The Waldenstrom’s Weekly

March 12, 2021

Volume 1, Issue 2

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact [email protected]

EDUCATION

OVER 550 Registrants!
IWMF Global Educational Webinar
Wednesday, March 31st at 11:30am U.S. ET

Ask the Doctors LIVE:

WM and the COVID Vaccine

Don’t miss this one-hour webinar to answer YOUR questions about WM and the COVID vaccine!
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CancerCare Connect® Education Workshop
Progress in the Treatment of WM
Wednesday, April 21st from 12:30-1:30 pm U.S. ET

The IWMF is excited to announce that we have updated our WM Details Fact Sheet with the latest information on WM, including:
  • causes and risk factors
  • prognosis
  • signs and symptoms of disease
  • common medical tests used for diagnosis and disease monitoring
  • treatments and side effects
  • recent developments
  • survivorship
 
In addition to our updated WM Details Fact Sheet, the IWMF has also created a new fact sheet on the anti-cancer chemotherapy drug Cyclophosphamide.
 
The IWMF provides educational publications free of charge – for a full listing of our publications, please click the button below.

This will be the 8th collaboration between IWMF and CancerCare in a Connect® Education Workshop on WM. CancerCare, is the leading national organization in the U.S. providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer.  

IWMF publications
IWMF publications

Video of Dr. Richard Furman available from North America Support Group Leader Call on 3/3/21

Dr. Richard Furman of Weill Cornell Medicine met with over 40 North American Support Group Leaders to discuss his exciting work in the world of WM, clarify the importance of the Covid vaccine for WMers, and answer the critical question: “What is the one thing that you wish every WMer knew today?” Dr. Furman offered a formal slide presentation for the first 45 minutes of the meeting and then engaged in a lively Q&A for 45 minutes. The IWMF is deeply grateful to Dr. Furman for sharing his generous time and WM wisdom!

New Options for Diffuse Large B-Cell Lymphoma (DLBCL)

From Cancer Support Community: CEO Linda Bohannon interviewed Dr. Kami Maddocks from the James Comprehensive Cancer Center at Ohio State University about the latest treatment options, current clinical trials, and self-care during treatment.

SUPPORT

The Leukemia & Lymphoma Society Launches New Financial Assistance Program
(U.S. Patients Only) 

The Leukemia & Lymphoma Society (LLS) announced the opening of the Susan Lang Pre CAR T-cell Therapy Travel Assistance Program. This program provides financial assistance to patients diagnosed with a blood cancer who are being evaluated to receive CAR T-cell therapy as either standard treatment or a clinical trial.
 
Assistance ($2,500) covers travel and lodging expenses from the evaluation phase through the end of the conditioning therapy phase.

New from Triage Cancer:
Legal & Financial Navigation Program

Serving individuals diagnosed with cancer, caregivers, and health care professionals, Triage Cancer provides answers to questions through free, one-on-one navigation of cancer-related legal and financial issues.
Individuals can receive guidance on topics such as health insurance options, employment rights, financial strategies, and estate planning.

 

Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

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Contact

  • 6144 Clark Center Ave.
    Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • [email protected]