International Waldenstrom’s Macroglobulinemia Foundation

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Resources for Healthcare Professionals

IWMF Publications

The following two publications, written by WM expert clinicians from the Bing Center for Waldenstrom Macroglobulinemia, Dana-Farber Cancer Institute, serve as a primer on WM by addressing essential questions regarding the diagnosis, treatment, and side effect management of this rare disease. Download them directly or get a free printed copy by contacting us here. 

Essential Information:
A Physician’s Guide

Essential Information Nurses Guide Cover

Essential Information:
A Nurse’s Guide

The IWMF Torch

Our quarterly magazine, the IWMF Torch, covers new organizational initiatives, as well as the latest information on WM research and treatments featuring articles by WM experts from major cancer centers around the world.

IWMF Directory of WM Physicians

For your information and convenience, the IWMF assembled a worldwide directory of WM-expert physicians, researchers, and cancer centers. All the physicians in the directory have agreed to be available for consultations and second opinions for both you and your patients.

Practice Guidelines/Research Articles

The IWMF compiles important articles related to the diagnosis, treatment, and management of WM, written by leading WM clinicians and researchers. Indexed by year, you can choose to read the article summary or full text, depending on your level of interest.

The National Comprehensive Cancer Network (NCCN), an alliance of 33 leading cancer centers, develops clinical practice guidelines and other resources that promote quality cancer care. The NCCN Clinical Practice Guidelines are for healthcare professionals practicing in oncology. Listed by cancer type, they detail evidenced-based, consensus-driven sequential management decisions and interventions; access the Guideline for WM/LPL.

The NCCN Guidelines for Patients present expert information in plain language to empower patients to understand their disease and talk with their clinicians about the best treatment options; access the Patient Guideline for WM.

Lymphoma Hub

The Lymphoma Hub is an open-access online resource dedicated to providing the latest evidenced-based medical information in lymphoma. The IWMF works closely with the Lymphoma Hub to provide expert opinion and accurate information on WM. Find summaries of clinical trial findings, therapy approvals, scientific articles, international congress proceedings, and video shorts on all things WM tailored for time-stretched healthcare professionals. Find an infographic here that provides essential information on WM in an at-a-glance format.

Research Grants

The IWMF works to promote and support basic research leading to improved understanding of the cause, diagnosis, treatment, and cure for Waldenstrom’s macroglobulinemia. We offer various research grants that range from supporting the career development of young investigators to providing seed money to test pilot hypothesis to large, multi-year grants. Information on applying for a grant can be found here.

International WM Workshops

The IWMF regularly co-sponsors meetings for clinicians and researchers to help advance WM-specific research. In 2000, the first International Workshop on Waldenstrom’s Macroglobulinemia (IWWM-1) was held. Since that time, this bi-annual meeting – coordinated by the Bing Center for Waldenstrom Macroglobulinemia, Dana-Farber Cancer Institute – has steadily grown to include international investigators from over 30 countries.

The next meeting, the 12th International Workshop on Waldenstrom’s Macroglobulinemia (IWWM-12) will be held October 17-20, 2024 in Prague. Attend the world’s most comprehensive hematology/oncology conference on WM where medical professionals from all over the world gather to share their research findings and develop collaborative partnerships to further advance the treatment of, and ultimately a cure for, this rare disease. We hope to see you there!

To access abstracts from past workshops, visit the WM Workshop archival website here.

Resources for your Patients

The IWMF provides a comprehensive set of services to people with WM and their loved ones through our education, information, and support programs. The following resources can serve as valuable supplements to your practice:

Educational Resources

Support Services

  • Directory of WM Physicians: Listing of WM physicians available for consultations/second opinions.
  • Lifeline: One-on-one consultations by phone or email with experienced peer mentors specializing in specific topics.
  • Support Groups: Over 60 groups worldwide, including specialty topic groups (Bing-Neel, Peripheral Neuropathy, Young WM Patients, Veterans, People of Color, etc.) that meet in person or virtually.
  • IWMF Connect: Online community with wide variety of moderated WM-related group discussion forums.
  • Financial Assistance: A comprehensive resource center of financial assistance programs from a wide variety of organizations.
  • Stories of Hope: Personal narratives providing support and inspiration to people living with a rare disease.
  • Support for Caregivers: Information and support services for caregivers.

Contact

  • 6144 Clark Center Ave.
    Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • [email protected]