This Week at the IWMF
The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact info@IWMF.com
March 1, 2024
Volume 4, Issue 9
The IWMF mission statement is to support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) to improve patient outcomes while advancing the search for a cure.
IWMF ED FORUM
NEW Video!
Why Should YOU come to the IWMF Ed Forum?
We are thrilled to announce that the 2024 Educational Forum is just around the corner, and we have some compelling reasons why you should attend! Pete DeNardis, Chair of the IWMF Board of Trustees, shares his thoughts on why this event is vital for all individuals affected by WM.
We understand that everyone has unique preferences and circumstances, which is why we are offering two ways to attend the 2024 Educational Forum. We want to ensure that everyone can access this valuable experience, regardless of their location or ability to travel.
ACCELERATE THE CURE
Yesterday, the IWMF celebrated leap year day by launching Accelerate the Cure, a new fundraising campaign established to raise $25 million in five years to improve patient outcomes and advance a cure for WM. In this short video, Dr. Steven Treon explains why “A cure is in sight.”
Donate today to help us accelerate the discovery of a path to the cure and provide a longer future for individuals diagnosed with the disease (see Stories of Hope). You can also download this Accelerate the Cure brochure to share with family and friends.
EDUCATION
Recording Available!
Nutrition: Fuel for Your Body
Recently, the IWMF Oregon & SW Washington Support Group met with Margaret Martin, RD, Manager of Nutrition Education for the Leukemia & Lymphoma Society (LLS). The presentation topic was Nutrition: Fuel for Your Body.
Patients and their caregivers may receive a free one-on-one phone consultation with one of LLS’s registered dietitians who have expertise in oncology nutrition.
Telephone consultations are available to patients and caregivers in the United States and Canada only. If you live outside the United States or Canada, email
Nutrition@LLS.org to connect with a dietitian via email.
Or call 877-467-1936
Evening appointments are available!
SUPPORT
Watch & Wait/MGUS Support Group Session
THIS Sunday, March 3rd at 2:00PM Eastern Time
This Sunday will be the inaugural meeting of the new IWMF Specialty Support Group, designed especially for those navigating the watch and wait stage of WM (Waldenström’s Macroglobulinemia) and MGUS (monoclonal gammopathy of undetermined significance).
Whether you are currently asymptomatic or have been managing symptoms often associated with early stages of WM and MGUS progression (such as anemia and fatigue), this gathering presents a unique opportunity to connect with individuals who, like you, are seeking support and guidance on “what comes next” and how to effectively manage this new chapter in your life.
The meeting will take place via Zoom on Sunday, March 3, 2024, from 2:00 PM to 3:30 PM ET.
T’ai Chi + Qi Gong
March 5th at 2:00PM EST
“I thought the T’ai Chi class was excellent. I liked that he centered on just a couple of exercises so we can become familiar with them as a basis to build on.” – Kimberley, after our February class.
Join Rami Rones to safely explore the ancient mind-body therapies of T’ai Chi and Qi Gong. Slow, low-impact movements can increase muscle mass and bone density, ease aches and pains, gently stretch muscles, and improve your balance. Reach out to Ann Grace if you would like the Zoom invitation or recording at anngrace@iwmf.com.
Yoga Nidra – Special Time!
Friday, March 8th at 2:00PM EST
“It’s nearly bedtime here in London, so I’m wonderfully relaxed and ready for sleep! I usually have trouble stopping my mind rushing around all the time. I feel wonderfully calm.” –Joy, after our February practice.
Yoga Nidra has been shown to decrease stress levels, improve sleep quality, elevate well-being, and increase the mindfulness of the participants. Practice this guided relaxation while lying down on a bed or on a couch. Reach out to anngrace@iwmf.com to receive our Zoom invitation and follow-up recordings.
READ PAST ISSUES OF THE WALDENSTROM’S WEEKLY
2024 Waldenstrom's Weekly Archive
- Issue 101, January 5, 2024
- Issue 102, January 12, 2024
- Issue 103, January 19, 2024
- Issue 104, January 26, 2024
- Issue 105, February 2, 2024
- Issue 106, February 9, 2024
- Issue 107, February 16, 2024
- Issue 108, February 23, 2024
- Issue 109, March 1, 2024
- Issue 110, March 8, 2024
- Issue 111, March 15, 2024
- Issue 112, March 22, 2024
- Issue 113, March 29, 2024
- Issue 114, April 5, 2024
- Issue 115, April 12, 2024
- Issue 116, April 26, 2024
- Issue 117, May 10, 2024
- Issue 118, May 17, 2024
- Issue 119, May 24, 2024
- Issue 120, May 31, 2024
- Issue 121, June 7, 2024
- Issue 122, June 14, 2024
- Issue 123, June 21, 2024
- Issue 124, June 28, 2024
- Issue 125, July 12, 2024
- Issue 126, July 19, 2024
- Issue 127, July 26, 2024
- Issue 128, August 2, 2024
- Issue 129, August 9, 2024
- Issue 130, August 16, 2024
- Issue 131, August 23, 2024
2023 Waldenstrom's Weekly Archive
- Issue 51, January 6, 2023
- Issue 52, January 13, 2023
- Issue 53, January 27, 2023
- Issue 54, February 3, 2023
- Issue 55, February 10, 2023
- Issue 56, February 17, 2023
- Issue 57, February 24, 2023
- Issue 58, March 3, 2023
- Issue 59, March 10, 2023
- Issue 60, March 17, 2023
- Issue 61, March 31, 2023
- Issue 62, April 7, 2023
- Issue 63, April 14, 2023
- Issue 64, April 28, 2023
- Issue 65, May 5, 2023
- Issue 66, May 12, 2023
- Issue 67, May 19, 2023
- Issue 68, May 26, 2023
- Issue 69, June 2, 2023
- Issue 70, June 9, 2023
- Issue 71, June 16, 2023
- Issue 72, June 23, 2023
- Issue 73, June 30, 2023
- Issue 74, July 7, 2023
- Issue 76, July 15, 2023
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- Issue 78, July 28, 2023
- Issue 79, August 4, 2023
- Issue 80, August 11, 2023
- Issue 81, August 18, 2023
- Issue 82, August 25, 2023
- Issue 83, September 1, 2023
- Issue 84, September 8, 2023
- Issue 85, September 15, 2023
- Issue 86, September 22, 2023
- Issue 87, September 29, 2023
- Issue 88, October 6, 2023
- Issue 89, October 13, 2023
- Issue 90, October 20, 2023
- Issue 91, October 27, 2023
- Issue 92, November 3, 2023
- Issue 93, November 10, 2023
- Issue 94, November 17, 2023
- Issue 95, November 24, 2023
- Issue 96, December 1, 2023
- Issue 97, December 8, 2023
- Issue 98, December 15, 2023
- Issue 99, December 22, 2023
- Issue 100, December 29, 2023
2022 Waldenstrom's Weekly Archive
- Issue 1, January 7, 2022
- Issue 2, January 21, 2022
- Issue 3, January 28, 2022
- Issue 4, February 4, 2022
- Issue 5, February 11, 2022
- Issue 6, February 18, 2022
- Issue 7, February 25, 2022
- Issue 8, March 4, 2022
- Issue 9, March 11, 2022
- Issue 10, March 18, 2022
- Issue 11, March 25, 2022
- Issue 12, April 1, 2022
- Issue 13, April 8, 2022
- Issue 14, April 15, 2022
- Issue 15, April 29, 2022
- Issue 16, May 6, 2022
- Issue 17, May 13, 2022
- Issue 18, May 20, 2022
- Issue 19, May 27, 2022
- Issue 20, June 3, 2022
- Issue 21, June 10, 2022
- Issue 22, June 17, 2022
- Issue 23, June 24, 2022
- Issue 24, July 1, 2022
- Issue 25, July 8, 2022
- Issue 26, July 15, 2022
- Issue 27, July 22, 2022
- Issue 28, July 29, 2022
- Issue 29, August 5, 2022
- Issue 30, August 12, 2022
- Issue 31, August 19, 2022
- Issue 32, August 26, 2022
- Issue 33, September 2, 2022
- Issue 34, September 9, 2022
- Issue 35, September 16, 2022
- Issue 36, September 23, 2022
- Issue 37, September 30, 2022
- Issue 38, October 7, 2022
- Issue 39, October 14, 2022
- Issue 40, October 21, 2022
- Issue 41, October 28, 2022
- Issue 42, November 4, 2022
- Issue 43, November 11, 2022
- Issue 44, November 18, 2022
- Issue 45, November 23, 2022
- Issue 46, December 2, 2022
- Issue 47, December 9, 2022
- Issue 48, December 16, 2022
- Issue 49, December 23, 2022
- Issue 50, December 30, 2022
- Issue 51, January 6, 2023
2021 Waldenstrom's Weekly Archive
- Issue 1, February 18, 2021
- Issue 2, March 12, 2021
- Issue 3, March 26, 2021
- Issue 4, April 2, 2021
- Issue 6, April 16, 2021
- Issue 7, April 23, 2021
- Issue 8, April 23, 2021
- Issue 9, May 7, 2021
- Issue 10, May 14, 2021
- Issue 11, May 21, 2021
- Issue 12, May 21, 2021
- Issue 13, June 11, 2021
- Issue 14, June 25, 2021
- Issue 15, July 2, 2021
- Issue 16, July 9, 2021
- Issue 17, July 16, 2021
- Issue 18, July 23, 2021
- Issue 20, August 13, 2021
- Issue 21, August 20, 2021
- Issue 22, August 27, 2021
- Issue 23, September 3, 2021
- Issue 24, September 10, 2021
- Issue 25, September 17, 2021
- Issue 26, October 1, 2021
- Issue 27, October 8, 2021
- Issue 28, October 15, 2021
- Issue 29, October 22, 2021
- Issue 30, November 5, 2021
- Issue 31, November 12, 2021
- Issue 32, November 19, 2021
- Issue 33, November 26, 2021
- Issue 34, December 3, 2021
- Issue 35, December 12, 2021
- Issue 36, December 17, 2021Issue 36
- Issue 36, December 17, 2021
- Issue 37, December 24, 2021