International Waldenstrom’ Macroglobulinemia Foundation

Language

Stories of Hope

Share Your Story

Sharing your story with us is a fantastic way for you to help others who are traveling down the same path that you are — whether you are a patient, caregiver, or family member— we would love to hear from you.

Patients and others who visit our website often tell us that one of their favorite features of our communications are the stories of the lives of people who are affected by WM. We would very much enjoy learning about you, your story, and how your experiences can motivate, help and inspire others we serve.

We invite you to read, enjoy, and learn from the following first-person stories by patients and caregivers, worldwide, affected by WM.

If you are interested in sharing your story with us so that we may share it with others on our website, please submit your contact details.

Peter Haarmann: Treatment, Healing and Faith

Peter Haarmann: Treatment, Healing and Faith

In the summer of 2014, I became slightly short of breath during a hike up a granite dome mountain called “The Thumb” at Sequoia National Park. This was highly unusual for me. I have been a high-energy person my entire life, working in the construction industry for 40...

read more
Jennifer Hoegerman: My WM Story

Jennifer Hoegerman: My WM Story

Published in the IWMF Torch , November 2014, pages 15-18 *Updated January 2020* Jennifer Hoegerman’s life is, by every measure, an active one filled with parental and professional commitments, volunteerism of a challenging sort, an enthusiasm for the outdoor life...

read more
From Chile – Jeanette Quiroz: A Waldenstrom’s Pregnancy

From Chile – Jeanette Quiroz: A Waldenstrom’s Pregnancy

Yes, such a pregnancy is possible, and here I am, pictured with my son who is almost five years old and who is the joy of my life. It all started in January of 2013, when I was 35 years old. I went to see an endocrinologist because I suspected I might have diabetes....

read more
Lisa Weldy: I’m Myself Again…After WM Took Over My Life

Lisa Weldy: I’m Myself Again…After WM Took Over My Life

I’ve come to learn that none of us with WM has a “typical” journey. This very rare blood cancer affects us all so differently, not just with symptoms, treatments, and severity, but also with age of diagnosis. When I was 28 and a new mom to my first child, elevated IgM...

read more
Ryan Scofield’s Story: We’re All in this Together

Ryan Scofield’s Story: We’re All in this Together

Ryan’s story was first published in the in the IWMF Torch, January 2015, page 21. This is an update to that story. I was diagnosed with WM in 2010 when I was 35. At the time, my son was barely a year old. I had moved to Chicago with my wife twelve months earlier. We...

read more
From UK – Roger Brown: Why It Pays Never to Give Up

From UK – Roger Brown: Why It Pays Never to Give Up

This is an update to ROGER’S STORY published on www.iwmf.com ON DECEMBER 11, 2014   Multiple cycles of chemo and relapse, followed by an autologous stem cell transplant. The photo shows the last of my hair coming off during transplant!        I was diagnosed at...

read more
Stephen French: My Twenty-Year Journey with WM

Stephen French: My Twenty-Year Journey with WM

I have had a long journey with Waldenstrom’s macroglobulinemia.  I have had good news and bad news during this period, but the good news has been with me for over sixteen years.  I hope it lasts a whole lot longer.  I was diagnosed with WM in August, 1998 and started...

read more
Chris Moakley: I’d Rather Have Won the Powerball

Chris Moakley: I’d Rather Have Won the Powerball

Chris’s  story was first published on www.iwmf.com on September 15, 2014, with the author’s approval, as a reprint from the Cancer Support Community of Lehigh Valley, www.cancersupportglv.org/get-support/stories-of-hope/chris(link is external). Chris’ 2018 update to...

read more
Megan Davey: Our Family is Alive and Kickin’

Megan Davey: Our Family is Alive and Kickin’

It has been 8 years and 5 months since my husband Mark was diagnosed with a disease that the oncologist we had only met a few days earlier had to spell out. If you are here at the International Waldenstrom’s Macroglobulinemia Foundation’s website, then chances are...

read more
Tom White: From Rituxan Project Team to WM Patient

Tom White: From Rituxan Project Team to WM Patient

Story first published in the IWMF Torch Magazine in October 2012, pages 13, 34-35. Update published on www.iwmf.com  in September 2018 My Work on the Rituximab Core Team It all began in 1971 when, armed with a BS in Chemistry and an MBA, I began my career at Cutter...

read more
Bob Rupert: Living with Waldenstrom’s

Bob Rupert: Living with Waldenstrom’s

Bob Rupert, a WM patient, discusses how WM has affected his life and his family, and how he approaches living with the disease. His story and his message reinforce the reality that, given the options available to us today, WM is a disease that can be “lived with”,...

read more
Peter DeNardis – There is Life with Waldenstrom’s

Peter DeNardis – There is Life with Waldenstrom’s

  “Get your affairs in order.” “You have a rare, incurable blood cancer called Waldenstrom’s macroglobulinemia.” “Average survival rate is 6 years.” “Given your symptoms and blood test values, we have to treat immediately.” Those were jarring words for someone in...

read more
From Canada – Carol Joy Patterson: Spirit of Hope Essay

From Canada – Carol Joy Patterson: Spirit of Hope Essay

My life so far has been an exciting journey, punctuated by a cascade of medical events. Never a dull moment. You don’t know how you’ll respond to bad news until you are faced with it. I’ve had plenty, but there has always been hope. It began the day I was born a...

read more