Waldenstrom’s Weekly – March 15, 2024

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events. For more information, please contact info@IWMF.com

March 15, 2024

Volume 4, Issue 11

The IWMF mission statement is to support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) to improve patient outcomes while advancing the search for a cure.

From the IWMF Newsroom

New Post-Meeting Q&A Video Available!

Great news! Dr. Shirley D’Sa and Professor Marie José Kersten have graciously answered YOUR unanswered questions from last October’s European Patient Forum! Watch the video HERE!

Stay tuned to find out about the 2024 European WM Patient Forum! Exciting announcements are coming next week!

EU Patient Forum

The Global Patient Survey on Lymphomas & CLL

Lymphoma and CLL are different than most other types of cancer, so the experience of living with these diseases is also unique. To better understand and help those affected by lymphoma, the Lymphoma Coalition, a worldwide network of lymphoma patient organizations, conducts the Global Patient Survey on Lymphomas & CLL. Administered every two years, this survey focuses on the diagnosis, treatment for lymphomas, emotional well-being when living with lymphoma, clinical trial participation, and more. 

“When you share your experiences, you are helping others just like you,” says Lorna Warwick, CEO of Lymphoma Coalition. “You can make an impact across the healthcare spectrum at home and abroad – from improving care at the bedside to accelerating decisions that improve health policy.”

The 2024 Global Patient Survey is open to individuals 18 and over living with lymphoma, including CLL, and caregivers. Available in English, Spanish, and 18 other languages, the survey takes ~30 minutes for patients and ~20 minutes for caregivers.

The survey will close soon. Find out more about the current and past surveys HERE.


The Ed Forum is SEVEN Weeks Away!

It’s not too late to register – plenty of slots are available to attend in person, and you also have the option of attending virtually if you’re not able to travel. We hope to have you join us!


Barbara Richter: My Waldenstrom Macroglobulinemia (WM) Journey

“Barbara Richter: My Waldenstrom Macroglobulinemia (WM) Journey”



Lymphoma Research Foundation Workshop

VIRTUAL – National Lymphoma Workshop: Understanding Lymphoma Basics and Current Treatment Options

DATE: Saturday, March 16, 2024
TIME: 9:30 AM ET – 1:30 PM ET

Reasons To Attend

  • Learn about your specific type of lymphoma, treatment options, clinical trials, and novel concepts during the comprehensive disease-specific breakout sessions.
  • Hear a variety of presentations and have your specific questions answered from our expert speaking faculty comprised of lymphoma specialists and patient support experts.
WM Breakout Session

Dr. Prashant Kapoor
Mayo Clinic, Rochester, MN

With nearly 3 million active monthly users, Facebook is a great place to raise money and awareness for causes like the IWMF.

Creating a Facebook fundraiser is an easy way to raise money for the IWMF because the setup is simple and cost-effective. In addition to its accessibility, the Facebook platform’s larger user base means your campaign has the potential to reach a wider audience. Users can easily share their fundraiser with their network of followers, who can then donate and share with their network, and so on.

Setting up a Facebook fundraiser to celebrate your birthday or anniversary, or to honor someone special in your life, is easy with our NEW step-by-step guide available HERE on our website.

 If you need additional information about setting up a Facebook fundraiser, please do not hesitate to reach out to me at apreston@iwmf.com or 317-919-8238.

Thank you and happy fundraising,

Annette Preston, CFRE, CFRM
Director, Donor Engagement


Finding Fitness with Sharon

Thursday, March 21st at 1:00PM EDT

Take a LIVE exercise class with ACE Certified Personal Trainer Sharon Piotrowski, who is also a WM patient! This balance workout combines cardiovascular exercises with strength training to increase one’s coordination and stability, and includes warm up and warm down. Great for all levels of fitness as Sharon will share modifications to keep you safe. Q&A will follow so come with questions to ask Sharon. Contact Ann to join the list at anngrace@iwmf.com.


International Young WM Support Group Meeting

Monday, March 25th at 8:00PM U.S. Eastern Time


The International Young WM Support Group will be having a meeting this month for patients and caregivers under the age of 50Attendees will join our Co-Leaders on Zoom for a caring and sharing session, which will last approximately one hour.

Monday, March 25th, 2024
8:00PM – 9:00PM U.S. ET

To join the mailing list for this group, contact Michelle:  Mpostek@iwmf.com

March Wellness Calendar