to Prepare for Your Telemedicine/Telehealth Appointments, including
  • Prepared List of Questions, Follow-Up Appointments & Discussion of OpenNotes
  • Working Closely with Your Health Care Team about Your Wishes & Health Care Directives
  • Tips to Manage the Practical, Emotional & Financial Stresses Related to COVID-19, Delta & Omicron Variants & Cancer
  • Self-Care & Stress Management Tips
  • Questions for Our Panel of Experts

SUPPORT

NEXT WEEK!
Peripheral Neuropathy Support Session
January 26th, 2022 from 1:00PM – 3:00PM U.S. ET

The IWMF Peripheral Neuropathy Planning Committee is excited to announce their next meeting in 2022! We will have a special guest speaker, Nancy Campbell, M.S, Clinical Exercise Physiologist!

2021 WMUK Patient-Doctor Summit
Nancy Campbell is a Clinical Exercise Physiologist in the Zakim Center for Integrative Therapies and Healthy Living at Dana-Farber Cancer Institute. Nancy provides personalized exercise consultations for patients through the Zakim Center. She also teaches several strength training based exercise classes for patients and survivors via Zoom. Nancy has been at Dana-Farber since 2005, is a certified ACE Personal Trainer and has the American College of Sports Medicine Cancer Exercise Trainer certification.  
 
If you are suffering from Peripheral Neuropathy, be sure to join us! This program will include a lively Q&A session following Nancy’s presentation.
 
Registration is required to attend this session. you will receive a confirmation email with Zoom meeting link details once you register. For any questions about this program, contact Michelle Postek at [email protected] or at 941-927-4963.

Leukemia & Lymphoma Society
Co-Pay Assistance Available for U.S. Patients!

LLS

Great News! The Leukemia & Lymphoma Society WM Co-Pay Assistance Program is currently open for U.S. Patients

WITH NEW ENHANCEMENTS:

Instant Decision

No more waiting! Patients get a decision in real time and have immediate access to funds.

Quick Search Tool – Available Now
Access current status of applications, award coverage period, award balances, claim submissions, and payment details without logging into the portal. Questions? Click here.

Increased household income threshold

Household incomes that are at or below 600% of the U.S. federal poverty guidelines as adjusted by the Cost of Living Index (COLI) may be eligible for assistance.

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Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

Sign-up for the Waldenstrom’s Weekly and get it emailed directly to your inbox!

Contact

  • 6144 Clark Center Ave.
    Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • [email protected]