The 2024 European WM Patient Forum
By Hannah Syed, IWMF Global Partner Engagement Consultant IWMF collaborated with WMUK to host the second European WM Patient Forum on Saturday, 21 September 2024, in London, UK. The event brought together patients, carers, healthcare professionals, and researchers...
Professional Education: Advancing the IWMF Mission
By Debra Entin, MS, RN, CPNPIWMF Consultant, Professional Education What is “professional education? Professional education at the International Waldenstrom’s Macroglobulinemia Foundation (IWMF) refers to educational programming targeted to healthcare professionals...
IWWM-12 Accelerates the Cure
By Carl Harrington, IWMF Trustee, Chair Emeritus, and Vice Chair, Fundraising, and Jennifer Reilly, Medical Writer for Scientific Education Support (SES) Carl Harrington and Jennifer Reilly’s article “IWWM-12 Accelerates the Cure” shares the...
Pleural Effusions in WM: Pathogenesis, Clinical Presentation, & Management
By Prof. Shirley D’sa,University College London Hospitals, NHS Foundation Trust Emerging therapies show promise for treating pleural effusion, a complication of WM, according to Professor Shirley D’Sa, Professor of Haematology at University College London...
QIGONG FOR MENTAL HEALTH with Donna DeLuca
Thursday, Jan 30, 1-2:30 pm ET Cancer patients face exceptional psychological stresses. Medical situations can generate fear and sadness, anxiety, and depression. Medications and/or treatments can exacerbate emotional states. On top of that, they may face ongoing...
Recording Available! IWMF Webinar: Recent Developments in AL Amyloidosis
IWMF Webinar Recording Now Available Join Martin Vanderlaan (IWMF LIFELINE Volunteer) and Dr. Raymond Comenzo (Tufts University Medical Center) as they discuss recent developments in AL Amyloidosis, a potential complication of Waldenstrom’s macroglobulinemia....
Measuring Quality of Life in WM & Other “Tired” Topics with Dr. Shirley D’Sa
Measuring Quality of Life in WM & Other “Tired” Topics with Dr. Shirley D’Sa Friday November 22nd 11am ET / 4pm GT REGISTER NOW Join Dr. Shirley D’Sa to learn more about her involvement recent research of wearable technology to measure the experience of...
Make YOUR Voice Heard with the WM-VOICE Study
WM-VOICE study: Patient preferences on treatment options for Waldenström macroglobulinemia: An international discrete choice experiment. Study details: The WM-VOICE study is scientific research about Waldenström macroglobulinemia (WM). The study focuses on what...
Waldenström Finland Summer Summit 2024 – Helsinki
Waldenström Finland Summer Summit 2024 – Helsinki By Jukka Sneck, Waldenström Finland From IWMF Torch October 2024 We had our annual face-to-face meeting on Saturday, August 24. The meeting took the whole day. Our association was founded five years ago, and this was...