Waldenstrom Unplugged: A New Podcast Bringing Expert Insight and Lived Experience to the WM Community
The IWMF is pleased to announce the launch of Waldenstrom Unplugged: Words Matter, a new podcast bringing together expert clinical insight and lived patient experience to make Waldenstrom macroglobulinemia (WM) clearer, less isolating, and easier to navigate.
Our Podcast Hosts Know the WM Landscape
Hosted by Professor Shirley D’Sa, a leading WM specialist at University College Hospital in London, and Bob Perry, a WM patient and advocate, the podcast offers an engaging and often lighthearted conversation about the realities of living with WM.
Shirley brings decades of clinical experience and a deep understanding of WM, while Bob brings the perspective of someone who has lived with the disease and supported others in the WM community. Together, they explore topics ranging from diagnosis and treatment to the language we use when talking about WM and the everyday experience of living with a rare cancer.
And while the conversations tackle serious and sometimes difficult subjects, listeners will also discover the genuine rapport, warmth, and humor that Shirley and Bob bring to their discussions.
New Episodes Every Month
New episodes of Waldenstrom Unplugged: Words Matter are released on the 15th of each month and are available through the major podcast platforms.
Listen to Waldenstrom Unplugged: Words Matter
Whether you are newly diagnosed, living with WM, supporting someone who is, or simply looking to better understand this rare condition, we invite you to listen, share, and join the conversation.
Have a general question or topic you’d like Shirley and Bob to address? Send it to PR@iwmf.com. Your question may become part of a future episode. Remember to keep your questions broad and educational rather than sharing specific medical details.
The information in this podcast is for educational purposes, and does not substitute for professional medical advice.
Waldenstrom Unplugged: Words Matter is brought to you by the International Waldenstrom Macroglobulinemia Foundation (IWMF), dedicated to supporting and educating everyone affected by WM while advancing the search for better treatments and, ultimately, a cure.
The IWMF is grateful to Bob and Shirley for their time and dedication to the WM community. For people living with a rare disease, finding others who truly understand the experience can be challenging. Waldenstrom Unplugged: Words Matter creates another way for members of the WM community to connect with information, perspective, and one another.