Waldenstrom’s Weekly – March 22, 2024

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact info@IWMF.com

March 22, 2024

Volume 4, Issue 12

The IWMF mission statement is to support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) to improve patient outcomes while advancing the search for a cure.

From the IWMF Newsroom

First-Ever WM World Awareness Day on April 17th! On Wednesday, April 17, 2024, we will campaign alongside our global partners and community to raise awareness, raise funds, and be counted as part the Waldenstrom’s Macroglobulinemia (WM) global community.

EU Patient Forum


The Ed Forum is SIX Weeks Away!

It’s not too late to register – plenty of slots are available to attend in person, and you also have the option of attending virtually if you’re not able to travel. We hope to have you join us!

On February 29th, IWMF launched Accelerate the Cure, a new fundraising campaign established to raise $25 million in five years to improve patient outcomes and advance a cure for WM. In this short videoDr. Steven Treon explains why “A cure is in sight.” 

Donate today to help us accelerate the discovery of a path to the cure and provide a longer future for individuals diagnosed with the disease (see Stories of Hope). You can also download this Accelerate the Cure brochure to share with family and friends!


Familial WM Research from the Frontlines

IWMF Global Educational Webinar Monday, April 15, 2024, at 1:00PM EDT

Join us on April 15th for a one-hour presentation and Q&A session, which will cover information and updates about familial research being conducted at Mayo Clinic, Rochester, MN.

Susan L. Slager, Ph.D., investigates the inherited genetic basis of lymphoma, including chronic lymphocytic leukemia, non-Hodgkin’s lymphoma, multiple myeloma, and Hodgkin’s lymphoma. Dr. Slager leads the Mayo Clinic B-cell lymphoma family registry, in which more than 500 families (including relatives) have consented to participate. These families are followed over time to better understand why relatives from these families have a higher risk of lymphoma (regardless of lymphoma subtype) than the general population.

Photo of Susan Slager

Dr. Susan Slager
Mayo Clinic

Familial WM Research from the Frontlines

IWMF Global Educational Webinar Monday, April 15, 2024, at 1:00PM EDT

Cancer affects more than our physical well-being. Join Dr. Michelle Janelsins and Beverly Canin to learn about the changes that can affect memory and concentration in those with cancer, the biological reasons for the change, and some interventions that may help. Watch the video here.

Want to Learn about Gut Health? Leukemia & Lymphoma Society Webinar

How your gut health can affect your blood cancer treatment and quality of life Tuesday, April 23, 2024, 1:00 – 2:00 p.m. ET

You are what you eat, and researchers are learning that this principle can apply to blood cancer treatment and your quality of life! Changes to your gut microbiome – the community of microbes, fungi, viruses, and their genes in your digestive system – can boost your immune system and benefit your treatment.

Join Dr. Bertrand Routy, scientific director at the University of Montreal’s microbiome centre, as he tells you why and how your gut health matters.


International Young WM Support Group Meeting

Monday, March 25th at 8:00PM U.S. Eastern Time

The International Young WM Support Group will be having a meeting this month for patients and caregivers under the age of 50Attendees will join our Co-Leaders on Zoom for a caring and sharing session, which will last approximately one hour.

To join the mailing list for this group, contact mpostek@iwmf.com


Join Us for March’s Wellness Webinar!

March’s wellness webinar fuses writing, body awareness, and meditation to enhance a feeling of inner wellbeing during challenging times and is especially designed for those managing WM. Kimberley Snow, Ph.D., teacher, author, and workshop leader, taught writing at UCSB before she moved to study and work in a Tibetan retreat center in Northern California for six years. She has written five books, including Writing Yourself Awake: Meditation & CreativityKimberley was diagnosed with WM in 2012. Learn more and register here.

WM Military Veterans Discussion Group

Thursday, March 28th at 2:00PM ET

The IWMF is proud to be hosting a discussion group for WM community members who are military veterans. The meeting will be held on Thursday, March 28th, from 2:00PM – 3:00PM ET via Zoom. Topics for discussion will include sharing experiences, navigating the Veterans Administration, and more. The meeting will be moderated by Ray V., IWMF Volunteer and Vietnam Veteran. 

Cardio Flow

Friday, March 29th at 2:00PM EDT

Challenge your coordination and balance while addressing symptoms like fatigue and peripheral neuropathy. Get your body moving with repetitive, simple movements within the safe space of our WM community. Improve blood flow, balance, and mobility! Optional: stick around to connect with the WM wellness community after class. Reach out to Ann if you’d like the Zoom initiation or recording at anngrace@iwmf.com.

Cardio Flow image

WM People of Color Support Group

Friday, April 5th at 1:00PM EDT

The WM People of Color Support Group will be having their next meeting on Friday, April 5th at 1:00PM eastern time. The group will be joined by Patricia Watkins, a licensed clinical social worker, to present on the topic of mental health.


To join the mailing list, contact mpostek@iwmf.com.

March Wellness Calendar