News

WM & Basic Terminology: Rebroadcast with NEW LIVE Q&A! Wednesday, May 18th, 2022 1:30PM - 2:30PM U.S. Eastern Daylight Time About the Program: Need to brush up on your WM Basics? Get the most out of your upcoming Virtual Educational Forum experience with part...

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is offering its official statement for hospitals regarding prioritizing Waldenstrom’s macroglobulinemia patients when triaging care during the COVID-19 Pandemic. We recommend that all WM patients have...

In early March 2020, the global IWMF community was just beginning to learn about the impact of the COVID-19 pandemic and how best to protect oneself against the virus. At that time, the IWMF distributed periodic messages over several months as more was learned about...

BREAKING NEWS The IWMF is excited to share that the U.S. Food and Drug Administration (FDA) has approved the use of Zanubrutinib for the treatment of WM. From IWMF Board Chair, Peter DeNardis: “The approval of Brukinsa in Waldenström’s macroglobulinemia, which is the...

To achieve its strategic visions, the IWMF recognizes it is vital to provide funding to support the career development of next-generation researchers for WM. The IWMF is therefore proud to announce the establishment of the Robert A. Kyle Career Development Awards for...

Founded in 2001, Charity Navigator is the nation's largest and most-utilized evaluator of charities. To help donors decide which non-profits are worthy of support, their team of professional analysts examines tens of thousands of non-profit financial documents. They...

WM Patient-Entered Data Published in American Journal of Hematology - More Data Is Needed and You Can Help! Congratulations to all who entered their data into the WhiMSICAL Registry. Your efforts have directly added to the field of WM research. Newly published...

REGISTRATION OPEN AT OUR NEW EVENTS SITE! IWMF Global Educational Webinar July 9, 2021 at 1:30PM U.S. ET The IWMF is excited to share that we have a new platform host for our Virtual Events, which includes Global Educational Webinars and Ed Forum Month in...

As many of you in the US are now aware, the CDC issued new recommendations for fully vaccinated people in non-healthcare settings (see: https://www.cdc.gov/coronavirus/2019-ncov/vaccines/fully-vaccinated-guidance.html). The guidelines state the following: Fully...

To the IWMF Community, We want to let you know that after very careful consideration and with input from our WM medical experts, we have made the decision that our 2021 Ed Forum will be a completely virtual event. We are disappointed that we will not be together in...

IWMF Global Educational Webinar Peripheral Neuropathy: No Easy Feat May 4, 2021 1:30PM U.S. ET REGISTER HERE   REGISTER HERE

The Leukemia & Lymphoma Society (LLS) is undertaking a unique research study focusing on the antibody response among blood cancer patients in the United States. Participating is easy, and the end result will be a large-scale collection of data from vaccinated...

Registration Open: 2021 IWMF Global Educational Webinar with Dr. Stephen Ansell & Dr. Jorge Castillo Ask the Doctors LIVE: WM and the COVID Vaccine March 31, 2021 at 11:30am U.S. ET SUBMIT YOUR QUESTIONS IN ADVANCE & HEAR THE EXPERTS RESPOND IN REAL TIME! BE A...

The IWMF’s very own Vice-Chair of Information & Support, Lisa Wise, was published in The Boston Globe with a moving story about her brother, a front-line surgeon in an inner-city safety-net hospital during the COVID-19 pandemic. Lisa is working on an essay...

IWMF COVID-19 News Brief – January 2021 While the coronavirus (COVID-19) pandemic continues to affect the global community, several vaccines have either been approved or are in trials for helping to head off the ill effects of the virus. At this time, there are 3...

2021 IWMF GLOBAL EDUCATIONAL WEBINAR February 9, 2021 at 1:30PM U.S. ESTWhy Clinical Trials Matter and How to Find the Right One for You With Neena Kennedy, RN, BSN, OCNThe International Waldenstrom's Macroglobulinemia Foundation (IWMF) encourages you to register...

Undaunted and Staying Fit. Read her story HERE.

Dear friend of the IWMF, For over twenty years the International Waldenstrom’s Macroglobulinemia Foundation has provided support and education to patients and caregivers around the world. Twenty years ago, we had one support group; today, along with our international...

The coronavirus (COVID-19) pandemic has affected the global community, with each country developing safety protocols of different types and durations. We know that the IWMF community has many questions about the vaccine, and we hope this news brief offers helpful...

The IWMF presents this recording of the first-ever global support group meeting for patients, caregivers and others interested in Bing-Neel Syndrome, a rare complication in a rare cancer. Dr. Steven Treon and Dr. Jorge Castillo from the Bing Center for WM at Dana...

JOIN US FOR A SPECIAL NEW YEAR'S WALK FOR WALDENSTROM'S With Stacy Kennedy MPH, RD, CSO, LDN Help the IWMF meet its goals while achieving your own! Join your friends in the WM community for a special New Year's Walk for Waldenstrom's, and end 2020 with a focus on...

Story of Hope: My Guideposts- Bernard R Tyrrell RPh Read Bernie's story HERE .

The IWMF is proud to announce the addition of three new physicians to our prestigious physicians directory. WM specialists from China, Israel and Russia have accepted the invitation to be listed as a resource for WM patients and doctors. For your convenience in...

The latest Request for Proposals (RFP) is a result of the ongoing collaborative endeavor between the IWMF and LLS that began in 2015 with the development of the IWMF-LLS Strategic Research Roadmap Initiative. The Initiative identified focus areas for future research...

The International Waldenstrom's Macroglobulinemia Foundation (IWMF) encourages you to register today for this free educational webinar with Dr. Edward Libby. Date: November 10, 2020 Time: 1:30PM U.S. ET About the presentation: Understanding Your Blood and Bone Marrow...

After 8 years of leadership, Carl Harrington, Chair of the International Waldenstrom's Macroglobulinemia Foundation (IWMF) Board of Trustees, will be stepping down from his position. The IWMF is excited to announce that Peter DeNardis will serve as the new Chair of...

The International Waldenstrom's Macroglobulinemia Foundation (IWMF) is excited to announce the addition of two new members to the Board of Trustees – Paul Kitchen and Carl Lisman. Paul Kitchen lives in Rothesay, NB, about 50 miles from the Canada/US (New Brunswick/...

The International Waldenstrom's Macroglobulinemia Foundation (IWMF) Board of Trustees has reviewed and approved funding an additional $500,000 to renew Dr. Steve Treon's legacy research project. In previous research partially funded by the IWMF, Dr. Treon and his team...

The IWMF is proud to announce the addition of five new physicians to our prestigious physicians directory. WM specialists from Argentina, Greece, Israel, Poland and South Africa have accepted the invitation to be listed as a resource for WM patients and doctors. For...

The International Waldenstrom's Macroglobulinemia Foundation invites you to join us for the third installment in our 2020 IWMF Global Educational Webinar series. Through this free interactive webinar series, you will learn from the best and brightest minds in WM...

Please listen to a special message from Sharon to her fellow WMers on her YouTube channel, https://youtu.be/qw2GkpUJtRY For most of my life, I have practiced a healthy lifestyle. While in my 40’s, I began to exercise. Eventually, I built up the knowledge and...

The authors analyzed 160 young patients diagnosed with WM, median age of 49 years (range 23-55), from 18 treatment centers in Italy. Early diagnosis, absence of high‐risk features in symptomatic patients, and high efficacy of modern treatments are the main...

Please read this message in its entirety and keep this message with important information for reference. The link to access the ed forum is located at the bottom of this email under "Check in". The link will ONLY work if you have already registered. EVENT DETAILS:...

"In the light of the COVID-19 pandemic, the International Workshop on Waldenström Macroglobulinemia (IWWM) Treatment Recommendations Panel felt the need to provide a consensus statement for the management of Waldenström Macroglobulinemia (WM) patients during this...

This is the second in a series of three videos recently produced for the IWMF. In this video, Bob Rupert, a WM patient, discusses how WM has affected his life and his family, and how he approaches living with the disease. His story and his message reinforce the...

Edward Kemp: Ed’s Second Act [This is an update on Ed Kemp, a member of the IWMF community, whose original Story of Hope was published in 2015] Since 2015, my lifestyle and health have continued to both change and improve. In order to describe what has happened during...

It is with great pleasure that we announce Sue Herms as the 2020 recipient of the Judith May Volunteer Award. Under normal circumstances, Sue would have received the award formally at the IWMF Patient Educational Forum. With the event being cancelled this year, true...

2020 IWMF Virtual Educational Forum August 27-28, 2020 This virtual experience will be available entirely online The 2020 IWMF Virtual Educational Forum is a unique opportunity to come together and learn from medical experts and WM community members around the world –...

[*The author, Kathy Horton, was featured in a recent article in Cure Today (Read Story HERE(link is external)), focused on how WM and other cancer survivors deal with the additional uncertainty of COVID-19. This story is a coda to the Cure Today article, describing in...

The IWMF Board of Trustees has approved $800,000 in new research support for two research projects from the IWMF-LLS (Leukemia & Lymphoma Society) Strategic Research Roadmap initiative. The IWMF-LLS Strategic Research Roadmap initiative uses an NIH scoring system...

The International Waldenstrom's Macroglobulinemia Foundation invites you to join us for the first installment in our 2020 IWMF Global Educational Webinar series. Through this free interactive webinar series, you will learn from the best and brightest minds in WM...

"Maia sat on my lap every day for 18 months of chemotherapy!" After undergoing eighteen months of chemotherapy ending in 2014, which resulted in much success and years of being well managed and free of infusions, my WM flared up again, significantly, in 2019.  This...

On August 28th, people from around the world will join together to raise awareness and support for Waldenstrom's macroglobulinemia. No matter if you are a patient or caregiver, friend or family member, the IWMF and WM community invite you to join us for the Walk for...

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2020 IWMF GLOBAL EDUCATIONAL WEBINAR Getting to Know WM: Basics & Beyond with Dr. Jeffrey Matous JULY 22, 2020 at 1:30pm EST The International Waldenstrom's Macroglobulinemia Foundation invites you to join us for the first installment in our 2020 IWMF Global...

SAVE the NEW DATE! August 27-28, 2020 2020 IWMF Virtual Educational Forum  This virtual experience will be available entirely online.  The 2020 IWMF Virtual Educational Forum is a unique opportunity to come together and learn from medical experts and WM community...

WEBINAR: WM and COVID-19 - Friday 19 June (9AM - 10AM EDT) WMUK(link is external) is delighted to be working in partnership with Lymphoma Action(link is external) to host a free live webinar for people affected by WM. This is an opportunity to ask questions about...

My entire life has involved heavy engagement in various forms of long-distance running, cross-country skiing, and canoeing, but myelodysplastic syndrome (MDS) has reduced my HGB levels to the point where my usual vigorous training regimens are no longer possible. As a...

Please listen to Tim's song here . My Waldenstrom’s (WM) story officially began in January of 2018, two days after my 70th birthday. Happy Birthday Tim! Unofficially, I believe it began many years – or possibly, even many decades – before that. I first sought medical...