Waldenstrom’s Weekly – March 1, 2024

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact info@IWMF.com

March 1, 2024

Volume 4, Issue 9

The IWMF mission statement is to support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) to improve patient outcomes while advancing the search for a cure.


NEW Video!

Why Should YOU come to the IWMF Ed Forum?

We are thrilled to announce that the 2024 Educational Forum is just around the corner, and we have some compelling reasons why you should attend! Pete DeNardis, Chair of the IWMF Board of Trustees, shares his thoughts on why this event is vital for all individuals affected by WM.

We understand that everyone has unique preferences and circumstances, which is why we are offering two ways to attend the 2024 Educational Forum. We want to ensure that everyone can access this valuable experience, regardless of their location or ability to travel.


Yesterday, the IWMF celebrated leap year day by launching Accelerate the Cure, a new fundraising campaign established to raise $25 million in five years to improve patient outcomes and advance a cure for WM. In this short videoDr. Steven Treon explains why “A cure is in sight.”

Donate today to help us accelerate the discovery of a path to the cure and provide a longer future for individuals diagnosed with the disease (see Stories of Hope). You can also download this Accelerate the Cure brochure to share with family and friends.


Recording Available!
Nutrition: Fuel for Your Body

Recently, the IWMF Oregon & SW Washington Support Group met with Margaret Martin, RD, Manager of Nutrition Education for the Leukemia & Lymphoma Society (LLS). The presentation topic was Nutrition: Fuel for Your Body.

Patients and their caregivers may receive a free one-on-one phone consultation with one of LLS’s registered dietitians who have expertise in oncology nutrition.

Telephone consultations are available to patients and caregivers in the United States and Canada only. If you live outside the United States or Canada, email

Nutrition@LLS.org to connect with a dietitian via email.

Specialty group images

Or call 877-467-1936
Evening appointments are available!


Watch & Wait/MGUS Support Group Session

THIS Sunday, March 3rd at 2:00PM Eastern Time

This Sunday will be the inaugural meeting of the new IWMF Specialty Support Group, designed especially for those navigating the watch and wait stage of WM (Waldenström’s Macroglobulinemia) and MGUS (monoclonal gammopathy of undetermined significance). 

Whether you are currently asymptomatic or have been managing symptoms often associated with early stages of WM and MGUS progression (such as anemia and fatigue), this gathering presents a unique opportunity to connect with individuals who, like you, are seeking support and guidance on “what comes next” and how to effectively manage this new chapter in your life.

Specialty group images

The meeting will take place via Zoom on Sunday, March 3, 2024, from 2:00 PM to 3:30 PM ET.

T’ai Chi + Qi Gong

March 5th at 2:00PM EST

“I thought the T’ai Chi class was excellent. I liked that he centered on just a couple of exercises so we can become familiar with them as a basis to build on.” – Kimberley, after our February class. 

Join Rami Rones to safely explore the ancient mind-body therapies of T’ai Chi and Qi Gong. Slow, low-impact movements can increase muscle mass and bone density, ease aches and pains, gently stretch muscles, and improve your balance. Reach out to Ann Grace if you would like the Zoom invitation or recording at anngrace@iwmf.com.

T'ai Chi

Yoga Nidra – Special Time! 

Friday, March 8th at 2:00PM EST

“It’s nearly bedtime here in London, so I’m wonderfully relaxed and ready for sleep! I usually have trouble stopping my mind rushing around all the time. I feel wonderfully calm.” –Joy, after our February practice.

Yoga Nidra has been shown to decrease stress levels, improve sleep quality, elevate well-being, and increase the mindfulness of the participants. Practice this guided relaxation while lying down on a bed or on a couch. Reach out to anngrace@iwmf.com to receive our Zoom invitation and follow-up recordings.

March Wellness Calendar