International Waldenstrom’s Macroglobulinemia Foundation

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The Waldenstrom’s Weekly

December 3, 2021

Volume 1, Issue 34

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact [email protected]

EDUCATION

New Videos Available on Transformation
and Bing-Neel Syndrome

2021 WMUK Patient-Doctor Summit
On November 17th, Dr. Edward Libby and Dr. Mary Kwok of Seattle Cancer Care Alliance presented to IWMF Support Group Leaders and International Affiliates on the topics of transformation and Bing-Neel Syndrome. A lively Q&A Session followed the presentations.
 
We extend our thanks to Dr. Libby for presenting to the IWMF community one last time before his retirement!

2021 WMUK Patient-Doctor Summit
On November 21st, two international IWMF Bing-Neel Specialty Topic Sessions were held.
 
During both of the sessions, a pre-recorded video was shared by Dr. Jorge Castillo of Dana-Farber Cancer Institute, which he prepared exclusively for these meetings with an update on Bing-Neel Syndrome.
 
Thank you to our group leaders: Eileen Sullivan, Julie Davidson, Stuart Quick and Peter Freese.

Union for International Cancer Control Webinar
Prehabilitation – Multimodal Interventions to Improve Resilience and Response to Treatment in Cancer

In this Special Focus Dialogue on Tuesday, December 7th, experts on prehabilitation in cancer will share their experience in developing, implementing and evaluating prehabilitation interventions. They will discuss how being nutritionally, physically and psychologically ‘unfit’ might affect resilience to cancer and how multimodal prehabilitation can help decrease treatment-related morbidity, increase cancer treatment options, and improve physical and psychological health outcomes.
 
This program is held in collaboration with ICONIC – International Collaboration on Nutrition in relation to Cancer.
 
For more information about this program, click HERE. Please note that this international program will take place at 2:00 PM Central European Standard Time (8:00AM U.S. Eastern Time). 
 
For assistance with registering, contact Shalini Zürn:

Leukemia & Lymphoma Society Webinar
Blood Cancers: Managing Side Effects

Topics Covered:
  • Typical side effects of different drug classes
  • How your treatment team can treat your side effects
  • The social and emotional impact of cancer
  • Financial implications of cancer
  • The importance of speaking to your treatment team about quality-of-life issues

SUPPORT

THANK YOU to All Who Gave on Giving Tuesday!

#GivingTuesday was a global day of support for meaningful organizations and causes in your life.

We are so grateful to the WM Community for raising nearly $16,000 (80 gifts!) in support of the IWMF on November 30th!

THANK YOU!

WM Community Corner

Shauna Johnson of South Carolina (US) was recently interviewed about her experience writing her new Christmas book while undergoing chemotherapy treatment for her WM.

WM Community Corner

Going shopping this holiday season? Consider supporting the IWMF at the same time with purchases made through Amazon.Smile

 

A percentage of all purchases go towards supporting the vital work of the IWMF (every time you shop!).

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Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

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Contact

  • 6144 Clark Center Ave.
    Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • [email protected]