Volume 2, Issue 11

GIVING CHALLENGE 2022

Mark Your Calendar!
Donations made to the IWMF
during the 2022 Giving Challenge
will be TRIPLE matched.

EDUCATION

NEXT WEEK!
IWMF Global Educational Webinar

An Overview of Amyloidosis and WM with Dr. Morie Gertz

Tuesday, March 29th, 2022

12:30PM – 1:30PM U.S. Eastern Time

SPEAKERS:

About the presentation:

This program will inform participants about the cause, signs/symptoms, diagnosis, and treatment of amyloidosis.

Hot off the Press!
New Video Available with Dr. Shayna Sarosiek

Covid Antibodies, CAR-T & More…
Can We Feel Hopeful this Spring?

Our IWMF Support Group Leaders and International Affiliates had the pleasure of meeting with Dr. Shayna Sarosiek of Dana-Farber Cancer Institute this week. Dr. Sarosiek covered many topics, including Evusheld, CAR-T therapy, and WM treatments on the horizon. This is a fabulous and timely presentation you don’t want to miss!

Recording Available!

Patient Empowerment Network Webinar

When faced with a WM diagnosis, what determines the best treatment for YOU? In this 30-minute webinar, Dr. Jorge Castillo will review key factors that affect treatment decisions, emerging treatment research, and tips for partnering with your healthcare team.

Dr. Jorge Castillo is Clinical Director at the Bing Center for Waldenström Macroglobulinemia Dana-Farber Cancer Institute and Assistant Professor of Medicine at Harvard Medical School. Learn more about Dr. Castillo, here.

RESEARCH

Don’t Forget: Vaccinations, Boosters, Infections?

WhiMSICAL Needs YOUR Help to answer the question!

We have had about 340 people answer the new covid questions in the WhiMSICAL WM patient registry. We are SO CLOSE to reaching the COVID 400 goal!

Thank you to everyone who has completed the new questions, let’s do one final push before the deadline!

Please take a few minutes to answer the new Covid questions in section 19 and update section 9 (treatments) by March 31st. The data will then be generated for the WM community and medical researchers around the world. 

If you are already enrolled in the IWMF WhiMSICAL Registry, you can logon to CART-Wheel here.

If you are not yet enrolled, logon to the IWMF WhiMSICAL Registry by registering at CART-wheel here and welcome aboard!

For more information, click here, or for assistance, contact whimsical@iwmf.com.

SUPPORT

Calling all Caregivers!
Caregivers International Support Session
Wednesday, April 6th from 1:00PM-3:00PM U.S. ET

Speaker:
Dr. Hannah-Rose Mitchell
Memorial Sloan Kettering Cancer Center

Join Caregivers around the world for a live Zoom meeting presentation and Q&A with Dr. Hannah-Rose Mitchell.

Dr. Mitchell is a clinical health psychologist and Chief Postdoctoral Research Fellow at Memorial Sloan Kettering Cancer Center in the Department of Psychiatry and Behavioral Sciences, where she provides services to families in the Caregivers Clinic. Her research aims to reduce the burden of cancer on the family and to improve patient and family caregiver well-being.

Registration is required for this session. After registering, you will receive a confirmation email containing information about joining the meeting. If you have any questions, please contact office@iwmf.com.

Leukemia & Lymphoma Society

Free One-on-One Nutrition Consultations

The Leukemia & Lymphoma Society’s (LLS’s)

PearlPoint Nutrition Services^®

Click Here To Schedule a Consult

Or call 877-467-1936

• Strategies to improve nutrition and side effects
• Tips for meal planning and grocery shopping
• How to care for a loved one during cancer treatment
• Answers to your nutrition questions
• Questions to ask your healthcare team
• Additional nutrition resources online and in your area

• Recommendations for dietary supplements and herbal preparations
• Prescription diet orders or restrictive diets
• Nutrition therapy by tube or IV
• Free meal delivery