Measuring Quality of Life in WM & Other “Tired” Topics with Dr. Shirley D’Sa
Measuring Quality of Life in WM & Other “Tired” Topics with Dr. Shirley D’Sa Friday November 22nd 11am ET / 4pm GT REGISTER NOW Join Dr. Shirley D’Sa to learn more about her involvement recent research of wearable technology to measure the experience of...
Make YOUR Voice Heard with the WM-VOICE Study
WM-VOICE study: Patient preferences on treatment options for Waldenström macroglobulinemia: An international discrete choice experiment. Study details: The WM-VOICE study is scientific research about Waldenström macroglobulinemia (WM). The study focuses on what...
A Journey of Resilience: A 31-Year Battle with WM
A Journey Of Resilience: A 31-Year Battle with WM By Art Brewerfrom the IWMF Torch, October 2024 On January 1993, Catherine Callahan received a diagnosis of Waldenstrom’s macroglobulinemia (WM) that would change her life. At the time, the prognosis for...
Resources from Leukemia & Lymphoma Society
A new Bloodline podcast episode from the Leukemia & Lymphoma Society (LLS), features the topic of exercise. Moving the body can be an important part of cancer recovery, both physically and emotionally. In this episode, Dr. Shernan Holtan of Roswell Park...
Patient Advocacy at New BeiGene Facility
Patient Advocacy at New BeiGene Facility Newton Guerin, IWMF President & CEO, joined leaders of patient advocacy organizations throughout the U.S. to celebrate the grand opening of BeiGene’s flagship U.S. Biologics Manufacturing and Clinical R&D facility in...
Active Monitoring
By Kat Tucker, WMUK Earlier this spring, WMUK was proud to launch the Active Monitoring Checklist—a resource to help both patients and healthcare professionals navigate conversations around Active Monitoring (AM) and improve care during this period of time for people...
NEW Videos from the Blood & Marrow Transplant Information Network
NEW Videos from BMT InfoNet The Blood & Marrow Transplant Information Network (BMT InfoNet) has released two new videos on living with chronic fatigue. What you will learn: What causes chronic fatigue Why it’s different from normal fatigue How to conserve...
IWMF Partners with NORD for Financial Assistance Program
The IWMF is proud of our financial assistance program in partnership with The National Organization for Rare Disorders (NORD)! The IWMF Travel & Lodging (T&L) Assistance Program has been providing individuals diagnosed with WM, or those being evaluated for the...