International Waldenstrom’ Macroglobulinemia Foundation

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Stories of Hope

Share Your Story

Sharing your story with us is a fantastic way for you to help others who are traveling down the same path that you are — whether you are a patient, caregiver, or family member— we would love to hear from you.

Patients and others who visit our website often tell us that one of their favorite features of our communications are the stories of the lives of people who are affected by WM. We would very much enjoy learning about you, your story, and how your experiences can motivate, help and inspire others we serve.

We invite you to read, enjoy, and learn from the following first-person stories by patients and caregivers, worldwide, affected by WM.

If you are interested in sharing your story with us so that we may share it with others on our website, please submit your contact details.

From Italy – Daniela Calamai: WM, A Family History

From Italy – Daniela Calamai: WM, A Family History

I decided to publicize my experience as a person suffering from Waldenström's macroglobulinemia (WM) because, regardless of the importance of sharing clinical and therapeutic aspects with other patients, my own has turned out to be one of the (not very rare) cases in...

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Julianne Flora-Tostado: Together We Will Figure Out What To Do

Julianne Flora-Tostado: Together We Will Figure Out What To Do

This story is about the caregiving side of my life. It’s about the love of my life, too. John and I married in 1974 when I was 19, and he was 30. In December 2015, John retired from our shared psychology practice. I decided to increase my practice to full-time, and...

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Martin Vanderlaan: My Stem Cell Transplant for WM Amyloidosis

Martin Vanderlaan: My Stem Cell Transplant for WM Amyloidosis

I had indolent WM for twenty years, but amyloid deposits in my lung hospitalized me eighteen months ago. I discuss my experiences with Rituxan, ibrutinib, and an autologous stem cell transplant (ASCT). I am now 68 years old. 23 years ago, during a routine physical...

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Wanda Huskins: Facing the Uncertainty of WM in Uncertain Times

Wanda Huskins: Facing the Uncertainty of WM in Uncertain Times

"I think I feel something," murmured the nurse practitioner during a GI appointment. I was initially there to schedule a colonoscopy. Lying on the exam table I strained my head upward wondering if I could possibly see what she was feeling. "Let me get the doctor to...

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