The Waldenstrom’s Weekly

October 1, 2021

Volume 1, Issue 26

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact


The fourth issue of the 22nd volume of the
IWMF Torch is now online!

IWMF torch oct 2021
Hello everyone!
As we enter October of 2021 and anticipate the new year of 2022, it’s hard to imagine we’ve all been dealing with COVID for almost two years. As we weather the ups and downs of this pandemic, we can always be confident that WM medical experts and the volunteers and staff of the IWMF always are ready to help support us through this trying time.
As part of that support, we’re pleased to present another issue of the IWMF Torch, full of information about new research and treatments, support groups, international affiliates, and special events.
Sick and tired of being sick and tired? The cover story offers suggestions to help alleviate cancer and treatment-related fatigue, while the exciting announcement of a second drug approved by the FDA for WM, zanubrutinib, certainly brightens our outlook.
We also are beginning a new feature in this issue, a summary of the WM Support Group on Facebook, a platform that now has over 4200 members, with lots of WM-related discussion and support.
So look for the October issue online and in your mailbox in the coming weeks, and enjoy all it has to offer!
Best wishes for health and happiness,
Shirley Ganse
Editor, IWMF Torch


Register Today and then Reserve Your Seat!

Join us for an entire month of FREE
educational programs in October,
culminating in our Virtual Educational Forum!

How do I sign up?

  • STEP 1: Click HERE to register for the IWMF Virtual Events platform!
  • STEP 2: Once you are registered, follow the instructions HERE on how to Reserve a Seat for each event that you would like to attend during Ed Forum Month.
    • If you need guidance, check out this handy instructional video on how to Reserve a Seat HERE!

    Contact the IWMF Home Office at or call 941-927-4963 if you need assistance with registering or saving your seats.

    We can’t wait to see you there! For more information about what to expect at this year’s IWMF Virtual Educational Forum, click HERE to view the agenda!

Submit your questions for the IWMF Ed Forum Speakers


An exciting feature of October Ed Forum Month is that ALL presentations will be LIVE with Q&A for EACH presentation! All questions will be pre-submitted, so we want YOUR input! Please feel free to submit questions you may have for any of our speakers. Please note that due to limited time for Q&A, not all questions will be answered.
Click the blue links below ASAP to submit YOUR questions and make your voice heard during Ed Forum Month!


2021 WMUK Patient-Doctor Summit
November 13, 2021

Join the WM community for a day of all things Waldenstrom’s macroglobulinaemia at the WMUK Patient-Doctor Summit. Hear from experts, share stories and meet new people from the WM community in this fully virtual conference. Find out more and reserve your free ticket at the button below!

WM Community Corner

Ryan Scofield, Young WM Co-Leader & LIFELINE Volunteer, was recently interviewed about running in the Hoka Chicago Half Marathon which took place last weekend.
Listen to what running means to Ryan below, and be inspired to hit the pavement!

Maria Brady participated in an international podcast called Raising Cain-about empowering women and families. Maria has donated a portion of her book sales (Twenty Won) and website orders ( to the IWMF. Her story of resilience is below.

U.S. WM Patients: LLS Co-Pay Funding Available!
Financial Assistance up to $7,500

The Leukemia & Lymphoma Society offers financial assistance up to $7,500 for treatment-related expenses for eligible U.S. patients:
  • Medical Insurance Premiums: Private & Public, Tricare, Medicaid, Medicare Part A, B, C, D. If the premium is deducted from your Social Security or paycheck, these funds can be reimbursed to you.
  • Non-diagnostic scans, lab work and testing: ECGs, EKGs, x-rays, ultrasounds, MRI, PET & CT scans, blood work, biopsies, bone marrow aspirations, tissue typing & stem cell harvesting for transplants, etc.
  • Prescribed Medications: Chemotherapy (IV or Oral) and supportive medications like anti-nausea, antibiotics, steroids, pain medication, etc.
Watch a Video on how to apply HERE.
Funding is limited, so apply as soon as possible. 

To apply, click the button below OR call 877-557-2672 to speak with an Intake Specialist who can walk you through the application process.

Cellectar clinical trials ad

This is a paid clinical trial advertisement

Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

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