IWMF 2022 Virtual Educational Forum Agenda

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27th Annual IWMF Virtual Educational Forum

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The 27th Annual IWMF Educational Forum provides a unique opportunity to learn and connect with and from one another. The 2022 Virtual Ed Forum brings WM specialists, clinicians, researchers, patients, and caregivers together. A two-day program features pertinent and timely information related to symptoms and complications of WM, current treatment options, new therapies, and life topics that align with this year’s Ed Forum theme:  Living, Learning, and Thriving with WM. This year’s Educational Forum will conclude with our popular “Ask the Doctors” question-and-answer session. 

IWMF Ed Forum Full Agenda


AUG 27

11:00AM EDT


Welcome Announcements
”Getting to Know Your WM Experts”  video

The WM Garden Talk Revisited – Q&A


Peter DeNardis
IWMF Chair of the Board

Dr. Morie Gertz
Mayo Clinic Rochester, Minnesota

12:20PM – 1:20PM EDT

Current Treatment Options and New Therapies on the Horizon – Q&A

Dr. Jeffrey Matous
Colorado Blood Cancer Institute

1:20PM – 3:20PM EDT

Join hosted community conversations during the Ed Forum at your convenience

1:20PM – 2:20PM EDT

Panel: The Patient Perspective on WM topics:

  • Participating in Clinical Trials

Ron Ternoway
Co-Leader, IWMF Affiliate Support Group, Halifax, Nova Scotia

  • Being Your Own Best Advocate

Marcia Klepac, RN, D. Ed
Retired nurse/health educator & 21 year WM survivor

  • Living Well with WM

Susanne Ohrn
WM Skandinavien, Founder/Leader

  • Q&A

Ron Branscome
IWMF, Vice-Chair, Fundraising


2:20PM – 3:20PM EDT

Getting a Second Opinion:  Challenges and Benefits – Q&A

Dr. Mary Kwok
Seattle Cancer Care Alliance

3:20PM – 4:20PM EDT

Everything You Want to Know About BTK Inhibitors:  Do’s and Don’ts – Q&A

Dr. Jorge Castillo
Dana-Farber Cancer Institute, Boston


AUG 28

11:00AM EDT


Welcome Announcements
”What Having WM Means to Me”  video

Judith May Volunteer Award Presentation


Newton Guerin
IWMF President & CEO

11:35AM – 12:35PM EDT

Cancer and Mental Health are Hard:  How Are You Doing? – Q&A

Jennifer Bires, MSW, LCSW, OSW
Inova Schar Cancer Institute, VA

12:35PM – 1:35PM EDT

Unusual Complications of WM:  Concerns and Best Practices – Q&A

Dr. Stephen Ansell
Mayo Clinic, Rochester, MN

1:35PM – 3:35PM EDT

Join hosted community conversations during the Ed Forum at your convenience

1:35PM – 2:35PM EDT


Multi-Omics for Individualizing WM Treatment – Q&A

Dr. Steven Treon
Dana-Farber Cancer Institute, Boston

2:35PM – 4:05PM EDT

Ask the Doctors Live Q&A Panel

Dr. Thomas Hoffmann
IWMF Trustee & Vice-Chair for Research

Dr. Steven Treon
Dana Farber Cancer Institute, Boston

Dr. Stephen Ansell
Mayo Clinic, Rochester, MN

Dr. Monique Minnema
Academic Medical Center, Amsterdam & the University Medical Center, Utrecht

Dr. Christian Buske
Comprehensive Cancer Center & the Institute of Experimental Cancer Research at the University Ulm

4:05PM EDT

2022 Educational Forum Closing

Newton Guerin
IWMF President & CEO

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