International Waldenstrom’s Macroglobulinemia Foundation

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The Waldenstrom’s Weekly

May 28, 2021

Volume 1, Issue 12

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact [email protected]

Education

The IWMF is excited to share that we have a new platform host for our Virtual Events, which includes Global Educational Webinars and Ed Forum Month in October. Check out our new IWMF Events site HERE, and register for our next program!

 
 

SUPPORT

Sick & Tired of Feeling Sick & Tired?
RECORDING NOW AVAILABLE!
IWMF Fatigue Support Session

Thank you to the 365 registrants and 160 live attendees who joined us this past Tuesday for our first IWMF Fatigue Support Session!
 
Would you like to catch the replay? Watch Dr. Rina Fox present on fatigue followed by a lively Q&A where she and a Patient Panel of WM patients & caregivers responded to your pre-submitted questions. Our Patient Panel also shared their experiences living with chronic fatigue.
 
About the Presenter
 
Rina S. Fox, PhD, MPH is a clinical psychologist and a Research Assistant Professor at the Northwestern University Feinberg School of Medicine, where she studies ways to help improve quality of life and decrease symptoms for adults facing cancer and other chronic illnesses. She is particularly interested in identifying ways that cancer survivors can sleep better and feel less fatigued by changing the way they think and act.

WM Chair Yoga – Continued Series!
Join us Mondays in June at 2:00PM U.S. ET

We had so much positive feedback from our May WM Chair Yoga series that we are going to continue offering this opportunity in June!
 
If you would like to join the mailing list for this free series, email Michelle at [email protected].
 
Join a 4-week Chair Yoga series tailored just for those managing WM. No experience needed! We’ll move the breath and body to help battle fatigue, compromised immune system health, and balance issues. While we will remain seated for most of the class, we may stand and use the chair for support for some poses, with modifications so all levels can practice.
 
Our 45 minute classes will incorporate some of the following:
 
  • Breath exercises for reducing stress and boosting the immune system
  • Gentle stretches designed to energize the whole body
  • Yoga poses that move the lymph fluid, and improve balance and steadiness
  • Meditations like body scans to facilitate mindfulness, acceptance, and relaxation
 
Instructor:
Ann MacMullan is a certified yoga instructor (E-RYT 200, RYT 500) and believes in the therapeutic value of yoga and meditation for everyone, no matter what age, level of fitness, or life circumstance. She has been sharing the gift of yoga in community, corporate, private, and healthcare settings throughout the Philadelphia area since 2015, and is currently pursuing her IAYT-850hr certification in Yoga Therapy. Her father was diagnosed with WM in 2019.
 
Classes will take place on Zoom and are limited to 100 attendees. If you have not used zoom before, please contact Michelle for a practice session.
 
Questions? Contact Michelle at [email protected]
 
Classes will be held on June 7th, 14th, 21st and 28th.
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Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

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Contact

  • 6144 Clark Center Ave.
    Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • [email protected]