This is the second in a series of three videos recently produced for the IWMF. In this video, Bob Rupert, a WM patient, discusses how WM has affected his life...
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The 2022 Educational Forum Primer Series
View rebroadcasts from the October 6th 2021 Ed Forum WM Basics Workshop and NEW Q&A with our presenters! Please note that you will need to register to view the live and on demand webcasts.
WM & Basic Terminology
The first in our 2022 Educational Forum Primer Series will benefit newly diagnosed patients and veteran WMers will enjoy a refresher course on Waldenstrom macroglobulinemia with an explanation of diagnosis, symptoms, and some simple treatment guidelines. Featuring Dr. Jeffrey Matous, Medical Director from the Colorado Blood Cancer Institute.
Genomics/Science of WM
Get a basic understanding of the science of WM and sets out a framework of basic genetic concepts behind the mutations that are important in WM. Dr. Sikander Ailawadhi, Mayo Jacksonville, discusses the ways in which these mutations impact the signaling systems that control the behavior of WM cells, and to recognize how these mutations are changing the landscape of therapies for WM.
Understanding Your Blood and Bone Marrow Tests
The third in our Ed Forum Primer Series, Dr. Rafat Abonour will describe the blood and bone marrow tests used to help diagnose WM, as well as explain and interpret the typical tests used by healthcare providers to monitor the disease status of their WM patients. After the broadcast Dr. Abonour will answer questions from the chat box LIVE! July 13, 2022, 1:30PM EDT
HOW CAN THE IWMF HELP?
Newly Diagnosed?
Getting a diagnosis of WM can feel overwhelming. You have questions, we have answers! Tap in to our comprehensive resources about this rare disease.
Get Support
We are here to support you throughout your journey living with Waldenstrom macroglobulinemia. Remember, with the IWMF, you are never alone.
Join Us
When you join the IWMF, you become a member of an international community of people affected by Waldenstrom macroglobulinemia.
IWMF Calendar of Events
Indiana Support Group Meeting
Indiana Support Group Meeting
Date: July 16, 2022Time: @ 10:00 am- @ 12:00 pm
Triage Cancer – Decisions About Work
Triage Cancer – Decisions About Work
Date: July 20, 2022Time: @ 1:00 pm- @ 2:30 pm
IWMF Virtual Ed Forum 2022 Starts In:
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International Waldenstrom’s Macroglobulinemia Foundation News
New Video: Bob Rupert Discusses Living with Waldenstrom’s
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Edward Kemp: Ed’s Second Act
Edward Kemp: Ed’s Second Act [This is an update on Ed Kemp, a member of the IWMF community, whose original Story of Hope was published in 2015] Since 2015, my...
Sue Herms Receives the 2020 Judith A. May Volunteer Award
It is with great pleasure that we announce Sue Herms as the 2020 recipient of the Judith May Volunteer Award. Under normal circumstances, Sue would have...
Stories of Hope
People with Waldenstrom macroglobulinemia and their caregivers share how they have coped living with this rare disease. Learn from these inspirational stories.
ABBREVIATED COVID-19 Letter to Share with Hospitals for Emergency Medical Events
The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is offering its official statement for hospitals regarding prioritizing Waldenstrom’s macroglobulinemia patients when triaging care during the COVID-19 Pandemic. We recommend that all WM patients have this letter handy and available
when visiting an ER in the event that they may have COVID-19.
Stay Safe – Stay Healthy – Stay Waldenstrong!
How Can We Help You?
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REGISTER NOW! Understanding Your Blood & Bone Marrow Test Results with Dr. Rafat Abonour . Wednesday, July 13th at 1:30 PM EDT.
Register HERE: http://tinyurl.com/iwmfevents-2022-5a
REGISTRATION IS NOW OPEN! Register now for the 2022 IWMF Virtual Educational Forum, August 27th & 28th. Join us for a unique opportunity to learn & connect with one another!
REGISTER: https://tinyurl.com/iwmfevents-ed-forum-SM
REGISTER NOW for TODAY'S WEBCAST Genomics/Science of WM with Dr. Sikander Ailawadhi: https://tinyurl.com/iwmfevents-2022-4
