This Week at the IWMF
The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact info@IWMF.com
March 22, 2024
Volume 4, Issue 12
The IWMF mission statement is to support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) to improve patient outcomes while advancing the search for a cure.
From the IWMF Newsroom
First-Ever WM World Awareness Day on April 17th! On Wednesday, April 17, 2024, we will campaign alongside our global partners and community to raise awareness, raise funds, and be counted as part the Waldenstrom’s Macroglobulinemia (WM) global community.
IWMF ED Forum
The Ed Forum is SIX Weeks Away!
It’s not too late to register – plenty of slots are available to attend in person, and you also have the option of attending virtually if you’re not able to travel. We hope to have you join us!
On February 29th, IWMF launched Accelerate the Cure, a new fundraising campaign established to raise $25 million in five years to improve patient outcomes and advance a cure for WM. In this short video, Dr. Steven Treon explains why “A cure is in sight.”
Donate today to help us accelerate the discovery of a path to the cure and provide a longer future for individuals diagnosed with the disease (see Stories of Hope). You can also download this Accelerate the Cure brochure to share with family and friends!
EDUCATION
Familial WM Research from the Frontlines
IWMF Global Educational Webinar Monday, April 15, 2024, at 1:00PM EDT
Join us on April 15th for a one-hour presentation and Q&A session, which will cover information and updates about familial research being conducted at Mayo Clinic, Rochester, MN.
Susan L. Slager, Ph.D., investigates the inherited genetic basis of lymphoma, including chronic lymphocytic leukemia, non-Hodgkin’s lymphoma, multiple myeloma, and Hodgkin’s lymphoma. Dr. Slager leads the Mayo Clinic B-cell lymphoma family registry, in which more than 500 families (including relatives) have consented to participate. These families are followed over time to better understand why relatives from these families have a higher risk of lymphoma (regardless of lymphoma subtype) than the general population.
Speaker
Dr. Susan Slager
Mayo Clinic
Familial WM Research from the Frontlines
IWMF Global Educational Webinar Monday, April 15, 2024, at 1:00PM EDT
Cancer affects more than our physical well-being. Join Dr. Michelle Janelsins and Beverly Canin to learn about the changes that can affect memory and concentration in those with cancer, the biological reasons for the change, and some interventions that may help. Watch the video here.
Want to Learn about Gut Health? Leukemia & Lymphoma Society Webinar
How your gut health can affect your blood cancer treatment and quality of life Tuesday, April 23, 2024, 1:00 – 2:00 p.m. ET
You are what you eat, and researchers are learning that this principle can apply to blood cancer treatment and your quality of life! Changes to your gut microbiome – the community of microbes, fungi, viruses, and their genes in your digestive system – can boost your immune system and benefit your treatment.
Join Dr. Bertrand Routy, scientific director at the University of Montreal’s microbiome centre, as he tells you why and how your gut health matters.
SUPPORT
International Young WM Support Group Meeting
Monday, March 25th at 8:00PM U.S. Eastern Time
The International Young WM Support Group will be having a meeting this month for patients and caregivers under the age of 50. Attendees will join our Co-Leaders on Zoom for a caring and sharing session, which will last approximately one hour.
To join the mailing list for this group, contact mpostek@iwmf.com
Join Us for March’s Wellness Webinar!
March’s wellness webinar fuses writing, body awareness, and meditation to enhance a feeling of inner wellbeing during challenging times and is especially designed for those managing WM. Kimberley Snow, Ph.D., teacher, author, and workshop leader, taught writing at UCSB before she moved to study and work in a Tibetan retreat center in Northern California for six years. She has written five books, including Writing Yourself Awake: Meditation & Creativity. Kimberley was diagnosed with WM in 2012. Learn more and register here.
WM Military Veterans Discussion Group
Thursday, March 28th at 2:00PM ET
The IWMF is proud to be hosting a discussion group for WM community members who are military veterans. The meeting will be held on Thursday, March 28th, from 2:00PM – 3:00PM ET via Zoom. Topics for discussion will include sharing experiences, navigating the Veterans Administration, and more. The meeting will be moderated by Ray V., IWMF Volunteer and Vietnam Veteran.
Cardio Flow
Friday, March 29th at 2:00PM EDT
Challenge your coordination and balance while addressing symptoms like fatigue and peripheral neuropathy. Get your body moving with repetitive, simple movements within the safe space of our WM community. Improve blood flow, balance, and mobility! Optional: stick around to connect with the WM wellness community after class. Reach out to Ann if you’d like the Zoom initiation or recording at anngrace@iwmf.com.
WM People of Color Support Group
Friday, April 5th at 1:00PM EDT
The WM People of Color Support Group will be having their next meeting on Friday, April 5th at 1:00PM eastern time. The group will be joined by Patricia Watkins, a licensed clinical social worker, to present on the topic of mental health.
To join the mailing list, contact mpostek@iwmf.com.
READ PAST ISSUES OF THE WALDENSTROM’S WEEKLY
2024 Waldenstrom's Weekly Archive
- Issue 101, January 5, 2024
- Issue 102, January 12, 2024
- Issue 103, January 19, 2024
- Issue 104, January 26, 2024
- Issue 105, February 2, 2024
- Issue 106, February 9, 2024
- Issue 107, February 16, 2024
- Issue 108, February 23, 2024
- Issue 109, March 1, 2024
- Issue 110, March 8, 2024
- Issue 111, March 15, 2024
- Issue 112, March 22, 2024
- Issue 113, March 29, 2024
- Issue 114, April 5, 2024
- Issue 115, April 12, 2024
- Issue 116, April 26, 2024
- Issue 117, May 10, 2024
- Issue 118, May 17, 2024
- Issue 119, May 24, 2024
- Issue 120, May 31, 2024
- Issue 121, June 7, 2024
- Issue 122, June 14, 2024
- Issue 123, June 21, 2024
- Issue 124, June 28, 2024
- Issue 125, July 12, 2024
- Issue 126, July 19, 2024
- Issue 127, July 26, 2024
- Issue 128, August 2, 2024
- Issue 129, August 9, 2024
- Issue 130, August 16, 2024
- Issue 131, August 23, 2024
2023 Waldenstrom's Weekly Archive
- Issue 51, January 6, 2023
- Issue 52, January 13, 2023
- Issue 53, January 27, 2023
- Issue 54, February 3, 2023
- Issue 55, February 10, 2023
- Issue 56, February 17, 2023
- Issue 57, February 24, 2023
- Issue 58, March 3, 2023
- Issue 59, March 10, 2023
- Issue 60, March 17, 2023
- Issue 61, March 31, 2023
- Issue 62, April 7, 2023
- Issue 63, April 14, 2023
- Issue 64, April 28, 2023
- Issue 65, May 5, 2023
- Issue 66, May 12, 2023
- Issue 67, May 19, 2023
- Issue 68, May 26, 2023
- Issue 69, June 2, 2023
- Issue 70, June 9, 2023
- Issue 71, June 16, 2023
- Issue 72, June 23, 2023
- Issue 73, June 30, 2023
- Issue 74, July 7, 2023
- Issue 76, July 15, 2023
- Issue 77, July 21, 2023
- Issue 78, July 28, 2023
- Issue 79, August 4, 2023
- Issue 80, August 11, 2023
- Issue 81, August 18, 2023
- Issue 82, August 25, 2023
- Issue 83, September 1, 2023
- Issue 84, September 8, 2023
- Issue 85, September 15, 2023
- Issue 86, September 22, 2023
- Issue 87, September 29, 2023
- Issue 88, October 6, 2023
- Issue 89, October 13, 2023
- Issue 90, October 20, 2023
- Issue 91, October 27, 2023
- Issue 92, November 3, 2023
- Issue 93, November 10, 2023
- Issue 94, November 17, 2023
- Issue 95, November 24, 2023
- Issue 96, December 1, 2023
- Issue 97, December 8, 2023
- Issue 98, December 15, 2023
- Issue 99, December 22, 2023
- Issue 100, December 29, 2023
2022 Waldenstrom's Weekly Archive
- Issue 1, January 7, 2022
- Issue 2, January 21, 2022
- Issue 3, January 28, 2022
- Issue 4, February 4, 2022
- Issue 5, February 11, 2022
- Issue 6, February 18, 2022
- Issue 7, February 25, 2022
- Issue 8, March 4, 2022
- Issue 9, March 11, 2022
- Issue 10, March 18, 2022
- Issue 11, March 25, 2022
- Issue 12, April 1, 2022
- Issue 13, April 8, 2022
- Issue 14, April 15, 2022
- Issue 15, April 29, 2022
- Issue 16, May 6, 2022
- Issue 17, May 13, 2022
- Issue 18, May 20, 2022
- Issue 19, May 27, 2022
- Issue 20, June 3, 2022
- Issue 21, June 10, 2022
- Issue 22, June 17, 2022
- Issue 23, June 24, 2022
- Issue 24, July 1, 2022
- Issue 25, July 8, 2022
- Issue 26, July 15, 2022
- Issue 27, July 22, 2022
- Issue 28, July 29, 2022
- Issue 29, August 5, 2022
- Issue 30, August 12, 2022
- Issue 31, August 19, 2022
- Issue 32, August 26, 2022
- Issue 33, September 2, 2022
- Issue 34, September 9, 2022
- Issue 35, September 16, 2022
- Issue 36, September 23, 2022
- Issue 37, September 30, 2022
- Issue 38, October 7, 2022
- Issue 39, October 14, 2022
- Issue 40, October 21, 2022
- Issue 41, October 28, 2022
- Issue 42, November 4, 2022
- Issue 43, November 11, 2022
- Issue 44, November 18, 2022
- Issue 45, November 23, 2022
- Issue 46, December 2, 2022
- Issue 47, December 9, 2022
- Issue 48, December 16, 2022
- Issue 49, December 23, 2022
- Issue 50, December 30, 2022
- Issue 51, January 6, 2023
2021 Waldenstrom's Weekly Archive
- Issue 1, February 18, 2021
- Issue 2, March 12, 2021
- Issue 3, March 26, 2021
- Issue 4, April 2, 2021
- Issue 6, April 16, 2021
- Issue 7, April 23, 2021
- Issue 8, April 23, 2021
- Issue 9, May 7, 2021
- Issue 10, May 14, 2021
- Issue 11, May 21, 2021
- Issue 12, May 21, 2021
- Issue 13, June 11, 2021
- Issue 14, June 25, 2021
- Issue 15, July 2, 2021
- Issue 16, July 9, 2021
- Issue 17, July 16, 2021
- Issue 18, July 23, 2021
- Issue 20, August 13, 2021
- Issue 21, August 20, 2021
- Issue 22, August 27, 2021
- Issue 23, September 3, 2021
- Issue 24, September 10, 2021
- Issue 25, September 17, 2021
- Issue 26, October 1, 2021
- Issue 27, October 8, 2021
- Issue 28, October 15, 2021
- Issue 29, October 22, 2021
- Issue 30, November 5, 2021
- Issue 31, November 12, 2021
- Issue 32, November 19, 2021
- Issue 33, November 26, 2021
- Issue 34, December 3, 2021
- Issue 35, December 12, 2021
- Issue 36, December 17, 2021Issue 36
- Issue 36, December 17, 2021
- Issue 37, December 24, 2021