International Waldenstrom’s Macroglobulinemia Foundation
Sharing your story with us is a fantastic way for you to help others who are traveling down the same path that you are — whether you are a patient, caregiver, or family member— we would love to hear from you.
Patients and others who visit our website often tell us that one of their favorite features of our communications are the stories of the lives of people who are affected by WM. We would very much enjoy learning about you, your story, and how your experiences can motivate, help and inspire others we serve.
We invite you to read, enjoy, and learn from the following first-person stories by patients and caregivers, worldwide, affected by WM.
If you are interested in sharing your story with us so that we may share it with others on our website, please submit your contact details.
My entire life has involved heavy engagement in various forms of long-distance running, cross-country skiing, and canoeing, but myelodysplastic syndrome (MDS) has reduced my HGB levels to the point where my usual vigorous training regimens are no...
From Canada- A Story of Hope: Michael Knowlton From Michael Knowlton: Kindness is a beautiful thing, both as the recipient, and as the giver. Living with cancer (WM) in my life has reminded me of the importance of being a force for good and working...
Diagnosed with WM in 1990, Lisa Wise has been mindfully practicing social distancing long before it was popular worldwide. After almost seven years of watch and wait, Lisa was treated with Bendamustine and Rituxan to address complications...
Published in the IWMF Torch , November 2014, pages 15-18 *Updated January 2020* Jennifer Hoegerman’s life is, by every measure, an active one filled with parental and professional commitments, volunteerism of a challenging sort, an enthusiasm for...
I will never forget the phone call that changed our lives. It was in the autumn of 1998 when my sister and I received a call from my mother. She was extremely upset. Our father had just received a call from his doctor who reported his lab work...
This is an update to ROGER’S STORY published on www.iwmf.com ON DECEMBER 11, 2014 Multiple cycles of chemo and relapse, followed by an autologous stem cell transplant. The photo shows the last of my hair coming off during transplant! ...
During his “compulsory ‘me’ time” at his local café in Byron Bay, Australia in September 2017, David received an email about a new international Phase III clinical trial for Waldenstrom’s macroglobulinemia (WM), comparing two targeted therapies –...