Contact

  • 6144 Clark Center Ave.Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • office@iwmf.com

European Patient Forum

First Ever European Patient Forum
October 21, 2023

Hear from experts, meet patients and families, and talk to healthcare professionals at the European Patient Forum co-hosted by the IWMF and WMUK. The event is an exciting first-of-its-kind for both our organisations, bringing together our combined resources to provide even more expert advice and personal support for people affected by WM across Europe.

IWMF Logo
WMUK Logo

Two Locations:

Birmingham, UK

 

Amsterdam, NL

Our joint sessions will be streamed between our two locations, covering:

  • Mental health and Active Monitoring

  • Peripheral Neuropathy

  • An “Ask the Healthcare Professional” panel of experts from across Europe

Two people talking at a conference

UK

Location: Austin Court, Birmingham
Start:
 
10:00am BST (TBC)
End: 17:00pm BST (TBC)
Ticket price: £25

Contact the WMUK info@wmuk.org.uk> for more information on the UK event.

Europe

Klimpton DeWitt hotel exterior

Location: Kimpton De Witt Hotel, Amsterdam, NL
Start: 8:45am CEST (TBC)
End: 17:00pm CEST (TBC)
Ticket price: $30

Contact the IWMF at hsyed@iwmf.com for more information on the European Mainland event.

Please note the meeting will not be accessible via livestream from any other location. Recordings of the presentations will be made available following the meeting. Attend in person where to obtain the full value of the meeting!

Agenda

You can download a copy of the schedule for  events HERE !

*Shared livestream session between Birmingham and Amsterdam

Amsterdam
Amsterdam
Amsterdam
Amsterdam
08:15
08:45
Morning Walk / Yoga (Optional)
08:45
09:30
Registration and coffee
09:30
10:15
Speed-dating
Bob Perry
10:15
10:45
Support group and PhD poster session
All
10:45
11:00
*Welcome and Introductions
Newton Guerin
11:00
11:30
*WM in the body – what is it, how does it develop and why do I feel this way?
Dr Josephine Vos
11:30
12:15
*Living with WM – summary presentation
Dr Marie José Kersten
12:15
12:45
Current WM Treatment Landscape
Prof Christian Buske
12:45
13:30
Lunch
13:15
13:45
*Approaching Clinical Trials - What to Consider?
Prof Monique Minnema
13:45
14:15
What’s new in WM?
Dr Simone Ferrero
14:15
14:30
Coffee break
14:30
15:00
*Fatigue
Stream from UK
15:00
15:45
*Mental health & Active monitoring
Dr Sarah Dwinger
15:45
16:30
*Ask the Healthcare Professional
Panel (Carl Harrington – Facilitator)
All faculty
16:30
16:45
Close
Newton Guerin
Birmingham
Birmingham
Birmingham
Birmingham
09:15
09:45
Registration
9:45
10:00
*Welcome and introductions
WM UK Chair
10:00
10:30
*WM in the body – what is it, how does it develop and why do I feel this way?
Dr Dima El-Sharkawi
10:30
11:15
*Living with WM – summary presentation
Dr Shirley D’Sa
11:15
11:30
Coffee break
11:30
12:15
What are my symptoms and how do I manage them – patient experience
Charlotte Bloodworth
Will Franks
Sandra Holstead
12:15
12:45
*Approaching Clinical Trials - What to Consider?
Harriet Scorer
12:45
13:30
Lunch
13:30
14:00
*Fatigue
Isabella Jones
Vern Middleton
14:00
14:45
*Mental health & Active monitoring
Catherine Oglivie
14:45
15:30
*Ask the Healthcare Professional
Shirley D’Sa
Isabella Jones
Charlotte Bloodworth
15:30
16:15
Get involved in research – putting patients first (RMR and wearables)
Joy Ellery
Orlando Agrippa
16:15
16:30
Close
WM UK Chair
16:30
17:30
Clinician 1-2-1s