Make YOUR Voice Heard with the WM-VOICE Study

Make YOUR Voice Heard with the WM-VOICE Study

WM-VOICE study: Patient preferences on treatment options for Waldenström macroglobulinemia: An international discrete choice experiment. Study details: The WM-VOICE study is scientific research about Waldenström macroglobulinemia (WM). The study focuses on what...
A Journey of Resilience: A 31-Year Battle with WM

A Journey of Resilience: A 31-Year Battle with WM

A Journey Of Resilience: A 31-Year Battle with WM By Art Brewerfrom the IWMF Torch, October 2024     On January 1993, Catherine Callahan received a diagnosis of Waldenstrom’s macroglobulinemia (WM) that would change her life. At the time, the prognosis for...
Resources from Leukemia & Lymphoma Society

Resources from Leukemia & Lymphoma Society

A new Bloodline podcast episode from the Leukemia & Lymphoma Society (LLS), features the topic of exercise. Moving the body can be an important part of cancer recovery, both physically and emotionally. In this episode, Dr. Shernan Holtan of Roswell Park...
Patient Advocacy at New BeiGene Facility

Patient Advocacy at New BeiGene Facility

Patient Advocacy at New BeiGene Facility Newton Guerin, IWMF President & CEO, joined leaders of patient advocacy organizations throughout the U.S. to celebrate the grand opening of BeiGene’s flagship U.S. Biologics Manufacturing and Clinical R&D facility in...
Active Monitoring

Active Monitoring

By Kat Tucker, WMUK Earlier this spring, WMUK was proud to launch the Active Monitoring Checklist—a resource to help both patients and healthcare professionals navigate conversations around Active Monitoring (AM) and improve care during this period of time for people...
NEW Videos from the Blood & Marrow Transplant Information Network

NEW Videos from the Blood & Marrow Transplant Information Network

NEW Videos from BMT InfoNet The Blood & Marrow Transplant Information Network (BMT InfoNet) has released two new videos on living with chronic fatigue. What you will learn: What causes chronic fatigue Why it’s different from normal fatigue How to conserve...
IWMF Partners with NORD for Financial Assistance Program

IWMF Partners with NORD for Financial Assistance Program

The IWMF is proud of our financial assistance program in partnership with The National Organization for Rare Disorders (NORD)! The IWMF Travel & Lodging (T&L) Assistance Program has been providing individuals diagnosed with WM, or those being evaluated for the...
Lisa Wise Featured in LLS Video

Lisa Wise Featured in LLS Video

IWMF Vice-Chair of Information & Support Featured in LLS Video Have you ever wondered: How can I live full of hope in the shadow of an incurable disease? So does Lisa Wise, IWMF Vice-Chair of Information & Support! That was the question she submitted...
The Global Patient Survey on Lymphomas & CLL

The Global Patient Survey on Lymphomas & CLL

Lymphoma and CLL are different than most other types of cancer, so the experience of living with these diseases is also unique. To better understand and help those affected by lymphoma, the Lymphoma Coalition, a worldwide network of lymphoma patient organizations,...