IWMF Info For Patients and Caregivers

Information Packets (Info Pak) are intended for newly diagnosed patients and their caregivers. IWMF volunteers and WM researchers work together to develop booklets, pamphlets, and information packets that provide the newly diagnosed patient and their caregivers with easy to understand information regarding Waldenstrom’s macroglobulinemia, how to treat it, and how to live with it. Info Paks are provided for immediate download.

What is in the Info Pak?

An InfoPak is a packaging of predefined content that we believe will be of help to newly diagnosed patients and their caregivers. Below is a list of contents of the Info Pak for Patients in English.

In addition to our English Info Pak, we have InfoPaks in Simplified Chinese (简体中文), Traditional Chinese (繁體中文), French (Francais), German (Deutsch), Italian (Italiano), and Spanish (Espanol). Not all of the content below is available in all these language specific Info Paks.

• Letter of Introduction from IWMF President & CEO, Newton Guerin
• About WM Expanded Fact Sheet-English (1) Fact Sheet
• About the IWMF Brochure
• IWMF Wellness Program Brochure
• Frequently Asked Questions, booklet
• Waldenstrom’s Macroglobulinemia: Medical Tests, booklet
• Treatment Options Guides, series of 4 pamphlets
  • Chemo – Alkylating Agents and Nucleoside Analogs
  • Monoclonal Antibodies
  • Proteasome Inhibitors-English
  • Targeted Therapies – Pathway Inhibitors-English
• Support Groups (US and International) – Reach out to others for support
• Lifeline – talk with a WM patient on a one-one-on basis
• Should I get a Second Opinion: Gertz Article by Morie Gertz, MD from the IWMF Torch
  • ​Directory of Physicians who have expertise in WM
• Getting the Most from My Provider Visit by Morie Gertz, MD from the IWMF Torch
• Resources Available To Members and Friends of the IWMF
• Annual Educational Forum
• Donate

Information Packets (Info Paks) contain all of the above items and are available for immediate download in English zip file. A .ZIP file contains several files. It is an optional method for downloading all the contents of the Info Pak as opposed to downloading each individual file. When you click on the link and the file comes up you can choose to open, save or save as. The .ZIP file may not work on your tablet or smartphone. US residents may click here to request an Info Pak by mail.