Make YOUR Voice Heard with the WM-VOICE Study

WM-VOICE study: Patient preferences on treatment options for Waldenström macroglobulinemia: An international discrete choice experiment.

Study details:

The WM-VOICE study is scientific research about Waldenström macroglobulinemia (WM). The study focuses on what patients with Waldenström value most in their treatment. Researchers from the hematology department of Amsterdam UMC are conducting this study, in collaboration with Waldenström experts and patient organizations from the United Kingdom, the United States of America, Australia, Canada, and the Netherlands. The study is funded by the International Waldenstrom’s Macroglobulinemia Foundation (IWMF). This study is non-commercial. No pharmaceutical companies are involved in this study.

Relevance of the study:

Treatment options for Waldenström macroglobulinemia (WM) are expanding rapidly. However, it remains an incurable disease with no consensus on one preferred treatment.

WM treatments vary regarding efficacy, side effects, administration, and duration. An improved understanding of patient preferences may guide tailoring treatment to the individual and set priorities in drug development and trial design in the future. The results will be published in a scientific journal and presented at an international hematology conference.

Can I participate in the study?

All patients living with WM, living in the United Kingdom, the United States of America, Australia, Canada, and the Netherlands, are welcome to take part in the survey. It does not matter how many treatments for WM you have had. Individuals with WM who have not undergone treatment, can also take part.

Why should I participate?

By taking part, you might help other patients with WM receive better treatments in the future.

How does the survey work?

Your participation in this survey is anonymous. The survey is accessible online through the links below. We recommend using a computer, rather than a smartphone, to fill out the survey. Allow at least 30 minutes to complete the survey. You may not pause and come back to complete the survey later. It must be completed in one session.