Contact

  • 6144 Clark Center Ave.Sarasota, FL 34238
  • Phone: 941-927-4963
  • Fax: 941-927-4467
  • office@iwmf.com

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact info@IWMF.com

April 12, 2024

Volume 4, Issue 15

The IWMF mission statement is to support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) to improve patient outcomes while advancing the search for a cure.

From the IWMF Newsroom

EU Patient Forum

2024 Giving Challenge: A 24-Hour SUCCESS

IWMF is sending a BIG THANK YOU to all who participated in the 2024 Giving Challenge! 

IWMF ED Forum

ED FORUM Image

Register TODAY for the IWMF Ed Forum in May!

In just THREE short weeks, the Ed Forum will be in full swing! There is still time to register your attendance for a front-row seat, whether in-person or virtually!

For those attending in-person, our Renton Recreation Guide will prepare you for fun exploration while visiting the Pacific Northwest!

Watch the WM World Awareness Day Video

WAD Video image

Next week on April 17th, we are recognizing the first-ever Waldenstrom’s World Awareness Day! Check out the inspirational video spotlighting our global partners, and share it with your networks!

We will stand together on the birthday of Dr. Jan Waldenström as a global community to shine a light on WM. Let’s unite globally in solidarity, support, and advocacy. Together, we can make a difference by raising awareness, fostering research, and providing comfort to those impacted.

Download your activity pack HERE and find out how to get involved!

EDUCATION

Familial WM Research from the Frontlines

IWMF Global Educational Webinar
Monday, April 15, 2024, at 1:00PM EDT

Join us on April 15th for a one-hour presentation and Q&A session, which will cover information and updates about familial research being conducted at Mayo Clinic, Rochester, MN.

Susan L. Slager, Ph.D., investigates the inherited genetic basis of lymphoma, including chronic lymphocytic leukemia, non-Hodgkin’s lymphoma, multiple myeloma, and Hodgkin’s lymphoma. Dr. Slager leads the Mayo Clinic B-cell lymphoma family registry, in which more than 500 families (including relatives) have consented to participate. These families are followed over time to better understand why relatives from these families have a higher risk of lymphoma (regardless of lymphoma subtype) than the general population.

Photo of Susan Slager
Speaker

Dr. Susan Slager
Mayo Clinic

SUPPORT

Chair Yoga on WM World Awareness Day

Chair Yoga on April 17th, at 9:00AM EDT/2:00PM BST 

Celebrate WM World Awareness Day! Join us for a 45-minute self-care break with friends from around the world who share your same rare diagnosis. Try this gentle, inclusive yoga practice to stay balanced in mind, body, and spirit. Both seated and standing options are available, and all levels are welcome. Optional: stick around to connect with the WM wellness community after class. Reach out to Ann Grace if you’d like the Zoom invitation or recording at anngrace@iwmf.com.

Wellness Programming at the IWMF Ed Forum

The Ed Forum is an exciting opportunity to learn from the best and meet friends for life, while also slowing down for self-care. Take exquisite care of yourself with a morning meditation, a stretch break during our general session, or join one of our afternoon offerings such as Sound Meditation or Community Yoga (also available virtually). Discover the surrounding area during group community walks throughout the weekend. We’re excited to support your well-being so you can immerse, explore, and soar! Learn more on our website at iwmf.com, or reach out to Ann Grace at anngrace@iwmf.com.

Featured Wellness Recording

IN CASE YOU MISSED IT: T’ai Chi and Qi Gong with Rami

Check out this week’s featured Wellness Recording! In this month’s T’ai Chi class, Rami Rones shared movements like the Crane and Bear Swimming. He advised doing these movements for 3 minutes at a time, twice a day, to receive the many benefits – such as improved energy and mobility! If you’d like to get on the mailing list for future T’ai Chi classes, email Ann Grace: anngrace@iwmf.com 

March Wellness Calendar

READ PAST ISSUES OF THE WALDENSTROM’S WEEKLY