International Waldenstrom’s Macroglobulinemia Foundation

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The Waldenstrom’s Weekly

March 25, 2022

Volume 2, Issue 11

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact [email protected]

GIVING CHALLENGE 2022

Mark Your Calendar!
Donations made to the IWMF
during the 2022 Giving Challenge
will be TRIPLE matched.

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EDUCATION

NEXT WEEK!
IWMF Global Educational Webinar

An Overview of Amyloidosis and WM with Dr. Morie Gertz

Tuesday, March 29th, 2022

12:30PM – 1:30PM U.S. Eastern Time

SPEAKERS:

 

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About the presentation:

This program will inform participants about the cause, signs/symptoms, diagnosis, and treatment of amyloidosis.

About the speakers:
You can learn more about our speakers by clicking here.

Hot off the Press!
New Video Available with Dr. Shayna Sarosiek

Covid Antibodies, CAR-T & More…
Can We Feel Hopeful this Spring?

iwmf and LLS NEW

Our IWMF Support Group Leaders and International Affiliates had the pleasure of meeting with Dr. Shayna Sarosiek of Dana-Farber Cancer Institute this week. Dr. Sarosiek covered many topics, including Evusheld, CAR-T therapy, and WM treatments on the horizon. This is a fabulous and timely presentation you don’t want to miss!

Recording Available!

Patient Empowerment Network Webinar

iwmf and LLS NEW

When faced with a WM diagnosis, what determines the best treatment for YOU? In this 30-minute webinar, Dr. Jorge Castillo will review key factors that affect treatment decisions, emerging treatment research, and tips for partnering with your healthcare team.

 

Dr. Jorge Castillo is Clinical Director at the Bing Center for Waldenström Macroglobulinemia Dana-Farber Cancer Institute and Assistant Professor of Medicine at Harvard Medical School. Learn more about Dr. Castillo, here.

RESEARCH

Don’t Forget: Vaccinations, Boosters, Infections?

WhiMSICAL Needs YOUR Help to answer the question!

2021 WMUK Patient-Doctor Summit

We have had about 340 people answer the new covid questions in the WhiMSICAL WM patient registry. We are SO CLOSE to reaching the COVID 400 goal!

Thank you to everyone who has completed the new questions, let’s do one final push before the deadline!

Please take a few minutes to answer the new Covid questions in section 19 and update section 9 (treatments) by March 31st. The data will then be generated for the WM community and medical researchers around the world. 

If you are already enrolled in the IWMF WhiMSICAL Registry, you can logon to CART-Wheel here.

If you are not yet enrolled, logon to the IWMF WhiMSICAL Registry by registering at CART-wheel here and welcome aboard!

For more information, click here, or for assistance, contact [email protected].

 

SUPPORT

Calling all Caregivers!
Caregivers International Support Session
Wednesday, April 6th from 1:00PM-3:00PM U.S. ET

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Speaker:
Dr. Hannah-Rose Mitchell
Memorial Sloan Kettering Cancer Center

Join Caregivers around the world for a live Zoom meeting presentation and Q&A with Dr. Hannah-Rose Mitchell.

Dr. Mitchell is a clinical health psychologist and Chief Postdoctoral Research Fellow at Memorial Sloan Kettering Cancer Center in the Department of Psychiatry and Behavioral Sciences, where she provides services to families in the Caregivers Clinic. Her research aims to reduce the burden of cancer on the family and to improve patient and family caregiver well-being.

Registration is required for this session. After registering, you will receive a confirmation email containing information about joining the meeting. If you have any questions, please contact [email protected].

Leukemia & Lymphoma Society

Free One-on-One Nutrition Consultations

The Leukemia & Lymphoma Society’s (LLS’s)

PearlPoint Nutrition Services®

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Patients and their caregivers may receive a free one-on-one phone consultation with one of LLS’s registered dietitians who have expertise in oncology nutrition.
Eating well helps people with cancer feel better, stay stronger, and better tolerate the side effects of treatment. Good nutrition also helps the body replace blood cells and healthy tissues that are damaged as a result of cancer treatment.

Click Here To Schedule a Consult

Or call 877-467-1936

Telephone consultations are available to patients and caregivers in the United States and Canada only. If you live outside the U.S. or Canada, email [email protected] to connect with a dietitian via email.
 
What to Expect from a Nutrition Consultation:
 
Consultations last approximately 30 minutes. By speaking to a registered dietitian, you can learn
  • Strategies to improve nutrition and side effects
  • Tips for meal planning and grocery shopping
  • How to care for a loved one during cancer treatment
  • Answers to your nutrition questions
  • Questions to ask your healthcare team
  • Additional nutrition resources online and in your area
 
The nutrition consultations are intended for general educational purposes. Due to the nature of the consults, these services are not available
  • Recommendations for dietary supplements and herbal preparations
  • Prescription diet orders or restrictive diets
  • Nutrition therapy by tube or IV
  • Free meal delivery
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Thanks to You!

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.

Sign-up for the Waldenstrom’s Weekly and get it emailed directly to your inbox!

Contact

  • 6144 Clark Center Ave.
    Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • [email protected]