International Waldenstrom’s Macroglobulinemia Foundation

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Registration Open! IWMF Ed Forum Primer Series

WM & Basic Terminology: Rebroadcast with NEW LIVE Q&A! Wednesday, May 18th, 2022 1:30PM - 2:30PM U.S. Eastern Daylight Time About the Program: Need to brush up on your WM Basics? Get the most out of your upcoming Virtual Educational Forum experience with part...

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U.S. FDA Approves Zanubrutinib for the Treatment of WM

BREAKING NEWS The IWMF is excited to share that the U.S. Food and Drug Administration (FDA) has approved the use of Zanubrutinib for the treatment of WM. From IWMF Board Chair, Peter DeNardis: “The approval of Brukinsa in Waldenström’s macroglobulinemia, which is the...

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Important IWMF Update: 2021 Educational Forum

To the IWMF Community, We want to let you know that after very careful consideration and with input from our WM medical experts, we have made the decision that our 2021 Ed Forum will be a completely virtual event. We are disappointed that we will not be together in...

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Participate in LLS COVID-19 Antibody Research Study

The Leukemia & Lymphoma Society (LLS) is undertaking a unique research study focusing on the antibody response among blood cancer patients in the United States. Participating is easy, and the end result will be a large-scale collection of data from vaccinated...

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IWMF COVID-19 News Brief – January 2021

IWMF COVID-19 News Brief – January 2021 While the coronavirus (COVID-19) pandemic continues to affect the global community, several vaccines have either been approved or are in trials for helping to head off the ill effects of the virus. At this time, there are 3...

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IWMF COVID-19 NEWS BRIEF – DECEMBER 2020

The coronavirus (COVID-19) pandemic has affected the global community, with each country developing safety protocols of different types and durations. We know that the IWMF community has many questions about the vaccine, and we hope this news brief offers helpful...

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Special New Year’s Walk for Waldenstrom’s

JOIN US FOR A SPECIAL NEW YEAR'S WALK FOR WALDENSTROM'S With Stacy Kennedy MPH, RD, CSO, LDN Help the IWMF meet its goals while achieving your own! Join your friends in the WM community for a special New Year's Walk for Waldenstrom's, and end 2020 with a focus on...

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IWMF Welcomes New Chair of the Board of Trustees

After 8 years of leadership, Carl Harrington, Chair of the International Waldenstrom's Macroglobulinemia Foundation (IWMF) Board of Trustees, will be stepping down from his position. The IWMF is excited to announce that Peter DeNardis will serve as the new Chair of...

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IWMF Welcomes New Members to Board of Trustees

The International Waldenstrom's Macroglobulinemia Foundation (IWMF) is excited to announce the addition of two new members to the Board of Trustees – Paul Kitchen and Carl Lisman. Paul Kitchen lives in Rothesay, NB, about 50 miles from the Canada/US (New Brunswick/...

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IWMF Renews Funding for Pivotal Research Project

The International Waldenstrom's Macroglobulinemia Foundation (IWMF) Board of Trustees has reviewed and approved funding an additional $500,000 to renew Dr. Steve Treon's legacy research project. In previous research partially funded by the IWMF, Dr. Treon and his team...

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Sharon Piotrowski: My Journey with WM

Please listen to a special message from Sharon to her fellow WMers on her YouTube channel, https://youtu.be/qw2GkpUJtRY For most of my life, I have practiced a healthy lifestyle. While in my 40’s, I began to exercise. Eventually, I built up the knowledge and...

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Edward Kemp: Ed’s Second Act

Edward Kemp: Ed’s Second Act [This is an update on Ed Kemp, a member of the IWMF community, whose original Story of Hope was published in 2015] Since 2015, my lifestyle and health have continued to both change and improve. In order to describe what has happened during...

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Sue Herms Receives the 2020 Judith A. May Volunteer Award

It is with great pleasure that we announce Sue Herms as the 2020 recipient of the Judith May Volunteer Award. Under normal circumstances, Sue would have received the award formally at the IWMF Patient Educational Forum. With the event being cancelled this year, true...

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2020 IWMF Virtual Educational Forum – Registration Open

2020 IWMF Virtual Educational Forum August 27-28, 2020 This virtual experience will be available entirely online The 2020 IWMF Virtual Educational Forum is a unique opportunity to come together and learn from medical experts and WM community members around the world –...

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Kathy Horton: My Story Continues…And I Am Still Coping

[*The author, Kathy Horton, was featured in a recent article in Cure Today (Read Story HERE(link is external)), focused on how WM and other cancer survivors deal with the additional uncertainty of COVID-19. This story is a coda to the Cure Today article, describing in...

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The IWMF announces $800,000 in New Research Funding

The IWMF Board of Trustees has approved $800,000 in new research support for two research projects from the IWMF-LLS (Leukemia & Lymphoma Society) Strategic Research Roadmap initiative. The IWMF-LLS Strategic Research Roadmap initiative uses an NIH scoring system...

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Announcing the 2020 Walk for Waldenstrom’s

On August 28th, people from around the world will join together to raise awareness and support for Waldenstrom's macroglobulinemia. No matter if you are a patient or caregiver, friend or family member, the IWMF and WM community invite you to join us for the Walk for...

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Save the Date: 2020 IWMF Global Educational Webinar

2020 IWMF GLOBAL EDUCATIONAL WEBINAR Getting to Know WM: Basics & Beyond with Dr. Jeffrey Matous JULY 22, 2020 at 1:30pm EST The International Waldenstrom's Macroglobulinemia Foundation invites you to join us for the first installment in our 2020 IWMF Global...

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2020 IWMF Virtual Educational Forum

SAVE the NEW DATE! August 27-28, 2020 2020 IWMF Virtual Educational Forum  This virtual experience will be available entirely online.  The 2020 IWMF Virtual Educational Forum is a unique opportunity to come together and learn from medical experts and WM community...

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From Canada-Murray Shaw: Exercise – Elixir of Life

My entire life has involved heavy engagement in various forms of long-distance running, cross-country skiing, and canoeing, but myelodysplastic syndrome (MDS) has reduced my HGB levels to the point where my usual vigorous training regimens are no longer possible. As a...

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Timothy Salz: A Song of Hope

Please listen to Tim's song here . My Waldenstrom’s (WM) story officially began in January of 2018, two days after my 70th birthday. Happy Birthday Tim! Unofficially, I believe it began many years – or possibly, even many decades – before that. I first sought medical...

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