27th Annual IWMF Virtual Educational Forum
The 27th Annual IWMF Educational Forum provides a unique opportunity to learn and connect with and from one another. The 2022 Virtual Ed Forum brings WM specialists, clinicians, researchers, patients, and caregivers together. A two-day program features pertinent and timely information related to symptoms and complications of WM, current treatment options, new therapies, and life topics that align with this year’s Ed Forum theme: Living, Learning, and Thriving with WM. This year’s Educational Forum will concluded with our popular “Ask the Doctors” question-and-answer session.
IWMF Ed Forum Full Agenda
IWMF ED FORUM DAY ONE
August
27
11AM – EDT
Welcome Announcements
”Getting to Know Your WM Experts” video
Peter DeNardis
IWMF Chair of the Board
11:20AM – 12:20PM EDT
The WM Garden Talk Revisited – Q&A
Dr. Morie Gertz
Mayo Clinic Rochester, Minnesota
12:20PM – 1:20PM EDT
Current Treatment Options and New Therapies on the Horizon – Q&A
Dr. Jeffrey Matous
Colorado Blood Cancer Institute
1:20PM – 3:20PM EDT
Join hosted community conversations during the Ed Forum at your convenience
1:20PM – 2:20PM EDT
Panel: The Patient Perspective on WM Topics:
Participating in Clinical Trials
Ron Ternoway
Co-Leader, IWMF Affiliate Support Group, Halifax, Nova Scotia
Being Your Own Best Advocate
Marcia Klepac, RN, D. Ed
Retired nurse/health educator & 21 year WM survivor
Living Well with WM
Susanne Ohrn
WM Skandinavien, Founder/Leader
Q & A
Peter DeNardis
IWMF Chair of the Board
2:20PM – 3:20PM EDT
Getting a Second Opinion: Challenges and Benefits – Q&A
Dr. Mary Kwok
Seattle Cancer Care Alliance
3:20PM – 4:20PM EDT
Everything You Want to Know About BTK Inhibitors: Do’s and Don’ts – Q&A
Dr. Jorge Castillo
Dana-Farber Cancer Institute, Boston
IWMF ED FORUM DAY TWO
August
28
11AM – EDT
Welcome Announcements
“What Having WM Means to Me” video
Judith May Volunteer Award Presentation
Newton Guerin
IWMF President & CEO
Peter DeNardis
Marcia Klepac
11:35AM – 12:35PM EDT
Cancer & Mental Health Are Hard: How Are You Doing? – Q&A
Jennifer Bires, MSW, LCSW, OSW
Inova Schar Cancer Institute, VA
12:35PM – 1:35PM EDT
Unusual Complications of WM: Concerns and Best Practices – Q&A
Dr. Stephen Ansell
Mayo Clinic, Rochester, MN
1:35PM – 3:35PM EDT
Join hosted community conversations during the Ed Forum at your convenience
1:35PM – 2:35PM EDT
Multi-Omics for Individualizing WM Treatment – Q&A
Dr. Steven Treon
Dana-Farber Cancer Institute, Boston
2:35PM – 4:05PM EDT
Ask the Doctors LIVE with Q&A Panel
Dr. Thomas Hoffmann
IWMF Trustee & Vice-Chair for Research
Dr. Steven Treon
Dana-Farber Cancer Institute, Boston
Dr. Stephen Ansell
Mayo Clinic, Rochester, MN
Dr. Monique Minnema
Academic Medical Center, Amsterdam & the University Medical Center, Utrecht
Dr. Christian Buske
Comprehensive Cancer Center & the Institute of Experimental Cancer Research at the University Ulm
4:05PM EDT
2022 Educational Forum Closing
Newton Guerin
IWMF President & CEO