IWMF Board Chair Paul Kitchen Interviewed by Patient Power

IWMF Board Chair Paul Kitchen Interviewed by Patient Power

 A Cure Within Reach: Paul’s 10-Year Vision for WM At the recent American Society of Hematology (ASH) Annual Meeting in December, IWMF Board Chair Paul Kitchen met with IWMF patient advocacy partner, Patient Power, to share his powerful perspective on how far...
Registration for Our Educational Forums is Open!

Registration for Our Educational Forums is Open!

Save your spot – in Athens, Greece – or in Columbus, Ohio! We’re excited to announce that registration is now open for both 2026 IWMF Educational Forums—bringing together the global Waldenstrom macroglobulinemia (WM) community for education, connection,...
WM-NET.org has launched!

WM-NET.org has launched!

Check out the new site at WM-NET.org A new era for Waldenstrom’s research has arrived! IWMF is thrilled to share the launch of the WM-NET website. This is a national collaboration of 24 leading U.S. academic medical centers advancing translational research and...
The Lowdown on Sugar and Cancer

The Lowdown on Sugar and Cancer

with Kirstin NussgruberThursday, February 12th at 1pm ET Join board-certified nutrition consultant and cancer survivor Kirstin Nussgruber for an evidence-based webinar on the links between sugar and cancer. This session clarifies latest research on how sugar affects...
The “What Ifs” of WM: Adopting a Positive Mindset

The “What Ifs” of WM: Adopting a Positive Mindset

with Deborah KellyThursday, January 22nd at 12pm ET What if it works out? What if it’s all ok? What if something good happens in spite of your WM diagnosis? In this interactive webinar, we’ll meet an inspiring mother of 4 who was diagnosed with Waldenstrom at age 37....
The Joy of Music

The Joy of Music

with Declan CosgroveThursday, Dec 11th at 1pm EST / 6pm GMT There is a strong link between music and physical and mental health. Music can influence hormones, reduce stress, and improve mood. Just listening to music is very restorative – but playing music is...
NORD Breakthrough Summit 2025

NORD Breakthrough Summit 2025

From VOICES to BREAKTHROUGHS NORD® Breakthrough Summit 2025 October 19–21 | Washington, DC With Cyndi Powers, CMP This past week, I had the privilege of attending the NORD® Breakthrough Summit in Washington, DC, for the third time. Hosted by the National Organization...
Accelerating the Cure: IWMF Launches 2026 Research RFPs for WM

Accelerating the Cure: IWMF Launches 2026 Research RFPs for WM

Accelerating the Cure: IWMF Launches 2026 Research RFPs for WM The International Waldenstrom Macroglobulinemia Foundation (IWMF) is pleased to partner with Blood Cancer United (formerly Leukemia & Lymphoma Society) to announce the launch of our 2026 Research...
Into the world—Welcome Bexobrutideg!

Into the world—Welcome Bexobrutideg!

Accelerate the Cure Into the world—Welcome Bexobrutideg! We recently wrote about a new type of drug—a BTK degrader— that emerged in 2024, for phase one trials at Nurix Therapeutics and BeOne. The Nurix trial earned FDA fast-track status in December. In a short three...