26th Annual IWMF Educational Forum
IMAGINE A CURE: A WORLD WITHOUT WM
The 2021 Ed Forum will be a completely virtual event. We are excited to announce an entire month of educational workshops in October 2021, culminating in our Virtual Educational Forum. These workshops are for all members of the WM community – from newly diagnosed patients, to 25+ year WM veterans, and everyone in-between. These workshops, led by top WM physicians and researchers, will help lay the educational groundwork for a two-day Virtual Educational Forum. Check back for agenda and other program updates.
IWMF Ed Forum Workshops and Ed Forum Days
2021 VIRTUAL EDUCATIONAL FORUM – DAY 1
28
October
11:00 AM - 11:10 AM ET
11:10 AM – 11:20 AM ET
Welcome from Peter DeNardis, IWMF Chair
Ben Rude Heritage Society
-
Laurie Rude-Betts
Judith May Volunteer Award- Peter DeNardis, IWMF Board Chair and Michael Farbman
11:20 AM ET
Welcome and Introduction – Peter DeNardis, IWMF Board Chair
11:20 AM – 12:00 PM ET
12:00 PM – 12:20 PM ET
Q&A
Current Treatment Options - Stephen Ansell, MD
A concise and informative review of current treatments along with the pros and cons of each.
12:20 PM – 1:00 PM ET
BREAK
1:00 PM ET
Welcome and Introduction – Sharon Rivet, Ed Forum Planning Committee Member
1:00 PM -1:40 PM ET
1:40 PM – 2:00 PM ET
Q&A
Novel Treatments on the Horizon and the Importance of Clinical Trials for Drug Development - Jorge Castillo, MD
The latest information available about potential new treatments for WM, as well as the necessity for patient participation in clinical trials to help move the pipeline along for more novel therapies.
2:00 PM – 2:30 PM ET
BREAK
Mini general sessions: 30-minute basics overview on each topic immediately followed by Q&A
2:30 PM - 2:35 ET
Welcome and Introduction – Overview of Mini-General Sessions – Bob Perry, WMUK
2:35 PM – 3:15 PM ET
WM & Peripheral Neuropathy (with 10 minute Q&A) - Shirley D’Sa, MD
Learn about different coping strategies and treatment options for those living with the pain and challenges of peripheral neuropathy. This session will address the differences between WM-caused PN versus treatment-caused PN.
3:15 PM – 3:55 PM ET
WM & Dermatology (with 10 minute Q&A) - Kate Mimken, NP
An overview of the variety of dermatologic conditions that sometimes affect WM patients. Learn how to differentiate those problems that are a result of the disease itself and those which are often associated with treatments.
3:55 PM – 4:25 PM ET
WM & Fatigue - Larisa Patacchiola, LICSW
An overview of cancer related fatigue presented in a way that is meaningful to WM patients. A discussion about how cancer-related fatigue and its impact on quality of life, contributing factors that can add to fatigue, and the ways in which fatigue can be managed.
2021 VIRTUAL EDUCATIONAL FORUM – DAY 2
29
October
9:00 AM ET
11:00 AM – 11:05 AM ET
Walk for Waldenstrom’s
Welcome and Announcements – Carl Harrington, IWMF Chair Emeritus
Dr. Robert A Kyle Career Development Award –
Introduction – Carl Harrington, IWMF Chair Emeritus
Award Presentation- Dr. Tom Hoffmann, IWMF Trustee
Recipients:
Dr. Maria Luisa Guerrera
Dr. Romanos Sklavenitis-Pistofidis
11:20 AM ET
Welcome and Introduction – Carl Lisman, IWMF Trustee
11:20 AM – 12:00 PM ET
12:00 PM – 12:20 PM ET
Q&A
Familial WM - Mary Lou McMaster, MD
Many people with WM have other relatives with WM, MGUS, or related blood cancers. The question of whether WM is “inherited” is a complicated one. Dr. Mary Lou McMaster (from the National Institutes of Health) will share her many years of research on the nature of familial factors in WM. She will clarify what is meant by “familial” as opposed to “genetic predisposition.” She will also discuss the role that environmental factors can play.
12:20 PM – 12:45 PM ET
BREAK
12:45 PM ET
Welcome and Introduction – Paul Kitchen, IWMF Board Trustee and Chair, International Affiliates
12:45 PM – 1:45 PM ET
A Review of NCCN Guidelines for WM -
Steven Treon, MD – Bing Center for Waldenstrom’s Macroglobulinemia
Dr. Treon will review the NCCN guidelines. NCCN is a not-for-profit alliance of 31 leading cancer centers devoted to patient care, research, and education. The NCCN is dedicated to improving and facilitating quality, effective, efficient, and accessible cancer care so patients can live better lives.
1:45 PM – 2:15 PM ET
BREAK
2:15 PM ET
Welcome and Introduction – Tom Hoffmann, MD, IWMF Vice-Chair, Research
2:15 PM – 3:45 PM ET
Ask the Doctors: Live Panel with Q&A - Dr. Steven Treon moderating , Panelists: Drs. Ansell, Branagan, McMaster, Castillo, Buske
A panel of WM experts will answer, and sometimes debate, questions about WM from the Ed Forum audience.
3:45 PM ET
Welcome and Introduction – Steven Treon, MD
3:45 PM – 4:00 PM ET
Advancements Through IWMF-LLS Funded Research - Gwen Nichols, MD
Dr. Gwen Nichols, Chief Medical Officer for the Leukemia and Lymphoma Society, reviews the importance of WM research and progress through IWMF-LLS funded projects.
4:00 PM ET
Closing Announcements & Preview of Ed Forum 2022 – Newton Guerin, IWMF President & CEO
