Peter DeNardis – IWMF Trustee, 2018 Ed Forum
Provides sources of information from IWMF for patients with WM and their families, including the IWMF website, the IWMF Facebook page, the closed WM Facebook support page, IWMF Connect, e-News for those who join IWMF, emails, support groups, international affiliates, Lifeline (one on one support by subject matter), publications written specifically for patients with WM and their families, Physicians Directory (medical experts in WM from around the world), research information on WM, Stories of Hope, fundraising for the IWMF, crowdfunding, financial assistance resources
Carl Harrington, IWMF President, 2019 Ed Forum
Welcomes everyone to the 24th IWMF Educational Forum and discusses the differences in number of members of the IWMF, #’s of treatments available, and life expectancy in 1994-98 vs. 2019. Also discussed are IWMF sponsored research, IWMF support groups, and international affiliates.
The IWMF is here to help you! Peter DeNardis, Board Member of the IWMF talks about what it is like to be diagnosed with Waldenstrom’s macroglobulinemia and how the Foundation helps everyone affected by the disease through its efforts to promote awareness, provide education and support, and fund research directed to finding better treatments and a cure for WM.