News

By Kat Tucker, WMUKEarlier this spring, WMUK was proud to launch the Active Monitoring Checklist—a resource to help both patients and healthcare professionals navigate conversations around Active Monitoring (AM) and improve care during this period of time for people...

By Sue Herms, IWMF Research Committee MemberLong-Term Results Published from French Clinical Trial of Bendamustine and Rituximab Therapy in Treatment Naïve WM – The British Journal of Haematology has published an update with long-term results from the 2013- 2017...

By Dr. Tom Hoffmann IWMF Vice Chair for ResearchAs we all know, very few doctors are aware of Waldenstrom macroglobulinemia (WM), much less know about the treatments for it. When primary care physicians finish their training after four years of medical school plus 2-4...

WM-NET Update - April 2024Thanks to the incredible generosity of our IWMF donor community, we are happy to announce that we met the $100,000 Hamberg Family WM-NET Challenge in just 10 days! Over 30 physicians, WM researchers, pharma industry representatives and IWMF...

Volunteer Spotlight: Craig PrizantIWMF is grateful for our volunteers who dedicate countless hours and contribute their unique talents to support our community. From time to time, we will spotlight volunteers and give you the opportunity to get to know them. This...

Reiki for Cancer Care with Sharon Rivet, E-RYT 500 Thursday June 27th 1pm EDT Description: Want to find out how reiki can support your cancer journey? Join Usui Reiki Master Teacher Sharon Rivet to learn more about this holistic healing system. Reiki is currently...

The IWMF is proud of our financial assistance program in partnership with The National Organization for Rare Disorders (NORD)!The IWMF Travel & Lodging (T&L) Assistance Program has been providing individuals diagnosed with WM, or those being evaluated for the...

Another Successful IWMF Ed Forum in the Books!On behalf of the Educational Forum Planning Committee, the IWMF Board of Trustees, and the IWMF Staff, we want to express our heartfelt gratitude for your participation in the 2024 Ed Forum over the past several days. Your...

The GIVING CHALLENGE 2024 THANK YOU FOR YOUR HELP!2024 Giving Challenge: A 24-Hour SUCCESS IWMF is sending a BIG THANK YOU to all who participated in the 2024 Giving Challenge! We are very grateful to our 667 generous donors, and a special thank you to our 17 triple...

IWMF Vice-Chair of Information & Support Featured in LLS VideoHave you ever wondered: How can I live full of hope in the shadow of an incurable disease? So does Lisa Wise, IWMF Vice-Chair of Information & Support! That was the question she submitted...

IWMF Torch April 2024Read the IWMF Torch, our magazine, covers the latest information on Waldenstrom’s macroglobulinemia education, research activities, and treatments. Browse our regular features including articles written especially for the IWMF Torch by WM...

What is World Awareness Day? On Wednesday, April 17, 2024, we will campaign alongside our global partners and community to raise awareness, raise funds, and be counted as part the Waldenstrom’s Macroglobulinemia (WM) global community. Why is it important? WM is a rare...

Great news! Dr. Shirley D’Sa and Professor Marie José Kersten have graciously answered YOUR unanswered questions from last October's European Patient Forum! Stay tuned to find out about the 2024 European WM Patient Forum! Exciting announcements are coming soon!

Lymphoma and CLL are different than most other types of cancer, so the experience of living with these diseases is also unique. To better understand and help those affected by lymphoma, the Lymphoma Coalition, a worldwide network of lymphoma patient organizations,...

U.S. Food and Drug Administration (FDA) Approves a Label Expansion for IMBRUVICA® (ibrutinib) On February 26th, Johnson & Johnson, in collaboration with its alliance partner, Pharmacyclics LLC, an AbbVie Company, announced that the U.S. Food and Drug...

Don’t Miss Your chance to Join Us!May 3-5, 2024 With a packed agenda featuring WM experts from around the world, this conference promises to be a valuable opportunity for learning and networking. Whether you are recently diagnosed or have been living with WM for a...

With nearly 3 million active monthly users, Facebook is a great place to raise money and awareness for causes like the IWMF.   Creating a Facebook fundraiser is an easy way to raise money for the IWMF because the setup is simple and cost-effective. In addition to...

Recording Available! Nutrition: Fuel for Your BodyRecently, the IWMF Oregon & SW Washington Support Group met with Margaret Martin, RD, Manager of Nutrition Education for the Leukemia & Lymphoma Society (LLS). The presentation topic was Nutrition: Fuel for...

IWMF Mourns Death of Board Member, Glenn CantorWe are deeply saddened to announce the passing of Board Member and long-time volunteer, Glenn Cantor. Glenn passed away unexpectedly due to an accident while on vacation. Peter DeNardis, Chair of the IWMF Board of...

IWMF Launches Accelerate the Cure Campaign on Rare Disease DayFOR IMMEDIATE RELEASE February 29, 2024 IWMF Launches Accelerate the Cure Campaign on Rare Disease Day The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is leaping into the future of...

Research Study Outcomes for Caregivers Online Educational Resource for CaregiversThe Healthy Communication Practice™ program is an online educational resource created to support blood cancer caregivers that was funded by The Leukemia & Lymphoma Society and...