Waldenstrom’s Weekly Archive

Get all the latest news from the International Waldenstrom’s Macroglobulinemia Foundation (IWMF) delivered weekly!

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by Waldenstrom’s macroglobulinemia while advancing the search for a cure. The IWMF provides access to The Waldenstrom’s Weekly as a free service to WM community members to share WM related news and events.

November 15, 2024 Volume 4, Issue 40

  • IWMF Board Meets to Discuss 2025 Priorities
  • Two NEW IWMF Webinar Recordings Available!
  • NEW LGBTQ+ Support Group in December

November 1, 2024 Volume 4, Issue 39

  • Videos from IWWM-12 Available
  • Story of Hope Update: Tom White
  • November Wellness Webinar on Nov. 22

October 18, 2024 Volume 4 Issue 38

  • Preview the October IWMF Torch!
  • New IWMF Video Spotlights Who We Are 
  • Make YOUR Voice Heard with the WM-VOICE Study

October 4, 2024, Volume 4 Issue 37

  • 2024 Walk for Waldenstrom’s THANK YOU
  • IWMF Sponsoring Lecture at LL&M Congress
  • IWMF Releases Newly Updated FAQ Booklet

September 20, 2024, Volume 4 Issue 36

  • Let’s Work Together to Accelerate the Cure!
  • 2024 Walk for Waldenstrom’s Update

September 13, 2024 Volume 4 Issue 35

  • Special Edition: Walking and Wellness

September 3 2024, Volume 4 Issue 34

  • IWMF Annual Report Makes Flipbook Debut
  • World Lymphoma Awareness Day 2024

August 23 2024, Volume 4 Issue 32

  • Nutrition Resource from the Academy of Oncology Nurse & Patient Navigators (AONN)
  • Get the IWMF Wellness Bulletin!

August 16 2024, Volume 4 Issue 31

  • Accelerate the Cure Matching Gift Challenge

  • New Video Highlights from IWMF’s 2024 Ed Forum!

August 9 2024, Volume 4 Issue 30

  • Accelerate the Cure Matching Gift Challenge

  • August Is National Make-A-Will Month
  • 2024 Walk for Waldenstrom’s in September
  • Brushes with Cancer Spring 2025 Applications OPEN!
  • Watch & Wait Recording Available!

August 2, 2024, Volume 4 Issue 29

  • WM-Net Update Edition

July 26, 2024, Volume 4 Issue 28

  • IWMF Issues New Request for Proposalsmto Global WM Researchers

  • Patient Advocacy at New BeiGene Facility
  • IWMF Announces an Addition to the WM Physicians Directory in the U.S.
  • Updated European WM Patient Forum Agenda!

July 19, 2024, Volume 4 Issue 27

  • Special Patient Registry Edition

July 12, 2024, Volume 4 Issue 26

  • Join Us at the European WM Patient Forum!
  • WhiMSICAL Patient Registry: You Can Make a Difference Today!
  • Register Today for July’s Wellness Webinar!
  • Webinar: Understanding and Managing Pain
  • CancerCare Workshop: Empowering Caregivers Through Self-Advocacy

June 28, 2024, Volume 4 Issue 24

  • IWMF Funds $3,157,000 in Research
  • Seeking IWMF Torch Science Editor
  • Recording from BMT InfoNet
  • Mark Your Calendars: Wellness Just for You

June 21, 2024, Volume 4 Issue 23

  • Natural History of WM Study
  • July Watch & Wait Webinar
  • Partner Spotlight: Leukemia & Lymphoma Society
  • New Products in the IWMF Shop!

June 14, 2024, Volume 4 Issue 22

  • Chair Yoga at 9:00AM on June 19th: Special Time!
  • Yoga Nidra on Friday, June 21st at 2:00PM ET
  • WM Military Veteran Support Group on June 28th
  • In Case You Missed It: Sound Meditation for WM
  • WM Community Corner

June 7, 2024, Volume 4 Issue 21

  • Hamberg Family Gives Second WM-NET Matching Gift
  • Wellness Webinar on 6/27: Reiki for Cancer Care
  • Lymphoma Research Foundation Workshop on 6/15
  • Facebook Fundraising Guide Available
  • Gentle Mat Yoga – JUNE 14th at 11:00AM ET

May 31, 2024, Volume 4 Issue 20

  • Volunteer Spotlight: Eileen Sullivan

  • Relaunched IWMF Shop!

  • WM-NET Update

  • Submit Your Data TODAY for WM Research

  • T’ai Chi & Qi Gong Tuesday, June 4th

  • Sound Meditation for WM is BACK!

May 24, 2024, Volume 4 Issue 19

  • Volunteer Spotlight: Craig Prizant

  • Check Out Our New Wellness Web Pages!

  • From Australia- David Rabie: My Story of Hope

  • One Week Left to Help WhiMSICAL Investigators!

  • Clinical Trial Spotlight

  • Next Thursday! Eating Well to Live Well with WM

  • Cardio Flow on Friday, May 31st, at 2:00PM ET 

May 17, 2024, Volume 4 Issue 18

  • 2024 Ed Forum Video Recordings Now Available!

  • Venue Confirmed for the WM European Forum!

  • May 20th is Clinical Trials Day

  • May is Mental Health Month

  • Make a Difference with WhiMSICAL

  • Educate and Empower Webinar on May 30th

  • WM Ireland Affiliate Leader in Upcoming Webinar

  • Young WM Support Group Meeting- June 1

  • WM People of Color Support Group-June 7

May 10, 2024, Volume 4 Issue 17

  • Thanks to ALL who Joined the IWMF Ed Forum!

  • Waldenström France is Seeking Volunteers

  • WhiMSICAL Investigators Need YOUR Help!

  • Educate and Empower Webinar on May 30th

  • PAN WM Fund Expansion for U.S. Patients with ALL insurance, Not Just Medicare!

  • T’ai Chi and Qi Gong: Next Tuesday at 2:00PM ET

  • Yoga Nidra – Friday, May 17th at 2:00PM EDT

April 26, 2024, Volume 4 Issue 16

  • Next Week is the Annual IWMF Ed Forum!
  • Ask the Doctors Q&A Opportunity
  • WM-NET Update
  • Advice from WM Experts for the Newly Diagnosed
  • IWMF at ONS Congress in Washington, DC
  • Lymphoma Coalition Global Patient Survey Results
  • WhiMSICAL Investigators Need YOUR Help!
  • IWMF & NORD Financial Assistance Program

April 12, 2024, Volume 4 Issue 15

Top Stories

  • 2024 Giving Challenge: A 24-Hour SUCCESS

  • Register TODAY for the IWMF Ed Forum in May!

  • Watch the WM World Awareness Day Video

  • Chair Yoga on WM World Awareness Day

  • Wellness Programming at the IWMF Ed Forum

April 5, 2024, Volume 4 Issue 14

Top Stories

  • The Waldenstrom’s Week Celebrates 150th Issue!

  • First-Ever WM World Awareness Day on April 17th

  • The IWMF Ed Forum is FOUR Weeks Away!

  • IWMF Global Educational Webinar on April 15

March 29, 2024, Volume 4 Issue 13

Top Stories

  • IWMF Vice-Chair of Information & Support Featured in LLS Video

  • First-Ever WM World Awareness Day on April 17th

  • The IWMF Ed Forum is FIVE Weeks Away!

  • IWMF Global Educational Webinar on April 15

  • US FDA Authorizes Pemgarda for Pre-Exposure Prophylaxis of COVID-19 in Immunocompromised Individuals

  • The GPS Survey Closes in a Few Weeks!
    Please Help Represent the WM Global Community

March 22, 2024, Volume 4 Issue 12

Top Stories

  • First-Ever WM World Awareness Day on April 17th

  • The IWMF Ed Forum is SIX Weeks Away!

  • IWMF Global Educational Webinar on April 15

  • Young WM Support Group Meeting on 3/25

  • WM Military Veterans Discussion Group on 3/28

  • Cardio Flow on March 29th at 2:00PM ET

  • WM People of Color Support Group on 4/5

March 15, 2024, Volume 4 Issue 11

Top Stories

  • New Post-Meeting Q&A Video Available!

  • The Global Patient Survey on Lymphomas & CLL

  • Story of Hope: Barbara Richter

  • Facebook Fundraising Guide Available

  • Registration OPEN for March’s Wellness Webinar!

March 8, 2024, Volume 4 Issue 10

Top Stories

  • IWMF Board Meets to Discuss 2024 Priorities

  • Expansion of IMBRUVICA® (ibrutinib) Label

  • NEW Video- Lisa Wise Is Saving YOU a Seat!

  • From Canada—Paul Kitchen: A Familial WM Story

  • Registration OPEN for March’s Wellness Webinar!

March 1, 2024, Volume 4 Issue 9

Top Stories

  • Why Should YOU come to the IWMF Ed Forum?

  • Recording Available! Nutrition: Fuel for Your Body

  • Watch & Wait/MGUS Support Group Session

  • Yoga Nidra – Special Time! Friday, March 8th at 2:00PM EST

  • T’ai Chi + Qi Gong- March 5th at 2:00PM EST

February 23, 2024, Volume 4 Issue 8

Top Stories

  • IWMF Mourns Death of Board Member, Glenn Cantor

  • New Facebook Fundraising Guide Available

  • Watch & Wait/MGUS Support Group Session- March 3rd

  • Recording Available- Sound Meditation for WM

February 16, 2024, Volume 4 Issue 7

Top Stories

  • Story of Hope From Iceland – Gunnar Ármannsson: The Adventure Continues

  • Natural History of WM Study at NIH

  • Webinar: Chemo brain- It’s a thing

  • IWMF Support Groups, International Affiliates,& LIFELINE Peer Mentor Volunteers

February 9, 2024, Volume 4 Issue 6

Top Stories

  • Research Study Outcomes for Caregiver

  • Familial Research Study Open

  • Educate and Empower Webinar-2/29/24

  • Recording Available! T’ai Chi & Qi Gong

February 2, 2024, Volume 4 Issue 5

Top Stories

  • World Cancer Day is February 4th
  • Lymphoma Coalition Global Patient Survey
  • Registration Open! Educate & Empower Webinar
  • Recording Available! Peripheral Neuropathy
  • Join the IWMF Online Community!

January 26, 2024, Volume 4 Issue 4

Top Stories

  • Triage Cancer Webinar- 2/27/24
  • T’ai Chi & Qi Gong -2/6/24

January 19, 2024, Volume 4 Issue 3

Top Stories

  • IWMF & NORD Financial Assistance Program EXPANSION!

  • IWMF Ed Forum and Cruise Update

  • Story of Hope Update: Ryan Scofield

  • NEW Specialty Topic Support Group in March!

January 12, 2024, Volume 4 Issue 2

Top Stories

  • IWMF Seeking Fundraising Volunteers

  • New Development in WM Treatment

  • Lymphoma Research Foundation Webinar

  • NEW CLASS! T’ai Chi & Qi Gong

     

January 5, 2023 Volume 4 Issue 1

Top Stories

  • The First 2024 Issue of the IWMF Torch is HERE!

  • Florida Blood Cancer Conference in Fort Lauderdale

  • Young WM Support Group Meeting-Jan 20th

December 29, 2023, Volume 3 Issue 48

Top Stories

  • IWMF Announces Two WM Physicians Directory Additions in the U.S.

December 22, 2023, Volume 3 Issue 47

Top Stories

  • 2024 Ed Forum Registration is OPEN!

  • IWMF 2022 Annual Report Available!

  • Megan Davey: Creating Lasting Ripples

December 15, 2023, Volume 3 Issue 46

Top Stories

  • IWMF Announces New Board Members for 2024!

  • IWMF’s Newest Partner Organization in China

  • IWMF ASH Meeting Follow Up

December 8, 2023, Volume 3 Issue 45

Top Stories

  • IWMF Board and Staff Members at ASH Meeting
  • Story of Hope Update -Chris Moakley: The Story Continues On
  • Join the IWMF Alaskan Cruise in 2024!
  • Recordings Available! Lymphoma Research Foundation Ed Forum
  • Recording Available! Coping with Fatigue and Sleep Disturbance

December 1, 2023, Volume 3 Issue 44

Top Stories

  • Thanks to ALL who gave on #GivingTuesday
  • IWMF announces new partnership: House 086 from China
  • LLS Blood Cancer Conference 2024
  • Recordings available from WMFC Ed Forum
  • CancerCare Workshop: Coping with cancer during the holidays

November 24 2023, Volume 3 Issue 43

Top Stories

  • Next Tuesday is #GivingTuesday

  • Fatigue & Sleep Disturbance Webinar on Thursday the 30th

  • Rituxan development & treatment webinar: December 13

  • New Support Group Meeting on 11/29: WM & SMZL

  • Take the IWMF Wellness Program Survey

November 17, 2023, Volume 3 Issue 42

Top Stories

  • #GivingTuesday is November 28th
  • Coping with Fatigue and Sleep Disturbance on 11/30
  • Webinar Hosted by IWMF Sarasota Support Group on 12/13
  • Recording Available! IWMF Global Educational Webinar

November 10, 2023, Volume 3 Issue 42

Top Stories

  • #GivingTuesday is November 28th
  • European WM Patient Ed Forum Highlights Reel AND Recordings Available!
  • Registration Open! Coping with Fatigue and Sleep Disturbance November 30th
  • Save the Date! Cancer Care Workshop Coping with Cancer During the Holidays Wednesday, December 6

November 3, 2023, Volume 3 Issue 41

Top Stories

  • November is National Family Caregivers Month (NFCM)
  • Leukemia & Lymphoma Society Webinar Caregiving Over Coffee: Give Yourself Grace
  • NEW Specialty Support Group Meeting WM & SMZL
  • Join the IWMF Online community!

October 27, 2023, Volume 3 Issue 40

Top Stories

  • Walk for Waldenstrom’s Update
  • Patient Power Webinar on 11/2
  • BeiGene Webinar for Caregivers on 11/2
  • Bing-Neel Support Group- Registration Open!
  • Young WM Support Group- 11/13

October 20, 2023, Volume 3 Issue 39

Top Stories

  • European Patient Forum TOMORROW- catch the livestream!
  • Post-Ed Forum Cruise: Book your spot!
  • IWMF Global Educational Webinar on 11/8 with Dr. Fred Appelbaum
  • IWMF & NORD Financial Assistance Program

October 13, 2023, Volume 3 Issue 38

Top Stories

  • European Forum Next Week
  • IWMF Global Educational Webinar
  • Recording Available from TargetCancer Foundation

October 6, 2023, Volume 3 Issue 37

Top Stories

  • Walk for Waldenstrom’s Spotlights: Eastern Massachusetts & Chicago
  • Cathy Zimmerman: Running for Waldenstrom’s
  • October Wellness Gathering
  • Upcoming Triage Cancer Conferences

September 29, 2023, Volume 3 Issue 36

Top Stories

  • IWMF October Torch is Available!
  • IWMF CEO attends NCCN Conference
  • Walk for Waldenstrom’s Spotlights: Paul Kitchen & David Kahn
  • Recording Available! Sex & Cancer with Dr. Bober

September 22, 2023, Volume 3 Issue 35

Top Stories

  • World Cancer Research Day
  • Walk for Waldenstrom’s Spotlight: Julie Richardson
  • Lymphoma Research Foundation Ed Forum
  • IWMF Discussion Forums

September 15, 2023, Volume 3 Issue 34

Top Stories

  • Story of Hope: Mel from New Zealand
  • Walk for Waldenstrom’s Spotlight: Pete DeNardis
  • Next Week! Global Educational Webinar
  • LLS Nutrition Education Services Center

September 8, 2023, Volume 3 Issue 33

Top Stories

  • Steven Hadfield Visits U.S. White House to Speak on the Expansion of Medicare Drug Cost Controls
  • Medicare & Medicaid Listening Session for IMBRUVICA: November 6th
  • The IWMF Announces an Addition to the WM Physicians Directory in the U.S.

September 1, 2023, Volume 3 Issue 32

Top Stories

  • IWMF Home Office Closed on Labor Day Holiday in U.S.
  • September is Blood Cancer Awareness Month
  • IMPORTANT MESSAGE FROM IWMF LEADERSHIP
  • Walk for Waldenstrom’s With Us Throughout the Month of September!
  • Walk for Waldenstrom’s Spotlight: Lisa Wise & Ann MacMullan
  • Follow Paul Kitchen’s Walk for WM
  • IWMF Announces 2024 Cruise!

August 25, 2023, Volume 3 Issue 31

Top Stories

  • The IWMF Announces NEW Wellness Program Coordinator, Ann MacMullan!
  • WALK FOR WALDENSTROM’S SPOTLIGHT Don & Mary Brown: Chicago Area/SE Wisconsin
  • WMUK Wheels for Waldenstrom’s Off to the Races!
  • International Young WM Support Group Meeting, Tuesday, September 12th at 8:30PM U.S. ET

August 18, 2023, Volume 3 Issue 30

Top Stories

  • WALK FOR WALDENSTROM’S SPOTLIGHT: Minnesota & W. Wisconsin
  • The IWMF Announces an Addition to the WM Physicians Directory in the U.S.
  • There is Still Time to Register! European Patient Forum on Saturday, October 21st
  • August is National Make-A-Will Month
  • IWMF Global Educational Webinar: Thursday, September 21st from 12:30 – 1:45PM U.S. ET

August 12, 2023, Volume 3 Issue 29

Top Stories

  • WALK FOR WALDENSTROM’S SPONSORS
  • Story of Hope Update: Julianne & John Flora-Tostado: Our 49th Anniversary
  • Webinar Replay Available from BeiGene: Cancer & Mental Health
  • August is National Make-A-Will Month
  • IWMF Patient Perspective Video Series: Recruiting Volunteers for 2nd Installment

August 11, 2023, Volume 3 Issue 28

Top Stories

  • WALK FOR WALDENSTROM’S SPONSORS
  • Story of Hope Update: Julianne & John Flora-Tostado: Our 49th Anniversary
  • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
  • August is National Make-A-Will Month

August 4, 2023, Volume 3 Issue 27

Top Stories

  • WALK FOR WALDENSTROM’S SPOTLIGHT: Sarasota, Florida
  • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
  • August is National Make-A-Will Month 
  • Continuing Medical Education Program Completed

July 28, 2023, Volume 3 Issue 26

Top Stories

  • Coming in September: Monthly Wellness Gathering on Zoom
  • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
  • August is National Make-A-Will Month 
  • IWMF Lifeline Peer Support Directory

July 21, 2023, Volume 3 Issue 25

Top Stories

  • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
  • WALK FOR WALDENSTROM’S UPDATE
  • From the Leukemia & Lymphoma Society: New Podcast on Beneficial Medicare Changes
  • Upcoming Triage Cancer Webinar: Engaging in Self-Advocacy
  • From The Leukemia & Lymphoma Society: New Financial Assistance Online Portal Launched

July 7, 2023, Volume 3 Issue 24

Top Stories

  • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
  • IWMF & NORD Financial Assistance Program EXPANSION!
  • *NEW* Patient Perspective YouTube Video Series: From Sharon Piotrowski, WM Community Member
  • A Tribute to Dr. Steven Treon – 25 Years at Dana-Farber Cancer Institute!

June 28, 2023, Volume 3 Issue 23

Top Stories

  • Starting in September, IWMF Monthly Wellness Gathering on Zoom
  • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
  • Walk for Waldenstrom’s Spotlight: Mission Viejo, California
  • Leukemia & Lymphoma Society Co-Pay Assistance Fund OPEN for U.S. Patients

June 23, 2023, Volume 3 Issue 22

Top Stories

  • New Modernized ClinicalTrials.gov Website
  • Video Available! Kicking the Tires on Clinical Trials: Important Questions to Ask and Things to Consider Before Enrolling in a Clinical Trial
  • Learn about the Waldenström Finland Ry group’s annual patient meeting
  • Join the IWMF Online Community!
  • Check out the IWMF Wellness Calendar!

June 16, 2023, Volume 3 Issue 21

Top Stories

  • The IWMF is proud to share a new publication for Young WM Patients
  • The IWMF Welcomes Two New Team Members

  • Triage Cancer Podcast Available
  • Join the IWMF Online Community!
  • IWMF Second Opinion Financial Assistance Program in Partnership with NORD

June 9, 2023, Volume 3 Issue 20

Top Stories

  • Walk for WM
  • Story of Hope Update

  • WMUK Webinar on July 12th
  • IWMF Survey Opportunity

June 2, 2023, Volume 3 Issue 19

Top Stories

  • Survey Opportunity to Help WM Patients in Canada

  • Podcast Available from CancerCare
  • Next Week: US Military Veteran Discussion Group

May 26, 2023, Volume 3 Issue 18

Top Stories

  • Lymphoma Coalition: Report Card on Lymphomas

  • Paid Research Opportunity
  • Recording Available ! Cardio Flow for WM
  • WM People of Color Support Group

May 19, 2023, Volume 3 Issue 17

Top Stories

  • NEW Fact Sheet from the IWMF
  • New Translated Publication Available!
  • Recordings Available!
  • WM People of Color Support Group
  • Save The Date: WM Veterans Discussion Group

May 12, 2023, Volume 3 Issue 16

Top Stories

  • Brukinsa Update for WM Patients in China
  • CancerCare Webinar
  • International Young WM Support Group Meeting
  • The Patient Access Network (PAN) Foundation:WM Fund OPEN for Eligible U.S. Patients!

May 5, 2023, Volume 3 Issue 15

Top Stories

  • May is National Cancer Research Month
  • Brukinsa Update for WM Patients in Korea
  • 2 Year Anniversary of WM Community Yoga
  • IWMF Second Opinion Financial Assistance
  • Webinar from Lymphoma Research Foundation

April 28, 2023, Volume 4 Issue 14

Top Stories

  • IWMF Educational Forum- THANK YOU
  • US FDA Authorizes Second Bivalent Booster for COVID-19
  • Cardio Flow- TODAY at 2PM U.S. ET
  • Waldenstrom India Launches New Website
  • Waldenström France to Hold June Meeting in Paris

April 14, 2023, Volume 3 Issue 13

Top Stories

  • Webinar from Rare Disease Legislative Advocates:
  • TODAY AT 2:00 PM U.S. ET! Sound Meditation for WM
  • Veteran Dental Assistance for U.S. Patients

April 7, 2023, Volume 3 Issue 12

Top Stories

  • Bing-Neel Recording Available
  • IWMF Second Opinion Financial Assistance Program in Partnership with NORD
  • The Patient Access Network (PAN) Foundation:WM Fund OPEN for Eligible U.S. Patients!
  • U.S. Citizens: Donating Your IRA Required Minimum Distribution

March 31, 2023, Volume 3 Issue 11

Top Stories

  • $199 Rate EXTENDED through April 7th!
  • The April Torch magazine is now available!
  • International Bing-Neel Support Group Meetings

March 17, 2023, Volume 3 Issue 10

Top Stories

  • Come Meet Us in St. Louis at the Ed Forum!
  • New Article from Lymphoma Hub
  • Triage Cancer Webinar: Managing Medical Bills
  • International Bing-Neel Support Group Meetings

March 10, 2023, Volume 3 Issue 9

Top Stories

  • Join 132 In-Person Registrants at our Ed Forum!
  • Visual Abstract Published on the Lymphoma Hub in Collaboration with IWMF and SES
  • IWMF and Patient Access Network (PAN) Webinar
  • Leukemia & Lymphoma Society Webinar
  • Lymphoma Research Foundation Webinar
  • Financial Assistance for Calquence (acalabrutinib)

March 3, 2023, Volume 3 Issue 8

Top Stories

  • The IWMF Welcomes New Staff Member
  • IWMF Board of Trustees Meet
  • THE IWMF ED FORUM IS NEXT MONTH!
  • IWMF and Patient Access Network (PAN) Webinar
  • WM Veteran Support Group
  • International Bing-Neel Support Group Meetings

February 24, 2023, Volume 3 Issue 7

Top Stories

  • Rare Disease Day is February 28th!
  • REGISTER TODAY FOR THE IWMF ED FORUM
  • HealthWell Foundation Reopens WM Fund
  • Recording Available: Sound Meditation for WM
  • International Young WM Support Group Meeting

February 17, 2023, Volume 3 Issue 6

Top Stories

  • RAFFLE NEXT WEEK!
  • RVideo From Cancer Support Community
  • Sound Meditation for WM
  • For Caregivers: Transcript Available from the LLS

February 10, 2023, Volume 3 Issue 5

Top Stories

  • Rare Disease Day is February 28th
  • Rare Disease Week on Capitol Hill
  • Register today for the IWMF Ed Forum!
  • Triage Cancer Webinar on Medical Bills
  • WM Community Yoga Recordings Available

February 3, 2023, Volume 3 Issue 4

Top Stories

  • World Cancer Day is February 4th
  • Ed Forum Raffle Taking Place on February 20th!
  • Podcasts Available with our Friends in the UK
  • WM People of Color Support Group
  • LLS Free One-on-One Nutrition Consultations

January 27, 2023, Volume 3 Issue 3

Top Stories

  • REGISTRATION OPEN! IWMF 2023 Ed Forum
  • Recording Available! IWMF Global Educational Webinar with Dr. Jorge Castillo
  • WM Veterans Support Group- Save the Date
  • World Cancer Day- Next Week
  • WM Community Corner- LLS Florida BCC recap

January 13, 2023, Volume 3 Issue 2

Top Stories

  • REGISTRATION OPENS NEXT WEEK! IWMF 2023 Ed Forum
  • IWMF Global Educational Webinar – Next Week 
  • International Young WM Support Group Meeting
  • WM People of Color Support Group
  •  Free Resource for Financial Navigation & Support

January 6, 2023, Volume 3 Issue 1

Top Stories

  • IWMF Global Educational Webinar
  • Leukemia & Lymphoma Society Webinar
  • WM People of Color Support Group

December 30, 2022 Volume 2 Issue 50

Top Stories

  • Happy New Year from the IWMF
  • IWMF Torch January Issue is NOW available online!
  • IWMF Global Educational Webinar
  • International Young WM Support Group

December 23, 2022 Volume 2 Issue 49

Top Stories

  • Holiday Message from the IWMF
  • IWMF Global Educational Webinar
  • Recording Available from the LLS
  • IWMF Board Trustee and WM Expert Receives Award from The Leukemia & Lymphoma Society

December 16, 2022 Volume 2 Issue 48

Top Stories

  • IWMF Issues 2021 Annual Report
  • Registration Open: IWMF Global Educational Webinar with Dr. Jorge Castillo
  • Yoga Nidra Recording Available

December 9, 2022 Volume 2 Issue 47

Top Stories

  • Do you Have Extramedullary Disease?
  • Centers for Disease Control and Prevention
  • CancerCare Connect: Diffuse Large B-Cell Lymphoma Treatment Updates
  • Want to Learn How to Participate in IWMF Patient Discussion Groups? We Need YOU!
  • Helpful Resource: Neuropathy Toolkit

December 2, 2022 Volume 2 Issue 46

Top Stories

  • GivingTuesday – THANK YOU
  • End of Year Giving
  • Story of Hope: Laurence Elliott
  • Webinar: How Stock Giving Benefits You

November 23, 2022 Volume 2 Issue 45

Top Stories

  • GivingTuesday is on November 29th
  • IWMF Board of Trustees Meet to Discuss 2023
  • IWMF Welcomes Two New Board Members
  • Want to Learn How to Participate in IWMF Patient Discussion Groups?
  • Friday Offering : Cardio Flow with Ann

November 18, 2022 Volume 2 Issue 44

Top Stories

  • Mark your Calendar! GivingTuesday is on November 29th
  • A Message from the IWMF Home Office Team
  • BeiGene Launches Talk About It Program to Elevate the Importance of Addressing Mental Health during Cancer Care 
  • Good News for WM Patients in Scotland!
  • WM Vietnam Veterans Discussion Group

November 11, 2022 Volume 2 Issue 43

Top Stories

  • GivingTuesday is on November 29th
  • From CancerCare: Shared Decision Making Series
  • WMUK Patient Doctor Summit
  • Yoga Nidra with Ann-THIS Sunday!
  • Support the IWMF through Amazon Smile

November 4, 2022 Volume 2 Issue 42

Top Stories

  • IWMF Board Chair Interviewed by CureTalks
  • Here Are Some Things YOU Should Know!
  • International Affiliates Meet in Madrid at IWWM-11
  • Young WM International Support Group Meeting
  • Support the IWMF through Amazon Smile

October 28, 2022 Volume 2 Issue 41

Top Stories

  • IWMF at IWWM-11 in Madrid, Spain
  • Recording Available! LLS Research Now
  • FreeWill webinar: How Stock Giving Benefits You
  • WM Community Corner- Ron Ternoway featured in podcast!
  • New Discussion Group: WM Vietnam Veterans

October 22, 2022 Volume 2 Issue 40

Top Stories

  • Your IRA, Your Impact
  • Next Weekend- LRF Ed Forum
  • GRYT Health Virtual Conference 11/2-11/5
  • This Sunday: Extramedullary Disease Discussion Group
  • TODAY: Sound Meditation for WM
  • Cardio Flow for WM Recording Available

October 14, 2022 Volume 2 Issue 39

Top Stories

  • Story of Hope Update- Martin Vanderlaan
  • National Estate Planning Week- October 17-23
  • Next Week- LLS COVID Webinar
  • LRF Educational Forum, October 28-30th
  • Hot of The Press Recording Available! Peripheral Neuropathy

October 7, 2022 Volume 2 Issue 38

Top Stories

  • The October IWMF Torch is Now Online!
  • IWMF Team Walk for Waldenstrom’s
  • Patient Access Network Webinar
  • Next Wednesday- Peripheral Neuropathy Support Session
  • Chris Edgerton Completes his Bike Ride from Vancouver to Whistler

September 30, 2022 Volume 2 Issue 37

Top Stories

  • Rare Cancer Day is Today!
  • IWMF Staff Safe from Hurricane Ian
  • Amazon Smile
  • Sound Meditation & Yoga Nidra Recordings Available
  • WM People of Color & Bing-Neel Support Groups

September 23, 2022 Volume 2 Issue 36

Top Stories

  • Thanks to all who participated in the Walk for Waldenstrom’s last weekend!
  • The IWMF Board Chair is Sharing his WM Story
  • Rare Cancer Day is Next Friday, September 30th!
  • BIG News for WM Patients in the United Kingdom!

September 16, 2022 Volume 2 Issue 35

Top Stories

  • Walk for Waldenstrom’s this weekend!
  • SAVE THE DATE! Peripheral Neuropathy Support Group Meeting, October 12th, 2022
  • TODAY- Cardio Flow for WM at 2:00PM U.S. ET
  • Leukemia & Lymphoma Society National Blood Cancer Conference

September 9, 2022 Volume 2 Issue 34

Top Stories

  • Walk for Waldenstrom’s
  • Join Alix for a Pre- Walk for WM Exercise Class September 13th!
  • The IWMF and Scientific Education Support (SES) Announce New Strategic Collaboration
  • WMF Survey Closes September 30th Reminder: Please complete the IWMF Needs Assessment Survey. Your opinion matters!
  • Patient Perspective Video Series. WE ARE LOOKING FOR YOU!

September 2, 2022 Volume 2 Issue 33

Top Stories

  • September is Blood Cancer Awareness Month
  • Walk for Waldenstrom’s
  • View the 27th IWMF Educational Forum on demand!
  • Leukemia & Lymphoma Society National Blood Cancer Conference
  • Leukemia & Lymphoma Society Free One-on-One Nutrition Consultations
  • The Patient Access Network (PAN) Foundation: WM Fund OPEN for Eligible U.S. Patients!

August 26, 2022 Volume 2 Issue 32

Top Stories

  • THIS WEEKEND the 27th IWMF Educational Forum!
  • Walk for Waldenstrom’s
  • U.S. Community Members: Make your Mark this Month with Freewill
  • Recording Available! Sound Meditation for WM

August 19, 2022 Volume 2 Issue 31

Top Stories

  • Register now for the 27th IWMF Educational Forum! ONE WEEK AWAY!
  • U.S. Community Members: Make your Mark this Month with Freewill
  • Young WM International Support Group
  • Walk for Waldenstrom’s
  • Recording Available: Yoga Nidra with Ann

August 12, 2022 Volume 2 Issue 30

Top Stories

  • Registration open for the 27th IWMF Educational Forum! TWO WEEKS AWAY
  • U.S. Community Members: Make your Mark this Month with Freewill
  • NEW OFFERING! Sound Meditation for WM
  • Three Easy Ways YOU Can Make a Difference Now
  • Walk for Waldenstrom’s

August 5, 2022 Volume 2 Issue 29

Top Stories

  • Registration open for the 27th IWMF Educational Forum!
  • New IWMF Survey: Your Input is Needed!
  • Three Easy Ways YOU Can Make a Difference Now
  • Cardio Flow for WM next Friday, August 12th at 2:00PM U.S. EDT!

July 29, 2022 Volume 2 Issue 28

Top Stories

  • Registration open for the 27th IWMF Educational Forum!
  • WhiMSICAL Patient Registry Update for IWWM-11
  • WM Yoga & WM Cardio Flow Class Updates
  • The Walk for Waldenstrom’s

July 22, 2022 Volume 2 Issue 27

Top Stories

 

  • Registration open for the 27th IWMF Educational Forum!
  • LAST CALL to Contribute to IWWM-11 with YOUR Patient Data!
  • Leukemia & Lymphoma Society: Interactive 3D Model Library
  • The Patient Access Network (PAN) Foundation: WM Fund OPEN for Eligible U.S. Patients!
  • CancerCare Program for U.S. Patients: Pet Assistance & Wellness (PAW) Program 

July 15, 2022 Volume 2 Issue 26

Top Stories

  • Recording available! Understanding Your Blood and Bone Marrow Test Results: Rebroadcast with NEW LIVE Q&A!
  • Registration open for the 27th IWMF Educational Forum!
  • Presenting Two New IWMF Publications!
  • Wanda Huskins Story of Hope Update

July 8, 2022 Volume 2 Issue 25

Top Stories

  • Alix Redmonde Joins IWMF Home Office Staff
  • Next week! Understanding Your Blood and Bone Marrow Test Results: Rebroadcast with NEW LIVE Q&A!
  • Registration open for the 27th IWMF Educational Forum!

July 1, 2022 Volume 2 Issue 24

Top Stories

  • The July 2022 IWMF Torch (issue 23.3) now online!
  • Registration open for the 27th IWMF Educational Forum!
  • WhiMSICAL Investigators Invited to Present WM Patient-Entered Data to the World’s WM Experts at IWWM-11! 
  • Understanding Your Blood and Bone Marrow Test Results: Rebroadcast with NEW LIVE Q&A!

June 24, 2022 Volume 2 Issue 23

Top Stories

  • Registration Open! Understanding Your Blood and Bone Marrow Test Results
  • Registration open for the 27th IWMF Educational Forum!
  • Cardio Flow for WM Friday, July 1st 

June 17, 2022 Volume 2 Issue 22

Top Stories

  • Registration Open! Understanding Your Blood and Bone Marrow Test Results
  • Free Webinar from Triage Cancer: Engaging in Policy & Legislative Advocacy
  • Recording available: Genomics/Science of WM
  • Leukemia & Lymphoma Society Fact Sheet
  • GRYT Health Recording Available – Frankly Speaking About Cancer: Why Cant I Stay Positive?

June 10, 2022 Volume 2 Issue 21

Top Stories

  • June 5th is National Cancer Survivors Day®
  • Registration Open! IWMF Ed Forum Primer Series – Part II – Genomics/Science of WM
  • Replay Available! CancerCare Connect® Education Workshop
  • Leukemia & Lymphoma Society Webinar: Caregiving Over Coffee

June 3, 2022 Volume 2 Issue 20

Top Stories

  • June 5th is National Cancer Survivors Day®
  • Registration Open! IWMF Ed Forum Primer Series – Part II – Genomics/Science of WM
  • Replay Available! CancerCare Connect® Education Workshop
  • Leukemia & Lymphoma Society Webinar: Caregiving Over Coffee

May 27, 2022 Volume 2 Issue 19

Top Stories

  • Registration Open! IWMF Ed Forum Primer Series – Part II – Genomics/Science of WM
  • WhiMSICAL Delivers the Goods! Key Findings Summarized by Dr. Ibrahim Tohidi
  • New Pilot Program on June 3rd and June 17th! Cardio Flow for WM

May 20, 2022 Volume 2 Issue 18

Top Stories

  • Registration Open! IWMF Ed Forum Primer Series – Part II – Genomics/Science of WM
  • Recording available of the WM and Basic Terminology webcast!
  • CancerCare Connect® Education Workshop, May 25, 2022
  • New Pilot Program on June 3rd and June 17th! Cardio Flow for WM

May 13, 2022 Volume 2 Issue 17

Top Stories

  • The 2022 Giving Challenge: Thank you!
  • Next week the WM and Basic Terminology webcast!
  • Young WM International Support Group Meeting
  • Yoga Nidra Recording Available

May 6, 2022 Volume 2 Issue 16

Top Stories

  • Register for May 18th the WM and Basic Terminology webcast!
  • GRYT Health Webinar Series: Mental Health
  • Waldenstrom’s Macroglobulinemia (WM): Treatment Progress Workshop
  • Free Downloadable Resource from Triage Cancer:
    Medical Bill Tracker

April 29, 2022 Volume 2 Issue 15

Top Stories

  • Register for May 18th the WM and Basic Terminology webcast!
  • Patient Empowerment Network (PEN) Webinar
  • Story of Hope Update-Bob Lynch
  • Triage Cancer Conferences

April 15, 2022 Volume 2 Issue 14

Top Stories

  • Julie Richardson – A Mother’s Story
  • IWMF Support Groups

April 8, 2022 Volume 2 Issue 13

Top Stories

  • GIVING CHALLENGE 2022
    Mark Your Calendar!
    Donations made to the IWMF
    during the 2022 Giving Challenge
    will be TRIPLE matched.
  • Patient Empowerment Network (PEN) Webinar
    May 3rd at 1:00PM U.S. EDT
  • Story of Hope: Arno Muller
  • Show Us Your IWMF Swag
  • We Need YOUR Voice

April 1, 2022 Volume 2 Issue 12

Top Stories

  • GIVING CHALLENGE 2022
    Mark Your Calendar!
    Donations made to the IWMF
    during the 2022 Giving Challenge
    will be TRIPLE matched.
  • The April 2022 IWMF Torch (Issue 23.2)
    is Now Online!
  • Recording Available!
    IWMF Global Educational Webinar.
    An Overview of Amyloidosis and WM with Dr. Morie Gertz/li>

  • Hot off the Press!
    New Video Available with Dr. Shayna Sarosiek
    Covid Antibodies, CAR-T & More…
    Can We Feel Hopeful this Spring?
  • Recording Available!
    Bing Neel Syndrome Featuring Dr. Shirley D’Sa
  • Lymphoma Coalition 2022 Global Patient Survey
    Week 7 Update
  • Calling all Caregivers!
    Caregivers International Support Session
    Wednesday, April 6th from 1:00PM-3:00PM U.S. ET
  • We Need YOUR Voice

March 25, 2022 Volume 2 Issue 11

Top Stories

  • GIVING CHALLENGE 2022
    Mark Your Calendar!
    Donations made to the IWMF
    during the 2022 Giving Challenge
    will be TRIPLE matched.
  • Next Week! IWMF Global Educational Webinar
    An Overview of Amyloidosis and WM with Dr. Morie Gertz
  • Next Tuesday! The LLS-IWMF Living Well with WM Program
  • Hot off the Press!
    New Video Available with Dr. Shayna Sarosiek
    Covid Antibodies, CAR-T & More…
    Can We Feel Hopeful this Spring?
  • Recording Available!
    Patient Empowerment Network Webinar
  • Don’t Forget: Vaccinations, Boosters, Infections?
    WhiMSICAL Needs YOUR Help to answer the question!
  • Calling all Caregivers!
    Caregivers International Support Session
    Wednesday, April 6th from 1:00PM-3:00PM U.S. ET

  • Leukemia & Lymphoma Society
    Free One-on-One Nutrition Consultations

March 18, 2022 Volume 2 Issue 10

Top Stories

  • GIVING CHALLENGE 2022
    Mark Your Calendar!
    Donations made to the IWMF
    during the 2022 Giving Challenge
    will be TRIPLE matched.
  • Next Week!
    Patient Empowerment Network Webinar
    March 22nd at 1:00PM U.S. ET
  • IWMF Global Educational Webinar
    An Overview of Amyloidosis and WM with Dr. Morie Gertz
  • Next Tuesday! The LLS-IWMF Living Well with WM Program
  • Leukemia & Lymphoma Society
    Clinical Trial Nurse Navigator Program

March 11, 2022 Volume 2 Issue 9

Top Stories

  • Lymphoma Coalition 2022 Global Patient Survey
    Week 4 Update
  • Reminder: Vaccinations, Boosters, Infections?
    WhiMSICAL Needs YOUR Help to answer the question!
  • Recording Available!
    WMUK Peripheral Neuropathy Webinar
  • Registration is Open!
    IWMF Global Educational Webinar
    An Overview of Amyloidosis and WM with Dr. Morie Gertz
  • Next Tuesday! The LLS-IWMF Living Well with WM Program
  • Young WM Support Group Meeting
    Monday, March 14th at 7:30PM U.S. ET

March 4, 2022 Volume 2 Issue 8

Top Stories

  • NCCN Patient Guidelines for WM Now Available
  • Patient Empowerment Network Webinar
    March 22nd at 1:00PM U.S. ET
  • A Virtual Educational Conference for Patients, Caregivers and Healthcare Professionals. Tuesday, March 15, 2022
    5:30PM – 7:00PM U.S. Eastern Time
  • Registration is Open!
    IWMF Global Educational Webinar
    An Overview of Amyloidosis and WM with Dr. Morie Gertz
  • Bing-Neel International Support Sessions
    2:30PM and 7:00PM U.S. ET on March 20th
  • Caregivers International Support Session
    Wednesday, April 6th from 1:00PM-3:00PM U.S. ET

February 18, 2022 Volume 2 Issue 6

Top Stories

  • Lymphoma Coalition Launches the 8th Global Patient Survey on Lymphoma & CLL
  • BeiGene Announces Approval for Brukinsa (zanubrutinib) by Swissmedic for
    Treatment of WM
  • US FDA Approves First Treatment for
    Cold Agglutinin Disease
  • NEXT WEEK!
    The LLS-IWMF Living Well with WM Free Virtual Program
    February 23, 2022 at 6:30PM U.S. ET
  • WMUK Webinar
    Physio for Peripheral Neuropathy
    Thursday, March 3rd at 6:00PM GMT

February 11, 2022 Volume 2 Issue 5

Top Stories

  • *NEW* Abbreviated COVID-19 Letter to Share with Hospitals for Emergency Medical Events
  • Lymphoma Coalition Launches the 8th Global Patient Survey on Lymphoma & CLL
  • Recording Available! ASH Highlights
    with Dr. Sikander Ailawadhi
  • The LLS-IWMF Living Well with WM
    Free Virtual Program
    February 23, 2022 at 6:30PM U.S. ET
  • Story of Hope: Margit Novack
  • New Support Group Alert!
    Ibrutinib-Venetoclax Clinical Trial Support Session
    February 13, 2022 at 12:00 Noon U.S. ET

February 4, 2022 Volume 2 Issue 4

Top Stories

  • Today is World Cancer Day!
  • NEXT WEEK!
    IWMF Global Educational Webinar
    February 8, 2022 at 11:30AM U.S. ET
  • CancerCare Connect Eduction Workshop
    COVID-19, Omicron & Delta Variants, COVID-19 Vaccines & Booster Vaccines: Revised Guidelines for People Living with Cancer & Their Loved Ones
  • The LLS-IWMF Living Well with WM
    Free Virtual Program
    February 23, 2022 at 6:30PM U.S. ET
  • Recording Available!
    Peripheral Neuropathy Support Session
  • New Support Group Alert!
    Ibrutinib-Venetoclax Clinical Trial Support Session
    February 13, 2022 at 12:00 Noon U.S. ET

January 28, 2022 Volume 2 Issue 3

Top Stories

  • IWMF Global Educational Webinar
    February 8, 2022 at 11:30AM U.S. ET

January 21, 2022 Volume 2 Issue 2

Top Stories

  • World Cancer Day February 4, 2022
  • Registration Open!
    IWMF Global Educational Webinar
    February 8, 2022 at 11:30AM U.S. ET
  • CancerCare Connect Eduction Workshop
    COVID-19, Omicron & Delta Variants, COVID-19 Vaccines & Booster Vaccines: Revised Guidelines for People Living with Cancer & Their Loved Ones
  • NEXT WEEK!
    Peripheral Neuropathy Support Session
    January 26th, 2022 from 1:00PM – 3:00PM U.S. ET
  • Leukemia & Lymphoma Society
    Co-Pay Assistance Available for U.S. Patients!

January 7, 2022 Volume 2 Issue 1

Top Stories

  • Shop for Your IWMF Swag at Our New Store!
  • The January 2022 IWMF Torch (Issue 23.1)
    is Now Online!
  • From Patient Resource:
    Writing Therapy Offers Many Positive Benefits
  • WM Community Yoga Classes Continue in 2022!
    Mondays at 2:00PM U.S. Eastern Time
  • New Free Offering for WM Patients-
    Monthly Yoga Nidra!

December 24, 2021 Volume 1 Issue 37

Top Stories

  • CancerCare Connect Eduction Workshop
    COVID-19, Omicron & Delta Variants, COVID-19 Vaccines & Booster Vaccines: Revised Guidelines for People Living with Cancer & Their Loved Ones
  • CancerCare Workshop Date and Time
    Monday, February 7, 2022, 1:30 – 2:30 pm, U.S. Eastern Time
  • Rare Patient Voice
    Survey Opportunity for U.S. Patients
  • Registration Open!
    Peripheral Neuropathy Support Session
    January 26th, 2022 from 1:00PM – 3:00PM U.S. ET
  • Shop while Supporting the IWMF

December 17, 2021 Volume 1 Issue 36

Top Stories

  • WM Practice Medical Guidelines and Research Articles on the IWMF Website
  • Dr. Stephen Ansell of Mayo Clinic Recognized with the 2021 Ernest Beutler Lecture and Prize
  • Video Available!
    WM Advances in Treatment with CureTalks Panel
  • Save the Date & Register Today!

  • LLS Virtual Florida Blood Cancer Conference
    February 12, 2022 from 9:30AM – 1:30PM U.S. ET
  • Registration Open!
    Peripheral Neuropathy Support Session
    January 26th, 2022 from 1:00PM – 3:00PM U.S. ET
  • Registration Open!
    Peripheral Neuropathy Support Session
    January 26th, 2022 from 1:00PM – 3:00PM U.S. ET

December 12, 2021 Volume 1 Issue 35

Top Stories

  • WhiMSICAL Registry Patient-Entered Data Presented at ASH 2021 Conference!
  • NCCN Guidelines Update
  • Shop while Supporting the IWMF

December 3, 2021 Volume 1 Issue 34

Top Stories

  • New Videos Available on Transformation
    and Bing-Neel Syndrome
  • Union for International Cancer Control Webinar
    Prehabilitation – Multimodal Interventions to Improve Resilience and Response to Treatment in Cancer
  • Leukemia & Lymphoma Society Webinar Blood Cancers: Managing Side Effects
  • THANK YOU to All Who Gave on Giving Tuesday!

November 26, 2021 Volume 1 Issue 33

Top Stories

  • Story of Hope Update from Canada- Ron Ternoway: The Clinical Trials Continue!
  • Shop while Supporting the IWMF
  • Giving Tuesday is November 30th
  • Healthy Communication Practice for Caregivers of a Parent with a Blood Cancer in the US: Recruiting Individuals for an Online Study

November 18, 2021 Volume 1 Issue 32

Top Stories

  • 2021 IWMF Educational Forum Recordings Available for your Convenience!
  • Medscape Covers the IWMF 2021 Ed Forum
  • IWMF Research Grant Opportunities
  • Bing-Neel International Support Group Meetings

November 12, 2021 Volume 1 Issue 31

Top Stories

  • 2021 IWMF Educational Forum Recordings Available for your Convenience!
  • WMUK Patient-Doctor Summit Saturday, November 13th. Register Today!
  • REPORT NOW AVAILABLE: Rory Morrison WMUK Registry Report
  • International Young WM Support Group November 15th at 7:30PM U.S. ET
  • Leukemia & Lymphoma Society Co-Pay Assistance Program Enhancements!
  • November 5, 2021 Volume 1 Issue 30

    Top Stories

    • National Family Caregivers Month
    • 2021 IWMF Educational Forum Follow up and Recording Updates
    • Triage Cancer Webinar for U.S. Patients: Make Ahead Holiday Recipes that Nourish the Body & Soul
    • WMUK Patient-Doctor Summit Saturday, November 13th. Register Today!
    • Community Corner
    • International Young WM Support Group November 15th at 7:30PM U.S. ET

    October 22, 2021 Volume 1 Issue 29

    Top Stories

    • CATCH UP ON THE LATEST- IWMF Ed Forum Workshop Recordings & Slides Available for your Convenience!
    • Ed Forum Speakers- October 28th & 29th

    October 15, 2021 Volume 1 Issue 28

    Top Stories

    • CATCH UP ON THE LATEST- IWMF Ed Forum Workshop Recordings & Slides Available for your Convenience!
    • October 28th and 29th! Ed Forum! Register Today and then Reserve Your Seat!
    • Exciting Addition to the 2021 Ed Forum Agenda: A Review of NCCN Guidelines for WM
    • Leukemia & Lymphoma Society Webinar
      Cancer Treatment: How to Make Informed Choices about Standard Care and
      Clinical Trials
      November 2, 2021 at 6:00PM U.S. ET

    October 8, 2021 Volume 1 Issue 27

    Top Stories

    • Dr. Steven Treon Presents: Timely Updates in the Treatment of Waldenstrom’s Macroglobulinemia
    • BeiGene Announces First Regulatory Approval in Australia for BRUKINSA® (Zanubrutinib) for Treatment of Patients with WM
    • Bing-Neel International Support Group Meetings
      November 21, 2021 at 12PM and 7PM U.S. ET
    • WM Community Yoga Classes Continued Throughout 2021!

    October 1, 2021 Volume 1 Issue 26

    Top Stories

    • The fourth issue of the 22nd volume of the IWMF Torch is now online!
    • Join us for an entire month of FREE
      educational programs in October,
      culminating in our Virtual Educational Forum! Register NOW!
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • 2021 WMUK Patient-Doctor Summit November 13, 2021
    • WM Community Corner
    • U.S. WM Patients: LLS Co-Pay Funding Available! Financial Assistance up to $7,500

    September 17, 2021 Volume 1 Issue 25

    Top Stories

    • Story of Hope: Julie Richardson
    • Join us for an entire month of FREE
      educational programs in October,
      culminating in our Virtual Educational Forum! Register NOW!
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • Tomorrow! LLS Virtual National Blood Cancer Conference, Saturday, September 18th at 11:30AM U.S. ET
    • NORD Webinar
      Rare Cancers: Breaking Down Barriers to Diagnosis, Treatment and Research, September 30, 2021 at 2:00PM U.S. ET

    September 10, 2021 Volume 1 Issue 24

    Top Stories

    • IWMF Virtual Educational Forum REGISTER NOW!
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • Recording Double Feature! Dr. Jeffrey Matous & Dr. Mike Shomaker
    • LLS Virtual National Blood Cancer Conference, Saturday, September 18th
    • International Young WM Support Group September 20th at 7:30PM U.S. ET
    • CancerCare Article – Blood Cancers & Watchful Waiting

    September 4, 2021 Volume 1 Issue 23

    Top Stories

    • September is Blood Cancer Awareness Month
    • A Gift in Support of IWMF Research is an Investment in Your Future
    • IWMF Board Chair Interviewed in Healthline Article
    • IWMF Virtual Educational Forum
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • HOT OFF THE PRESS RECORDING! Dr. Edward A Stadtmauer

    August 27, 2021 Volume 1 Issue 22

    Top Stories

    • IWMF Virtual Educational Forum
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • HOT OFF THE PRESS RECORDING! LLS Report on COVID Vaccine Antibodies
    • LLS Virtual National Blood Cancer Conference, Saturday, September 18th at 11:30AM U.S. ET
    • Lymphoma Research Foundation North American Educational Forum on Lymphoma, October 15 – 17, 2021
    • Magnolia Purpose in Planning® A Connection to Practical, Financial & Legal Resources for those Affected by Cancer

    August 20, 2021 Volume 1 Issue 21

    Top Stories

    • Join us for an entire month of FREE educational programs in October, culminating in our Virtual Educational Forum!
    • Lymphoma Research Foundation (LRF) Webinar Update on COVID-19 Vaccination and the CDC Guidelines for Lymphoma and CLL Patients Monday, August 23rd at 1:00PM U.S. ET
    • The IWMF Announces an Addition to the WM Physicians Directory in Germany
    • Story of Hope Update: Marcia Klepac

    August 13, 2021 Volume 1 Issue 20

    Top Stories

    • WMUK Webinar: WM Laboratory Research. Monday, September 6th at 6:00PM BST (UK)
    • Story of Hope Update: Davell Hays
    • U.S. WM Patients: LLS Co-Pay Funding Available! Financial Assistance up to $7,500

    August 6, 2021 Volume 1 Issue 19

    Top Stories

    • Dr. Morie Gertz of the Mayo Clinic, Rochester, MN Discusses Hot Topics
    • WMUK Webinar: Bing Neel Syndrome, August 9, 2021 from 11:00AM – 12:00PM BST (UK)
    • Lymphoma Research Foundation Webinar: Caregiving for a Loved One With Lymphoma,August 19, 2021 at 2:00PM U.S. EDT
    • WM Chair Yoga – Continued Series! Join us Mondays in August at 2:00PM U.S. ET

    July 23, 2021 Volume 1 Issue 18

    Top Stories

    • Young Investigators Making a Difference in WM Research to be Recognized at this Year’s Virtual Educational Forum
    • Replay Available! ASCO Highlights with Dr. Sheeba K. Thomas.
    • Registration Open! LLS Virtual National Blood Cancer Conference. Saturday, September 18th at 11:30AM U.S. ET
    • Recording Available-Triage Cancer Webinar Emotional Overload: The Impact of a Cancer Diagnosis and Strategies for Self-Care
    • U.S. WM Patients: LLS Co-Pay Program Reopened!

    July 16, 2021 Volume 1 Issue 17

    Top Stories

    • IWMF Earns Coveted 4-Star Rating From Charity Navigator…Four Years in a Row!
    • International Young WM Support Session – July 19th, from 7:30PM-8:30PM U.S. EDT

    July 9, 2021 Volume 1 Issue 16

    Top Stories

      • IWMF WhiMSICAL Registry Abstract for ASH – Include YOUR WM Patient Voice by July 12th!
      • Triage Cancer Webinar – Emotional Overload: The Impact of a Cancer Diagnosis & Strategies for Self-Care
      • Lymphoma Research Foundation – Virtual National Ask the Doctor About Lymphoma and Clinical Trials
      • Story of Hope – Dr. Barbara Sunderland Manousso:
        Confessions of a Caregiver/Spouse/Ombuds

    July 2, 2021 Volume 1 Issue 15

    Top Stories

    • The July 2021 IWMF Torch (issue 22.3) is Now Online!
    • NEXT WEEK! IWMF Global Educational Webinar
    • WMUK Webinar: Bing Neel Syndrome – August 9, 2021 – 11:00AM – 12:00PM BST (UK)
    • National Institutes of Health (NIH) Online Survey

    June 25, 2021 Volume 1 Issue 14

    Top Stories

    • OVER 500 REGISTERED! IWMF Global Educational Webinar – July 9, 2021 at 1:30PM U.S. EDT
    • OWMUK Webinar: Clinical Trials – July 5, 2021
    • Triage Cancer Webinar – Emotional Overload: The Impact of a Cancer Diagnosis & Strategies for Self-Care
    • WhiMSICAL Registry Update: Help Us Reach Our Goal!
    • Young WM Support Session – July 19th

    June 11, 2021 Volume 1 Issue 13

    Top Stories

    • Cancer Legal Resource Center Webinar: Advanced Planning for People with Cancer June 17th
    • Recording Available! WhiMSICAL Registry Update
    • CanCope: Online Wellbeing Programs to Support Cancer Survivors After Treatment
    • Board Member of WMFC Raised Over $32,000 Walking for WM Research
    • Leukemia & Lymphoma Society U.S. National Patient Registry Update
    • Leukemia & Lymphoma Society Re-Opening of Patient Travel Assistance Fund

    May 28, 2021 Volume 1 Issue 12

    Top Stories

    • The IWMF is excited to share that we have a new platform host for our Virtual Events
    • Sick & Tired of Feeling Sick & Tired? RECORDING NOW AVAILABLE! IWMF Fatigue Support Session
    • WM Chair Yoga – Continued Series!

    May 21, 2021 Volume 1 Issue 11

    Top Stories

    • The IWMF is excited to share that we have a new platform host for our Virtual Events
    • THIS SUNDAY! FREE Mayo Clinic WM Patient Symposium
    • Lymphoma Research Foundation Ask the Doctor Session: Watch and Wait
    • Sick & Tired of Feeling Sick & Tired? RECORDING NOW AVAILABLE! IWMF Fatigue Support Session
    • U.S. Patient Financial Assistance Opportunity Patient Access Network (PAN) Foundation
    • Leukemia & Lymphoma Society Reopening of U.S. Patient Aid Program

    May 14, 2021 Volume 1 Issue 10

    Top Stories

    • IWMF Grant Spurs New Diagnostic Test for WM
    • THIS SUNDAY, May 16th! Bing-Neel Syndrome International Support Group
    • Sick & Tired of Feeling Sick & Tired? RECORDING NOW AVAILABLE! IWMF Fatigue Support Session
    • NEW PROGRAM: Young WM Support Session Coming Summer 2021!

    May 7, 2021 Volume 1 Issue 9

    Top Stories

    • May 6th – May 12th is National Nurses Week
    • Recording Available! Importance of Physical Activity in Preventing and Managing Chronic Disease
    • Replay Available! Living with Peripheral Neuropathy: No Easy Feat
    • Next Week! WMUK Webinar: WM & Mental Health
    • Reminder to Register Mayo Clinic WM Patient Symposium

    April 30, 2021 Volume 1 Issue 8

    Top Stories

    • Next Week! IWMF Global Educational Webinar
    • DEADLINE TO REGISTER IS MAY 1st! Free Online Conference for U.S. Patients
    • WMUK Webinar Monday, May 17, 2021
    • Rare Patient Voice: Now Accepting Residents From ALL Countries!

    April 23, 2021 Volume 1 Issue 7

    Top Stories

    • National Volunteer Week
    • Help WMF Canada Petition for Approval of Use of Zanubrutinib for WM Patients in their Country
    • Get Moving on Mondays in May! FREE Chair Yoga Sessions for the WM Community
    • Bing-Neel Syndrome International Support Group Sunday, May 16th/li>
    • Recording Available STEP INTO SPRING with Stacy Kennedy, MPH, RD, CSO, LDN!
    • Recording Available CancerCare Connect® Education Workshop Progress in the Treatment of WM
    • Over 450 Registered! IWMF Global Educational Webinar May 4, 2021 at 1:30PM U.S. ET

    April 2, 2021 Volume 1 Issue 4

    Top Stories

    • The April 2021 IWMF Torch (issue 22.2) is Now Online!
    • WMUK Cardiology Webinar with Dr. Chris Critoph
    • LLS Program: Blood Cancer Care & COVID-19

    March 26, 2021 Volume 1 Issue 3

    Top Stories

    • Story of Hope Sara Waits: Ten Lives and Counting
    • Save The Date Bing-Neel Syndrome International Support Group Sunday, May 16th /li>
    • NEXT WEEK! Ask the Doctors LIVE: WM and the COVID Vaccine
    • Presenting New and Revised IWMF Publications
    • LLS Program: New Treatments in WM featuring Dr. James Gerson and IWMF Patient Panel
    • LLS Program: WM Update featuring Dr. Steven Treon & Dr. Daren Grosman Saturday, April 10, 2021
    • Participate in LLS COVID-19 Antibody Research Study (U.S. Patients)

    March 12, 2021 Volume 1 Issue 2

    Top Stories

    • OVER 550 Registrants! IWMF Global Educational Webinar Wednesday, March 31st at 11:30am U.S. ET
    • CancerCare Connect® Education Workshop Progress in the Treatment of WM Wednesday, April 21st
    • Video of Dr. Richard Furman available from North America Support Group Leader Call on 3/3/21
    • New Options for Diffuse Large B-Cell Lymphoma (DLBCL)
    • The Leukemia & Lymphoma Society Launches New Financial Assistance Program (U.S. Patients Only)
    • New from Triage Cancer: Legal & Financial Navigation Program

    February 18, 2021 Volume 1 Issue 1

    Top Stories

    • The Leukemia & Lymphoma Society Launches National Patient Registry to Answer Crucial COVID-19 Questions for Blood Cancer Patients (U.S. Patients Only)
    • Upcoming Support Group Meetings

    December 1 2023, Volume 3 Issue 44

    Top Stories

    • Thanks to ALL who gave on #GivingTuesday
    • IWMF announces new partnership: House 086 from China
    • LLS Blood Cancer Conference 2024
    • Recordings available from WMFC Ed Forum
    • CancerCare Workshop: Coping with cancer during the holidays

    November 24 2023, Volume 3 Issue 43

    Top Stories

    • Next Tuesday is #GivingTuesday

    • Fatigue & Sleep Disturbance Webinar on Thursday the 30th

    • Rituxan development & treatment webinar: December 13

    • New Support Group Meeting on 11/29: WM & SMZL

    • Take the IWMF Wellness Program Survey

    November 17, 2023, Volume 3 Issue 42

    Top Stories

    • #GivingTuesday is November 28th
    • Coping with Fatigue and Sleep Disturbance on 11/30
    • Webinar Hosted by IWMF Sarasota Support Group on 12/13
    • Recording Available! IWMF Global Educational Webinar

    November 10, 2023, Volume 3 Issue 42

    Top Stories

    • #GivingTuesday is November 28th
    • European WM Patient Ed Forum Highlights Reel AND Recordings Available!
    • Registration Open! Coping with Fatigue and Sleep Disturbance November 30th
    • Save the Date! Cancer Care Workshop Coping with Cancer During the Holidays Wednesday, December 6

    November 3, 2023, Volume 3 Issue 41

    Top Stories

    • November is National Family Caregivers Month (NFCM)
    • Leukemia & Lymphoma Society Webinar Caregiving Over Coffee: Give Yourself Grace
    • NEW Specialty Support Group Meeting WM & SMZL
    • Join the IWMF Online community!

    October 27, 2023, Volume 3 Issue 40

    Top Stories

    • Walk for Waldenstrom’s Update
    • Patient Power Webinar on 11/2
    • BeiGene Webinar for Caregivers on 11/2
    • Bing-Neel Support Group- Registration Open!
    • Young WM Support Group- 11/13

    October 20, 2023, Volume 3 Issue 39

    Top Stories

    • European Patient Forum TOMORROW- catch the livestream!
    • Post-Ed Forum Cruise: Book your spot!
    • IWMF Global Educational Webinar on 11/8 with Dr. Fred Appelbaum
    • IWMF & NORD Financial Assistance Program

    October 13, 2023, Volume 3 Issue 38

    Top Stories

    • European Forum Next Week
    • IWMF Global Educational Webinar
    • Recording Available from TargetCancer Foundation

    October 6, 2023, Volume 3 Issue 37

    Top Stories

    • Walk for Waldenstrom’s Spotlights: Eastern Massachusetts & Chicago
    • Cathy Zimmerman: Running for Waldenstrom’s
    • October Wellness Gathering
    • Upcoming Triage Cancer Conferences

    September 29, 2023, Volume 3 Issue 36

    Top Stories

    • IWMF October Torch is Available!
    • IWMF CEO attends NCCN Conference
    • Walk for Waldenstrom’s Spotlights: Paul Kitchen & David Kahn
    • Recording Available! Sex & Cancer with Dr. Bober

    September 22, 2023, Volume 3 Issue 35

    Top Stories

    • World Cancer Research Day
    • Walk for Waldenstrom’s Spotlight: Julie Richardson
    • Lymphoma Research Foundation Ed Forum
    • IWMF Discussion Forums

    September 15, 2023, Volume 3 Issue 34

    Top Stories

    • Story of Hope: Mel from New Zealand
    • Walk for Waldenstrom’s Spotlight: Pete DeNardis
    • Next Week! Global Educational Webinar
    • LLS Nutrition Education Services Center

    September 8, 2023, Volume 3 Issue 33

    Top Stories

    • Steven Hadfield Visits U.S. White House to Speak on the Expansion of Medicare Drug Cost Controls
    • Medicare & Medicaid Listening Session for IMBRUVICA: November 6th
    • The IWMF Announces an Addition to the WM Physicians Directory in the U.S.

    September 1, 2023, Volume 3 Issue 32

    Top Stories

    • IWMF Home Office Closed on Labor Day Holiday in U.S.
    • September is Blood Cancer Awareness Month
    • IMPORTANT MESSAGE FROM IWMF LEADERSHIP
    • Walk for Waldenstrom’s With Us Throughout the Month of September!
    • Walk for Waldenstrom’s Spotlight: Lisa Wise & Ann MacMullan
    • Follow Paul Kitchen’s Walk for WM
    • IWMF Announces 2024 Cruise!

    August 25, 2023, Volume 3 Issue 31

    Top Stories

    • The IWMF Announces NEW Wellness Program Coordinator, Ann MacMullan!
    • WALK FOR WALDENSTROM’S SPOTLIGHT Don & Mary Brown: Chicago Area/SE Wisconsin
    • WMUK Wheels for Waldenstrom’s Off to the Races!
    • International Young WM Support Group Meeting, Tuesday, September 12th at 8:30PM U.S. ET

    August 18, 2023, Volume 3 Issue 30

    Top Stories

    • WALK FOR WALDENSTROM’S SPOTLIGHT: Minnesota & W. Wisconsin
    • The IWMF Announces an Addition to the WM Physicians Directory in the U.S.
    • There is Still Time to Register! European Patient Forum on Saturday, October 21st
    • August is National Make-A-Will Month
    • IWMF Global Educational Webinar: Thursday, September 21st from 12:30 – 1:45PM U.S. ET

    August 12, 2023, Volume 3 Issue 29

    Top Stories

    • WALK FOR WALDENSTROM’S SPONSORS
    • Story of Hope Update: Julianne & John Flora-Tostado: Our 49th Anniversary
    • Webinar Replay Available from BeiGene: Cancer & Mental Health
    • August is National Make-A-Will Month
    • IWMF Patient Perspective Video Series: Recruiting Volunteers for 2nd Installment

    August 11, 2023, Volume 3 Issue 28

    Top Stories

    • WALK FOR WALDENSTROM’S SPONSORS
    • Story of Hope Update: Julianne & John Flora-Tostado: Our 49th Anniversary
    • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
    • August is National Make-A-Will Month

    August 4, 2023, Volume 3 Issue 27

    Top Stories

    • WALK FOR WALDENSTROM’S SPOTLIGHT: Sarasota, Florida
    • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
    • August is National Make-A-Will Month 
    • Continuing Medical Education Program Completed

    July 28, 2023, Volume 3 Issue 26

    Top Stories

    • Coming in September: Monthly Wellness Gathering on Zoom
    • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
    • August is National Make-A-Will Month 
    • IWMF Lifeline Peer Support Directory

    July 21, 2023, Volume 3 Issue 25

    Top Stories

    • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
    • WALK FOR WALDENSTROM’S UPDATE
    • From the Leukemia & Lymphoma Society: New Podcast on Beneficial Medicare Changes
    • Upcoming Triage Cancer Webinar: Engaging in Self-Advocacy
    • From The Leukemia & Lymphoma Society: New Financial Assistance Online Portal Launched

    July 7, 2023, Volume 3 Issue 24

    Top Stories

    • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
    • IWMF & NORD Financial Assistance Program EXPANSION!
    • *NEW* Patient Perspective YouTube Video Series: From Sharon Piotrowski, WM Community Member
    • A Tribute to Dr. Steven Treon – 25 Years at Dana-Farber Cancer Institute!

    June 28, 2023, Volume 3 Issue 23

    Top Stories

    • Starting in September, IWMF Monthly Wellness Gathering on Zoom
    • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
    • Walk for Waldenstrom’s Spotlight: Mission Viejo, California
    • Leukemia & Lymphoma Society Co-Pay Assistance Fund OPEN for U.S. Patients

    June 23, 2023, Volume 3 Issue 22

    Top Stories

    • New Modernized ClinicalTrials.gov Website
    • Video Available! Kicking the Tires on Clinical Trials: Important Questions to Ask and Things to Consider Before Enrolling in a Clinical Trial
    • Learn about the Waldenström Finland Ry group’s annual patient meeting
    • Join the IWMF Online Community!
    • Check out the IWMF Wellness Calendar!

    June 16, 2023, Volume 3 Issue 21

    Top Stories

    • The IWMF is proud to share a new publication for Young WM Patients
    • The IWMF Welcomes Two New Team Members

    • Triage Cancer Podcast Available
    • Join the IWMF Online Community!
    • IWMF Second Opinion Financial Assistance Program in Partnership with NORD

    June 9, 2023, Volume 3 Issue 20

    Top Stories

    • Walk for WM
    • Story of Hope Update

    • WMUK Webinar on July 12th
    • IWMF Survey Opportunity

    June 2, 2023, Volume 3 Issue 19

    Top Stories

    • Survey Opportunity to Help WM Patients in Canada

    • Podcast Available from CancerCare
    • Next Week: US Military Veteran Discussion Group

    May 26, 2023, Volume 3 Issue 18

    Top Stories

    • Lymphoma Coalition: Report Card on Lymphomas

    • Paid Research Opportunity
    • Recording Available ! Cardio Flow for WM
    • WM People of Color Support Group

    May 19, 2023, Volume 3 Issue 17

    Top Stories

    • NEW Fact Sheet from the IWMF
    • New Translated Publication Available!
    • Recordings Available!
    • WM People of Color Support Group
    • Save The Date: WM Veterans Discussion Group

    May 12, 2023, Volume 3 Issue 16

    Top Stories

    • Brukinsa Update for WM Patients in China
    • CancerCare Webinar
    • International Young WM Support Group Meeting
    • The Patient Access Network (PAN) Foundation:WM Fund OPEN for Eligible U.S. Patients!

    May 5, 2023, Volume 3 Issue 15

    Top Stories

    • May is National Cancer Research Month
    • Brukinsa Update for WM Patients in Korea
    • 2 Year Anniversary of WM Community Yoga
    • IWMF Second Opinion Financial Assistance
    • Webinar from Lymphoma Research Foundation

    April 28, 2023, Volume 4 Issue 14

    Top Stories

    • IWMF Educational Forum- THANK YOU
    • US FDA Authorizes Second Bivalent Booster for COVID-19
    • Cardio Flow- TODAY at 2PM U.S. ET
    • Waldenstrom India Launches New Website
    • Waldenström France to Hold June Meeting in Paris

    April 14, 2023, Volume 3 Issue 13

    Top Stories

    • Webinar from Rare Disease Legislative Advocates:
    • TODAY AT 2:00 PM U.S. ET! Sound Meditation for WM
    • Veteran Dental Assistance for U.S. Patients

    April 7, 2023, Volume 3 Issue 12

    Top Stories

    • Bing-Neel Recording Available
    • IWMF Second Opinion Financial Assistance Program in Partnership with NORD
    • The Patient Access Network (PAN) Foundation:WM Fund OPEN for Eligible U.S. Patients!
    • U.S. Citizens: Donating Your IRA Required Minimum Distribution

    March 31, 2023, Volume 3 Issue 11

    Top Stories

    • $199 Rate EXTENDED through April 7th!
    • The April Torch magazine is now available!
    • International Bing-Neel Support Group Meetings

    March 17, 2023, Volume 3 Issue 10

    Top Stories

    • Come Meet Us in St. Louis at the Ed Forum!
    • New Article from Lymphoma Hub
    • Triage Cancer Webinar: Managing Medical Bills
    • International Bing-Neel Support Group Meetings

    March 10, 2023, Volume 3 Issue 9

    Top Stories

    • Join 132 In-Person Registrants at our Ed Forum!
    • Visual Abstract Published on the Lymphoma Hub in Collaboration with IWMF and SES
    • IWMF and Patient Access Network (PAN) Webinar
    • Leukemia & Lymphoma Society Webinar
    • Lymphoma Research Foundation Webinar
    • Financial Assistance for Calquence (acalabrutinib)

    March 3, 2023, Volume 3 Issue 8

    Top Stories

    • The IWMF Welcomes New Staff Member
    • IWMF Board of Trustees Meet
    • THE IWMF ED FORUM IS NEXT MONTH!
    • IWMF and Patient Access Network (PAN) Webinar
    • WM Veteran Support Group
    • International Bing-Neel Support Group Meetings

    February 24, 2023, Volume 3 Issue 7

    Top Stories

    • Rare Disease Day is February 28th!
    • REGISTER TODAY FOR THE IWMF ED FORUM
    • HealthWell Foundation Reopens WM Fund
    • Recording Available: Sound Meditation for WM
    • International Young WM Support Group Meeting

    February 17, 2023, Volume 3 Issue 6

    Top Stories

    • RAFFLE NEXT WEEK!
    • RVideo From Cancer Support Community
    • Sound Meditation for WM
    • For Caregivers: Transcript Available from the LLS

    February 10, 2023, Volume 3 Issue 5

    Top Stories

    • Rare Disease Day is February 28th
    • Rare Disease Week on Capitol Hill
    • Register today for the IWMF Ed Forum!
    • Triage Cancer Webinar on Medical Bills
    • WM Community Yoga Recordings Available

    February 3, 2023, Volume 3 Issue 4

    Top Stories

    • World Cancer Day is February 4th
    • Ed Forum Raffle Taking Place on February 20th!
    • Podcasts Available with our Friends in the UK
    • WM People of Color Support Group
    • LLS Free One-on-One Nutrition Consultations

    January 27, 2023, Volume 3 Issue 3

    Top Stories

    • REGISTRATION OPEN! IWMF 2023 Ed Forum
    • Recording Available! IWMF Global Educational Webinar with Dr. Jorge Castillo
    • WM Veterans Support Group- Save the Date
    • World Cancer Day- Next Week
    • WM Community Corner- LLS Florida BCC recap

    January 13, 2023, Volume 3 Issue 2

    Top Stories

    • REGISTRATION OPENS NEXT WEEK! IWMF 2023 Ed Forum
    • IWMF Global Educational Webinar – Next Week 
    • International Young WM Support Group Meeting
    • WM People of Color Support Group
    •  Free Resource for Financial Navigation & Support

    January 6, 2023, Volume 3 Issue 1

    Top Stories

    • IWMF Global Educational Webinar
    • Leukemia & Lymphoma Society Webinar
    • WM People of Color Support Group

    December 30, 2022 Volume 2 Issue 50

    Top Stories

    • Happy New Year from the IWMF
    • IWMF Torch January Issue is NOW available online!
    • IWMF Global Educational Webinar
    • International Young WM Support Group

    December 23, 2022 Volume 2 Issue 49

    Top Stories

    • Holiday Message from the IWMF
    • IWMF Global Educational Webinar
    • Recording Available from the LLS
    • IWMF Board Trustee and WM Expert Receives Award from The Leukemia & Lymphoma Society

    December 16, 2022 Volume 2 Issue 48

    Top Stories

    • IWMF Issues 2021 Annual Report
    • Registration Open: IWMF Global Educational Webinar with Dr. Jorge Castillo
    • Yoga Nidra Recording Available

    December 9, 2022 Volume 2 Issue 47

    Top Stories

    • Do you Have Extramedullary Disease?
    • Centers for Disease Control and Prevention
    • CancerCare Connect: Diffuse Large B-Cell Lymphoma Treatment Updates
    • Want to Learn How to Participate in IWMF Patient Discussion Groups? We Need YOU!
    • Helpful Resource: Neuropathy Toolkit

    December 2, 2022 Volume 2 Issue 46

    Top Stories

    • GivingTuesday – THANK YOU
    • End of Year Giving
    • Story of Hope: Laurence Elliott
    • Webinar: How Stock Giving Benefits You

    November 23, 2022 Volume 2 Issue 45

    Top Stories

    • GivingTuesday is on November 29th
    • IWMF Board of Trustees Meet to Discuss 2023
    • IWMF Welcomes Two New Board Members
    • Want to Learn How to Participate in IWMF Patient Discussion Groups?
    • Friday Offering : Cardio Flow with Ann

    November 18, 2022 Volume 2 Issue 44

    Top Stories

    • Mark your Calendar! GivingTuesday is on November 29th
    • A Message from the IWMF Home Office Team
    • BeiGene Launches Talk About It Program to Elevate the Importance of Addressing Mental Health during Cancer Care 
    • Good News for WM Patients in Scotland!
    • WM Vietnam Veterans Discussion Group

    November 11, 2022 Volume 2 Issue 43

    Top Stories

    • GivingTuesday is on November 29th
    • From CancerCare: Shared Decision Making Series
    • WMUK Patient Doctor Summit
    • Yoga Nidra with Ann-THIS Sunday!
    • Support the IWMF through Amazon Smile

    November 4, 2022 Volume 2 Issue 42

    Top Stories

    • IWMF Board Chair Interviewed by CureTalks
    • Here Are Some Things YOU Should Know!
    • International Affiliates Meet in Madrid at IWWM-11
    • Young WM International Support Group Meeting
    • Support the IWMF through Amazon Smile

    October 28, 2022 Volume 2 Issue 41

    Top Stories

    • IWMF at IWWM-11 in Madrid, Spain
    • Recording Available! LLS Research Now
    • FreeWill webinar: How Stock Giving Benefits You
    • WM Community Corner- Ron Ternoway featured in podcast!
    • New Discussion Group: WM Vietnam Veterans

    October 22, 2022 Volume 2 Issue 40

    Top Stories

    • Your IRA, Your Impact
    • Next Weekend- LRF Ed Forum
    • GRYT Health Virtual Conference 11/2-11/5
    • This Sunday: Extramedullary Disease Discussion Group
    • TODAY: Sound Meditation for WM
    • Cardio Flow for WM Recording Available

    October 14, 2022 Volume 2 Issue 39

    Top Stories

    • Story of Hope Update- Martin Vanderlaan
    • National Estate Planning Week- October 17-23
    • Next Week- LLS COVID Webinar
    • LRF Educational Forum, October 28-30th
    • Hot of The Press Recording Available! Peripheral Neuropathy

    October 7, 2022 Volume 2 Issue 38

    Top Stories

    • The October IWMF Torch is Now Online!
    • IWMF Team Walk for Waldenstrom’s
    • Patient Access Network Webinar
    • Next Wednesday- Peripheral Neuropathy Support Session
    • Chris Edgerton Completes his Bike Ride from Vancouver to Whistler

    September 30, 2022 Volume 2 Issue 37

    Top Stories

    • Rare Cancer Day is Today!
    • IWMF Staff Safe from Hurricane Ian
    • Amazon Smile
    • Sound Meditation & Yoga Nidra Recordings Available
    • WM People of Color & Bing-Neel Support Groups

    September 23, 2022 Volume 2 Issue 36

    Top Stories

    • Thanks to all who participated in the Walk for Waldenstrom’s last weekend!
    • The IWMF Board Chair is Sharing his WM Story
    • Rare Cancer Day is Next Friday, September 30th!
    • BIG News for WM Patients in the United Kingdom!

    September 16, 2022 Volume 2 Issue 35

    Top Stories

    • Walk for Waldenstrom’s this weekend!
    • SAVE THE DATE! Peripheral Neuropathy Support Group Meeting, October 12th, 2022
    • TODAY- Cardio Flow for WM at 2:00PM U.S. ET
    • Leukemia & Lymphoma Society National Blood Cancer Conference

    September 9, 2022 Volume 2 Issue 34

    Top Stories

    • Walk for Waldenstrom’s
    • Join Alix for a Pre- Walk for WM Exercise Class September 13th!
    • The IWMF and Scientific Education Support (SES) Announce New Strategic Collaboration
    • WMF Survey Closes September 30th Reminder: Please complete the IWMF Needs Assessment Survey. Your opinion matters!
    • Patient Perspective Video Series. WE ARE LOOKING FOR YOU!

    September 2, 2022 Volume 2 Issue 33

    Top Stories

    • September is Blood Cancer Awareness Month
    • Walk for Waldenstrom’s
    • View the 27th IWMF Educational Forum on demand!
    • Leukemia & Lymphoma Society National Blood Cancer Conference
    • Leukemia & Lymphoma Society Free One-on-One Nutrition Consultations
    • The Patient Access Network (PAN) Foundation: WM Fund OPEN for Eligible U.S. Patients!

    August 26, 2022 Volume 2 Issue 32

    Top Stories

    • THIS WEEKEND the 27th IWMF Educational Forum!
    • Walk for Waldenstrom’s
    • U.S. Community Members: Make your Mark this Month with Freewill
    • Recording Available! Sound Meditation for WM

    August 19, 2022 Volume 2 Issue 31

    Top Stories

    • Register now for the 27th IWMF Educational Forum! ONE WEEK AWAY!
    • U.S. Community Members: Make your Mark this Month with Freewill
    • Young WM International Support Group
    • Walk for Waldenstrom’s
    • Recording Available: Yoga Nidra with Ann

    August 12, 2022 Volume 2 Issue 30

    Top Stories

    • Registration open for the 27th IWMF Educational Forum! TWO WEEKS AWAY
    • U.S. Community Members: Make your Mark this Month with Freewill
    • NEW OFFERING! Sound Meditation for WM
    • Three Easy Ways YOU Can Make a Difference Now
    • Walk for Waldenstrom’s

    August 5, 2022 Volume 2 Issue 29

    Top Stories

    • Registration open for the 27th IWMF Educational Forum!
    • New IWMF Survey: Your Input is Needed!
    • Three Easy Ways YOU Can Make a Difference Now
    • Cardio Flow for WM next Friday, August 12th at 2:00PM U.S. EDT!

    July 29, 2022 Volume 2 Issue 28

    Top Stories

    • Registration open for the 27th IWMF Educational Forum!
    • WhiMSICAL Patient Registry Update for IWWM-11
    • WM Yoga & WM Cardio Flow Class Updates
    • The Walk for Waldenstrom’s

    July 22, 2022 Volume 2 Issue 27

    Top Stories

     

    • Registration open for the 27th IWMF Educational Forum!
    • LAST CALL to Contribute to IWWM-11 with YOUR Patient Data!
    • Leukemia & Lymphoma Society: Interactive 3D Model Library
    • The Patient Access Network (PAN) Foundation: WM Fund OPEN for Eligible U.S. Patients!
    • CancerCare Program for U.S. Patients: Pet Assistance & Wellness (PAW) Program 

    July 15, 2022 Volume 2 Issue 26

    Top Stories

    • Recording available! Understanding Your Blood and Bone Marrow Test Results: Rebroadcast with NEW LIVE Q&A!
    • Registration open for the 27th IWMF Educational Forum!
    • Presenting Two New IWMF Publications!
    • Wanda Huskins Story of Hope Update

    July 8, 2022 Volume 2 Issue 25

    Top Stories

    • Alix Redmonde Joins IWMF Home Office Staff
    • Next week! Understanding Your Blood and Bone Marrow Test Results: Rebroadcast with NEW LIVE Q&A!
    • Registration open for the 27th IWMF Educational Forum!

    July 1, 2022 Volume 2 Issue 24

    Top Stories

    • The July 2022 IWMF Torch (issue 23.3) now online!
    • Registration open for the 27th IWMF Educational Forum!
    • WhiMSICAL Investigators Invited to Present WM Patient-Entered Data to the World’s WM Experts at IWWM-11! 
    • Understanding Your Blood and Bone Marrow Test Results: Rebroadcast with NEW LIVE Q&A!

    June 24, 2022 Volume 2 Issue 23

    Top Stories

    • Registration Open! Understanding Your Blood and Bone Marrow Test Results
    • Registration open for the 27th IWMF Educational Forum!
    • Cardio Flow for WM Friday, July 1st 

    June 17, 2022 Volume 2 Issue 22

    Top Stories

    • Registration Open! Understanding Your Blood and Bone Marrow Test Results
    • Free Webinar from Triage Cancer: Engaging in Policy & Legislative Advocacy
    • Recording available: Genomics/Science of WM
    • Leukemia & Lymphoma Society Fact Sheet
    • GRYT Health Recording Available – Frankly Speaking About Cancer: Why Cant I Stay Positive?

    June 10, 2022 Volume 2 Issue 21

    Top Stories

    • June 5th is National Cancer Survivors Day®
    • Registration Open! IWMF Ed Forum Primer Series – Part II – Genomics/Science of WM
    • Replay Available! CancerCare Connect® Education Workshop
    • Leukemia & Lymphoma Society Webinar: Caregiving Over Coffee

    June 3, 2022 Volume 2 Issue 20

    Top Stories

    • June 5th is National Cancer Survivors Day®
    • Registration Open! IWMF Ed Forum Primer Series – Part II – Genomics/Science of WM
    • Replay Available! CancerCare Connect® Education Workshop
    • Leukemia & Lymphoma Society Webinar: Caregiving Over Coffee

    May 27, 2022 Volume 2 Issue 19

    Top Stories

    • Registration Open! IWMF Ed Forum Primer Series – Part II – Genomics/Science of WM
    • WhiMSICAL Delivers the Goods! Key Findings Summarized by Dr. Ibrahim Tohidi
    • New Pilot Program on June 3rd and June 17th! Cardio Flow for WM

    May 20, 2022 Volume 2 Issue 18

    Top Stories

    • Registration Open! IWMF Ed Forum Primer Series – Part II – Genomics/Science of WM
    • Recording available of the WM and Basic Terminology webcast!
    • CancerCare Connect® Education Workshop, May 25, 2022
    • New Pilot Program on June 3rd and June 17th! Cardio Flow for WM

    May 13, 2022 Volume 2 Issue 17

    Top Stories

    • The 2022 Giving Challenge: Thank you!
    • Next week the WM and Basic Terminology webcast!
    • Young WM International Support Group Meeting
    • Yoga Nidra Recording Available

    May 6, 2022 Volume 2 Issue 16

    Top Stories

    • Register for May 18th the WM and Basic Terminology webcast!
    • GRYT Health Webinar Series: Mental Health
    • Waldenstrom’s Macroglobulinemia (WM): Treatment Progress Workshop
    • Free Downloadable Resource from Triage Cancer:
      Medical Bill Tracker

    April 29, 2022 Volume 2 Issue 15

    Top Stories

    • Register for May 18th the WM and Basic Terminology webcast!
    • Patient Empowerment Network (PEN) Webinar
    • Story of Hope Update-Bob Lynch
    • Triage Cancer Conferences

    April 15, 2022 Volume 2 Issue 14

    Top Stories

    • Julie Richardson – A Mother’s Story
    • IWMF Support Groups

    April 8, 2022 Volume 2 Issue 13

    Top Stories

    • GIVING CHALLENGE 2022
      Mark Your Calendar!
      Donations made to the IWMF
      during the 2022 Giving Challenge
      will be TRIPLE matched.
    • Patient Empowerment Network (PEN) Webinar
      May 3rd at 1:00PM U.S. EDT
    • Story of Hope: Arno Muller
    • Show Us Your IWMF Swag
    • We Need YOUR Voice

    April 1, 2022 Volume 2 Issue 12

    Top Stories

    • GIVING CHALLENGE 2022
      Mark Your Calendar!
      Donations made to the IWMF
      during the 2022 Giving Challenge
      will be TRIPLE matched.
    • The April 2022 IWMF Torch (Issue 23.2)
      is Now Online!
    • Recording Available!
      IWMF Global Educational Webinar.
      An Overview of Amyloidosis and WM with Dr. Morie Gertz/li>

    • Hot off the Press!
      New Video Available with Dr. Shayna Sarosiek
      Covid Antibodies, CAR-T & More…
      Can We Feel Hopeful this Spring?
    • Recording Available!
      Bing Neel Syndrome Featuring Dr. Shirley D’Sa
    • Lymphoma Coalition 2022 Global Patient Survey
      Week 7 Update
    • Calling all Caregivers!
      Caregivers International Support Session
      Wednesday, April 6th from 1:00PM-3:00PM U.S. ET
    • We Need YOUR Voice

    March 25, 2022 Volume 2 Issue 11

    Top Stories

    • GIVING CHALLENGE 2022
      Mark Your Calendar!
      Donations made to the IWMF
      during the 2022 Giving Challenge
      will be TRIPLE matched.
    • Next Week! IWMF Global Educational Webinar
      An Overview of Amyloidosis and WM with Dr. Morie Gertz
    • Next Tuesday! The LLS-IWMF Living Well with WM Program
    • Hot off the Press!
      New Video Available with Dr. Shayna Sarosiek
      Covid Antibodies, CAR-T & More…
      Can We Feel Hopeful this Spring?
    • Recording Available!
      Patient Empowerment Network Webinar
    • Don’t Forget: Vaccinations, Boosters, Infections?
      WhiMSICAL Needs YOUR Help to answer the question!
    • Calling all Caregivers!
      Caregivers International Support Session
      Wednesday, April 6th from 1:00PM-3:00PM U.S. ET

    • Leukemia & Lymphoma Society
      Free One-on-One Nutrition Consultations

    March 18, 2022 Volume 2 Issue 10

    Top Stories

    • GIVING CHALLENGE 2022
      Mark Your Calendar!
      Donations made to the IWMF
      during the 2022 Giving Challenge
      will be TRIPLE matched.
    • Next Week!
      Patient Empowerment Network Webinar
      March 22nd at 1:00PM U.S. ET
    • IWMF Global Educational Webinar
      An Overview of Amyloidosis and WM with Dr. Morie Gertz
    • Next Tuesday! The LLS-IWMF Living Well with WM Program
    • Leukemia & Lymphoma Society
      Clinical Trial Nurse Navigator Program

    March 11, 2022 Volume 2 Issue 9

    Top Stories

    • Lymphoma Coalition 2022 Global Patient Survey
      Week 4 Update
    • Reminder: Vaccinations, Boosters, Infections?
      WhiMSICAL Needs YOUR Help to answer the question!
    • Recording Available!
      WMUK Peripheral Neuropathy Webinar
    • Registration is Open!
      IWMF Global Educational Webinar
      An Overview of Amyloidosis and WM with Dr. Morie Gertz
    • Next Tuesday! The LLS-IWMF Living Well with WM Program
    • Young WM Support Group Meeting
      Monday, March 14th at 7:30PM U.S. ET

    March 4, 2022 Volume 2 Issue 8

    Top Stories

    • NCCN Patient Guidelines for WM Now Available
    • Patient Empowerment Network Webinar
      March 22nd at 1:00PM U.S. ET
    • A Virtual Educational Conference for Patients, Caregivers and Healthcare Professionals. Tuesday, March 15, 2022
      5:30PM – 7:00PM U.S. Eastern Time
    • Registration is Open!
      IWMF Global Educational Webinar
      An Overview of Amyloidosis and WM with Dr. Morie Gertz
    • Bing-Neel International Support Sessions
      2:30PM and 7:00PM U.S. ET on March 20th
    • Caregivers International Support Session
      Wednesday, April 6th from 1:00PM-3:00PM U.S. ET

    February 18, 2022 Volume 2 Issue 6

    Top Stories

    • Lymphoma Coalition Launches the 8th Global Patient Survey on Lymphoma & CLL
    • BeiGene Announces Approval for Brukinsa (zanubrutinib) by Swissmedic for
      Treatment of WM
    • US FDA Approves First Treatment for
      Cold Agglutinin Disease
    • NEXT WEEK!
      The LLS-IWMF Living Well with WM Free Virtual Program
      February 23, 2022 at 6:30PM U.S. ET
    • WMUK Webinar
      Physio for Peripheral Neuropathy
      Thursday, March 3rd at 6:00PM GMT

    February 11, 2022 Volume 2 Issue 5

    Top Stories

    • *NEW* Abbreviated COVID-19 Letter to Share with Hospitals for Emergency Medical Events
    • Lymphoma Coalition Launches the 8th Global Patient Survey on Lymphoma & CLL
    • Recording Available! ASH Highlights
      with Dr. Sikander Ailawadhi
    • The LLS-IWMF Living Well with WM
      Free Virtual Program
      February 23, 2022 at 6:30PM U.S. ET
    • Story of Hope: Margit Novack
    • New Support Group Alert!
      Ibrutinib-Venetoclax Clinical Trial Support Session
      February 13, 2022 at 12:00 Noon U.S. ET

    February 4, 2022 Volume 2 Issue 4

    Top Stories

    • Today is World Cancer Day!
    • NEXT WEEK!
      IWMF Global Educational Webinar
      February 8, 2022 at 11:30AM U.S. ET
    • CancerCare Connect Eduction Workshop
      COVID-19, Omicron & Delta Variants, COVID-19 Vaccines & Booster Vaccines: Revised Guidelines for People Living with Cancer & Their Loved Ones
    • The LLS-IWMF Living Well with WM
      Free Virtual Program
      February 23, 2022 at 6:30PM U.S. ET
    • Recording Available!
      Peripheral Neuropathy Support Session
    • New Support Group Alert!
      Ibrutinib-Venetoclax Clinical Trial Support Session
      February 13, 2022 at 12:00 Noon U.S. ET

    January 28, 2022 Volume 2 Issue 3

    Top Stories

    • IWMF Global Educational Webinar
      February 8, 2022 at 11:30AM U.S. ET

    January 21, 2022 Volume 2 Issue 2

    Top Stories

    • World Cancer Day February 4, 2022
    • Registration Open!
      IWMF Global Educational Webinar
      February 8, 2022 at 11:30AM U.S. ET
    • CancerCare Connect Eduction Workshop
      COVID-19, Omicron & Delta Variants, COVID-19 Vaccines & Booster Vaccines: Revised Guidelines for People Living with Cancer & Their Loved Ones
    • NEXT WEEK!
      Peripheral Neuropathy Support Session
      January 26th, 2022 from 1:00PM – 3:00PM U.S. ET
    • Leukemia & Lymphoma Society
      Co-Pay Assistance Available for U.S. Patients!

    January 7, 2022 Volume 2 Issue 1

    Top Stories

    • Shop for Your IWMF Swag at Our New Store!
    • The January 2022 IWMF Torch (Issue 23.1)
      is Now Online!
    • From Patient Resource:
      Writing Therapy Offers Many Positive Benefits
    • WM Community Yoga Classes Continue in 2022!
      Mondays at 2:00PM U.S. Eastern Time
    • New Free Offering for WM Patients-
      Monthly Yoga Nidra!

    December 24, 2021 Volume 1 Issue 37

    Top Stories

    • CancerCare Connect Eduction Workshop
      COVID-19, Omicron & Delta Variants, COVID-19 Vaccines & Booster Vaccines: Revised Guidelines for People Living with Cancer & Their Loved Ones
    • CancerCare Workshop Date and Time
      Monday, February 7, 2022, 1:30 – 2:30 pm, U.S. Eastern Time
    • Rare Patient Voice
      Survey Opportunity for U.S. Patients
    • Registration Open!
      Peripheral Neuropathy Support Session
      January 26th, 2022 from 1:00PM – 3:00PM U.S. ET
    • Shop while Supporting the IWMF

    December 17, 2021 Volume 1 Issue 36

    Top Stories

    • WM Practice Medical Guidelines and Research Articles on the IWMF Website
    • Dr. Stephen Ansell of Mayo Clinic Recognized with the 2021 Ernest Beutler Lecture and Prize
    • Video Available!
      WM Advances in Treatment with CureTalks Panel
    • Save the Date & Register Today!

    • LLS Virtual Florida Blood Cancer Conference
      February 12, 2022 from 9:30AM – 1:30PM U.S. ET
    • Registration Open!
      Peripheral Neuropathy Support Session
      January 26th, 2022 from 1:00PM – 3:00PM U.S. ET
    • Registration Open!
      Peripheral Neuropathy Support Session
      January 26th, 2022 from 1:00PM – 3:00PM U.S. ET

    December 12, 2021 Volume 1 Issue 35

    Top Stories

    • WhiMSICAL Registry Patient-Entered Data Presented at ASH 2021 Conference!
    • NCCN Guidelines Update
    • Shop while Supporting the IWMF

    December 3, 2021 Volume 1 Issue 34

    Top Stories

    • New Videos Available on Transformation
      and Bing-Neel Syndrome
    • Union for International Cancer Control Webinar
      Prehabilitation – Multimodal Interventions to Improve Resilience and Response to Treatment in Cancer
    • Leukemia & Lymphoma Society Webinar Blood Cancers: Managing Side Effects
    • THANK YOU to All Who Gave on Giving Tuesday!

    November 26, 2021 Volume 1 Issue 33

    Top Stories

    • Story of Hope Update from Canada- Ron Ternoway: The Clinical Trials Continue!
    • Shop while Supporting the IWMF
    • Giving Tuesday is November 30th
    • Healthy Communication Practice for Caregivers of a Parent with a Blood Cancer in the US: Recruiting Individuals for an Online Study

    November 18, 2021 Volume 1 Issue 32

    Top Stories

    • 2021 IWMF Educational Forum Recordings Available for your Convenience!
    • Medscape Covers the IWMF 2021 Ed Forum
    • IWMF Research Grant Opportunities
    • Bing-Neel International Support Group Meetings

    November 12, 2021 Volume 1 Issue 31

    Top Stories

  • 2021 IWMF Educational Forum Recordings Available for your Convenience!
  • WMUK Patient-Doctor Summit Saturday, November 13th. Register Today!
  • REPORT NOW AVAILABLE: Rory Morrison WMUK Registry Report
  • International Young WM Support Group November 15th at 7:30PM U.S. ET
  • Leukemia & Lymphoma Society Co-Pay Assistance Program Enhancements!
  • November 5, 2021 Volume 1 Issue 30

    Top Stories

    • National Family Caregivers Month
    • 2021 IWMF Educational Forum Follow up and Recording Updates
    • Triage Cancer Webinar for U.S. Patients: Make Ahead Holiday Recipes that Nourish the Body & Soul
    • WMUK Patient-Doctor Summit Saturday, November 13th. Register Today!
    • Community Corner
    • International Young WM Support Group November 15th at 7:30PM U.S. ET

    October 22, 2021 Volume 1 Issue 29

    Top Stories

    • CATCH UP ON THE LATEST- IWMF Ed Forum Workshop Recordings & Slides Available for your Convenience!
    • Ed Forum Speakers- October 28th & 29th

    October 15, 2021 Volume 1 Issue 28

    Top Stories

    • CATCH UP ON THE LATEST- IWMF Ed Forum Workshop Recordings & Slides Available for your Convenience!
    • October 28th and 29th! Ed Forum! Register Today and then Reserve Your Seat!
    • Exciting Addition to the 2021 Ed Forum Agenda: A Review of NCCN Guidelines for WM
    • Leukemia & Lymphoma Society Webinar
      Cancer Treatment: How to Make Informed Choices about Standard Care and
      Clinical Trials
      November 2, 2021 at 6:00PM U.S. ET

    October 8, 2021 Volume 1 Issue 27

    Top Stories

    • Dr. Steven Treon Presents: Timely Updates in the Treatment of Waldenstrom’s Macroglobulinemia
    • BeiGene Announces First Regulatory Approval in Australia for BRUKINSA® (Zanubrutinib) for Treatment of Patients with WM
    • Bing-Neel International Support Group Meetings
      November 21, 2021 at 12PM and 7PM U.S. ET
    • WM Community Yoga Classes Continued Throughout 2021!

    October 1, 2021 Volume 1 Issue 26

    Top Stories

    • The fourth issue of the 22nd volume of the IWMF Torch is now online!
    • Join us for an entire month of FREE
      educational programs in October,
      culminating in our Virtual Educational Forum! Register NOW!
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • 2021 WMUK Patient-Doctor Summit November 13, 2021
    • WM Community Corner
    • U.S. WM Patients: LLS Co-Pay Funding Available! Financial Assistance up to $7,500

    September 17, 2021 Volume 1 Issue 25

    Top Stories

    • Story of Hope: Julie Richardson
    • Join us for an entire month of FREE
      educational programs in October,
      culminating in our Virtual Educational Forum! Register NOW!
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • Tomorrow! LLS Virtual National Blood Cancer Conference, Saturday, September 18th at 11:30AM U.S. ET
    • NORD Webinar
      Rare Cancers: Breaking Down Barriers to Diagnosis, Treatment and Research, September 30, 2021 at 2:00PM U.S. ET

    September 10, 2021 Volume 1 Issue 24

    Top Stories

    • IWMF Virtual Educational Forum REGISTER NOW!
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • Recording Double Feature! Dr. Jeffrey Matous & Dr. Mike Shomaker
    • LLS Virtual National Blood Cancer Conference, Saturday, September 18th
    • International Young WM Support Group September 20th at 7:30PM U.S. ET
    • CancerCare Article – Blood Cancers & Watchful Waiting

    September 4, 2021 Volume 1 Issue 23

    Top Stories

    • September is Blood Cancer Awareness Month
    • A Gift in Support of IWMF Research is an Investment in Your Future
    • IWMF Board Chair Interviewed in Healthline Article
    • IWMF Virtual Educational Forum
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • HOT OFF THE PRESS RECORDING! Dr. Edward A Stadtmauer

    August 27, 2021 Volume 1 Issue 22

    Top Stories

    • IWMF Virtual Educational Forum
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • HOT OFF THE PRESS RECORDING! LLS Report on COVID Vaccine Antibodies
    • LLS Virtual National Blood Cancer Conference, Saturday, September 18th at 11:30AM U.S. ET
    • Lymphoma Research Foundation North American Educational Forum on Lymphoma, October 15 – 17, 2021
    • Magnolia Purpose in Planning® A Connection to Practical, Financial & Legal Resources for those Affected by Cancer

    August 20, 2021 Volume 1 Issue 21

    Top Stories

    • Join us for an entire month of FREE educational programs in October, culminating in our Virtual Educational Forum!
    • Lymphoma Research Foundation (LRF) Webinar Update on COVID-19 Vaccination and the CDC Guidelines for Lymphoma and CLL Patients Monday, August 23rd at 1:00PM U.S. ET
    • The IWMF Announces an Addition to the WM Physicians Directory in Germany
    • Story of Hope Update: Marcia Klepac

    August 13, 2021 Volume 1 Issue 20

    Top Stories

    • WMUK Webinar: WM Laboratory Research. Monday, September 6th at 6:00PM BST (UK)
    • Story of Hope Update: Davell Hays
    • U.S. WM Patients: LLS Co-Pay Funding Available! Financial Assistance up to $7,500

    August 6, 2021 Volume 1 Issue 19

    Top Stories

    • Dr. Morie Gertz of the Mayo Clinic, Rochester, MN Discusses Hot Topics
    • WMUK Webinar: Bing Neel Syndrome, August 9, 2021 from 11:00AM – 12:00PM BST (UK)
    • Lymphoma Research Foundation Webinar: Caregiving for a Loved One With Lymphoma,August 19, 2021 at 2:00PM U.S. EDT
    • WM Chair Yoga – Continued Series! Join us Mondays in August at 2:00PM U.S. ET

    July 23, 2021 Volume 1 Issue 18

    Top Stories

    • Young Investigators Making a Difference in WM Research to be Recognized at this Year’s Virtual Educational Forum
    • Replay Available! ASCO Highlights with Dr. Sheeba K. Thomas.
    • Registration Open! LLS Virtual National Blood Cancer Conference. Saturday, September 18th at 11:30AM U.S. ET
    • Recording Available-Triage Cancer Webinar Emotional Overload: The Impact of a Cancer Diagnosis and Strategies for Self-Care
    • U.S. WM Patients: LLS Co-Pay Program Reopened!

    July 16, 2021 Volume 1 Issue 17

    Top Stories

    • IWMF Earns Coveted 4-Star Rating From Charity Navigator…Four Years in a Row!
    • International Young WM Support Session – July 19th, from 7:30PM-8:30PM U.S. EDT

    July 9, 2021 Volume 1 Issue 16

    Top Stories

      • IWMF WhiMSICAL Registry Abstract for ASH – Include YOUR WM Patient Voice by July 12th!
      • Triage Cancer Webinar – Emotional Overload: The Impact of a Cancer Diagnosis & Strategies for Self-Care
      • Lymphoma Research Foundation – Virtual National Ask the Doctor About Lymphoma and Clinical Trials
      • Story of Hope – Dr. Barbara Sunderland Manousso:
        Confessions of a Caregiver/Spouse/Ombuds

    July 2, 2021 Volume 1 Issue 15

    Top Stories

    • The July 2021 IWMF Torch (issue 22.3) is Now Online!
    • NEXT WEEK! IWMF Global Educational Webinar
    • WMUK Webinar: Bing Neel Syndrome – August 9, 2021 – 11:00AM – 12:00PM BST (UK)
    • National Institutes of Health (NIH) Online Survey

    June 25, 2021 Volume 1 Issue 14

    Top Stories

    • OVER 500 REGISTERED! IWMF Global Educational Webinar – July 9, 2021 at 1:30PM U.S. EDT
    • OWMUK Webinar: Clinical Trials – July 5, 2021
    • Triage Cancer Webinar – Emotional Overload: The Impact of a Cancer Diagnosis & Strategies for Self-Care
    • WhiMSICAL Registry Update: Help Us Reach Our Goal!
    • Young WM Support Session – July 19th

    June 11, 2021 Volume 1 Issue 13

    Top Stories

    • Cancer Legal Resource Center Webinar: Advanced Planning for People with Cancer June 17th
    • Recording Available! WhiMSICAL Registry Update
    • CanCope: Online Wellbeing Programs to Support Cancer Survivors After Treatment
    • Board Member of WMFC Raised Over $32,000 Walking for WM Research
    • Leukemia & Lymphoma Society U.S. National Patient Registry Update
    • Leukemia & Lymphoma Society Re-Opening of Patient Travel Assistance Fund

    May 28, 2021 Volume 1 Issue 12

    Top Stories

    • The IWMF is excited to share that we have a new platform host for our Virtual Events
    • Sick & Tired of Feeling Sick & Tired? RECORDING NOW AVAILABLE! IWMF Fatigue Support Session
    • WM Chair Yoga – Continued Series!

    May 21, 2021 Volume 1 Issue 11

    Top Stories

    • The IWMF is excited to share that we have a new platform host for our Virtual Events
    • THIS SUNDAY! FREE Mayo Clinic WM Patient Symposium
    • Lymphoma Research Foundation Ask the Doctor Session: Watch and Wait
    • Sick & Tired of Feeling Sick & Tired? RECORDING NOW AVAILABLE! IWMF Fatigue Support Session
    • U.S. Patient Financial Assistance Opportunity Patient Access Network (PAN) Foundation
    • Leukemia & Lymphoma Society Reopening of U.S. Patient Aid Program

    May 14, 2021 Volume 1 Issue 10

    Top Stories

    • IWMF Grant Spurs New Diagnostic Test for WM
    • THIS SUNDAY, May 16th! Bing-Neel Syndrome International Support Group
    • Sick & Tired of Feeling Sick & Tired? RECORDING NOW AVAILABLE! IWMF Fatigue Support Session
    • NEW PROGRAM: Young WM Support Session Coming Summer 2021!

    May 7, 2021 Volume 1 Issue 9

    Top Stories

    • May 6th – May 12th is National Nurses Week
    • Recording Available! Importance of Physical Activity in Preventing and Managing Chronic Disease
    • Replay Available! Living with Peripheral Neuropathy: No Easy Feat
    • Next Week! WMUK Webinar: WM & Mental Health
    • Reminder to Register Mayo Clinic WM Patient Symposium

    April 30, 2021 Volume 1 Issue 8

    Top Stories

    • Next Week! IWMF Global Educational Webinar
    • DEADLINE TO REGISTER IS MAY 1st! Free Online Conference for U.S. Patients
    • WMUK Webinar Monday, May 17, 2021
    • Rare Patient Voice: Now Accepting Residents From ALL Countries!

    April 23, 2021 Volume 1 Issue 7

    Top Stories

    • National Volunteer Week
    • Help WMF Canada Petition for Approval of Use of Zanubrutinib for WM Patients in their Country
    • Get Moving on Mondays in May! FREE Chair Yoga Sessions for the WM Community
    • Bing-Neel Syndrome International Support Group Sunday, May 16th/li>
    • Recording Available STEP INTO SPRING with Stacy Kennedy, MPH, RD, CSO, LDN!
    • Recording Available CancerCare Connect® Education Workshop Progress in the Treatment of WM
    • Over 450 Registered! IWMF Global Educational Webinar May 4, 2021 at 1:30PM U.S. ET

    April 2, 2021 Volume 1 Issue 4

    Top Stories

    • The April 2021 IWMF Torch (issue 22.2) is Now Online!
    • WMUK Cardiology Webinar with Dr. Chris Critoph
    • LLS Program: Blood Cancer Care & COVID-19

    March 26, 2021 Volume 1 Issue 3

    Top Stories

    • Story of Hope Sara Waits: Ten Lives and Counting
    • Save The Date Bing-Neel Syndrome International Support Group Sunday, May 16th /li>
    • NEXT WEEK! Ask the Doctors LIVE: WM and the COVID Vaccine
    • Presenting New and Revised IWMF Publications
    • LLS Program: New Treatments in WM featuring Dr. James Gerson and IWMF Patient Panel
    • LLS Program: WM Update featuring Dr. Steven Treon & Dr. Daren Grosman Saturday, April 10, 2021
    • Participate in LLS COVID-19 Antibody Research Study (U.S. Patients)

    March 12, 2021 Volume 1 Issue 2

    Top Stories

    • OVER 550 Registrants! IWMF Global Educational Webinar Wednesday, March 31st at 11:30am U.S. ET
    • CancerCare Connect® Education Workshop Progress in the Treatment of WM Wednesday, April 21st
    • Video of Dr. Richard Furman available from North America Support Group Leader Call on 3/3/21
    • New Options for Diffuse Large B-Cell Lymphoma (DLBCL)
    • The Leukemia & Lymphoma Society Launches New Financial Assistance Program (U.S. Patients Only)
    • New from Triage Cancer: Legal & Financial Navigation Program

    February 18, 2021 Volume 1 Issue 1

    Top Stories

    • The Leukemia & Lymphoma Society Launches National Patient Registry to Answer Crucial COVID-19 Questions for Blood Cancer Patients (U.S. Patients Only)
    • Upcoming Support Group Meetings

    December 1 2023, Volume 3 Issue 44

    Top Stories

    • Thanks to ALL who gave on #GivingTuesday
    • IWMF announces new partnership: House 086 from China
    • LLS Blood Cancer Conference 2024
    • Recordings available from WMFC Ed Forum
    • CancerCare Workshop: Coping with cancer during the holidays

    November 24 2023, Volume 3 Issue 43

    Top Stories

    • Next Tuesday is #GivingTuesday

    • Fatigue & Sleep Disturbance Webinar on Thursday the 30th

    • Rituxan development & treatment webinar: December 13

    • New Support Group Meeting on 11/29: WM & SMZL

    • Take the IWMF Wellness Program Survey

    November 17, 2023, Volume 3 Issue 42

    Top Stories

    • #GivingTuesday is November 28th
    • Coping with Fatigue and Sleep Disturbance on 11/30
    • Webinar Hosted by IWMF Sarasota Support Group on 12/13
    • Recording Available! IWMF Global Educational Webinar

    November 10, 2023, Volume 3 Issue 42

    Top Stories

    • #GivingTuesday is November 28th
    • European WM Patient Ed Forum Highlights Reel AND Recordings Available!
    • Registration Open! Coping with Fatigue and Sleep Disturbance November 30th
    • Save the Date! Cancer Care Workshop Coping with Cancer During the Holidays Wednesday, December 6

    November 3, 2023, Volume 3 Issue 41

    Top Stories

    • November is National Family Caregivers Month (NFCM)
    • Leukemia & Lymphoma Society Webinar Caregiving Over Coffee: Give Yourself Grace
    • NEW Specialty Support Group Meeting WM & SMZL
    • Join the IWMF Online community!

    October 27, 2023, Volume 3 Issue 40

    Top Stories

    • Walk for Waldenstrom’s Update
    • Patient Power Webinar on 11/2
    • BeiGene Webinar for Caregivers on 11/2
    • Bing-Neel Support Group- Registration Open!
    • Young WM Support Group- 11/13

    October 20, 2023, Volume 3 Issue 39

    Top Stories

    • European Patient Forum TOMORROW- catch the livestream!
    • Post-Ed Forum Cruise: Book your spot!
    • IWMF Global Educational Webinar on 11/8 with Dr. Fred Appelbaum
    • IWMF & NORD Financial Assistance Program

    October 13, 2023, Volume 3 Issue 38

    Top Stories

    • European Forum Next Week
    • IWMF Global Educational Webinar
    • Recording Available from TargetCancer Foundation

    October 6, 2023, Volume 3 Issue 37

    Top Stories

    • Walk for Waldenstrom’s Spotlights: Eastern Massachusetts & Chicago
    • Cathy Zimmerman: Running for Waldenstrom’s
    • October Wellness Gathering
    • Upcoming Triage Cancer Conferences

    September 29, 2023, Volume 3 Issue 36

    Top Stories

    • IWMF October Torch is Available!
    • IWMF CEO attends NCCN Conference
    • Walk for Waldenstrom’s Spotlights: Paul Kitchen & David Kahn
    • Recording Available! Sex & Cancer with Dr. Bober

    September 22, 2023, Volume 3 Issue 35

    Top Stories

    • World Cancer Research Day
    • Walk for Waldenstrom’s Spotlight: Julie Richardson
    • Lymphoma Research Foundation Ed Forum
    • IWMF Discussion Forums

    September 15, 2023, Volume 3 Issue 34

    Top Stories

    • Story of Hope: Mel from New Zealand
    • Walk for Waldenstrom’s Spotlight: Pete DeNardis
    • Next Week! Global Educational Webinar
    • LLS Nutrition Education Services Center

    September 8, 2023, Volume 3 Issue 33

    Top Stories

    • Steven Hadfield Visits U.S. White House to Speak on the Expansion of Medicare Drug Cost Controls
    • Medicare & Medicaid Listening Session for IMBRUVICA: November 6th
    • The IWMF Announces an Addition to the WM Physicians Directory in the U.S.

    September 1, 2023, Volume 3 Issue 32

    Top Stories

    • IWMF Home Office Closed on Labor Day Holiday in U.S.
    • September is Blood Cancer Awareness Month
    • IMPORTANT MESSAGE FROM IWMF LEADERSHIP
    • Walk for Waldenstrom’s With Us Throughout the Month of September!
    • Walk for Waldenstrom’s Spotlight: Lisa Wise & Ann MacMullan
    • Follow Paul Kitchen’s Walk for WM
    • IWMF Announces 2024 Cruise!

    August 25, 2023, Volume 3 Issue 31

    Top Stories

    • The IWMF Announces NEW Wellness Program Coordinator, Ann MacMullan!
    • WALK FOR WALDENSTROM’S SPOTLIGHT Don & Mary Brown: Chicago Area/SE Wisconsin
    • WMUK Wheels for Waldenstrom’s Off to the Races!
    • International Young WM Support Group Meeting, Tuesday, September 12th at 8:30PM U.S. ET

    August 18, 2023, Volume 3 Issue 30

    Top Stories

    • WALK FOR WALDENSTROM’S SPOTLIGHT: Minnesota & W. Wisconsin
    • The IWMF Announces an Addition to the WM Physicians Directory in the U.S.
    • There is Still Time to Register! European Patient Forum on Saturday, October 21st
    • August is National Make-A-Will Month
    • IWMF Global Educational Webinar: Thursday, September 21st from 12:30 – 1:45PM U.S. ET

    August 12, 2023, Volume 3 Issue 29

    Top Stories

    • WALK FOR WALDENSTROM’S SPONSORS
    • Story of Hope Update: Julianne & John Flora-Tostado: Our 49th Anniversary
    • Webinar Replay Available from BeiGene: Cancer & Mental Health
    • August is National Make-A-Will Month
    • IWMF Patient Perspective Video Series: Recruiting Volunteers for 2nd Installment

    August 11, 2023, Volume 3 Issue 28

    Top Stories

    • WALK FOR WALDENSTROM’S SPONSORS
    • Story of Hope Update: Julianne & John Flora-Tostado: Our 49th Anniversary
    • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
    • August is National Make-A-Will Month

    August 4, 2023, Volume 3 Issue 27

    Top Stories

    • WALK FOR WALDENSTROM’S SPOTLIGHT: Sarasota, Florida
    • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
    • August is National Make-A-Will Month 
    • Continuing Medical Education Program Completed

    July 28, 2023, Volume 3 Issue 26

    Top Stories

    • Coming in September: Monthly Wellness Gathering on Zoom
    • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
    • August is National Make-A-Will Month 
    • IWMF Lifeline Peer Support Directory

    July 21, 2023, Volume 3 Issue 25

    Top Stories

    • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
    • WALK FOR WALDENSTROM’S UPDATE
    • From the Leukemia & Lymphoma Society: New Podcast on Beneficial Medicare Changes
    • Upcoming Triage Cancer Webinar: Engaging in Self-Advocacy
    • From The Leukemia & Lymphoma Society: New Financial Assistance Online Portal Launched

    July 7, 2023, Volume 3 Issue 24

    Top Stories

    • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
    • IWMF & NORD Financial Assistance Program EXPANSION!
    • *NEW* Patient Perspective YouTube Video Series: From Sharon Piotrowski, WM Community Member
    • A Tribute to Dr. Steven Treon – 25 Years at Dana-Farber Cancer Institute!

    June 28, 2023, Volume 3 Issue 23

    Top Stories

    • Starting in September, IWMF Monthly Wellness Gathering on Zoom
    • Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st
    • Walk for Waldenstrom’s Spotlight: Mission Viejo, California
    • Leukemia & Lymphoma Society Co-Pay Assistance Fund OPEN for U.S. Patients

    June 23, 2023, Volume 3 Issue 22

    Top Stories

    • New Modernized ClinicalTrials.gov Website
    • Video Available! Kicking the Tires on Clinical Trials: Important Questions to Ask and Things to Consider Before Enrolling in a Clinical Trial
    • Learn about the Waldenström Finland Ry group’s annual patient meeting
    • Join the IWMF Online Community!
    • Check out the IWMF Wellness Calendar!

    June 16, 2023, Volume 3 Issue 21

    Top Stories

    • The IWMF is proud to share a new publication for Young WM Patients
    • The IWMF Welcomes Two New Team Members

    • Triage Cancer Podcast Available
    • Join the IWMF Online Community!
    • IWMF Second Opinion Financial Assistance Program in Partnership with NORD

    June 9, 2023, Volume 3 Issue 20

    Top Stories

    • Walk for WM
    • Story of Hope Update

    • WMUK Webinar on July 12th
    • IWMF Survey Opportunity

    June 2, 2023, Volume 3 Issue 19

    Top Stories

    • Survey Opportunity to Help WM Patients in Canada

    • Podcast Available from CancerCare
    • Next Week: US Military Veteran Discussion Group

    May 26, 2023, Volume 3 Issue 18

    Top Stories

    • Lymphoma Coalition: Report Card on Lymphomas

    • Paid Research Opportunity
    • Recording Available ! Cardio Flow for WM
    • WM People of Color Support Group

    May 19, 2023, Volume 3 Issue 17

    Top Stories

    • NEW Fact Sheet from the IWMF
    • New Translated Publication Available!
    • Recordings Available!
    • WM People of Color Support Group
    • Save The Date: WM Veterans Discussion Group

    May 12, 2023, Volume 3 Issue 16

    Top Stories

    • Brukinsa Update for WM Patients in China
    • CancerCare Webinar
    • International Young WM Support Group Meeting
    • The Patient Access Network (PAN) Foundation:WM Fund OPEN for Eligible U.S. Patients!

    May 5, 2023, Volume 3 Issue 15

    Top Stories

    • May is National Cancer Research Month
    • Brukinsa Update for WM Patients in Korea
    • 2 Year Anniversary of WM Community Yoga
    • IWMF Second Opinion Financial Assistance
    • Webinar from Lymphoma Research Foundation

    April 28, 2023, Volume 4 Issue 14

    Top Stories

    • IWMF Educational Forum- THANK YOU
    • US FDA Authorizes Second Bivalent Booster for COVID-19
    • Cardio Flow- TODAY at 2PM U.S. ET
    • Waldenstrom India Launches New Website
    • Waldenström France to Hold June Meeting in Paris

    April 14, 2023, Volume 3 Issue 13

    Top Stories

    • Webinar from Rare Disease Legislative Advocates:
    • TODAY AT 2:00 PM U.S. ET! Sound Meditation for WM
    • Veteran Dental Assistance for U.S. Patients

    April 7, 2023, Volume 3 Issue 12

    Top Stories

    • Bing-Neel Recording Available
    • IWMF Second Opinion Financial Assistance Program in Partnership with NORD
    • The Patient Access Network (PAN) Foundation:WM Fund OPEN for Eligible U.S. Patients!
    • U.S. Citizens: Donating Your IRA Required Minimum Distribution

    March 31, 2023, Volume 3 Issue 11

    Top Stories

    • $199 Rate EXTENDED through April 7th!
    • The April Torch magazine is now available!
    • International Bing-Neel Support Group Meetings

    March 17, 2023, Volume 3 Issue 10

    Top Stories

    • Come Meet Us in St. Louis at the Ed Forum!
    • New Article from Lymphoma Hub
    • Triage Cancer Webinar: Managing Medical Bills
    • International Bing-Neel Support Group Meetings

    March 10, 2023, Volume 3 Issue 9

    Top Stories

    • Join 132 In-Person Registrants at our Ed Forum!
    • Visual Abstract Published on the Lymphoma Hub in Collaboration with IWMF and SES
    • IWMF and Patient Access Network (PAN) Webinar
    • Leukemia & Lymphoma Society Webinar
    • Lymphoma Research Foundation Webinar
    • Financial Assistance for Calquence (acalabrutinib)

    March 3, 2023, Volume 3 Issue 8

    Top Stories

    • The IWMF Welcomes New Staff Member
    • IWMF Board of Trustees Meet
    • THE IWMF ED FORUM IS NEXT MONTH!
    • IWMF and Patient Access Network (PAN) Webinar
    • WM Veteran Support Group
    • International Bing-Neel Support Group Meetings

    February 24, 2023, Volume 3 Issue 7

    Top Stories

    • Rare Disease Day is February 28th!
    • REGISTER TODAY FOR THE IWMF ED FORUM
    • HealthWell Foundation Reopens WM Fund
    • Recording Available: Sound Meditation for WM
    • International Young WM Support Group Meeting

    February 17, 2023, Volume 3 Issue 6

    Top Stories

    • RAFFLE NEXT WEEK!
    • RVideo From Cancer Support Community
    • Sound Meditation for WM
    • For Caregivers: Transcript Available from the LLS

    February 10, 2023, Volume 3 Issue 5

    Top Stories

    • Rare Disease Day is February 28th
    • Rare Disease Week on Capitol Hill
    • Register today for the IWMF Ed Forum!
    • Triage Cancer Webinar on Medical Bills
    • WM Community Yoga Recordings Available

    February 3, 2023, Volume 3 Issue 4

    Top Stories

    • World Cancer Day is February 4th
    • Ed Forum Raffle Taking Place on February 20th!
    • Podcasts Available with our Friends in the UK
    • WM People of Color Support Group
    • LLS Free One-on-One Nutrition Consultations

    January 27, 2023, Volume 3 Issue 3

    Top Stories

    • REGISTRATION OPEN! IWMF 2023 Ed Forum
    • Recording Available! IWMF Global Educational Webinar with Dr. Jorge Castillo
    • WM Veterans Support Group- Save the Date
    • World Cancer Day- Next Week
    • WM Community Corner- LLS Florida BCC recap

    January 13, 2023, Volume 3 Issue 2

    Top Stories

    • REGISTRATION OPENS NEXT WEEK! IWMF 2023 Ed Forum
    • IWMF Global Educational Webinar – Next Week 
    • International Young WM Support Group Meeting
    • WM People of Color Support Group
    •  Free Resource for Financial Navigation & Support

    January 6, 2023, Volume 3 Issue 1

    Top Stories

    • IWMF Global Educational Webinar
    • Leukemia & Lymphoma Society Webinar
    • WM People of Color Support Group

    December 30, 2022 Volume 2 Issue 50

    Top Stories

    • Happy New Year from the IWMF
    • IWMF Torch January Issue is NOW available online!
    • IWMF Global Educational Webinar
    • International Young WM Support Group

    December 23, 2022 Volume 2 Issue 49

    Top Stories

    • Holiday Message from the IWMF
    • IWMF Global Educational Webinar
    • Recording Available from the LLS
    • IWMF Board Trustee and WM Expert Receives Award from The Leukemia & Lymphoma Society

    December 16, 2022 Volume 2 Issue 48

    Top Stories

    • IWMF Issues 2021 Annual Report
    • Registration Open: IWMF Global Educational Webinar with Dr. Jorge Castillo
    • Yoga Nidra Recording Available

    December 9, 2022 Volume 2 Issue 47

    Top Stories

    • Do you Have Extramedullary Disease?
    • Centers for Disease Control and Prevention
    • CancerCare Connect: Diffuse Large B-Cell Lymphoma Treatment Updates
    • Want to Learn How to Participate in IWMF Patient Discussion Groups? We Need YOU!
    • Helpful Resource: Neuropathy Toolkit

    December 2, 2022 Volume 2 Issue 46

    Top Stories

    • GivingTuesday – THANK YOU
    • End of Year Giving
    • Story of Hope: Laurence Elliott
    • Webinar: How Stock Giving Benefits You

    November 23, 2022 Volume 2 Issue 45

    Top Stories

    • GivingTuesday is on November 29th
    • IWMF Board of Trustees Meet to Discuss 2023
    • IWMF Welcomes Two New Board Members
    • Want to Learn How to Participate in IWMF Patient Discussion Groups?
    • Friday Offering : Cardio Flow with Ann

    November 18, 2022 Volume 2 Issue 44

    Top Stories

    • Mark your Calendar! GivingTuesday is on November 29th
    • A Message from the IWMF Home Office Team
    • BeiGene Launches Talk About It Program to Elevate the Importance of Addressing Mental Health during Cancer Care 
    • Good News for WM Patients in Scotland!
    • WM Vietnam Veterans Discussion Group

    November 11, 2022 Volume 2 Issue 43

    Top Stories

    • GivingTuesday is on November 29th
    • From CancerCare: Shared Decision Making Series
    • WMUK Patient Doctor Summit
    • Yoga Nidra with Ann-THIS Sunday!
    • Support the IWMF through Amazon Smile

    November 4, 2022 Volume 2 Issue 42

    Top Stories

    • IWMF Board Chair Interviewed by CureTalks
    • Here Are Some Things YOU Should Know!
    • International Affiliates Meet in Madrid at IWWM-11
    • Young WM International Support Group Meeting
    • Support the IWMF through Amazon Smile

    October 28, 2022 Volume 2 Issue 41

    Top Stories

    • IWMF at IWWM-11 in Madrid, Spain
    • Recording Available! LLS Research Now
    • FreeWill webinar: How Stock Giving Benefits You
    • WM Community Corner- Ron Ternoway featured in podcast!
    • New Discussion Group: WM Vietnam Veterans

    October 22, 2022 Volume 2 Issue 40

    Top Stories

    • Your IRA, Your Impact
    • Next Weekend- LRF Ed Forum
    • GRYT Health Virtual Conference 11/2-11/5
    • This Sunday: Extramedullary Disease Discussion Group
    • TODAY: Sound Meditation for WM
    • Cardio Flow for WM Recording Available

    October 14, 2022 Volume 2 Issue 39

    Top Stories

    • Story of Hope Update- Martin Vanderlaan
    • National Estate Planning Week- October 17-23
    • Next Week- LLS COVID Webinar
    • LRF Educational Forum, October 28-30th
    • Hot of The Press Recording Available! Peripheral Neuropathy

    October 7, 2022 Volume 2 Issue 38

    Top Stories

    • The October IWMF Torch is Now Online!
    • IWMF Team Walk for Waldenstrom’s
    • Patient Access Network Webinar
    • Next Wednesday- Peripheral Neuropathy Support Session
    • Chris Edgerton Completes his Bike Ride from Vancouver to Whistler

    September 30, 2022 Volume 2 Issue 37

    Top Stories

    • Rare Cancer Day is Today!
    • IWMF Staff Safe from Hurricane Ian
    • Amazon Smile
    • Sound Meditation & Yoga Nidra Recordings Available
    • WM People of Color & Bing-Neel Support Groups

    September 23, 2022 Volume 2 Issue 36

    Top Stories

    • Thanks to all who participated in the Walk for Waldenstrom’s last weekend!
    • The IWMF Board Chair is Sharing his WM Story
    • Rare Cancer Day is Next Friday, September 30th!
    • BIG News for WM Patients in the United Kingdom!

    September 16, 2022 Volume 2 Issue 35

    Top Stories

    • Walk for Waldenstrom’s this weekend!
    • SAVE THE DATE! Peripheral Neuropathy Support Group Meeting, October 12th, 2022
    • TODAY- Cardio Flow for WM at 2:00PM U.S. ET
    • Leukemia & Lymphoma Society National Blood Cancer Conference

    September 9, 2022 Volume 2 Issue 34

    Top Stories

    • Walk for Waldenstrom’s
    • Join Alix for a Pre- Walk for WM Exercise Class September 13th!
    • The IWMF and Scientific Education Support (SES) Announce New Strategic Collaboration
    • WMF Survey Closes September 30th Reminder: Please complete the IWMF Needs Assessment Survey. Your opinion matters!
    • Patient Perspective Video Series. WE ARE LOOKING FOR YOU!

    September 2, 2022 Volume 2 Issue 33

    Top Stories

    • September is Blood Cancer Awareness Month
    • Walk for Waldenstrom’s
    • View the 27th IWMF Educational Forum on demand!
    • Leukemia & Lymphoma Society National Blood Cancer Conference
    • Leukemia & Lymphoma Society Free One-on-One Nutrition Consultations
    • The Patient Access Network (PAN) Foundation: WM Fund OPEN for Eligible U.S. Patients!

    August 26, 2022 Volume 2 Issue 32

    Top Stories

    • THIS WEEKEND the 27th IWMF Educational Forum!
    • Walk for Waldenstrom’s
    • U.S. Community Members: Make your Mark this Month with Freewill
    • Recording Available! Sound Meditation for WM

    August 19, 2022 Volume 2 Issue 31

    Top Stories

    • Register now for the 27th IWMF Educational Forum! ONE WEEK AWAY!
    • U.S. Community Members: Make your Mark this Month with Freewill
    • Young WM International Support Group
    • Walk for Waldenstrom’s
    • Recording Available: Yoga Nidra with Ann

    August 12, 2022 Volume 2 Issue 30

    Top Stories

    • Registration open for the 27th IWMF Educational Forum! TWO WEEKS AWAY
    • U.S. Community Members: Make your Mark this Month with Freewill
    • NEW OFFERING! Sound Meditation for WM
    • Three Easy Ways YOU Can Make a Difference Now
    • Walk for Waldenstrom’s

    August 5, 2022 Volume 2 Issue 29

    Top Stories

    • Registration open for the 27th IWMF Educational Forum!
    • New IWMF Survey: Your Input is Needed!
    • Three Easy Ways YOU Can Make a Difference Now
    • Cardio Flow for WM next Friday, August 12th at 2:00PM U.S. EDT!

    July 29, 2022 Volume 2 Issue 28

    Top Stories

    • Registration open for the 27th IWMF Educational Forum!
    • WhiMSICAL Patient Registry Update for IWWM-11
    • WM Yoga & WM Cardio Flow Class Updates
    • The Walk for Waldenstrom’s

    July 22, 2022 Volume 2 Issue 27

    Top Stories

     

    • Registration open for the 27th IWMF Educational Forum!
    • LAST CALL to Contribute to IWWM-11 with YOUR Patient Data!
    • Leukemia & Lymphoma Society: Interactive 3D Model Library
    • The Patient Access Network (PAN) Foundation: WM Fund OPEN for Eligible U.S. Patients!
    • CancerCare Program for U.S. Patients: Pet Assistance & Wellness (PAW) Program 

    July 15, 2022 Volume 2 Issue 26

    Top Stories

    • Recording available! Understanding Your Blood and Bone Marrow Test Results: Rebroadcast with NEW LIVE Q&A!
    • Registration open for the 27th IWMF Educational Forum!
    • Presenting Two New IWMF Publications!
    • Wanda Huskins Story of Hope Update

    July 8, 2022 Volume 2 Issue 25

    Top Stories

    • Alix Redmonde Joins IWMF Home Office Staff
    • Next week! Understanding Your Blood and Bone Marrow Test Results: Rebroadcast with NEW LIVE Q&A!
    • Registration open for the 27th IWMF Educational Forum!

    July 1, 2022 Volume 2 Issue 24

    Top Stories

    • The July 2022 IWMF Torch (issue 23.3) now online!
    • Registration open for the 27th IWMF Educational Forum!
    • WhiMSICAL Investigators Invited to Present WM Patient-Entered Data to the World’s WM Experts at IWWM-11! 
    • Understanding Your Blood and Bone Marrow Test Results: Rebroadcast with NEW LIVE Q&A!

    June 24, 2022 Volume 2 Issue 23

    Top Stories

    • Registration Open! Understanding Your Blood and Bone Marrow Test Results
    • Registration open for the 27th IWMF Educational Forum!
    • Cardio Flow for WM Friday, July 1st 

    June 17, 2022 Volume 2 Issue 22

    Top Stories

    • Registration Open! Understanding Your Blood and Bone Marrow Test Results
    • Free Webinar from Triage Cancer: Engaging in Policy & Legislative Advocacy
    • Recording available: Genomics/Science of WM
    • Leukemia & Lymphoma Society Fact Sheet
    • GRYT Health Recording Available – Frankly Speaking About Cancer: Why Cant I Stay Positive?

    June 10, 2022 Volume 2 Issue 21

    Top Stories

    • June 5th is National Cancer Survivors Day®
    • Registration Open! IWMF Ed Forum Primer Series – Part II – Genomics/Science of WM
    • Replay Available! CancerCare Connect® Education Workshop
    • Leukemia & Lymphoma Society Webinar: Caregiving Over Coffee

    June 3, 2022 Volume 2 Issue 20

    Top Stories

    • June 5th is National Cancer Survivors Day®
    • Registration Open! IWMF Ed Forum Primer Series – Part II – Genomics/Science of WM
    • Replay Available! CancerCare Connect® Education Workshop
    • Leukemia & Lymphoma Society Webinar: Caregiving Over Coffee

    May 27, 2022 Volume 2 Issue 19

    Top Stories

    • Registration Open! IWMF Ed Forum Primer Series – Part II – Genomics/Science of WM
    • WhiMSICAL Delivers the Goods! Key Findings Summarized by Dr. Ibrahim Tohidi
    • New Pilot Program on June 3rd and June 17th! Cardio Flow for WM

    May 20, 2022 Volume 2 Issue 18

    Top Stories

    • Registration Open! IWMF Ed Forum Primer Series – Part II – Genomics/Science of WM
    • Recording available of the WM and Basic Terminology webcast!
    • CancerCare Connect® Education Workshop, May 25, 2022
    • New Pilot Program on June 3rd and June 17th! Cardio Flow for WM

    May 13, 2022 Volume 2 Issue 17

    Top Stories

    • The 2022 Giving Challenge: Thank you!
    • Next week the WM and Basic Terminology webcast!
    • Young WM International Support Group Meeting
    • Yoga Nidra Recording Available

    May 6, 2022 Volume 2 Issue 16

    Top Stories

    • Register for May 18th the WM and Basic Terminology webcast!
    • GRYT Health Webinar Series: Mental Health
    • Waldenstrom’s Macroglobulinemia (WM): Treatment Progress Workshop
    • Free Downloadable Resource from Triage Cancer:
      Medical Bill Tracker

    April 29, 2022 Volume 2 Issue 15

    Top Stories

    • Register for May 18th the WM and Basic Terminology webcast!
    • Patient Empowerment Network (PEN) Webinar
    • Story of Hope Update-Bob Lynch
    • Triage Cancer Conferences

    April 15, 2022 Volume 2 Issue 14

    Top Stories

    • Julie Richardson – A Mother’s Story
    • IWMF Support Groups

    April 8, 2022 Volume 2 Issue 13

    Top Stories

    • GIVING CHALLENGE 2022
      Mark Your Calendar!
      Donations made to the IWMF
      during the 2022 Giving Challenge
      will be TRIPLE matched.
    • Patient Empowerment Network (PEN) Webinar
      May 3rd at 1:00PM U.S. EDT
    • Story of Hope: Arno Muller
    • Show Us Your IWMF Swag
    • We Need YOUR Voice

    April 1, 2022 Volume 2 Issue 12

    Top Stories

    • GIVING CHALLENGE 2022
      Mark Your Calendar!
      Donations made to the IWMF
      during the 2022 Giving Challenge
      will be TRIPLE matched.
    • The April 2022 IWMF Torch (Issue 23.2)
      is Now Online!
    • Recording Available!
      IWMF Global Educational Webinar.
      An Overview of Amyloidosis and WM with Dr. Morie Gertz/li>

    • Hot off the Press!
      New Video Available with Dr. Shayna Sarosiek
      Covid Antibodies, CAR-T & More…
      Can We Feel Hopeful this Spring?
    • Recording Available!
      Bing Neel Syndrome Featuring Dr. Shirley D’Sa
    • Lymphoma Coalition 2022 Global Patient Survey
      Week 7 Update
    • Calling all Caregivers!
      Caregivers International Support Session
      Wednesday, April 6th from 1:00PM-3:00PM U.S. ET
    • We Need YOUR Voice

    March 25, 2022 Volume 2 Issue 11

    Top Stories

    • GIVING CHALLENGE 2022
      Mark Your Calendar!
      Donations made to the IWMF
      during the 2022 Giving Challenge
      will be TRIPLE matched.
    • Next Week! IWMF Global Educational Webinar
      An Overview of Amyloidosis and WM with Dr. Morie Gertz
    • Next Tuesday! The LLS-IWMF Living Well with WM Program
    • Hot off the Press!
      New Video Available with Dr. Shayna Sarosiek
      Covid Antibodies, CAR-T & More…
      Can We Feel Hopeful this Spring?
    • Recording Available!
      Patient Empowerment Network Webinar
    • Don’t Forget: Vaccinations, Boosters, Infections?
      WhiMSICAL Needs YOUR Help to answer the question!
    • Calling all Caregivers!
      Caregivers International Support Session
      Wednesday, April 6th from 1:00PM-3:00PM U.S. ET

    • Leukemia & Lymphoma Society
      Free One-on-One Nutrition Consultations

    March 18, 2022 Volume 2 Issue 10

    Top Stories

    • GIVING CHALLENGE 2022
      Mark Your Calendar!
      Donations made to the IWMF
      during the 2022 Giving Challenge
      will be TRIPLE matched.
    • Next Week!
      Patient Empowerment Network Webinar
      March 22nd at 1:00PM U.S. ET
    • IWMF Global Educational Webinar
      An Overview of Amyloidosis and WM with Dr. Morie Gertz
    • Next Tuesday! The LLS-IWMF Living Well with WM Program
    • Leukemia & Lymphoma Society
      Clinical Trial Nurse Navigator Program

    March 11, 2022 Volume 2 Issue 9

    Top Stories

    • Lymphoma Coalition 2022 Global Patient Survey
      Week 4 Update
    • Reminder: Vaccinations, Boosters, Infections?
      WhiMSICAL Needs YOUR Help to answer the question!
    • Recording Available!
      WMUK Peripheral Neuropathy Webinar
    • Registration is Open!
      IWMF Global Educational Webinar
      An Overview of Amyloidosis and WM with Dr. Morie Gertz
    • Next Tuesday! The LLS-IWMF Living Well with WM Program
    • Young WM Support Group Meeting
      Monday, March 14th at 7:30PM U.S. ET

    March 4, 2022 Volume 2 Issue 8

    Top Stories

    • NCCN Patient Guidelines for WM Now Available
    • Patient Empowerment Network Webinar
      March 22nd at 1:00PM U.S. ET
    • A Virtual Educational Conference for Patients, Caregivers and Healthcare Professionals. Tuesday, March 15, 2022
      5:30PM – 7:00PM U.S. Eastern Time
    • Registration is Open!
      IWMF Global Educational Webinar
      An Overview of Amyloidosis and WM with Dr. Morie Gertz
    • Bing-Neel International Support Sessions
      2:30PM and 7:00PM U.S. ET on March 20th
    • Caregivers International Support Session
      Wednesday, April 6th from 1:00PM-3:00PM U.S. ET

    February 18, 2022 Volume 2 Issue 6

    Top Stories

    • Lymphoma Coalition Launches the 8th Global Patient Survey on Lymphoma & CLL
    • BeiGene Announces Approval for Brukinsa (zanubrutinib) by Swissmedic for
      Treatment of WM
    • US FDA Approves First Treatment for
      Cold Agglutinin Disease
    • NEXT WEEK!
      The LLS-IWMF Living Well with WM Free Virtual Program
      February 23, 2022 at 6:30PM U.S. ET
    • WMUK Webinar
      Physio for Peripheral Neuropathy
      Thursday, March 3rd at 6:00PM GMT

    February 11, 2022 Volume 2 Issue 5

    Top Stories

    • *NEW* Abbreviated COVID-19 Letter to Share with Hospitals for Emergency Medical Events
    • Lymphoma Coalition Launches the 8th Global Patient Survey on Lymphoma & CLL
    • Recording Available! ASH Highlights
      with Dr. Sikander Ailawadhi
    • The LLS-IWMF Living Well with WM
      Free Virtual Program
      February 23, 2022 at 6:30PM U.S. ET
    • Story of Hope: Margit Novack
    • New Support Group Alert!
      Ibrutinib-Venetoclax Clinical Trial Support Session
      February 13, 2022 at 12:00 Noon U.S. ET

    February 4, 2022 Volume 2 Issue 4

    Top Stories

    • Today is World Cancer Day!
    • NEXT WEEK!
      IWMF Global Educational Webinar
      February 8, 2022 at 11:30AM U.S. ET
    • CancerCare Connect Eduction Workshop
      COVID-19, Omicron & Delta Variants, COVID-19 Vaccines & Booster Vaccines: Revised Guidelines for People Living with Cancer & Their Loved Ones
    • The LLS-IWMF Living Well with WM
      Free Virtual Program
      February 23, 2022 at 6:30PM U.S. ET
    • Recording Available!
      Peripheral Neuropathy Support Session
    • New Support Group Alert!
      Ibrutinib-Venetoclax Clinical Trial Support Session
      February 13, 2022 at 12:00 Noon U.S. ET

    January 28, 2022 Volume 2 Issue 3

    Top Stories

    • IWMF Global Educational Webinar
      February 8, 2022 at 11:30AM U.S. ET

    January 21, 2022 Volume 2 Issue 2

    Top Stories

    • World Cancer Day February 4, 2022
    • Registration Open!
      IWMF Global Educational Webinar
      February 8, 2022 at 11:30AM U.S. ET
    • CancerCare Connect Eduction Workshop
      COVID-19, Omicron & Delta Variants, COVID-19 Vaccines & Booster Vaccines: Revised Guidelines for People Living with Cancer & Their Loved Ones
    • NEXT WEEK!
      Peripheral Neuropathy Support Session
      January 26th, 2022 from 1:00PM – 3:00PM U.S. ET
    • Leukemia & Lymphoma Society
      Co-Pay Assistance Available for U.S. Patients!

    January 7, 2022 Volume 2 Issue 1

    Top Stories

    • Shop for Your IWMF Swag at Our New Store!
    • The January 2022 IWMF Torch (Issue 23.1)
      is Now Online!
    • From Patient Resource:
      Writing Therapy Offers Many Positive Benefits
    • WM Community Yoga Classes Continue in 2022!
      Mondays at 2:00PM U.S. Eastern Time
    • New Free Offering for WM Patients-
      Monthly Yoga Nidra!

    December 24, 2021 Volume 1 Issue 37

    Top Stories

    • CancerCare Connect Eduction Workshop
      COVID-19, Omicron & Delta Variants, COVID-19 Vaccines & Booster Vaccines: Revised Guidelines for People Living with Cancer & Their Loved Ones
    • CancerCare Workshop Date and Time
      Monday, February 7, 2022, 1:30 – 2:30 pm, U.S. Eastern Time
    • Rare Patient Voice
      Survey Opportunity for U.S. Patients
    • Registration Open!
      Peripheral Neuropathy Support Session
      January 26th, 2022 from 1:00PM – 3:00PM U.S. ET
    • Shop while Supporting the IWMF

    December 17, 2021 Volume 1 Issue 36

    Top Stories

    • WM Practice Medical Guidelines and Research Articles on the IWMF Website
    • Dr. Stephen Ansell of Mayo Clinic Recognized with the 2021 Ernest Beutler Lecture and Prize
    • Video Available!
      WM Advances in Treatment with CureTalks Panel
    • Save the Date & Register Today!

    • LLS Virtual Florida Blood Cancer Conference
      February 12, 2022 from 9:30AM – 1:30PM U.S. ET
    • Registration Open!
      Peripheral Neuropathy Support Session
      January 26th, 2022 from 1:00PM – 3:00PM U.S. ET
    • Registration Open!
      Peripheral Neuropathy Support Session
      January 26th, 2022 from 1:00PM – 3:00PM U.S. ET

    December 12, 2021 Volume 1 Issue 35

    Top Stories

    • WhiMSICAL Registry Patient-Entered Data Presented at ASH 2021 Conference!
    • NCCN Guidelines Update
    • Shop while Supporting the IWMF

    December 3, 2021 Volume 1 Issue 34

    Top Stories

    • New Videos Available on Transformation
      and Bing-Neel Syndrome
    • Union for International Cancer Control Webinar
      Prehabilitation – Multimodal Interventions to Improve Resilience and Response to Treatment in Cancer
    • Leukemia & Lymphoma Society Webinar Blood Cancers: Managing Side Effects
    • THANK YOU to All Who Gave on Giving Tuesday!

    November 26, 2021 Volume 1 Issue 33

    Top Stories

    • Story of Hope Update from Canada- Ron Ternoway: The Clinical Trials Continue!
    • Shop while Supporting the IWMF
    • Giving Tuesday is November 30th
    • Healthy Communication Practice for Caregivers of a Parent with a Blood Cancer in the US: Recruiting Individuals for an Online Study

    November 18, 2021 Volume 1 Issue 32

    Top Stories

    • 2021 IWMF Educational Forum Recordings Available for your Convenience!
    • Medscape Covers the IWMF 2021 Ed Forum
    • IWMF Research Grant Opportunities
    • Bing-Neel International Support Group Meetings

    November 12, 2021 Volume 1 Issue 31

    Top Stories

  • 2021 IWMF Educational Forum Recordings Available for your Convenience!
  • WMUK Patient-Doctor Summit Saturday, November 13th. Register Today!
  • REPORT NOW AVAILABLE: Rory Morrison WMUK Registry Report
  • International Young WM Support Group November 15th at 7:30PM U.S. ET
  • Leukemia & Lymphoma Society Co-Pay Assistance Program Enhancements!
  • November 5, 2021 Volume 1 Issue 30

    Top Stories

    • National Family Caregivers Month
    • 2021 IWMF Educational Forum Follow up and Recording Updates
    • Triage Cancer Webinar for U.S. Patients: Make Ahead Holiday Recipes that Nourish the Body & Soul
    • WMUK Patient-Doctor Summit Saturday, November 13th. Register Today!
    • Community Corner
    • International Young WM Support Group November 15th at 7:30PM U.S. ET

    October 22, 2021 Volume 1 Issue 29

    Top Stories

    • CATCH UP ON THE LATEST- IWMF Ed Forum Workshop Recordings & Slides Available for your Convenience!
    • Ed Forum Speakers- October 28th & 29th

    October 15, 2021 Volume 1 Issue 28

    Top Stories

    • CATCH UP ON THE LATEST- IWMF Ed Forum Workshop Recordings & Slides Available for your Convenience!
    • October 28th and 29th! Ed Forum! Register Today and then Reserve Your Seat!
    • Exciting Addition to the 2021 Ed Forum Agenda: A Review of NCCN Guidelines for WM
    • Leukemia & Lymphoma Society Webinar
      Cancer Treatment: How to Make Informed Choices about Standard Care and
      Clinical Trials
      November 2, 2021 at 6:00PM U.S. ET

    October 8, 2021 Volume 1 Issue 27

    Top Stories

    • Dr. Steven Treon Presents: Timely Updates in the Treatment of Waldenstrom’s Macroglobulinemia
    • BeiGene Announces First Regulatory Approval in Australia for BRUKINSA® (Zanubrutinib) for Treatment of Patients with WM
    • Bing-Neel International Support Group Meetings
      November 21, 2021 at 12PM and 7PM U.S. ET
    • WM Community Yoga Classes Continued Throughout 2021!

    October 1, 2021 Volume 1 Issue 26

    Top Stories

    • The fourth issue of the 22nd volume of the IWMF Torch is now online!
    • Join us for an entire month of FREE
      educational programs in October,
      culminating in our Virtual Educational Forum! Register NOW!
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • 2021 WMUK Patient-Doctor Summit November 13, 2021
    • WM Community Corner
    • U.S. WM Patients: LLS Co-Pay Funding Available! Financial Assistance up to $7,500

    September 17, 2021 Volume 1 Issue 25

    Top Stories

    • Story of Hope: Julie Richardson
    • Join us for an entire month of FREE
      educational programs in October,
      culminating in our Virtual Educational Forum! Register NOW!
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • Tomorrow! LLS Virtual National Blood Cancer Conference, Saturday, September 18th at 11:30AM U.S. ET
    • NORD Webinar
      Rare Cancers: Breaking Down Barriers to Diagnosis, Treatment and Research, September 30, 2021 at 2:00PM U.S. ET

    September 10, 2021 Volume 1 Issue 24

    Top Stories

    • IWMF Virtual Educational Forum REGISTER NOW!
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • Recording Double Feature! Dr. Jeffrey Matous & Dr. Mike Shomaker
    • LLS Virtual National Blood Cancer Conference, Saturday, September 18th
    • International Young WM Support Group September 20th at 7:30PM U.S. ET
    • CancerCare Article – Blood Cancers & Watchful Waiting

    September 4, 2021 Volume 1 Issue 23

    Top Stories

    • September is Blood Cancer Awareness Month
    • A Gift in Support of IWMF Research is an Investment in Your Future
    • IWMF Board Chair Interviewed in Healthline Article
    • IWMF Virtual Educational Forum
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • HOT OFF THE PRESS RECORDING! Dr. Edward A Stadtmauer

    August 27, 2021 Volume 1 Issue 22

    Top Stories

    • IWMF Virtual Educational Forum
    • DO YOU HAVE A QUESTION FOR OUR ED FORUM MONTH PRESENTERS? MAKE YOUR VOICE HEARD!
    • HOT OFF THE PRESS RECORDING! LLS Report on COVID Vaccine Antibodies
    • LLS Virtual National Blood Cancer Conference, Saturday, September 18th at 11:30AM U.S. ET
    • Lymphoma Research Foundation North American Educational Forum on Lymphoma, October 15 – 17, 2021
    • Magnolia Purpose in Planning® A Connection to Practical, Financial & Legal Resources for those Affected by Cancer

    August 20, 2021 Volume 1 Issue 21

    Top Stories

    • Join us for an entire month of FREE educational programs in October, culminating in our Virtual Educational Forum!
    • Lymphoma Research Foundation (LRF) Webinar Update on COVID-19 Vaccination and the CDC Guidelines for Lymphoma and CLL Patients Monday, August 23rd at 1:00PM U.S. ET
    • The IWMF Announces an Addition to the WM Physicians Directory in Germany
    • Story of Hope Update: Marcia Klepac

    August 13, 2021 Volume 1 Issue 20

    Top Stories

    • WMUK Webinar: WM Laboratory Research. Monday, September 6th at 6:00PM BST (UK)
    • Story of Hope Update: Davell Hays
    • U.S. WM Patients: LLS Co-Pay Funding Available! Financial Assistance up to $7,500

    August 6, 2021 Volume 1 Issue 19

    Top Stories

    • Dr. Morie Gertz of the Mayo Clinic, Rochester, MN Discusses Hot Topics
    • WMUK Webinar: Bing Neel Syndrome, August 9, 2021 from 11:00AM – 12:00PM BST (UK)
    • Lymphoma Research Foundation Webinar: Caregiving for a Loved One With Lymphoma,August 19, 2021 at 2:00PM U.S. EDT
    • WM Chair Yoga – Continued Series! Join us Mondays in August at 2:00PM U.S. ET

    July 23, 2021 Volume 1 Issue 18

    Top Stories

    • Young Investigators Making a Difference in WM Research to be Recognized at this Year’s Virtual Educational Forum
    • Replay Available! ASCO Highlights with Dr. Sheeba K. Thomas.
    • Registration Open! LLS Virtual National Blood Cancer Conference. Saturday, September 18th at 11:30AM U.S. ET
    • Recording Available-Triage Cancer Webinar Emotional Overload: The Impact of a Cancer Diagnosis and Strategies for Self-Care
    • U.S. WM Patients: LLS Co-Pay Program Reopened!

    July 16, 2021 Volume 1 Issue 17

    Top Stories

    • IWMF Earns Coveted 4-Star Rating From Charity Navigator…Four Years in a Row!
    • International Young WM Support Session – July 19th, from 7:30PM-8:30PM U.S. EDT

    July 9, 2021 Volume 1 Issue 16

    Top Stories

      • IWMF WhiMSICAL Registry Abstract for ASH – Include YOUR WM Patient Voice by July 12th!
      • Triage Cancer Webinar – Emotional Overload: The Impact of a Cancer Diagnosis & Strategies for Self-Care
      • Lymphoma Research Foundation – Virtual National Ask the Doctor About Lymphoma and Clinical Trials
      • Story of Hope – Dr. Barbara Sunderland Manousso:
        Confessions of a Caregiver/Spouse/Ombuds

    July 2, 2021 Volume 1 Issue 15

    Top Stories

    • The July 2021 IWMF Torch (issue 22.3) is Now Online!
    • NEXT WEEK! IWMF Global Educational Webinar
    • WMUK Webinar: Bing Neel Syndrome – August 9, 2021 – 11:00AM – 12:00PM BST (UK)
    • National Institutes of Health (NIH) Online Survey

    June 25, 2021 Volume 1 Issue 14

    Top Stories

    • OVER 500 REGISTERED! IWMF Global Educational Webinar – July 9, 2021 at 1:30PM U.S. EDT
    • OWMUK Webinar: Clinical Trials – July 5, 2021
    • Triage Cancer Webinar – Emotional Overload: The Impact of a Cancer Diagnosis & Strategies for Self-Care
    • WhiMSICAL Registry Update: Help Us Reach Our Goal!
    • Young WM Support Session – July 19th

    June 11, 2021 Volume 1 Issue 13

    Top Stories

    • Cancer Legal Resource Center Webinar: Advanced Planning for People with Cancer June 17th
    • Recording Available! WhiMSICAL Registry Update
    • CanCope: Online Wellbeing Programs to Support Cancer Survivors After Treatment
    • Board Member of WMFC Raised Over $32,000 Walking for WM Research
    • Leukemia & Lymphoma Society U.S. National Patient Registry Update
    • Leukemia & Lymphoma Society Re-Opening of Patient Travel Assistance Fund

    May 28, 2021 Volume 1 Issue 12

    Top Stories

    • The IWMF is excited to share that we have a new platform host for our Virtual Events
    • Sick & Tired of Feeling Sick & Tired? RECORDING NOW AVAILABLE! IWMF Fatigue Support Session
    • WM Chair Yoga – Continued Series!

    May 21, 2021 Volume 1 Issue 11

    Top Stories

    • The IWMF is excited to share that we have a new platform host for our Virtual Events
    • THIS SUNDAY! FREE Mayo Clinic WM Patient Symposium
    • Lymphoma Research Foundation Ask the Doctor Session: Watch and Wait
    • Sick & Tired of Feeling Sick & Tired? RECORDING NOW AVAILABLE! IWMF Fatigue Support Session
    • U.S. Patient Financial Assistance Opportunity Patient Access Network (PAN) Foundation
    • Leukemia & Lymphoma Society Reopening of U.S. Patient Aid Program

    May 14, 2021 Volume 1 Issue 10

    Top Stories

    • IWMF Grant Spurs New Diagnostic Test for WM
    • THIS SUNDAY, May 16th! Bing-Neel Syndrome International Support Group
    • Sick & Tired of Feeling Sick & Tired? RECORDING NOW AVAILABLE! IWMF Fatigue Support Session
    • NEW PROGRAM: Young WM Support Session Coming Summer 2021!

    May 7, 2021 Volume 1 Issue 9

    Top Stories

    • May 6th – May 12th is National Nurses Week
    • Recording Available! Importance of Physical Activity in Preventing and Managing Chronic Disease
    • Replay Available! Living with Peripheral Neuropathy: No Easy Feat
    • Next Week! WMUK Webinar: WM & Mental Health
    • Reminder to Register Mayo Clinic WM Patient Symposium

    April 30, 2021 Volume 1 Issue 8

    Top Stories

    • Next Week! IWMF Global Educational Webinar
    • DEADLINE TO REGISTER IS MAY 1st! Free Online Conference for U.S. Patients
    • WMUK Webinar Monday, May 17, 2021
    • Rare Patient Voice: Now Accepting Residents From ALL Countries!

    April 23, 2021 Volume 1 Issue 7

    Top Stories

    • National Volunteer Week
    • Help WMF Canada Petition for Approval of Use of Zanubrutinib for WM Patients in their Country
    • Get Moving on Mondays in May! FREE Chair Yoga Sessions for the WM Community
    • Bing-Neel Syndrome International Support Group Sunday, May 16th/li>
    • Recording Available STEP INTO SPRING with Stacy Kennedy, MPH, RD, CSO, LDN!
    • Recording Available CancerCare Connect® Education Workshop Progress in the Treatment of WM
    • Over 450 Registered! IWMF Global Educational Webinar May 4, 2021 at 1:30PM U.S. ET

    April 2, 2021 Volume 1 Issue 4

    Top Stories

    • The April 2021 IWMF Torch (issue 22.2) is Now Online!
    • WMUK Cardiology Webinar with Dr. Chris Critoph
    • LLS Program: Blood Cancer Care & COVID-19

    March 26, 2021 Volume 1 Issue 3

    Top Stories

    • Story of Hope Sara Waits: Ten Lives and Counting
    • Save The Date Bing-Neel Syndrome International Support Group Sunday, May 16th /li>
    • NEXT WEEK! Ask the Doctors LIVE: WM and the COVID Vaccine
    • Presenting New and Revised IWMF Publications
    • LLS Program: New Treatments in WM featuring Dr. James Gerson and IWMF Patient Panel
    • LLS Program: WM Update featuring Dr. Steven Treon & Dr. Daren Grosman Saturday, April 10, 2021
    • Participate in LLS COVID-19 Antibody Research Study (U.S. Patients)

    March 12, 2021 Volume 1 Issue 2

    Top Stories

    • OVER 550 Registrants! IWMF Global Educational Webinar Wednesday, March 31st at 11:30am U.S. ET
    • CancerCare Connect® Education Workshop Progress in the Treatment of WM Wednesday, April 21st
    • Video of Dr. Richard Furman available from North America Support Group Leader Call on 3/3/21
    • New Options for Diffuse Large B-Cell Lymphoma (DLBCL)
    • The Leukemia & Lymphoma Society Launches New Financial Assistance Program (U.S. Patients Only)
    • New from Triage Cancer: Legal & Financial Navigation Program

    February 18, 2021 Volume 1 Issue 1

    Top Stories

    • The Leukemia & Lymphoma Society Launches National Patient Registry to Answer Crucial COVID-19 Questions for Blood Cancer Patients (U.S. Patients Only)
    • Upcoming Support Group Meetings

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