NORD Breakthrough Summit 2025
From VOICES to BREAKTHROUGHS NORD® Breakthrough Summit 2025 October 19–21 | Washington, DC With Cyndi Powers, CMP This past week, I had the privilege of attending the NORD® Breakthrough Summit in Washington, DC, for the third time. Hosted by the National Organization...
Welcome Delora Senft as the New President & CEO of IWMF
We’re excited to share that Delora Senft will be joining International Waldenstrom’s Macroglobulinemia Foundation (IWMF) as our new President and CEO on August 18. A Proven Leader in Cancer Research and Advocacy Delora brings more than ten years of experience from her...
Into the world—Welcome Bexobrutideg!
Accelerate the Cure Into the world—Welcome Bexobrutideg!We recently wrote about a new type of drug—a BTK degrader— that emerged in 2024, for phase one trials at Nurix Therapeutics and BeOne. The Nurix trial earned FDA fast-track status in December. In a short three...
Discover the 2024 IWMF Annual Report – Progress, Hope, and a Path to a Cure
If you have Waldenstrom’s macroglobulinemia (WM), care for someone who does, or simply believe in the power of research, you’ll want to read the 2024 IWMF Annual Report. This year’s report highlights how the International Waldenstrom’s Macroglobulinemia Foundation...
The Next Big Thing? Protein BTK Degraders
We are encouraged and excited to share ground-breaking news from Nurix Therapeutics, a pharmaceutical partner in WM-NET, our growing network of 22 US research institutions coordinating Waldenstrom's macroglobulinemia (WM) clinical trials, supported by Accelerate the...
Thank You! The 2025 WM Giving Challenge.
Thank You for Helping Us Accelerate the Cure!A big thank-you to everyone in the IWMF community who supported Accelerate the Cure during our Global Challenge Research Tour! We had 1,291 people visit a research lab during the Tour. About 25% of them used our French,...
2025 IWMF Ed Forum Speakers Announced
We’re excited to announce the great lineup of speakers for the 2025 Educational Forum! If you support the Accelerate the Cure Campaign, this is the event for you. Attending an IWMF Ed Forum shows IWMF's unique strength in building community while focusing on cancer...
Recording Available! IWMF Webinar: Recent Developments in AL Amyloidosis
IWMF Webinar Recording Now AvailableJoin Martin Vanderlaan (IWMF LIFELINE Volunteer) and Dr. Raymond Comenzo (Tufts University Medical Center) as they discuss recent developments in AL Amyloidosis, a potential complication of Waldenstrom’s macroglobulinemia....
Waldenström Finland Summer Summit 2024 – Helsinki
Waldenström Finland Summer Summit 2024 – HelsinkiBy Jukka Sneck, Waldenström Finland From IWMF Torch October 2024We had our annual face-to-face meeting on Saturday, August 24. The meeting took the whole day. Our association was founded five years ago, and this was our...
IWMF Commits To Largest Research Package Since Inception!
IWMF Commits to Largest Research Package Since Inception!From IWMF Torch, October 2024 IWMF is making outstanding progress in the search for a cure. “Once we do a better job at shutting down the signaling of that mutated MYD88 gene, we will find that cure,” says Dr....
A Journey of Resilience: A 31-Year Battle with WM
A Journey Of Resilience: A 31-Year Battle with WMBy Art Brewerfrom the IWMF Torch, October 2024 On January 1993, Catherine Callahan received a diagnosis of Waldenstrom’s macroglobulinemia (WM) that would change her life. At the time, the prognosis for...
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