International Waldenstrom’s Macroglobulinemia Foundation

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The Waldenstrom’s Weekly

October 8, 2021

Volume 1, Issue 27

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact [email protected]

2023 Waldenstrom's Weekly Archive

 

2022 Waldenstrom's Weekly Archive

2021 Waldenstrom's Weekly Archive

SPECIAL ANNOUNCEMENT

Dr. Steven Treon Presents:
Timely Updates in the Treatment of
Waldenstrom’s Macroglobulinemia

Dr. Treon
In this presentation, Dr. Steve Treon of the Bing Center for Waldenstrom’s Macroglobulinemia presents timely updates in the treatment of WM with a focus on the newly FDA approved Zanubrutinib.
 
This presentation concludes with a Q&A session, however, we encourage you to continue the conversation through IWMF-Connect. At the conclusion of this presentation, please click here to get the conversation started and connect with WM community members from around the world.
CLICK HERE TO WATCH THE PRESENTATION!

This educational presentation is sponsored by:

Beigene

RESEARCH

BeiGene Announces First Regulatory Approval in Australia for BRUKINSA® (Zanubrutinib) for Treatment of Patients with WM

Beigene
Great news for WM patients in Australia! David Young, WMozzies National Team Leader, was recently quoted in a press release about the approval of Zanubrutinib for WM patients in Australia. Read the press release HERE.
 
WMozzies is the IWMF Affiliate in Australia. To learn more about the WMozzies, check out their website HERE.

EDUCATION

Next Wednesday! WM & Self-Care Workshop
Register Today and then Reserve Your Seat!

THANK YOU to Everyone who attended our first Workshop this week on Understanding WM!
Join us for an entire month of FREE educational programs in October, culminating in our
Virtual Educational Forum!

How do I sign up?

  • STEP 1: Click HERE to register for the IWMF Virtual Events platform!
  • STEP 2: Once you are registered, follow the instructions HERE on how to Reserve a Seat for each event that you would like to attend during Ed Forum Month.
    • If you need guidance, check out this handy instructional video on how to Reserve a Seat HERE!

    Contact the IWMF Home Office at [email protected] or call 941-927-4963 if you need assistance with registering or saving your seats.

    We can’t wait to see you there! For more information about what to expect at this year’s IWMF Virtual Educational Forum, click HERE to view the agenda!

REGISTER NOW

SUPPORT

Bing-Neel International Support Group Meetings
November 21, 2021 at 12PM and 7PM U.S. ET

The IWMF will be hosting two Bing-Neel Support Group meetings on November 21. Two meeting times are available in order to have smaller groups and to accommodate many different time zones. The earlier meeting will be at 12 noon (U.S. Eastern Time, GMT-5) and the later meeting will be at 7:00pm.

The meeting format will be what’s called “Caring and Sharing” and will provide Bing-Neel patients and caregivers a chance to meet others who have a similar diagnosis from around the world.

We will also share a brief pre-recorded update from Dr. Jorge Castillo of Dana-Farber Cancer Institute. Patients who missed his earlier presentation (along with Dr. Treon) may view it HERE.

The meetings will be hosted by our IWMF Bing-Neel Lifeline volunteers Julie Davidson (U.S.), Peter Freese (Australia), Stuart Quick (UK) and Eileen Sullivan (U.S., IWMF volunteer).

Registration is required for these meetings. After registering, you will receive a confirmation email containing information about joining the meeting. If you have any questions, please contact [email protected].

REGISTER FOR NOV 21, 12:00 PM ET
REGISTER FOR NOV 21, 7:00 PM ET

WM Community Yoga
Classes Continued Throughout 2021!

Thanks to an anonymous donation from a WM Yoga member, we are continuing free classes throughout the end of the year!
Join the IWMF Chair Yoga series tailored just for those managing WM. No experience needed! We’ll move the breath and body to help battle fatigue, compromised immune system health, and balance issues. While we will remain seated for most of the class, we may stand and use the chair for support for some poses, with modifications so all levels can practice.
 
Our 45 minute classes will incorporate some of the following:
  • Breath exercises for reducing stress and boosting the immune system
  • Gentle stretches designed to energize the whole body
  • Yoga poses that move the lymph fluid, and improve balance and steadiness
  • Meditations like body scans to facilitate mindfulness, acceptance, and relaxation
Instructor:
Ann MacMullan is a certified yoga instructor (E-RYT 200, RYT 500) and believes in the therapeutic value of yoga and meditation for everyone, no matter what age, level of fitness, or life circumstance. She has been sharing the gift of yoga in community, corporate, private, and healthcare settings throughout the Philadelphia area since 2015, and is currently pursuing her IAYT-850hr certification in Yoga Therapy. Her father was diagnosed with WM in 2019.
Want to join the mailing list? Contact [email protected]
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Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.
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About Us

Contact

  • 6144 Clark Center Ave.
    Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • [email protected]