International Waldenstrom’s Macroglobulinemia Foundation

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International Waldenstrom’s Macroglobulinemia Foundation

Language

Specialized Support

SPECIALIZED SUPPORT

Dealing with a cancer diagnosis, treatment, and long-term survival issues can sometimes be overwhelming or confusing. Find programs, services, information and other assistance on a variety of topics that may address your specific concerns

Airlift Assistance

Angel Flight East (AFE) Free air transportation to patients and family

 

Patient AirLift Services (PALS) Free medical flights for patients and Veterans

angelflighteast.org

215-358-1900

 

888-818-1231 or 631-694-7257  https://palservices.org/

Atrial Fibrillation Learn about AF (or afib) the most common irregular heartbeat

StopAfib.org  Melissa Moss 678-223-3833

 

Benefits of Exercise for Cancer Patients Video by WM patient Murray Shaw

https://www.youtube.com/watch?v=9UkDwY3PRJE

 

Cancer Rights Practical guide on legal, employment, insurance, and financial issues people face after cancer diagnosis [email protected]
424-258-4628
Your Cancer Roadmap: Navigating Live with Resiliance 2021 book by Kim Thiboldeaux, CEO at Cancer Support Community that walks through the cancer journey putting the patient in the driver’s seat

Cancer Today interview with the author

Order Your Cancer Road Map: Navigating Live with Resilience

Clinical Trial Navigation and Transportation A resource guide with guidelines and safety protocols from Lazarex Care Patient Assistance

https://lazarex.org/helping-you/program-services-guide/(link is external)

925-820-4517 [email protected]

CONQUER Official patient voice magazine of the Academy of Oncology Nurse & Patient Navigators (AONN+) patient stories, immunotherapy, and specialty lymphoma online

Subscribe or browse and explore online

 

COVID-19 Learning Center Latest information from the Lymphoma Research Foundation

https://lymphoma.org/covid-19-learning-center/

800-500-9976 [email protected]

Digital Literacy Course Free guided video courses to become more comfortable with technology

Patient Empowerment Network (PEN) https://iamdigitallyempowered.org/

 

Doctor Visits Make the most of your appointments by taking time to prepare for and manage your doctor visits

Cancer Today article by Hester Hill Schnipper

Take Time to Prepare for and Manage Your Doctor Visits

Eating Healthy and Cancer Prevention

Tips for switching your diet, explore foods; take the Healthy 10 Challenge, a free 10-week interactive online program https://www.aicr.org/cancer-prevention/healthy-eating/new-american-plate/

 

American Institute for Cancer Research 800-843-8114 https://www.aicr.org/cancer-prevention/healthy-eating/new-american-plate/

 

Financial and Legal Planning Tools for Cancer Patients:  advance care planning, organizing and prioritizing financial and legal affairs and decisions Magnolia Purpose in Planning is offered through Eisai, Inc. us.eisai.com 919-941-6920
Triage Cancer [email protected]

424-258-4628

Food Assistance, Save Money and Eat Healthy Fact Sheet for meal planning, grocery shopping, food safety, federal programs, and additional resources

Leukemia & Lymphoma Patient Education

https://www.lls.org/nutrition    877-467-1936

Imbruvica (ibrutinib) personal assistance for patients Talk with a YOU&I Nurse Educator 877-877-3536 Johnson & Johnson Patient Assistance Foundation 800-652-6227 jjpaf.org
Immune Deficiency Foundation (IDF) Learn about primary immunodeficiencies (PI) [email protected] 800-296-4433
Lazarex Care Patient Assistance Clinical trial navigation and transportation https://lazarex.org/helping-you/program-services-guide/(link is external) 925-820-4517 [email protected]
Making the Decision to Travel A resource guide with guidelines and safety protocols from Connections Housing with links to recognized U.S. health and travel authorities https://iwmf.com/wp-content/uploads/2020/12/Making-the-Decision-to-Travel-A-Resource-Guide.pdf
Medical Bill Management Management and advocacy services to help cancer patients avoid overpaying for health care offered by CoPatient through Triage Cancer

https://TriageCancer.org/Cancer-Finances.

424-258-7064

[email protected]    800-797-8942

 

Medicare Extra Help Patient Access Network (PAN) education and financial assistance hub for people on Medicare

https://www.panfoundation.org/extrahelp/

877-839-2675

Medication Resource for Blood Cancer Patients Leukemia & Lymphoma Society Handbook – read or download
Nutrition Consult Free one-on-one oncology nutrition consult with a Registered Dietician

Offered by Leukemia & Lymphoma Society

Schedule an appointment online 800-955-4572

Pet Awareness and Wellness Webinar Joys and challenges of Pets in Your Home When You Have Cancer

Podcast from CancerCare

800-813-4673

Oncology Social Workers Connect with an Oncology Social Worker who can address emotions and concerns that can come with a cancer diagnosis  Read More

Cancer Support Community Helpline

888-793-9355

 

Prescription Drug Assistance Understanding how your insurance covers your prescription drugs and resources to help reduce costs

From Triage Cancer Quick Guide: Getting & Paying for Prescription Drugs 

[email protected]
424-258-4628

Screening & Prevention Keep recommended cancer screenings on track

Speak with a support specialist and learn about screening options in your area 855-537-2733

Time to Screen

Seniors Guide to Cancer Rights Disability, health insurance, retirement:  planning ahead and other concerns for older adults Practical Guide for Older Adults from Triage Cancer
Side Effects Management Free info in multiple languages for a variety of symptoms and side effects

Order or download

Leukemia & Lymphoma Society 800-955-4572 www.lls.org

Wellbeing and Resilience:  Ted Talk by Julie Larson, LCSW 2021 Living in the AND – Message to illuminate the possibility that even in the midst of suffering we can find our footing 14-minute video Julie Larson – TEDx Des Moines – Living in the And
Twelve Weeks:  An Artist’s Story of Cancer, Healing, and Hope 2011 written by WM patient, Karen Lee Sobol

Order e-book or paperback online

 

Write a Free Will in Less Than 20 Minutes Create or update your legally binding Last Will & Testament and other end-of-life planning documents online

Patient Access Network (PAN Foundation)

FreeWill Co., A Delaware Public Benefit Corporation

Young Adults – Guide to Cancer Rights A booklet for young adults with a cancer diagnosis:  education, employment, insurance & finances

Practical Guide for Young Adults from Triage Cancer

[email protected]   424-258-4628

 

Young Adults – Survivorship Workbook Age-appropriate information you need throughout diagnosis, treatment, follow-up and long-term management of a blood cancer

Leukemia & Lymphoma Society

www.LLS.org/booklets

800-955-4572