26th Annual IWMF Educational Forum.
IMAGINE A CURE: A WORLD WITHOUT WM
OCTOBER IS ED FORUM MONTH
The 2021 Ed Forum will be a completely virtual event. We are disappointed that we will not meet together in October, but the safety and health of our participants and faculty is the number one priority. We are excited to announce an entire month of educational workshops in October 2021, culminating in our Virtual Educational Forum. These workshops are for all members of the WM community – from newly diagnosed patients, to 25+ year WM veterans, and everyone in-between. These workshops, led by top WM physicians and researchers, will help lay the educational groundwork for a two-day Virtual Educational Forum. Check back for agenda and other program updates.
Understanding WM Workshop
6
Oct 2021
11:00 AM ET
Welcome and Opening Remarks – Lisa Wise, IWMF Trustee
11:00 AM - 11:40 AM ET
11:40 AM - 12:00 PM ET
WM & Basic Terminology - Jeffrey Matous, MD
Getting to know the WM basics will benefit newly diagnosed patients and veteran WMers alike with a refresher course on WM and an explanation of diagnosis, symptoms, and some simple treatment guidelines.
12:00 PM - 12:30 PM ET
Break
12:30 PM ET
Welcome & Introduction – Bonnie Beckett
12:30 PM - 1:10 PM ET
1:10 PM - 1:30 PM ET
Understanding Your Blood & Bone Marrow Tests - Rafat Abonour, MD
“Understanding Your Blood and Bone Marrow Test Results” will describe the blood and bone marrow tests used to help diagnose WM, as well as explain and interpret the typical tests used by healthcare providers to monitor the disease status of their WM patients.
1:30 PM - 2:00 PM ET
Break
12:30 PM ET
Welcome & Introduction – Eileen Sullivan
2:00 PM - 2:40 PM ET
2:40 PM - 3:00 PM ET
Genomics/Science of WM - Sikander Ailawadhi, MD
Making sense of the science of WM sets out a framework for patients to understand the basic genetic concepts behind the mutations that are important in WM, to appreciate the ways in which these mutations impact the signaling systems that control the behavior of WM cells, and to recognize how these mutations are changing the landscape of therapies for WM.
WM & SELF-CARE WORKSHOP
13
Oct 2021
11:00 AM ET
Welcome and Opening Remarks – Julie Richardson
11:00 AM - 11:40 AM ET
11:40 AM - 12:00 PM ET
Dealing with the Stress of Medical Uncertainty - Julie Larson, LCSW
Living in the shadow of an incurable but treatable diagnosis like WM can sometimes feel daunting. Finding the balance between monitoring your health responsibly and living life freely and fully can be a tricky dance. How do you find the courage and clarity to celebrate today when you have no guarantees of a healthy tomorrows?
12:00 PM - 12:30 PM ET
Break
12:30 PM ET
Welcome & Introduction – Paula Eastmond
12:30 PM - 1:10 PM ET
1:10 PM - 1:30 PM ET
WM & Fatigue - Larisa Patacchiola, LICSW
An overview of cancer related fatigue presented in a way that is meaningful to WM patients. A discussion about how cancer-related fatigue and its impact on quality of life, contributing factors that can add to fatigue, and the ways in which fatigue can be managed.
1:30 PM - 2:00 PM ET
Break
2:00 PM ET
Welcome & Introduction – Megan Mangin, Trustee
2:00 PM - 2:40 PM ET
2:40 PM - 3:00 PM ET
Supporting Your Immune System - Andrew Branagan, MD
Many WM patients struggle with a weakened immune system and may be at a greater risk to acquire anything from colds to stomach bugs. This presentation will explore different strategies and tips to strengthen and protect the immune system.
2021 VIRTUAL EDUCATIONAL FORUM – DAY 1
28
Oct 2021
11:00 AM - 11:20 AM ET
Welcome from IWMF Chair Peter DeNardis
Ben Rude Heritage Society – Laurie Rude-Betts, Newton Guerin, Jeremy Dictor
Judith May Volunteer Award – Peter DeNardis & Michael Farbman
11:20 AM ET
Welcome & Introduction – Shirley Ganse, Trustee
11:20 AM - 12:00 PM ET
12:00 PM - 12:20 PM ET
Current Treatment Options - Stephen Ansell, MD
A concise and informative review of current treatments along with the pros and cons of each.
12:20 PM - 1:00 PM ET
Break
1:00 PM ET
Welcome & Introduction – Sharon Rivet
1:00 PM - 1:40 PM ET
1:40 PM - 2:00 PM ET
Novel Treatments on the Horizon and the Importance of Clinical Trials for Drug Development - Jorge Castillo, MD
The latest information available about potential new treatments for WM, as well as the necessity for patient participation in clinical trials to help move the pipeline along for more novel therapies.
1:30 PM - 2:00 PM ET
Break
Mini general sessions: 30-minute basics overview on each topic immediately followed by 10 minute Q&A
2:30 PM - 2:35 PM ET
Welcome & Introduction – Bob Perry, WMUK
2:35 PM - 3:15 PM ET
WM & Peripheral Neuropathy - Shirley D’Sa, MD
Learn about different coping strategies and treatment options for those living with the pain and challenges of peripheral neuropathy. This session will address the differences between WM-caused PN versus treatment-caused PN
3:15 PM - 3:55 PM ET
WM & the EYE - Maureen Hanley, OD
An insight into normal aging versus WM-related eye issues, such as retinal changes with WM and the risks for dry eye, cataracts, and glaucoma
3:55 PM - 4:35 PM ET
WM & Dermatology - Kate Mimken, NP
An overview of the variety of dermatologic conditions that sometimes affect WM patients. Learn how to differentiate those problems that are a result of the disease itself and those which are often associated with treatments.
2021 VIRTUAL EDUCATIONAL FORUM – DAY 2
29
Oct 2021
9:00 AM ET
Walk for Waldenstrom’s – Jeremy Dictor
11:00 AM - 11:05 AM ET
Welcome and Announcements – Newton Guerin
Dr. Robert A Kyle Career Development Award – Carl Harrington
11:00 AM - 11:05 AM ET
Welcome and Announcements – Carl Lisman, Trustee
11:15 AM - 11:55 AM ET
11:55 AM - 12:15 PM ET
Familial WM - Mary Lou McMaster, MD
Many people with WM have other relatives with WM, MGUS, or related blood cancers. The question of whether WM is “inherited” is a complicated one. Dr. Mary Lou McMaster (from the National Institutes of Health) will share her many years of research on the nature of familial factors in WM. She will clarify what is meant by “familial” as opposed to “genetic predisposition.” She will also discuss the role that environmental factors can play.
12:15 PM - 12:45 PM ET
Break
12:45 PM ET
Welcome and Announcements – Paul Kitchen, Trustee
12:45 PM - 1:25 PM ET
1:25 PM - 1:45 PM ET
Recommendations from the International WM Consensus Panel Committee - Jeffrey Matous, MD, Shirley D’Sa, MD
Hear about updated treatment guidelines for WM created by a consortium of international WM specialists based on a review of 2018 – 2020 content.
1:45 PM - 2:15 PM ET
Break
2:15 PM ET
Welcome and Introduction – Newton Guerin
11:15 AM - 11:55 AM ET
11:55 AM - 12:15 PM ET
Ask the Doctors: Live Panel with Q&A - Dr. Steven Treon moderating
Panelists: Drs. Ansell, Branagan, McMaster, Castillo
A panel of WM experts will answer, and sometimes debate, questions about WM from the Ed Forum audience.